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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 601

Cover image of 'Post-transplant lymphoproliferative disorder (PTLD)'

Post-transplant lymphoproliferative disorder (PTLD) (April 2019)

Lymphoma Action

Post-transplant lymphoproliferative disorders (PTLD) are lymphomas that can develop in people who are taking treatment to dampen their immune system after a transplant. This factsheet covers: What is PTLD?; What causes PTLD?; Who might get PTLD?; Symptoms of PTLD; Treatment for PTLD; Risks associated with PTLD.

Cover image of 'Reduced fertility'

Reduced fertility (April 2019)

Lymphoma Action

This factsheet gives an overview of the risks to fertility associated with common lymphoma treatments. It outlines methods to help preserve fertility before treatment. Topics include: chemotherapy and fertility; radiotherapy and fertility; targeted therapies and fertility; preserving fertility; planning a family after lymphoma treatment; ways to help you conceive if you have fertility difficulties; emotional support; useful resources and organisations

Cover image of 'Osteonecrosis of the jaw (ONJ)'

Osteonecrosis of the jaw (ONJ) (February 2019)

Myeloma UK

This factsheet has information about osteonecrosis of the jaw (ONJ), a rare condition that can occur during long-term treatment of myeloma with bisphosphonates.It describes bisphosphonates, why they are linked to ONJ, the risk factors for ONJ, its symptoms, and how it is treated and managed. Includes self-care tips to reduce the risk of ONJ.

Cover image of 'Anaplastic large cell lymphoma (ALCL)'

Anaplastic large cell lymphoma (ALCL) (August 2019)

Lymphoma Action

ALCL can be cutaneous (found only in the skin) or systemic (affecting the whole body). This information sheet is about systemic ALCL.  

Cover image of 'Bowel problems'

Bowel problems (August 2019)

Lymphoma Action

Lymphoma, and some of the treatments for lymphoma, can cause bowel problems. Although these are usually mild and temporary, any change in bowel habits can have a considerable impact on day-to-day life and can be difficult to discuss. This factsheet has practical advice to help you cope with diarrhoea, constipation, and wind (flatulence).

Cover image of 'Protect yourself against bowel cancer'

Protect yourself against bowel cancer (2019)

World Cancer Research Fund

This leaflet explains who is at risk, how colorectal cancer is detected and diagnosed, and how to help reduce cancer risk. It also describes the symptoms to look out for and the national screening programme.

Cover image of 'Living with lymphoedema after breast cancer'

Living with lymphoedema after breast cancer (April 2019)

Breast Cancer Care

This booklet explains what lymphoedema is, and describes the physical symptoms and the treatment options.

Cover image of 'Symptoms diary'

Symptoms diary (2019)

Headsmart

Brain tumours are relatively rare, but early diagnosis can save lives, which is why keeping track of any potential symptoms can help to make the most out of a doctor’s appointment and may lead to a quicker referral or better reassurance. You can use the diary at your appointment to describe the symptoms and explain your concerns.

Cover image of 'Lymphoma and HIV'

Lymphoma and HIV (April 2019)

Lymphoma Action

This factsheet gives an overview of human immunodeficiency virus (HIV) and lymphoma. It is for people who have HIV and want to know more about their risk of developing lymphoma, or who have been diagnosed with lymphoma and want more information about what happens next and where to go for more information and support. It covers the following topics: About HIV and lymphoma; Being diagnosed with lymphoma and HIV; Types of lymphoma; Symptoms; Treatment; Outlook; Relapse; Looking after yourself; After treatment for lymphoma; Further information and support.

Cover image of 'Intestinal T-cell lymphomas'

Intestinal T-cell lymphomas (August 2019)

Lymphoma Action

Intestinal T-cell lymphomas are rare types of T-cell lymphoma that develop in the small bowel; they include enteropathy-associated T-cell lymphoma (EATL) and monomorphic epitheliotropic intestinal T-cell lymphoma (MEITL). This factsheet explains what intestinal T-cell lymphoma is and who gets it, and describes the symptoms, treatment, relapsed or refractory intestinal T-cell lymphoma, research, and targeted treatments.

