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Publications directory

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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 588

Cover image of 'Understanding brain metastasis and lung cancer'

Understanding brain metastasis and lung cancer (February 2019)

Roy Castle Lung Cancer Foundation

If you or someone you care for has lung cancer and has been told about brain metastases, then this booklet will help answer your questions about symptoms, tests, and what treatments may be available. 

Cover image of 'Understanding advanced melanoma'

Understanding advanced melanoma (July 2019)

Macmillan Cancer Support

This booklet explains melanoma that has spread to another area (advanced or metastatic melanoma). It describes advanced melanoma, the signs and symptoms, diagnosis and staging, and the treatment options. It also discusses coping with the symptoms of advanced melanoma and the side effects of treatment, feelings and emotions and lists further sources of support.

Cover image of 'What is bowel cancer? What it is, who’s at risk and what to look out for'

What is bowel cancer? What it is, who’s at risk and what to look out for (June 2019)

Bowel Cancer UK

A5 leaflet outlining what bowel cancer is, who's at risk and what symptoms to look out for. 

Cover image of 'Ascites and ascitic drainage. Build-up of fluid in the abdomen (tummy) and how it can be treated'

Ascites and ascitic drainage. Build-up of fluid in the abdomen (tummy) and how it can be treated (September 2019)

Marie Curie

This leaflet aims to help you understand ascites (build-up of fluid in the abdomen), what causes it and how it can be treated. It explains how the fluid can be removed in a procedure called ascitic drainage, or paracentesis. 

Cover image of 'Peripheral T-cell lymphoma not otherwise specified (PTCL-NOS)'

Peripheral T-cell lymphoma not otherwise specified (PTCL-NOS) (August 2019)

Lymphoma Action

When a T-cell lymphoma doesn’t fit into any particular category of T-cell lymphoma, it is called peripheral T-cell lymphoma not otherwise specified (PTCL-NOS). This factsheet covers: What is PTCL-NOS?; Who gets it?; Symptoms; Treatment; Relapsed or refractory PTCL-NOS; Research and targeted treatments.

Cover image of 'Manservation. Sons and daughters guide to prostate cancer. Helping you have those essential conversations with your father about prostate cancer'

Manservation. Sons and daughters guide to prostate cancer. Helping you have those essential conversations with your father about prostate cancer (November 2019)

Orchid – Fighting Male Cancer|Tackle Prostate Cancer

The Manversation campaign aims to challenge outdated stereotypes, raise awareness of the symptoms of advanced prostate cancer and encourage men to speak up about potential symptoms as soon as they experience them. This leaflet gives an overview of prostate cancer and has tips for how adult sons and daughters can support their fathers.

Cover image of 'The bowel screening test. What you need to know [Urdu]'

The bowel screening test. What you need to know [Urdu] (November 2019)

NHS Health Scotland

This leaflet explains the benefits of the bowel screening test, how the test is done, and the signs and symptoms of bowel cancer, and has tips on how to reduce the risk of bowel cancer.

Cover image of 'Eating well when eating becomes difficult. Support your health during cancer treatment'

Eating well when eating becomes difficult. Support your health during cancer treatment (April 2019)

Penny Brohn UK

This booklet aims to address some of the common difficulties that people may experience with eating during cancer treatment. It has advice and tips to help cope with the common effects of chemotherapy, radiotherapy, immunotherapy and hormonal therapy, such as oral thrush, sore or dry mouth, swallowing difficulties, taste changes, nausea, constipation, diarrhoea, and tenesmus.

Cover image of 'Understanding breast cancer in women'

Understanding breast cancer in women (January 2019)

Macmillan Cancer Support

This booklet is about breast cancer in women. It is for women who are having tests for breast cancer and women who have been diagnosed with breast cancer. It covers breast cancer that has not spread to other parts of the body and describes the causes, symptoms, diagnosis, stages, and treatment (including surgery, radiotherapy, chemotherapy and hormonal therapy). It also discusses issues such as fertility, hormone replacement therapy, and feelings. Includes details of useful organisations and other resources.

Cover image of 'Understanding ductal carcinoma in situ (DCIS)'

Understanding ductal carcinoma in situ (DCIS) (January 2019)

Macmillan Cancer Support

This booklet has information for women who have ductal carcinoma in situ (DCIS). It describes DCIS, the risk factors and causes, symptoms, diagnosis and tests, staging and grading, and the treatment options (surgery, radiotherapy, hormonal therapies). It also covers issues such as life after treatment and feelings.

