The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Pelvic Radiation Disease Association
Credit-card leaflet, with general information about the symptoms of pelvic radiation disease.
Prostate Cancer UK
This factsheet is for men with advanced prostate cancer that has spread to the bones. It explains what metastatic spinal cord compression is and describes the risk of developing it, the symptoms and the treatment options.
Macmillan Cancer Support
This booklet is about breast cancer in men. It is for men who are having tests for breast cancer and men who have been diagnosed with breast cancer. It explains the signs and symptoms of breast cancer in men. It explains how it is diagnosed and how it may be treated. It also has information about emotional, practical and financial issues.
Macmillan Cancer Support
This booklet is about coping with cancer while you are self-employed or running a small business. It is for sole traders, freelancers, contractors or those running a micro business (one that employs fewer than 10 people). It includes information and guidance about: how treatment might affect your work; things to consider when making decisions about your business; talking to clients or customers about your situation; getting support with your business or personal finances.
Macmillan Cancer Support
This booklet is for people who have breathlessness due to cancer or its treatment. It includes information about breathing and relaxation exercises, treatments, practical tips for everyday living and a list of useful contacts for further information and support. It also includes a copy of the 'Relax and breathe' CD.
Macmillan Cancer Support and British Heart Foundation
Some people affected by cancer have problems with their heart health. This is because some cancer treatments can affect the heart. Problems can also arise if you already have a heart condition when you’re diagnosed with cancer. This booklet is for you if: you’ve been told that your cancer treatment may affect your heart; you have a heart condition and need cancer treatment; you’d like to find out how you can improve the health of your heart before, during and after cancer treatment.
Macmillan Cancer Support
Having cancer affects all areas of your life, including the way you feel. This booklet is about the main emotions that many people with cancer have. This may be after diagnosis, during treatment or after treatment has ended.
Macmillan Cancer Support
This booklet aims to help people with cancer cope with issues that they may face at work both during treatment and afterwards.
Macmillan Cancer Support
Audio CD of the booklet, which describes the causes, symptoms, diagnosis, stages, and treatment of breast cancer including surgery, radiotherapy, chemotherapy and hormonal therapy. It also discusses issues such as fertility, hormone replacement therapy, and feelings. Includes details of useful organisations and other resources such as books and websites.
Macmillan Cancer Support
This booklet explains melanoma that has spread to another area (advanced or metastatic melanoma). It describes advanced melanoma, the signs and symptoms, diagnosis and staging, and the treatment options. It also discusses coping with the symptoms of advanced melanoma and the side effects of treatment, feelings and emotions and lists further sources of support.
Macmillan Cancer Support
Information about cancer of unknown primary (CUP). This booklet explains what CUP is and why the primary cancer cannot be found, and describes how it is diagnosed, the tests that might be carried out, and the treatment options. It also covers coping with CUP, feelings, and financial help.
Pancreatic Cancer UK
Easy read information using pictures and simple words to explain what pancreatic cancer is and how it is diagnosed.
Macmillan Cancer Support
This booklet is for people who have cancer that has come back or spread. This is sometimes called advanced cancer. It looks at some of the concerns you may be dealing with and has advice about ways of coping. It also talks about treatments and your feelings and has practical information about getting help and support.
Macmillan Cancer Support
This booklet explains how care and support is arranged for people with cancer when they are discharged from hospital.
Macmillan Cancer Support
This booklet is about looking after someone who has cancer. It explains: what it means to be a carer; who can help support you and the person you care for; the practical, emotional and financial issues you may face, and how to cope with them; ways you can help the person you care for manage symptoms or side effects; how to look after yourself.
Crohn's and Colitis UK
Crohn’s and Colitis can increase the risk of bowel cancer in some people, particularly for those whose condition affects all or most of their large bowel. This information sheet looks at the relationship between bowel cancer and Crohn’s and Colitis, and how you can reduce your risk. It also describes changes in the lining of the bowel that may develop into cancer, and how these changes are detected.
Department of Health in association with the NHS Cancer Screening Programmes
This leaflet has information about breast screening, including false positive and false negative results, to help women make an informed choice about taking part. It explains what breast screening is, what happens during the test, what happens to the mammograms once read, and the benefits and difficulties of breast screening.