Cover image of 'Adult T-cell leukaemia/lymphoma (ATL)'

Adult T-cell leukaemia/lymphoma (ATL) (August 2019)

Lymphoma Action

This factsheet is about adult T-cell leukaemia/lymphoma (ATL), a rare type of T-cell lymphoma associated with the HTLV-1 virus. It covers: What is ATL?; Who gets it?; Symptoms; Treatment; Relapsed and refractory ATL; Research and targeted treatments. 

Cover image of 'Thrombocytopenia and myeloma'

Thrombocytopenia and myeloma (April 2019)

Myeloma UK

This factsheet explains what thrombocytopenia is, the causes and symptoms, and how it is diagnosed, monitored and treated. It also has some tips for self-management. 

Cover image of 'Lymphoma and the end of life'

Lymphoma and the end of life (September 2019)

Lymphoma Action

This factsheet is about what someone in the final stages of life might experience and gives suggestions to help you get the practical, social and emotional support you need. It covers the following topics: How do I know when to stop active treatment?; How does lymphoma lead to the end of life?; What symptoms might I have towards the end of life?; How can my medical team help?; Your emotions towards the end of your life; Emotional support; Frequently asked questions about lymphoma and the end of life.

Cover image of 'Managing stress'

Managing stress (June 2019)

Lymphoma Action

Living with lymphoma can cause a great deal of stress, whether you have been diagnosed or someone close to you has. This factsheet outlines common signs of stress and offers practical tips to help you manage it. Contents: What is stress?; What circumstances bring stress?; Can stress make my lymphoma worse?; Managing stress; Living with and beyond lymphoma. 

Cover image of 'Symptoms of cervical cancer'

Symptoms of cervical cancer (November 2019)

Macmillan Cancer Support|CHANGE

An easy read booklet about cervical cancer symptoms and when to see your doctor. 

Cover image of 'The bowel screening test. What you need to know [Large print]'

The bowel screening test. What you need to know [Large print] (November 2019)

NHS Health Scotland

This leaflet explains the benefits of the bowel screening test, how the test is done, and the signs and symptoms of bowel cancer, and has tips on how to reduce the risk of bowel cancer.

Cover image of 'Reducing the risk of lymphoedema'

Reducing the risk of lymphoedema (April 2019)

Breast Cancer Care

This leaflet explains what lymphoedema is and who is at risk. It describes how to reduce the risk of developing lymphoedema, and what to do if problems occur (swelling and skin damage).

Cover image of 'The bowel screening test. What you need to know'

The bowel screening test. What you need to know (November 2019)

NHS Health Scotland

This leaflet explains the benefits of the bowel screening test, how the test is done, and the signs and symptoms of bowel cancer, and has tips on how to reduce the risk of bowel cancer.

Cover image of 'The bowel screening test. What you need to know [Chinese, Traditional]'

The bowel screening test. What you need to know [Chinese, Traditional] (November 2019)

NHS Health Scotland

This leaflet explains the benefits of the bowel screening test, how the test is done, and the signs and symptoms of bowel cancer, and has tips on how to reduce the risk of bowel cancer.

Cover image of 'Your body, intimacy and sex'

Your body, intimacy and sex (November 2019)

Breast Cancer Now

Breast cancer and its treatments can cause many physical and emotional changes. This booklet outlines how these changes can alter the way you feel about your body, and how they may affect sex and intimacy. The booklet covers many topics including getting used to changes to your body, how breast cancer and its treatments may affect your sex life or intimate relationships, and offers tips on sex and intimacy after treatment. 

Cover image of 'After breast cancer treatment: what now?'