Cover image of 'Hepatosplenic T-cell lymphoma'

Hepatosplenic T-cell lymphoma (August 2019)

Lymphoma Action

Hepatosplenic T-cell lymphoma is a rare type of lymphoma that affects the liver and spleen. This factsheet covers the following topics: What is hepatosplenic T-cell lymphoma?; Who gets it?; Symptoms; Treatment; Relapsed or refractory hepatosplenic T-cell lymphoma; Research and targeted treatments.

Cover image of 'The bowel screening test. What you need to know [Arabic]'

The bowel screening test. What you need to know [Arabic] (November 2019)

NHS Health Scotland

This leaflet explains the benefits of the bowel screening test, how the test is done, and the signs and symptoms of bowel cancer, and has tips on how to reduce the risk of bowel cancer.

Cover image of 'The bowel screening test. What you need to know [Polish]'

The bowel screening test. What you need to know [Polish] (November 2019)

NHS Health Scotland

This leaflet explains the benefits of the bowel screening test, how the test is done, and the signs and symptoms of bowel cancer, and has tips on how to reduce the risk of bowel cancer.

Cover image of 'Understanding cancer of unknown primary'

Understanding cancer of unknown primary (June 2019)

Macmillan Cancer Support

Information about cancer of unknown primary (CUP). This booklet explains what CUP is and why the primary cancer cannot be found, and describes how it is diagnosed, the tests that might be carried out, and the treatment options. It also covers coping with CUP, feelings, and financial help.

Cover image of 'A simple guide to the prostate'

A simple guide to the prostate (October 2019)

Prostate Scotland

This leaflet describes the prostate, the most common symptoms or signs and what they might mean (benign prostatic hyperplasia, prostatis, prostate cancer).

Cover image of 'Work and cancer'

Work and cancer (April 2019)

Macmillan Cancer Support

This booklet aims to help people with cancer cope with issues that they may face at work both during treatment and afterwards.

Cover image of 'Understanding breast cancer in men'

Understanding breast cancer in men (January 2019)

Macmillan Cancer Support

This booklet is about breast cancer in men. It is for men who are having tests for breast cancer and men who have been diagnosed with breast cancer. It explains the signs and symptoms of breast cancer in men. It explains how it is diagnosed and how it may be treated. It also has information about emotional, practical and financial issues.

Cover image of 'How are you feeling? The emotional effects of cancer'

How are you feeling? The emotional effects of cancer (February 2019)

Macmillan Cancer Support

Having cancer affects all areas of your life, including the way you feel. This booklet is about the main emotions that many people with cancer have. This may be after diagnosis, during treatment or after treatment has ended.

Cover image of 'Adrenocortical carcinoma - AAC. Patient information for adult patients'

Adrenocortical carcinoma - AAC. Patient information for adult patients (October 2019)

Adrenocortical Cancer Support and Information

Guidance for people with adrenocortical carcinoma (AAC). Describes what AAC is, its symptoms, diagnosis, and treatment options.

Cover image of 'Going home from hospital'

Going home from hospital (March 2019)

Macmillan Cancer Support

This booklet explains how care and support is arranged for people with cancer when they are discharged from hospital.

Cover image of 'Eating well. A guide to diet and bowel cancer'

Eating well. A guide to diet and bowel cancer (May 2019)

Bowel Cancer UK

This booklet has information about how food can affect your symptoms during and after bowel cancer treatment. After treatment, you may find you can’t eat the same foods as you did before. These changes may be temporary or they may be longer-lasting. 

Cover image of 'Bowel cancer risk. What you need to know if you have Crohn's or colitis'

Bowel cancer risk. What you need to know if you have Crohn's or colitis (April 2019)

Crohn's and Colitis UK

Crohn’s and Colitis can increase the risk of bowel cancer in some people, particularly for those whose condition affects all or most of their large bowel. This information sheet looks at the relationship between bowel cancer and Crohn’s and Colitis, and how you can reduce your risk. It also describes changes in the lining of the bowel that may develop into cancer, and how these changes are detected.

Cover image of 'Self-employment and cancer'

Self-employment and cancer (April 2019)

Macmillan Cancer Support

This booklet is about coping with cancer while you are self-employed or running a small business. It is for sole traders, freelancers, contractors or those running a micro business (one that employs fewer than 10 people). It includes information and guidance about: how treatment might affect your work; things to consider when making decisions about your business; talking to clients or customers about your situation; getting support with your business or personal finances.

Cover image of 'Looking after someone with cancer'

Looking after someone with cancer (May 2019)

Macmillan Cancer Support

This booklet is about looking after someone who has cancer. It explains: what it means to be a carer; who can help support you and the person you care for; the practical, emotional and financial issues you may face, and how to cope with them; ways you can help the person you care for manage symptoms or side effects; how to look after yourself.