Department of Health in association with the NHS Cancer Screening Programmes
This leaflet has information about breast screening, including false positive and false negative results, to help women make an informed choice about taking part. It explains what breast screening is, what happens during the test, what happens to the mammograms once read, and the benefits and difficulties of breast screening.
Department of Health in association with the NHS Cancer Screening Programmes
This leaflet has information about breast screening, including false positive and false negative results, to help women make an informed choice about taking part. It explains what breast screening is, what happens during the test, what happens to the mammograms once read, and the benefits and difficulties of breast screening.
Department of Health in association with the NHS Cancer Screening Programmes
This leaflet has information about breast screening, including false positive and false negative results, to help women make an informed choice about taking part. It explains what breast screening is, what happens during the test, what happens to the mammograms once read, and the benefits and difficulties of breast screening.
Department of Health in association with the NHS Cancer Screening Programmes
This leaflet has information about breast screening, including false positive and false negative results, to help women make an informed choice about taking part. It explains what breast screening is, what happens during the test, what happens to the mammograms once read, and the benefits and difficulties of breast screening.
Department of Health in association with the NHS Cancer Screening Programmes
This leaflet has information about breast screening, including false positive and false negative results, to help women make an informed choice about taking part. It explains what breast screening is, what happens during the test, what happens to the mammograms once read, and the benefits and difficulties of breast screening.
Department of Health in association with the NHS Cancer Screening Programmes
This leaflet has information about breast screening, including false positive and false negative results, to help women make an informed choice about taking part. It explains what breast screening is, what happens during the test, what happens to the mammograms once read, and the benefits and difficulties of breast screening.
Department of Health in association with the NHS Cancer Screening Programmes
This leaflet has information about breast screening, including false positive and false negative results, to help women make an informed choice about taking part. It explains what breast screening is, what happens during the test, what happens to the mammograms once read, and the benefits and difficulties of breast screening.
Department of Health in association with the NHS Cancer Screening Programmes
This leaflet has information about breast screening, including false positive and false negative results, to help women make an informed choice about taking part. It explains what breast screening is, what happens during the test, what happens to the mammograms once read, and the benefits and difficulties of breast screening.
Department of Health in association with the NHS Cancer Screening Programmes
This leaflet has information about breast screening, including false positive and false negative results, to help women make an informed choice about taking part. It explains what breast screening is, what happens during the test, what happens to the mammograms once read, and the benefits and difficulties of breast screening.
The Royal Marsden NHS Foundation Trust
This booklet explains the risk of developing a blood clot while in hospital. It describes the signs of a blood clot, who is at risk, and how to reduce the risk of developing a blood clot. Please note: this booklet includes contact details and instructions specific to the Royal Marsden Hospital.
Department of Health in association with the NHS Cancer Screening Programmes
This leaflet has information about breast screening, including false positive and false negative results, to help women make an informed choice about taking part. It explains what breast screening is, what happens during the test, what happens to the mammograms once read, and the benefits and difficulties of breast screening.
Penny Brohn UK
This booklet aims to address some of the common difficulties that people may experience with eating during cancer treatment. It has advice and tips to help cope with the common effects of chemotherapy, radiotherapy, immunotherapy and hormonal therapy, such as oral thrush, sore or dry mouth, swallowing difficulties, taste changes, nausea, constipation, diarrhoea, and tenesmus.
Breast Cancer Now
This booklet is about breast cancer treatment and fertility. It describes how treatment for primary breast cancer may affect a woman’s fertility, and possible ways of preserving fertility. It also includes information about pregnancy after a diagnosis of breast cancer, and permanent infertility.
Macmillan Cancer Support
This booklet provides information about primary bone cancer, including the different types, its causes, symptoms, diagnosis and treatment. It also explores emotions, and issues such as living with an amputation. Includes details of useful organisations and other resources such as websites.
The Royal Marsden NHS Foundation Trust
Cancer and its treatment can affect appetite and enjoyment of food. This booklet has been written to help people eat well when they have a poor appetite or are losing weight. It suggests foods to eat to maintain a healthy diet, foods to avoid, nourishing and supplementary drinks, and high-energy foods. It also has advice for times when eating is difficult, as a result, for example, of fatigue, nausea, sore mouth, diarrhoea, or constipation. Includes recipes and sources of further information and support.
