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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Leukaemia Care
Chronic neutrophilic leukaemia (CNL) is an extremely rare cancer originating in the bone marrow. Being diagnosed with CNL can be a shock, particularly if you have never heard of it. This booklet has information about CNL: what causes it; who it affects; how it affects your body; symptoms; diagnosis; treatment options. Includes details of further support and information.
Macmillan Cancer Support
Ifosfamide is a chemotherapy drug used to treat different cancers including testicular cancer and some types of soft tissue and bone sarcoma. It may also be used to treat other cancers.This factsheet describes how it is given and the possible side-effects.
Leukaemia Care
Hairy cell leukaemia (HCL) is a blood cancer that affects the lymphocytic (antibody producing) white blood cells produced by the bone marrow. This booklet describes what causes it, who it affects, how it affects your body, the symptoms and diagnosis, and treatment options. It also covers everyday life and HCL and talking about HCL. Includes a glossary of terms and details of useful contacts and further support.
Macmillan Cancer Support
This booklet is for men who may be having tests for prostate cancer; these may be diagnostic (DRE, PSA, PCA3, TRUS, biopsy, MRI) or tests that may be carried out to determine the stage and grade of prostate cancer (Isotope bone scan, X-rays, MRI and CT scans). It also covers issues such as waiting for test results and talking to healthcare staff. Includes a list of questions to ask and details of further support.
Macmillan Cancer Support
A booklet for men who have had radiotherapy to the pelvic area and who are experiencing late effects. It explains what pelvic radiotherapy is before describing the following late effects and how to manage them: bladder changes; bowel changes; lymphoedema; bone changes; sex life; and fertility. It also discusses feelings, relationships, and work, and has details of further support.
Macmillan Cancer Support
A booklet for women who have had radiotherapy to the pelvic area and who are experiencing late effects. It explains what pelvic radiotherapy is before describing the following late effects and how to manage them: bladder changes; bowel changes; lymphoedema; bone changes; early menopause; sex life; and fertility. It also discusses feelings, relationships, and work, and has details of further support.
Blood Cancer UK
A blood transfusion is a treatment where you receive blood that has been donated from someone else. The blood is usually given to you through a plastic tube into a vein in your arm. This factsheet explains the different types of blood transfusion used to treat people with blood cancer or a related condition, describes what happens when you have a transfusion and outlines the possible risks.
Blood Cancer UK
Waldenström macroglobulinaemia (WM) is a slow-growing and rare form of blood cancer. It happens when certain blood cells called plasma cells develop in an unusual way in your bone marrow. This fact sheet explains what WM is, how it’s diagnosed and treated, and suggests where to go for more information.
Blood Cancer UK
This booklet explains what multiple myeloma is, the causes, symptoms, treatment options, and prognosis.
Bone Cancer Research Trust
Harry has an Operation is written for parents, carers and healthcare professionals to read with children in order to help them understand their sarcoma and its treatment. It has been produced especially for young patients who require limb-sparing surgery or amputation.
Target Ovarian Cancer
This information is for women who have been diagnosed with primary peritoneal cancer (PPC). Women with primary peritoneal cancer share their experience.
Macmillan Cancer Support
This information is about lung cancer and treatments for lung cancer. It is about cancer that starts in the lung (primary lung cancer). It is not about cancer that starts somewhere else in the body and spreads to the lungs (secondary lung cancer). Includes the English-language version.
Macmillan Cancer Support
This information is about lung cancer and treatments for lung cancer. It is about cancer that starts in the lung (primary lung cancer). It is not about cancer that starts somewhere else in the body and spreads to the lungs (secondary lung cancer). Includes the English-language version.
Macmillan Cancer Support
This information is about lung cancer and treatments for lung cancer. It is about cancer that starts in the lung (primary lung cancer). It is not about cancer that starts somewhere else in the body and spreads to the lungs (secondary lung cancer). Includes English-language version.
Macmillan Cancer Support
This information is about lung cancer and treatments for lung cancer. It is about cancer that starts in the lung (primary lung cancer). It is not about cancer that starts somewhere else in the body and spreads to the lungs (secondary lung cancer). Includes English-language version.
