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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 1111

Cover image of 'Stents and bypass surgery for pancreatic cancer'

Stents and bypass surgery for pancreatic cancer (February 2019)

Pancreatic Cancer UK

This fact sheet is for people with pancreatic cancer who are having a stent or bypass surgery. These treatments help symptoms caused by the cancer blocking the bile duct or duodenum. Family members may also find it helpful. It describes what the treatments involve, possible side effects, how they can affect your diet, and recovering afterwards.

Cover image of 'Donating your stem cells to your brother or sister. A guide to stem cell (bone marrow) donation for teenagers and young adults'

Donating your stem cells to your brother or sister. A guide to stem cell (bone marrow) donation for teenagers and young adults (May 2019)

Children's Cancer and Leukaemia Group

Illustrated, colour booklet for children who may be donating bone marrow or stem cells to a sibling. It describes stem cells and stem cell transplants, why a transplant is needed, the types of transplants, the selection process, tissue typing, harvesting the bone marrow (including the risks and side-effects), and what happens if the transplant is unsuccessful. It also covers issues such as consent, what to take into hospital, and changes to sibling relationships. Includes details of useful organisations and a glossary of terms.

Cover image of 'Chemotherapy regimens for lymphoma'

Chemotherapy regimens for lymphoma (February 2019)

Lymphoma Action

This information sheet is about chemotherapy regimens (combinations of drugs) for lymphoma. It covers: What is a chemotherapy regimen?; Common chemotherapy regimens for lymphoma; Which chemotherapy regimen might I have?; Side effects of chemotherapy regimens. Includes a list of the most common chemotherapy regimens for lymphoma. 

Cover image of 'What to expect. What is it like to be treated with proton beam therapy?'

What to expect. What is it like to be treated with proton beam therapy? (January 2019)

Brainstrust

This leaflet describes what happens when proton beam therapy is given, and the possible side effects. 

Cover image of 'Surgery for operable pancreatic cancer'

Surgery for operable pancreatic cancer (March 2019)

Pancreatic Cancer UK

This factsheet is for people diagnosed with pancreatic cancer who are having surgery to remove the cancer. Family members may also find it helpful. We describe the different types of surgery to remove pancreatic cancer, how to prepare for your operation, what to expect, and recovery afterwards. This factsheet does not cover surgery for pancreatic neuroendocrine tumours (PNETs).  

Cover image of 'Trastuzumab (Herceptin)'

Trastuzumab (Herceptin) (February 2019)

Breast Cancer Care

This booklet explains what trastuzumab is, how it works, when it may be prescribed and the side effects you may experience. 

Cover image of 'FEC chemotherapy'

FEC chemotherapy (February 2019)

Breast Cancer Care

This leaflet describes the FEC chemotherapy combination (5 fluorouracil, epirubicin and cyclophosphamide), when it may be used, how it works, how it is given and the possible side-effects.

Cover image of 'Pertuzumab with Perjeta'

Pertuzumab with Perjeta (April 2019)

Breast Cancer Care

This booklet explains what pertuzumab is, when it’s given and its possible side effects. Pertuzumab is the generic (non-branded) name of the drug. Its current brand name is Perjeta®.

Cover image of 'Radiotherapy for primary breast cancer'

Radiotherapy for primary breast cancer (May 2019)

Breast Cancer Care

This booklet describes radiotherapy for primary (early) breast cancer. It explains what radiotherapy is, why it might be needed, how it is given, what to expect, treatment planning, and the possible side-effects. 

Cover image of 'Your pathway. A guide to bowel cancer treatment'

Your pathway. A guide to bowel cancer treatment (May 2019)

Bowel Cancer UK

This booklet is for anyone diagnosed with bowel cancer and their family and friends. It gives an overview of what bowel cancer is, how it is treated, the common treatment side effects and what happens when treatment finishes. 

Cover image of 'Physical activity and cancer treatment'

Physical activity and cancer treatment (January 2019)

Macmillan Cancer Support

This booklet is for anyone who has cancer or has had treatment for cancer and is thinking about becoming more physically active. It explains what physical activity is, its benefits and how to be safe when exercising. It also includes information about the types of activity you can do and how to get started.

Cover image of 'Reducing the risk of lymphoedema'

Reducing the risk of lymphoedema (April 2019)

Breast Cancer Care

This leaflet explains what lymphoedema is and who is at risk. It describes how to reduce the risk of developing lymphoedema, and what to do if problems occur (swelling and skin damage).

Cover image of 'Letrozole'

Letrozole (February 2019)

Breast Cancer Care

This leaflet describes what letrozole (Femara®) is, how it works, when it may be prescribed, how it is taken, and the possible side-effects.