After breast cancer treatment: what now? (June 2019)

Breast Cancer Care

This booklet explains what happens after your hospital-based treatments finish. It includes information on follow-up care, being breast and body aware, the ways breast cancer may come back, and how you might feel after treatment ends.

Cover image of 'Fertility, pregnancy and breast cancer'

Fertility, pregnancy and breast cancer (October 2019)

Breast Cancer Now

This booklet is about breast cancer treatment and fertility. It describes how treatment for primary breast cancer may affect a woman’s fertility, and possible ways of preserving fertility. It also includes information about pregnancy after a diagnosis of breast cancer, and permanent infertility. 

Cover image of 'Cannabinoids – information for patients and carers'

Cannabinoids – information for patients and carers (January 2019)

Brainstrust

This factsheet explains the difference between Cannabidiol (CBD) and cannabis oil, the evidence to date, and the current legal status.

Cover image of 'Sex and fertility'

Sex and fertility (November 2019)

Orchid – Fighting Male Cancer

This leaflet describes sperm banking and how different treatment options for testicular cancer may affect a man’s fertility.

Cover image of 'The bowel screening test. What you need to know [Chinese, Simplified]'

The bowel screening test. What you need to know [Chinese, Simplified] (November 2019)

NHS Health Scotland

This leaflet explains the benefits of the bowel screening test, how the test is done, and the signs and symptoms of bowel cancer, and has tips on how to reduce the risk of bowel cancer.

Cover image of 'POEMS syndrome'

POEMS syndrome (March 2019)

Myeloma UK

POEMS syndrome is a rare disorder that can affect multiple systems in the body. It is named after five common features of the syndrome: polyneuropathy (also known as peripheral neuropathy); organomegaly (enlargement of organs, such as the liver, spleen or lymph nodes); endocrinopathy (abnormal function of endocrine glands); monoclonal plasma cell disorder; and skin changes. This factsheet explains what POEMS syndrome is, how it is diagnosed and how it is treated and managed.

Cover image of 'Understanding secondary cancer in the bone'

Understanding secondary cancer in the bone (April 2019)

Macmillan Cancer Support

This booklet has information on secondary cancer in the bone, what it is, what causes it, the symptoms, how it is diagnosed, and the treatment options. It also covers issues such as emotions, talking to children, and how family and friends can help. 

Cover image of 'Manversation. A woman's guide to prostate cancer. Support and guidance for women whose partners have been diagnosed with prostate cancer'

Manversation. A woman's guide to prostate cancer. Support and guidance for women whose partners have been diagnosed with prostate cancer (October 2019)

Orchid – Fighting Male Cancer|Tackle Prostate Cancer

The Manversation campaign aims to challenge outdated stereotypes, raise awareness of the symptoms of advanced prostate cancer and encourage men to speak up about potential symptoms as soon as they experience them. This leaflet describes how women can support men with advanced prostate cancer and how they can get supoport for themselves.

Cover image of 'Difficulty swallowing'

Difficulty swallowing (February 2019)

Marie Curie

Having difficulty swallowing is a common problem for people living with a terminal illness. It can affect your ability to eat, drink and take medication, and this may be worrying for you and your family and friends. This booklet has information about how your healthcare team can help you, and what you can do to help yourself.

Cover image of 'Extranodal NK-T-cell lymphoma, nasal type'

Extranodal NK-T-cell lymphoma, nasal type (August 2019)

Lymphoma Action

This factsheet is about extranodal NK/T-cell lymphoma, nasal type – a rare lymphoma associated with Epstein-Barr virus (EBV) infection, which usually develops in the nose. It covers: What is extranodal NK/T-cell lymphoma? Who gets it? Symptoms; Treatment; Relapsed or refractory extranodal NK/T-cell lymphoma; Research and targeted treatments.

