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Publications directory

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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 36

Cover image of 'Planning ahead. Thinking about your care and wishes ahead of time'

Planning ahead. Thinking about your care and wishes ahead of time (July 2019)

Marie Curie

You may not feel like planning when you’re ill, but thinking about the future now and making your wishes known will help you feel more in control. It can also help those close to you handle your affairs if you aren’t able to. This booklet has information about some of the things you might want to think about, like deciding where and how you want to be cared for, or making a Will. 

Cover image of 'Planning ahead for the end of life (England and Wales) [Gujarati]'

Planning ahead for the end of life (England and Wales) [Gujarati] (November 2019)

Macmillan Cancer Support

A translation of selected pages (56-59: Do not attempt cardiopulmonary resuscitation) from Macmillan Cancer Support’s booklet “Planning ahead for the end of life" [MAC13616_E03_N]

Cover image of 'Planning ahead for the end of life (Scotland) [in press]'

Planning ahead for the end of life (Scotland) [in press] (November 2019)

Macmillan Cancer Support and the Public Health Agency

This booklet is about some of the ways you can plan ahead and make choices about your future care if you live in Scotland. It is for anyone who wants to plan ahead, whether they have a serious illness or not. Planning for your future care is also called advance care planning. It is important in case you ever become unable to make choices yourself. The booklet talks about the ways you can plan ahead, for example writing a will, or making a power of attorney or an advance directive. It also tells you how to talk about planning ahead with your family, friends and health and social care professionals.

Cover image of 'Caring for your child at end of life. A guide for parents and carers'

Caring for your child at end of life. A guide for parents and carers (October 2019)

Together for Short Lives

Practical information to support parents and carers at this difficult time. It aims to answer some of the questions that you might have, and sets out what you should expect from children’s palliative care services with useful links to further sources of information and support. Includes reflections from families on their experience of losing a child. 

Cover image of 'Planning ahead for the end of life. England and Wales'

Planning ahead for the end of life. England and Wales (November 2019)

Macmillan Cancer Support

This booklet is about some of the ways you can plan ahead and make choices about your future care if you live in England or Wales. It is for anyone who wants to plan ahead, whether they have a serious illness or not. 

Cover image of 'A guide for the end of life [in press]'

A guide for the end of life [in press] (November 2019)

Macmillan Cancer Support

This booklet explains what happens at the end of someone’s life and how to plan for it. It is for anyone nearing the end of life. There is also information for people caring for someone nearing the end of life.

Cover image of 'Follow the child. Planning and having the best end-of-life care for your child'

Follow the child. Planning and having the best end-of-life care for your child (2018)

Jessica Kingsley Publishers

Drawing on her family's own experiences and those of other parents facing the death of a child from illness or a life-limiting condition, Sacha Langton-Gilks explains the challenges, planning, and conversations that can be expected during this traumatic period. Practical advice such as how to work with the healthcare professionals, drawing up an Advance Care Plan, and how to move care into the home sit alongside tender observations of how such things worked in her own family's story. The book also includes a template person-centred planning document, developed by experts in the field. Empowering and reassuring, this book will help families plan and ensure the best possible end-of-life care for a child or young person. (Publisher)

Cover image of 'Before I go. The essential guide to creating a good end of life plan'

Before I go. The essential guide to creating a good end of life plan (2018)

Findhorn Press

A compassionate, practical guide to end-of-life matters, empowering us to clarify and share our wishes and continue to live life to the fullest. Many people say “I wish I had known what they wanted” when their loved one has died. Too often, a person’s wishes for end-of-life care, and for after they have gone, have not been recorded. With this valuable guide, you can now begin to do this for yourself, so your relatives will be able to honor your wishes more easily, saving them unnecessary stress and upset at a potentially intense time. Before I Go addresses the emotional, spiritual, and practical aspects of end-of-life planning to help you make well-informed decisions about your end-of-life care and prepare well for your death. Jane Duncan Rogers guides you with equanimity, care, and humor through subjects such as how to have a conversation about dying, the impact of grief on relatives responsible for estate matters, DIY funerals and what that entails. She states clearly what you need to have in place to ensure the best end of life possible, helps you identify your values and beliefs in this area, and demonstrates which actions you then need to take, and when. With a full resource pack of essential information available to you, including guiding questions, exercises, and recording tools, as well as downloadable worksheets and supportive online courses, decision-making will be much easier and you will find relief and peace of mind knowing you have taken care of outstanding matters. You will also be giving a great gift to your loved ones. When they have this information in advance, you spare them many difficult decisions and administrative hassle at a time when they will be grieving and not in a fit state to cope. It can bring great comfort to those left behind to know they are indeed carrying out your wishes. It also provides an opportunity for you to record your achievements and history, giving them a legacy they would otherwise not have. (Publisher)

Cover image of 'My care, my future. A guide for women living with incurable ovarian cancer'

My care, my future. A guide for women living with incurable ovarian cancer (May 2017)

Target Ovarian Cancer

This guide has been written to help women deal with the challenges of living with ovarian cancer that is terminal.

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