Cover image of 'Managing breathlessness'

Managing breathlessness (March 2019)

Macmillan Cancer Support

This booklet is for people who have breathlessness due to cancer or its treatment. It includes information about breathing and relaxation exercises, treatments, practical tips for everyday living and a list of useful contacts for further information and support. It also includes a copy of the 'Relax and breathe' CD.

Cover image of 'Pancreatic cancer. What is it? How is it diagnosed? An Easy Read booklet'

Pancreatic cancer. What is it? How is it diagnosed? An Easy Read booklet (July 2019)

Pancreatic Cancer UK

Easy read information using pictures and simple words to explain what pancreatic cancer is and how it is diagnosed. 

Cover image of 'NHS breast screening. Helping you decide [Urdu]'

NHS breast screening. Helping you decide [Urdu] (2019)

Department of Health in association with the NHS Cancer Screening Programmes

This leaflet has information about breast screening, including false positive and false negative results, to help women make an informed choice about taking part. It explains what breast screening is, what happens during the test, what happens to the mammograms once read, and the benefits and difficulties of breast screening.

Cover image of 'NHS breast screening. Helping you decide [Russian]'

NHS breast screening. Helping you decide [Russian] (2019)

Department of Health in association with the NHS Cancer Screening Programmes

This leaflet has information about breast screening, including false positive and false negative results, to help women make an informed choice about taking part. It explains what breast screening is, what happens during the test, what happens to the mammograms once read, and the benefits and difficulties of breast screening.

Cover image of 'NHS breast screening. Helping you decide [Latvian]'

NHS breast screening. Helping you decide [Latvian] (2019)

Department of Health in association with the NHS Cancer Screening Programmes

This leaflet has information about breast screening, including false positive and false negative results, to help women make an informed choice about taking part. It explains what breast screening is, what happens during the test, what happens to the mammograms once read, and the benefits and difficulties of breast screening.

Cover image of 'Coping with advanced cancer'

Coping with advanced cancer (January 2019)

Macmillan Cancer Support

This booklet is for people who have cancer that has come back or spread. This is sometimes called advanced cancer. It looks at some of the concerns you may be dealing with and has advice about ways of coping. It also talks about treatments and your feelings and has practical information about getting help and support.

Cover image of 'NHS breast screening. Helping you decide [Portuguese]'

NHS breast screening. Helping you decide [Portuguese] (2019)

Department of Health in association with the NHS Cancer Screening Programmes

This leaflet has information about breast screening, including false positive and false negative results, to help women make an informed choice about taking part. It explains what breast screening is, what happens during the test, what happens to the mammograms once read, and the benefits and difficulties of breast screening.

Cover image of 'This free NHS test kit could save your life'

This free NHS test kit could save your life (January 2019)

Bowel Screening Wales

This leaflet describes the benefits of the bowel screening test kit, what the kit looks for, and what happens if blood is found in your sample. It also has information on how to reduce your risk of bowel cancer and the symptoms to look out for.

Cover image of 'NHS breast screening. Helping you decide [Romanian]'

NHS breast screening. Helping you decide [Romanian] (2019)

Department of Health in association with the NHS Cancer Screening Programmes

This leaflet has information about breast screening, including false positive and false negative results, to help women make an informed choice about taking part. It explains what breast screening is, what happens during the test, what happens to the mammograms once read, and the benefits and difficulties of breast screening.

Cover image of 'Understanding primary brain tumours'

Understanding primary brain tumours (September 2019)

Macmillan Cancer Support

This booklet is about primary brain tumours. It is for anyone who has been diagnosed with a primary brain tumour. There is also information for carers, family members and friends. The booklet explains the signs and symptoms of a primary brain tumour, and how it is diagnosed and treated. It also has information about emotional, practical and financial issues. 

Cover image of 'NHS breast screening. Helping you decide [Polish]'

NHS breast screening. Helping you decide [Polish] (2019)

Department of Health in association with the NHS Cancer Screening Programmes

This leaflet has information about breast screening, including false positive and false negative results, to help women make an informed choice about taking part. It explains what breast screening is, what happens during the test, what happens to the mammograms once read, and the benefits and difficulties of breast screening.

Cover image of 'Managing breathlessness [Polish]'

Managing breathlessness [Polish] (March 2019)

Macmillan Cancer Support

Polish translation of selected pages from the Macmillan booklet "Managing breathlessness" (MAC12918_E04_N).

Cover image of 'NHS breast screening. Helping you decide [Lithuanian]'

NHS breast screening. Helping you decide [Lithuanian] (2019)

Department of Health in association with the NHS Cancer Screening Programmes

This leaflet has information about breast screening, including false positive and false negative results, to help women make an informed choice about taking part. It explains what breast screening is, what happens during the test, what happens to the mammograms once read, and the benefits and difficulties of breast screening.