Cover image of 'Anna loses her hair. A children’s guide to hair loss as a result of cancer treatment'

Anna loses her hair. A children’s guide to hair loss as a result of cancer treatment (April 2019)

Children's Cancer and Leukaemia Group

Hair loss is a common side effect of treatment for childhood cancer, but its impact can be significant. This animation tells the story of Anna, Jack and Laura who all lose their hair while having treatment for cancer and helps young children to understand what might happen.

Cover image of 'Understanding brain metastasis and lung cancer'

Understanding brain metastasis and lung cancer (February 2019)

Roy Castle Lung Cancer Foundation

If you or someone you care for has lung cancer and has been told about brain metastases, then this booklet will help answer your questions about symptoms, tests, and what treatments may be available. 

Cover image of 'Understanding advanced melanoma'

Understanding advanced melanoma (July 2019)

Macmillan Cancer Support

This booklet explains melanoma that has spread to another area (advanced or metastatic melanoma). It describes advanced melanoma, the signs and symptoms, diagnosis and staging, and the treatment options. It also discusses coping with the symptoms of advanced melanoma and the side effects of treatment, feelings and emotions and lists further sources of support.

Cover image of 'What is bowel cancer? What it is, who’s at risk and what to look out for'

What is bowel cancer? What it is, who’s at risk and what to look out for (June 2019)

Bowel Cancer UK

A5 leaflet outlining what bowel cancer is, who's at risk and what symptoms to look out for. 

Cover image of 'Ascites and ascitic drainage. Build-up of fluid in the abdomen (tummy) and how it can be treated'

Ascites and ascitic drainage. Build-up of fluid in the abdomen (tummy) and how it can be treated (September 2019)

Marie Curie

This leaflet aims to help you understand ascites (build-up of fluid in the abdomen), what causes it and how it can be treated. It explains how the fluid can be removed in a procedure called ascitic drainage, or paracentesis. 

Cover image of 'Peripheral T-cell lymphoma not otherwise specified (PTCL-NOS)'

Peripheral T-cell lymphoma not otherwise specified (PTCL-NOS) (August 2019)

Lymphoma Action

When a T-cell lymphoma doesn’t fit into any particular category of T-cell lymphoma, it is called peripheral T-cell lymphoma not otherwise specified (PTCL-NOS). This factsheet covers: What is PTCL-NOS?; Who gets it?; Symptoms; Treatment; Relapsed or refractory PTCL-NOS; Research and targeted treatments.

Cover image of 'The bowel screening test. What you need to know [Urdu]'

The bowel screening test. What you need to know [Urdu] (November 2019)

NHS Health Scotland

This leaflet explains the benefits of the bowel screening test, how the test is done, and the signs and symptoms of bowel cancer, and has tips on how to reduce the risk of bowel cancer.

Cover image of 'Manservation. Sons and daughters guide to prostate cancer. Helping you have those essential conversations with your father about prostate cancer'

Manservation. Sons and daughters guide to prostate cancer. Helping you have those essential conversations with your father about prostate cancer (November 2019)

Orchid – Fighting Male Cancer|Tackle Prostate Cancer

The Manversation campaign aims to challenge outdated stereotypes, raise awareness of the symptoms of advanced prostate cancer and encourage men to speak up about potential symptoms as soon as they experience them. This leaflet gives an overview of prostate cancer and has tips for how adult sons and daughters can support their fathers.

Cover image of 'Eating well when eating becomes difficult. Support your health during cancer treatment'

Eating well when eating becomes difficult. Support your health during cancer treatment (April 2019)

Penny Brohn UK

This booklet aims to address some of the common difficulties that people may experience with eating during cancer treatment. It has advice and tips to help cope with the common effects of chemotherapy, radiotherapy, immunotherapy and hormonal therapy, such as oral thrush, sore or dry mouth, swallowing difficulties, taste changes, nausea, constipation, diarrhoea, and tenesmus.