Cover image of 'Exemestane'

Exemestane (February 2019)

Breast Cancer Care

This booklet explains what exemestane is, how it works, when it may be prescribed and possible side effects. 

Cover image of 'XELOX (or CAPOX) [Chinese, Traditional]'

XELOX (or CAPOX) [Chinese, Traditional] (2019)

Macmillan Cancer Support

XELOX (or CAPOX) may be used to treat advanced bowel cancer. This factsheet describes the drugs used, how they are given and some of the possible side-effects.

Cover image of 'Anastrazole'

Anastrazole (February 2019)

Breast Cancer Care

This leaflet explains briefly what Arimidex® is, how it works, when it may be prescribed, how it is taken and the possible side-effects.

Cover image of 'Zoledronic acid for primary breast cancer'

Zoledronic acid for primary breast cancer (April 2019)

Breast Cancer Care

Zoledronic acid is a drug that’s given to reduce the risk of breast cancer spreading to the bones and other parts of the body. This booklet explains what it is, who might be offered it and the side effects it can cause.

Cover image of 'FEC-T chemotherapy'

FEC-T chemotherapy (February 2019)

Breast Cancer Care

This booklet explains what the chemotherapy combination FEC-T is, when it may be prescribed, how it is given and what side effects may occur. FEC-T is a combination of four chemotherapy drugs: 5 fluorouracil (also known as 5FU); epirubicin; cyclophosphamide; docetaxol (also known as Taxotere).

Cover image of 'Docetaxel (Taxotere®) [Filipino]'

Docetaxel (Taxotere®) [Filipino] (February 2019)

Macmillan Cancer Support

Docetaxel (Taxotere®) is a chemotherapy drug used to treat many types of cancer including breast, prostate, stomach, head and neck, and non-small cell lung cancer. This factsheet describes what it is, how it is given, and possible side effects.

Cover image of 'Sodium clodronate for primary breast cancer'

Sodium clodronate for primary breast cancer (April 2019)

Breast Cancer Care

This booklet is about the bisphosphonate sodium clodronate given to reduce the risk of breast cancer spreading to the bones and other parts of the body. IIt explains what it is, who might be offered it and the side effects it can cause. 

Cover image of 'Cannabinoids – information for patients and carers'

Cannabinoids – information for patients and carers (January 2019)

Brainstrust

This factsheet explains the difference between Cannabidiol (CBD) and cannabis oil, the evidence to date, and the current legal status.

Cover image of 'Self-employment and cancer'

Self-employment and cancer (April 2019)

Macmillan Cancer Support

This booklet is about coping with cancer while you are self-employed or running a small business. It is for sole traders, freelancers, contractors or those running a micro business (one that employs fewer than 10 people). It includes information and guidance about: how treatment might affect your work; things to consider when making decisions about your business; talking to clients or customers about your situation; getting support with your business or personal finances.

Cover image of 'Living with lymphoedema after breast cancer'

Living with lymphoedema after breast cancer (April 2019)

Breast Cancer Care

This booklet explains what lymphoedema is, and describes the physical symptoms and the treatment options.

Cover image of 'Heart health and cancer treatment'

Heart health and cancer treatment (February 2019)

Macmillan Cancer Support and British Heart Foundation

Some people affected by cancer have problems with their heart health. This is because some cancer treatments can affect the heart. Problems can also arise if you already have a heart condition when you’re diagnosed with cancer. This booklet is for you if: you’ve been told that your cancer treatment may affect your heart; you have a heart condition and need cancer treatment; you’d like to find out how you can improve the health of your heart before, during and after cancer treatment.

Cover image of 'Managing cancer in the workplace'

Managing cancer in the workplace (April 2019)

Macmillan Cancer Support

This guide has information and practical for employers about how to support employees affected by cancer. It includes examples of best practice and also covers employers' responsibilities and employees' rights.

Cover image of 'Blood clot prevention. A guide for patients and carers'

Blood clot prevention. A guide for patients and carers (May 2019)

The Royal Marsden NHS Foundation Trust

This booklet explains the risk of developing a blood clot while in hospital. It describes the signs of a blood clot, who is at risk, and how to reduce the risk of developing a blood clot. Please note: this booklet includes contact details and instructions specific to the Royal Marsden Hospital.

Cover image of 'Managing breathlessness'

Managing breathlessness (March 2019)

Macmillan Cancer Support

This booklet is for people who have breathlessness due to cancer or its treatment. It includes information about breathing and relaxation exercises, treatments, practical tips for everyday living and a list of useful contacts for further information and support. It also includes a copy of the 'Relax and breathe' CD.

Cover image of 'Work and cancer'

Work and cancer (April 2019)

Macmillan Cancer Support

This booklet aims to help people with cancer cope with issues that they may face at work both during treatment and afterwards.