Cover image of 'NHS breast screening. Helping you decide'

NHS breast screening. Helping you decide (2019)

Department of Health in association with the NHS Cancer Screening Programmes

This leaflet has information about breast screening, including false positive and false negative results, to help women make an informed choice about taking part. It explains what breast screening is, what happens during the test, what happens to the mammograms once read, and the benefits and difficulties of breast screening.

Cover image of 'Depression and low mood'

Depression and low mood (October 2019)

The Brain Tumour Charity

This leaflet explains what depression is and describes the signs and symptoms and possible causes.

Cover image of 'Understanding stomach cancer'

Understanding stomach cancer (September 2019)

Macmillan Cancer Support

This booklet is for anyone who has been diagnosed with stomach cancer. There is also information for carers, family members and friends. It talks about the signs and symptoms of stomach cancer and explains how it is diagnosed and how it may be treated. It also has information about emotional, practical and financial issues. 

Cover image of 'This free NHS test kit could save your life [Welsh]'

This free NHS test kit could save your life [Welsh] (January 2019)

Bowel Screening Wales

This leaflet describes the benefits of the bowel screening test kit, what the kit looks for, and what happens if blood is found in your sample. It also has information on how to reduce your risk of bowel cancer and the symptoms to look out for.

Cover image of 'Managing cancer pain'

Managing cancer pain (July 2019)

Macmillan Cancer Support

This booklet aims to help people understand more about cancer pain and the wide range of medical and complementary treatments available for controlling it. It describes pain and its possible causes, before covering individual methods of pain control. It includes a section on how to describe pain, a pullout pain diary, information about sources of support, and lists of useful organisation and websites.

Cover image of 'Caring for your child at end of life. A guide for parents and carers'

Caring for your child at end of life. A guide for parents and carers (October 2019)

Together for Short Lives

Practical information to support parents and carers at this difficult time. It aims to answer some of the questions that you might have, and sets out what you should expect from children’s palliative care services with useful links to further sources of information and support. Includes reflections from families on their experience of losing a child. 

Cover image of 'Cancer treatment and fertility. Information for women'

Cancer treatment and fertility. Information for women (September 2019)

Macmillan Cancer Support

This booklet is for anyone who needs information about how cancer and its treatments can affect fertility. It explains how cancer treatments can affect fertility, how fertility can be preserved before cancer treatment, how fertility can be tested after treatment, options for fertility treatment to start a pregnancy, and other options for having a child. This booklet is for anyone who needs information on this before, during or after cancer treatment.

Cover image of 'Breast care for women'

Breast care for women (August 2019)

Macmillan Cancer Support|CHANGE

An easy read booklet about breast cancer, how to check your breasts, changes to look for and breast screening. 

Cover image of 'NHS breast screening. Helping you decide [Punjabi]'

NHS breast screening. Helping you decide [Punjabi] (2019)

Department of Health in association with the NHS Cancer Screening Programmes

This leaflet has information about breast screening, including false positive and false negative results, to help women make an informed choice about taking part. It explains what breast screening is, what happens during the test, what happens to the mammograms once read, and the benefits and difficulties of breast screening.

Cover image of 'Coping with thinking difficulties (cognitive impairment)'

Coping with thinking difficulties (cognitive impairment) (September 2019)

The Brain Tumour Charity

This leaflet explains what is meant by cognitive impairment and has suggestions to help people cope.

Cover image of 'Speech and language difficulties'

Speech and language difficulties (September 2019)

The Brain Tumour Charity

This leaflet explains how brain tumours can affect communication. It describes the communication difficulties that someone with a brain tumour may experience, and the emotional difficulties that this may cause for them and their family and friends.

Cover image of 'Heart health and cancer treatment'

Heart health and cancer treatment (February 2019)

Macmillan Cancer Support and British Heart Foundation

Some people affected by cancer have problems with their heart health. This is because some cancer treatments can affect the heart. Problems can also arise if you already have a heart condition when you’re diagnosed with cancer. This booklet is for you if: you’ve been told that your cancer treatment may affect your heart; you have a heart condition and need cancer treatment; you’d like to find out how you can improve the health of your heart before, during and after cancer treatment.

Cover image of 'NHS breast screening. Helping you decide [Chinese, Simplified]'

NHS breast screening. Helping you decide [Chinese, Simplified] (2019)

Department of Health in association with the NHS Cancer Screening Programmes

This leaflet has information about breast screening, including false positive and false negative results, to help women make an informed choice about taking part. It explains what breast screening is, what happens during the test, what happens to the mammograms once read, and the benefits and difficulties of breast screening.

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