Cover image of 'Understanding breast cancer in women'

Understanding breast cancer in women (January 2019)

Macmillan Cancer Support

This booklet is about breast cancer in women. It is for women who are having tests for breast cancer and women who have been diagnosed with breast cancer. It covers breast cancer that has not spread to other parts of the body and describes the causes, symptoms, diagnosis, stages, and treatment (including surgery, radiotherapy, chemotherapy and hormonal therapy). It also discusses issues such as fertility, hormone replacement therapy, and feelings. Includes details of useful organisations and other resources.

Cover image of 'Understanding ductal carcinoma in situ (DCIS)'

Understanding ductal carcinoma in situ (DCIS) (January 2019)

Macmillan Cancer Support

This booklet has information for women who have ductal carcinoma in situ (DCIS). It describes DCIS, the risk factors and causes, symptoms, diagnosis and tests, staging and grading, and the treatment options (surgery, radiotherapy, hormonal therapies). It also covers issues such as life after treatment and feelings.

Cover image of 'Hepatosplenic T-cell lymphoma'

Hepatosplenic T-cell lymphoma (August 2019)

Lymphoma Action

Hepatosplenic T-cell lymphoma is a rare type of lymphoma that affects the liver and spleen. This factsheet covers the following topics: What is hepatosplenic T-cell lymphoma?; Who gets it?; Symptoms; Treatment; Relapsed or refractory hepatosplenic T-cell lymphoma; Research and targeted treatments.

Cover image of 'The bowel screening test. What you need to know [Arabic]'

The bowel screening test. What you need to know [Arabic] (November 2019)

NHS Health Scotland

This leaflet explains the benefits of the bowel screening test, how the test is done, and the signs and symptoms of bowel cancer, and has tips on how to reduce the risk of bowel cancer.

Cover image of 'The bowel screening test. What you need to know [Polish]'

The bowel screening test. What you need to know [Polish] (November 2019)

NHS Health Scotland

This leaflet explains the benefits of the bowel screening test, how the test is done, and the signs and symptoms of bowel cancer, and has tips on how to reduce the risk of bowel cancer.

Cover image of 'Understanding cancer of unknown primary'

Understanding cancer of unknown primary (June 2019)

Macmillan Cancer Support

Information about cancer of unknown primary (CUP). This booklet explains what CUP is and why the primary cancer cannot be found, and describes how it is diagnosed, the tests that might be carried out, and the treatment options. It also covers coping with CUP, feelings, and financial help.

Cover image of 'A simple guide to the prostate'

A simple guide to the prostate (October 2019)

Prostate Scotland

This leaflet describes the prostate, the most common symptoms or signs and what they might mean (benign prostatic hyperplasia, prostatis, prostate cancer).

Cover image of 'Work and cancer'

Work and cancer (April 2019)

Macmillan Cancer Support

This booklet aims to help people with cancer cope with issues that they may face at work both during treatment and afterwards.

Cover image of 'Understanding breast cancer in men'

Understanding breast cancer in men (January 2019)

Macmillan Cancer Support

This booklet is about breast cancer in men. It is for men who are having tests for breast cancer and men who have been diagnosed with breast cancer. It explains the signs and symptoms of breast cancer in men. It explains how it is diagnosed and how it may be treated. It also has information about emotional, practical and financial issues.

Cover image of 'How are you feeling? The emotional effects of cancer'

How are you feeling? The emotional effects of cancer (February 2019)

Macmillan Cancer Support

Having cancer affects all areas of your life, including the way you feel. This booklet is about the main emotions that many people with cancer have. This may be after diagnosis, during treatment or after treatment has ended.

Cover image of 'Adrenocortical carcinoma - AAC. Patient information for adult patients'

Adrenocortical carcinoma - AAC. Patient information for adult patients (October 2019)

Adrenocortical Cancer Support and Information

Guidance for people with adrenocortical carcinoma (AAC). Describes what AAC is, its symptoms, diagnosis, and treatment options.

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