Cover image of 'The cancer roller coaster. How to manage the emotional and mental impact'

The cancer roller coaster. How to manage the emotional and mental impact (2019)

Librotas

Two days after celebrating her 50th birthday, Juliette Chan had an unexpected birthday present: bowel cancer. Luckily, they caught it early, but once the treatment was over, the psychological side-effects surfaced. For many months, Juliette was adrift and felt lost. It seemed that everything in her life was up for review and she struggled to gain clarity about what to do next. There were many questions, such as: When will I feel normal again; Why am I not as motivated as before; Will the cancer come back; Why am I mentally exhausted. It took her a while to realise that the cancer had caused a whole load of losses: loss of trust in her body, self-image as a fit and healthy person, energy, confidence, motivation, income and much more. And that’s when the penny dropped; she was grieving. Cancer not only involves coping with the physical disease and treatment – it also means experiencing and dealing with hidden losses that will affect how you view and live your life. Every time you experience a loss, there is an emotional response: grief. Most people only associate grief with bereavement but it is in fact a natural reaction to any and all losses, including the hidden and intangible losses you face with cancer. Anyone who has or has had cancer, as well as their family and friends, will experience grief – because life has changed. This can show up as anger, frustration, anxiety, ‘depression’, fear, sadness, for example. If left unchecked or suppressed, grief will affect your mental health and emotional wellbeing. It doesn’t have to be like this; it is possible to take care of the emotional and mental impact of cancer and to live well. In her easy, relaxed style of writing, Juliette explains the emotional and mental impact of cancer and highlights the limitations of Mindfulness and positive thinking. She has also included a workbook with simple practical exercises that help to release the psychological side-effects and provide clarity. You can also read the candid stories of eight others who faced cancer: Robert describes his initial feelings of shock on diagnosis and how others helped him to cope, whereas Meena recounts going it alone; Petra shares how she continued to run throughout her treatment, and Susan talks movingly about the seemingly endless decision-making from diagnosis onwards; Mary, Tony and June recount their unique experiences of the same cancer

Cover image of 'Chemo companion. A friendly guide to chemotherapy and a collection of chemo stories'

Chemo companion. A friendly guide to chemotherapy and a collection of chemo stories (2019)

Rethink Street Publishing

This clear, concise book helps you to understand what chemotherapy may be doing to your body, your mind and your life. It gives you useful tips and information, practical advice and reassurance, and it reminds you that you are not alone. Part 1 is a brief GUIDE to the time before, during and after chemotherapy. It includes planning and preparation, common side effects, your thoughts and feelings, food and exercise, work and money issues, how you might feel after treatment, and where to find further help and support. Part 2 is a collection of STORIES based on true, real-life experiences of chemotherapy. Each one is candid and honest and shared in the spirit of kindness and friendship. Including an overly complicated salad, finding long lost relatives, flying paper aeroplanes, writing to new online pen-pals, and tips for friends who don't know what to say. (Publisher)

Cover image of 'The two faces of cancer'

The two faces of cancer (2019)

Troubador Publishing

Half of the UK population will receive a diagnosis of cancer at some point in their lives and most people will know someone who has been affected by this complex disease. Drawing from her three personal experiences with cancer alongside her professional experience as a counsellor and personal coach, Rebecca Brazier chronicles her journey through diagnosis, treatment and recovery. When talking about cancer we tend to think about the physical side effects of treatment. Although medical advances are saving and extending lives, less consideration is given to the emotional and psychological trauma which cancer creates. The Two Faces of Cancer describes and addresses this trauma and explores why cancer is difficult to recover from both personally and within society. It describes the devastation and powerful feelings cancer created for Rebecca and how she channelled these to create a meaningful life. It also draws from Rebecca's professional knowledge to analyse the emotional and psychological impact of cancer and to suggest routes to recovery. (Publisher)

Cover image of 'Chemotherapy and how it is given'

Chemotherapy and how it is given (2018)

Pancreatic Cancer Action

This booklet for patients and carers describes chemotherapy for pancreatic cancer, including how it works, how it is given and how it may affect the patient. It includes advice on coping with side effects and a section about second opinions, clinical trials, questions to ask your doctor and a glossary to explain some of the terms used.

Cover image of 'Chemotherapy side effects [Kurdish]'

Chemotherapy side effects [Kurdish] (2018)

Macmillan Cancer Support

This factsheet provides information on chemotherapy side-effects.

Cover image of 'Pelvic radiotherapy in men - managing side effects during treatment'

Pelvic radiotherapy in men - managing side effects during treatment (September 2018)

Macmillan Cancer Support

This booklet has information about the side effects of pelvic radiotherapy during treatment. There is a separate booklet for men experiencing late effects (Managing the late effects of pelvic radiotherapy in men).