Macmillan Cancer Support
This booklet aims to help people understand more about cancer pain and the wide range of medical and complementary treatments available for controlling it. It describes pain and its possible causes, before covering individual methods of pain control. It includes a section on how to describe pain, a pullout pain diary, information about sources of support, and lists of useful organisation and websites.
Independently published
How do you cope with the death of a parent at 24 years old? The time when you’re somewhere between independence and reliance on parents, figuring out who you are and what you want to do, and trying to maintain friendships and a social life when your world is crumbling around you and no one understands. Rose Taylor straddled two worlds; living in both a picturesque English village and an adventure filled Hollywood lifestyle in Los Angeles. But in late 2017 life hurtled her into a new realm, one that was immersed in medical settings and put her life on hold. In this compelling and emotive memoir, Rose Taylor explores the first 365 days following the death of her father. She writes frankly about the moment of diagnosis, the experience of becoming a carer for a parent and sheds light on the psychological and physical symptoms of bereavement. The book takes the reader between London, Atlanta and Los Angeles weaving together the experience of grieving and a narrative of reconciling memory and loss. The book ultimately offers a voice for grieving young adults, with the aim of showing them they are not alone. (Publisher)
Macmillan Cancer Support
This booklet is for anyone who needs information about how cancer and its treatments can affect fertility. It explains how cancer treatments can affect fertility, how fertility can be preserved before cancer treatment, how fertility can be tested after treatment, options for fertility treatment to start a pregnancy, and other options for having a child. This booklet is for anyone who needs information on this before, during or after cancer treatment.
Target Ovarian Cancer
This video describes the symptoms of ovarian cancer.
Pancreatic Cancer Action
A booklet for patients and carers covering the different procedures used to control pancreaticcancer symptoms with practical information about being in hospital and returning home. Includes a section about second opinions, clinical trials, questions to ask your doctor and a glossary to explain some of the terms used.
Lymphoma Action
This information gives details about the symptoms of lymphoma and the possible reasons for them: B symptoms; swollen lymph nodes; fatigue; unexplained weight loss; night sweats; itching; fever; difficulty getting over infections; chest symptoms; abdominal (tummy) symptoms; pain; skin symptoms; brain and nerve symptoms; swelling in the arms or legs; anaemia (low red blood cells).
Lymphoma Action
This factsheet has general guidance for coping with some of the symptoms of lymphoma, including: swollen lymph nodes; fatigue; weight loss; night sweats; itching; pain; skin symptoms; swollen arms or legs; and coping with your emotions.
Breast Cancer Care
A booklet for women who are experiencing menopausal symptoms after breast cancer treatment. It has advice on treatments (prescription drugs and complementary therapies) and practical measures for coping with hot flushes, vaginal dryness, loss of libido, mood swings, joint pain and risk of osteoporosis. Includes details of further support.
Ovacome
This factsheet briefly describes the most common symptoms of ovarian cancer, as well as other symptoms that may be experienced.
Macmillan Cancer Support
Malignant spinal cord compression is a rare condition that affects people with certain cancers that have spread to the bones in the spine or that started in the spine. This factsheet describes the symptoms.
Pancreatic Cancer UK
This factsheet describes the signs and symptoms of pancreatic cancer and endocrine tumours.
Macmillan Cancer Support
This factsheet explains what breast cancer is and describes the possible causes, the symptoms, how it is diagnosed, and the treatment options. Includes the English-langage version.
Macmillan Cancer Support
This factsheet explains what breast cancer is and describes the possible causes, the symptoms, how it is diagnosed, and the treatment options. Includes the English-langage version.
Macmillan Cancer Support
This factsheet explains what breast cancer is and describes the possible causes, the symptoms, how it is diagnosed, and the treatment options. Includes the English-langage version.
Macmillan Cancer Support
This factsheet explains what breast cancer is and describes the possible causes, the symptoms, how it is diagnosed, and the treatment options.
Macmillan Cancer Support
This factsheet explains what breast cancer is and describes the possible causes, the symptoms, how it is diagnosed, and the treatment options. Includes the English-langage version.
Macmillan Cancer Support
This factsheet explains what breast cancer is and describes the possible causes, the symptoms, how it is diagnosed, and the treatment options. Includes the English-langage version.
Macmillan Cancer Support
This factsheet explains what breast cancer is and describes the possible causes, the symptoms, how it is diagnosed, and the treatment options. Includes the English-language version.