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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 11

Cover image of 'Keeping healthy 'down below''

Keeping healthy 'down below' (2019)

Books Beyond Words

Having a smear test can be worrying. For women with learning disabilities there is the added fear of not understanding what is happening. This book will help to prepare and support women like Carol who are invited to have a smear test. It begins with a nurse telling Carol and her friends how to stay healthy ‘down below’. It goes on to explain what happens to Carol, from receiving the invitation for a smear test, making the preliminary visit to the GP practice and deciding whether she will have the smear or not, to having the smear and receiving the results. We then see her being recalled for a further test. (Publisher)

Cover image of 'Going to the doctor'

Going to the doctor (2018)

Books Beyond Words

Going to the doctor can be worrying. For people with a learning disability, there may be the added worry of not being able to explain what’s wrong, as well as not understanding what’s happening. This book shows Jim, Anne and Laura who visit their General Practice for different reasons. The stories look at the ways the doctor and nurse listen to each of them, asking questions, explaining what will happen next and checking their understanding so that they can give informed consent. Many of the scenarios shown in the book form part of the annual health check. They also show how to involve the supporter appropriately. This book can be used to help someone get ready to visit the doctor, as a reasonable adjustment during the consultation, and for wider health promotion work. (Publisher)

Cover image of 'Going into hospital'

Going into hospital (2015)

Books Beyond Words

This book is a companion text to Going to Out-Patients. Both books are aimed at people with learning disabilities, their carers and medical professionals in hospital settings. We all worry about going into hospital. For people with learning disabilities there is the added fear of not being able to explain what is wrong, as well as not understanding what is happening. These books are designed to support patients with learning disabilities by explaining, through a series of pictures, what happens to them there. Feelings, information and consent are all addressed. Ideally, this book should be used to prepare someone before he or she goes into hospital. It will also be invaluable to hospital staff to use during consultations and before treatments. (Publisher)

Cover image of 'When somebody dies'

When somebody dies (2014)

Books Beyond Words

Everyone feels sad when someone dies. People with learning disabilities have the same feelings of grief as anyone else, but they are seldom offered the help and support that other people are given. This book tells the story of Mary who is very upset when someone she loves dies. She is encouraged by a friend to go to regular bereavement counselling sessions, which help her to feel less sad. Later on in the book, John also loses someone he is close to. He is given comfort and companionship by his friends, and is shown learning to cope with life better and better as time passes. This book shows people with learning disabilities that they need not be alone when they feel sad about someone’s death, and that talking about it to a friend or to a counsellor can help them get through this difficult time. (Publisher)

Cover image of 'When dad died'

When dad died (2014)

Books Beyond Words

When Dad Died takes a gentle, honest and straightforward approach to death and grief in the family. The pictures tell the story of the death of a parent in a simple but moving way. The approach is non-denominational. When Dad Died illustrates a burial, while When Mum Died shows a cremation. The greatly expanded text in these third editions includes information on how people are likely to react when someone is very ill and to their death. It explores difficult emotions, possible physical feelings and behaviour changes. Guidance is given on how to relate to a bereaved person and how to answer the questions ‘How do we feel when someone dies?’, ‘What happens after someone dies?’ and ‘How long does it take to get back to normal?’. There is advice for support staff and carers of those with learning disabilities (including how to formulate guidelines and a sample bereavement questionnaire), plus information on useful written resources and bereavement organisations that can offer further help. These books will be helpful to adolescents and adults with learning disabilities as well as for their carers and supporters. In addition, children without learning disabilities will appreciate these books as they adopt a more direct approach to death than is usual. (Publisher)

Cover image of 'When mum died'

When mum died (2014)

Books Beyond Words

When Mum Died and When Dad Died take a gentle, honest and straightforward approach to death and grief in the family. The pictures tell the story of the death of a parent in a simple but moving way. The approach is non-denominational. When Dad Died illustrates a burial, while When Mum Died shows a cremation. The greatly expanded text in these third editions includes information on how people are likely to react when someone is very ill and to their death. It explores difficult emotions, possible physical feelings and behaviour changes. Guidance is given on how to relate to a bereaved person and how to answer the questions ‘How do we feel when someone dies?’, ‘What happens after someone dies?’ and ‘How long does it take to get back to normal?’. There is advice for support staff and carers of those with learning disabilities (including how to formulate guidelines and a sample bereavement questionnaire), plus information on useful written resources and bereavement organisations that can offer further help. These books will be helpful to adolescents and adults with learning disabilities as well as for their carers and supporters. In addition, children without learning disabilities will appreciate these books as they adopt a more direct approach to death than is usual. (Publisher)

Cover image of 'Going to out-patients'

Going to out-patients (2009)

Books Beyond Words

This book is a companion text to Going Into Hospital. Both books are aimed at people with learning disabilities, their carers and medical professionals in hospital settings. Going to Out-Patients follows a man and a woman through various out-patient situations and treatment scenarios. Situations covered include trying to find the right place, waiting, and seeing the doctor. Common procedures are also illustrated including an ultrasound, a hearing test an X-ray, and a plaster cast being put on and eventually removed. (Publisher)

Cover image of 'Looking after my balls'

Looking after my balls (2009)

Books Beyond Words

It is important for every man to check his balls (testicles) regularly and to see his doctor immediately if he finds any changes that are not normal for him. You can use pictures and information in this book to help men with intellectual disabilities to learn more about their testicles and about how to look after them. The pictures tell the story of Tom, who finds a lump while checking his balls in the shower. We follow him as he seeks help from his GP, has tests and hears that the lump is not due to cancer. The pictures are designed to help the reader to ask questions or shake their concerns. (Publisher)

Cover image of 'Am I going to die?'

Am I going to die? (2009)

Books Beyond Words

John has a terminal illness. This book tells his story, dealing with both physical deterioration and the emotional aspects of dying in an honest and moving way. John is shown getting weaker and needing more help. He looks back at his life and makes choices about how to spend his time. The pictures highlight the importance of going on special outings, of remembering good times, and of saying proper goodbyes to family and friends. The final images show John dying at home. Guidelines are provided (as text at the back) for carers and supporters, health and other professionals who provide support to people with learning disabilities who are terminally ill. Lists of other helpful written resources and relevant organisations are also given. Although this story is fictional, it is based on the real life experiences of ten people with learning disabilities who had a terminal illness. They participated in the Veronica Project, a research project conducted by St George’s Hospital, London and funded by Cancer Research UK. The book draws on what was important for the participants when they were ill and dying and demonstrates best practice as identified by them. (Publisher)

Cover image of 'Getting on with cancer'

Getting on with cancer (2002)

Books Beyond Words

"Books beyond words" is a series of picture books that has been developed for people who have difficulty reading and who can understand pictures better than words, and to enable discussion about difficult topics. Supporting text and guidelines are also provided for carers, supporters and professionals. When Veronica's doctor told her she had cancer, she was confused and terrified. Then he told her some cancers can be cured. `Getting on with cancer' tells the story of Veronica, a woman with Down's Syndrome, who has cancer. She has surgery and also radiotherapy and chemotherapy. The book deals honestly with the unpleasant side of treatment. It is designed to be used as a counselling tool by anyone working with people who have both learning disabilities and cancer. It will also be valuable for other client groups, for example, people with chronic mental health problems. The book ends on a positive note. Included in the book is Veronica Donaghey's story 'It's not all bad news', written in her own words. There are also guidelines for carers/supporters and for healthcare professionals, and information on relevant resources and helpful organisations. (Publisher)

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