Macmillan Cancer Support
This information is about lung cancer and treatments for lung cancer. It is about cancer that starts in the lung (primary lung cancer). It is not about cancer that starts somewhere else in the body and spreads to the lungs (secondary lung cancer). Includes English-language version.
Macmillan Cancer Support
This information is about lung cancer and treatments for lung cancer. It is about cancer that starts in the lung (primary lung cancer). It is not about cancer that starts somewhere else in the body and spreads to the lungs (secondary lung cancer). Includes English-language version.
Macmillan Cancer Support
Macmillan Cancer Support
This information is about lung cancer and treatments for lung cancer. It is about cancer that starts in the lung (primary lung cancer). It is not about cancer that starts somewhere else in the body and spreads to the lungs (secondary lung cancer).
Macmillan Cancer Support
This information is about lung cancer and treatments for lung cancer. It is about cancer that starts in the lung (primary lung cancer). It is not about cancer that starts somewhere else in the body and spreads to the lungs (secondary lung cancer). Includes English-language version.
Macmillan Cancer Support
This information is about lung cancer and treatments for lung cancer. It is about cancer that starts in the lung (primary lung cancer). It is not about cancer that starts somewhere else in the body and spreads to the lungs (secondary lung cancer). Includes English-language version.
Macmillan Cancer Support
This information is about lung cancer and treatments for lung cancer. It is about cancer that starts in the lung (primary lung cancer). It is not about cancer that starts somewhere else in the body and spreads to the lungs (secondary lung cancer). Includes English-language version.
Macmillan Cancer Support
This information is about lung cancer and treatments for lung cancer. It is about cancer that starts in the lung (primary lung cancer). It is not about cancer that starts somewhere else in the body and spreads to the lungs (secondary lung cancer). Includes English-language version.
Macmillan Cancer Support
This information is about lung cancer and treatments for lung cancer. It is about cancer that starts in the lung (primary lung cancer). It is not about cancer that starts somewhere else in the body and spreads to the lungs (secondary lung cancer). Includes English-language version.
Children's Cancer and Leukaemia Group
Veno-occlusive disease (VOD) is one of the less common but serious complications that can occur during stem cell transplant (SCT). VOD is a complication that affects the liver. This factsheet has been produced to help you understand more about VOD. It explains what VOD is and why it happens, how it is diagnosed, its impact, and how it is treated.
Prostate Scotland
This booklet is to help you, your spouse or partner and your family understand more about treating pain in your bones from prostate cancer; it explains what the treatments are, how these are given and some of the potential side-effects.
Children's Cancer and Leukaemia Group
This leaflet is for parents who are interested in finding out more about how complementary and natural therapies can help their child to cope with the side-effects of cancer and its treatment.
Macmillan Cancer Support
This audiobook gives a wide range of information about allogeneic (donor) stem cell treatment. It includes a list of helpful organisations.
Lymphoma Action
This booklet aims to help people understand more about the different types of high-grade non-Hodgkin lymphoma. It describes how they typically affect people, the usual treatments, and what people can expect during and after treatment.
Macmillan Cancer Support
Information from the Macmillan Cancer Support website translated into Spanish. Chemoembolisation is a treatment used for cancer that starts in the liver, or cancer that has spread to the liver from somewhere else in the body. This factsheet describes how it is given, and possible side effects.
Prostate Cancer UK
This factsheet is for men with advanced prostate cancer who are having problems with pain. It focuses on prostate cancer that has spread to the bones. It describes the types of pain and causes, and possible ways of treating and controlling pain.
Children's Cancer and Leukaemia Group
This illustrated booklet is for children who need a stem cell transplant. Using the story of Ben it explains what stem cells are, what the treatment involves, what happens in hospital and going home.
Children's Cancer and Leukaemia Group
An illustrated, colour booklet for children who are having a stem cell transplant. It describes the bone marrow, the stem cell nurses, the harvest machine, and what happens on the day that the cells are harvested and on the day that they are returned.
Prostate Cancer UK
This booklet is for men who have prostate cancer that has spread to other parts of the body and are experiencing symptoms such as bone pain.