Cover image of 'Chemotherapy [Urdu]'

Chemotherapy [Urdu] (September 2018)

Macmillan Cancer Support

This factsheet provides information about chemotherapy, including possible side-effects. Includes the English-language version.

Cover image of 'Radiotherapy [Urdu]'

Radiotherapy [Urdu] (November 2018)

Macmillan Cancer Support

This factsheet describes radiotherapy: what it is; how treatment is planned; external and internal radiotherapy; and the possible side-effects. It also has tips on coping with radiotherapy. Includes English language version. 

Cover image of 'Pelvic radiotherapy in women. Managing side effects during treatment'

Pelvic radiotherapy in women. Managing side effects during treatment (September 2018)

Macmillan Cancer Support

This booklet is for women who are having, or are going to have, radiotherapy to the pelvic area. The pelvic area is the lower part of the tummy (abdomen), between the hips. The booklet explains: side effects that may happen during, or shortly after, pelvic radiotherapy; how side effects can be controlled or reduced; what you can do to help yourself.

Cover image of 'Radiotherapy'

Radiotherapy (November 2018)

Macmillan Cancer Support

This factsheet describes radiotherapy: what it is; how treatment is planned; types of radiotherapy and the possible side-effects. It also has tips on coping with radiotherapy.

Cover image of 'Radiotherapy [Punjabi]'

Radiotherapy [Punjabi] (November 2018)

Macmillan Cancer Support

This factsheet describes radiotherapy: what it is; how treatment is planned; external and internal radiotherapy; and the possible side-effects. It also has tips on coping with radiotherapy. Includes English language version. 

Cover image of 'Radiotherapy [Gujarati]'

Radiotherapy [Gujarati] (November 2018)

Macmillan Cancer Support

This factsheet describes radiotherapy: what it is; how treatment is planned; external and internal radiotherapy; and the possible side-effects. It also has tips on coping with radiotherapy. Includes English language version. 

Cover image of 'Chemotherapy [Russian]'

Chemotherapy [Russian] (September 2018)

Macmillan Cancer Support

This factsheet provides information about chemotherapy, including possible side-effects. Includes English language version.

Cover image of 'Chemotherapy'

Chemotherapy (September 2018)

Macmillan Cancer Support

This factsheet provides information on chemotherapy, what it is, when it is used, how it works, length of treatment, and side-effects.

Cover image of 'Chemotherapy [Punjabi]'

Chemotherapy [Punjabi] (September 2018)

Macmillan Cancer Support

This factsheet provides information about chemotherapy, including possible side-effects. Includes the English language version.

Cover image of 'Radiotherapy [Polish]'

Radiotherapy [Polish] (November 2018)

Macmillan Cancer Support

This factsheet describes radiotherapy: what it is; how treatment is planned; external and internal radiotherapy; and the possible side-effects. It also has tips on coping with radiotherapy. Includes English language version. 

Cover image of 'Radiotherapy [Bengali]'

Radiotherapy [Bengali] (November 2018)

Macmillan Cancer Support

This factsheet describes radiotherapy: what it is; how treatment is planned; external and internal radiotherapy; and the possible side-effects. It also has tips on coping with radiotherapy. Includes English language version.

Cover image of 'Radiotherapy [Russian]'

Radiotherapy [Russian] (November 2018)

Macmillan Cancer Support

This factsheet describes radiotherapy: what it is; how treatment is planned; external and internal radiotherapy; and the possible side-effects. It also has tips on coping with radiotherapy. Includes English language version. 

Cover image of 'Radiotherapy [Chinese, Traditional]'

Radiotherapy [Chinese, Traditional] (November 2018)

Macmillan Cancer Support

This factsheet describes radiotherapy: what it is; how treatment is planned; external and internal radiotherapy; and the possible side-effects. It also has tips on coping with radiotherapy. Includes English language version. 

Cover image of 'Pancreatic cancer. An overview of diagnosis and treatment'

Pancreatic cancer. An overview of diagnosis and treatment (January 2018)

Pancreatic Cancer UK

This booklet describes pancreatic cancer, what it is, how it is diagnosed, staging, and treatment options. Includes a glossary.

Cover image of 'Chemotherapy [Welsh]'

Chemotherapy [Welsh] (September 2018)

Macmillan Cancer Support

This factsheet provides information about chemotherapy, including possible side-effects. Includes English language version.

Cover image of 'Radiotherapy [Portuguese]'

Radiotherapy [Portuguese] (November 2018)

Macmillan Cancer Support

This factsheet describes radiotherapy: what it is; how treatment is planned; external and internal radiotherapy; and the possible side-effects. It also has tips on coping with radiotherapy. Includes English language version. 

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