Macmillan Cancer Support
This information is about lung cancer and treatments for lung cancer. It is about cancer that starts in the lung (primary lung cancer). It is not about cancer that starts somewhere else in the body and spreads to the lungs (secondary lung cancer).
Macmillan Cancer Support
This information is about lung cancer and treatments for lung cancer. It is about cancer that starts in the lung (primary lung cancer). It is not about cancer that starts somewhere else in the body and spreads to the lungs (secondary lung cancer).
Macmillan Cancer Support
This information is about lung cancer and treatments for lung cancer. It is about cancer that starts in the lung (primary lung cancer). It is not about cancer that starts somewhere else in the body and spreads to the lungs (secondary lung cancer).
Macmillan Cancer Support
Denosumab is a targeted therapy used to treat secondary bone cancer. It is also given to people with certain cancers (breast cancer, prostate cancer) to strengthen their bones. This factsheet describes what denosumab is, how it works, how it is given, and the possible side effects.
Macmillan Cancer Support
This booklet has detailed information about chronic myeloid leukaemia, its symptoms, diagnosis, and treatments. It also covers issues such as fertility and feelings, and includes details of useful organisations, and websites.
Macmillan Cancer Support
An overview of some of the more common side-effects that might happen with cancer treatments: bone marrow and blood, fatigue, mouth problems, nausea and vomiting, diarrhoea and constipation, eating problems, skin, fertility, sex life, hormonal changes. The booklet suggests ways of dealing with them.
Blood Cancer UK
Monoclonal gammopathy of undetermined significance (MGUS) is a condition that occurs when your plasma cells develop in an unusual way in your bone marrow. MGUS itself is generally a harmless blood condition, however a small number of people with MGUS go on to develop blood cancer.
Blood Cancer UK
This is a booklet for people who are going to have a stem cell transplant, and for people who know someone who is going to have a stem cell transplant. The transplant process is described as a series of steps.
Urostomy Association
Guidelines for people with a neobladder in the event of problems with neobladder function, urinary tract infections, or bleeding.
Urostomy Association
Guidelines for people with an ileal conduit (urostomy) in the event of problems such as urinary tract infections, bleeding, discharge, a hernia or sore skin.
Urostomy Association
Guidelines for people with a continent urinary diversion (Mitrofanoff) in the event of problems with pouch function, urinary tract infections, bleeding or discharge.
Macmillan Cancer Support
This audiobook explains brain tumours, covering causes and symptoms, diagnosis, staging and grading, treatments and clinical trials. It also talks about emotional, practical and financial issues.
Children's Cancer and Leukaemia Group
Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what Ewing's sarcoma is, and describes the signs, symptoms, tests and treatment options.
Children's Cancer and Leukaemia Group
Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what osteosarcoma is, and describes the signs, symptoms, tests and treatment options.
Public Health England
This leaflet tells you about HPV testing. This is a test carried out on the sample of cells taken during cervical screening. It makes no difference to what happens at your screening appointment.
Callahan Publishing
'Cooking for Chemo ...and After!' is a how-to-cook cookbook that teaches you how to adjust your cooking for someone going through chemotherapy. This cookbook focuses on teaching you how to adjust the flavor of your favorite foods so you can enjoy eating again. It is filled with 90 pages of culinary theory and over 100 pages of recipes that will teach you how to apply what you have learned. It was written by Chef Ryan Callahan based on his first-hand experience acting as primary caregiver for his mother, while she went through chemotherapy. Anybody who has ever been through chemotherapy, acted as a caregiver, or knows someone who has been through chemo will admit that combating and living with the metallic tastes in your mouth is one of the hardest parts. This book specifically addresses this problem and gives you easy, real-life solutions. These solutions can be employed in conjunction with any diet regimen or dietary restriction. 'Cooking for Chemo …and After!' is not a "new fad-diet" cookbook or a “what to eat, what not to eat” nutritional guide. It is a book that teaches you how to think and cook like a chef. It is a book that teaches you how to adjust flavor. It will change the way you cook and see food. (Publisher)
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