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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 563

Cover image of 'Post-transplant lymphoproliferative disorder (PTLD)'

Post-transplant lymphoproliferative disorder (PTLD) (April 2019)

Lymphoma Action

Post-transplant lymphoproliferative disorders (PTLD) are lymphomas that can develop in people who are taking treatment to dampen their immune system after a transplant. This factsheet covers: What is PTLD?; What causes PTLD?; Who might get PTLD?; Symptoms of PTLD; Treatment for PTLD; Risks associated with PTLD.

Cover image of 'Eating well. A guide to diet and bowel cancer'

Eating well. A guide to diet and bowel cancer (May 2019)

Bowel Cancer UK

This booklet has information about how food can affect your symptoms during and after bowel cancer treatment. After treatment, you may find you can’t eat the same foods as you did before. These changes may be temporary or they may be longer-lasting. 

Cover image of 'Hair loss'

Hair loss (September 2019)

Lymphoma Action

Some lymphoma treatments can cause your hair to thin or fall out. Knowing what to expect and what you can do about it may help you cope with losing your hair. This factsheet has advice on how to care for your hair and scalp during and after treatment. It also tells you about some of the options you may wish to consider until your hair grows back. 

Cover image of 'Diffuse large B-cell lymphoma (DLBCL)'

Diffuse large B-cell lymphoma (DLBCL) (July 2019)

Lymphoma Action

Diffuse large B-cell lymphoma (DLBCL) is a high-grade non-Hodgkin lymphoma. This factsheet describes what it is, who gets it, the symptoms, diagnosis and staging, the types of DLBCL, the outlook, treatment, follow-up, relapsed or refractory DLBCL, and research and targeted treatments

Cover image of 'Intestinal T-cell lymphomas'

Intestinal T-cell lymphomas (August 2019)

Lymphoma Action

Intestinal T-cell lymphomas are rare types of T-cell lymphoma that develop in the small bowel; they include enteropathy-associated T-cell lymphoma (EATL) and monomorphic epitheliotropic intestinal T-cell lymphoma (MEITL). This factsheet explains what intestinal T-cell lymphoma is and who gets it, and describes the symptoms, treatment, relapsed or refractory intestinal T-cell lymphoma, research, and targeted treatments.

Cover image of 'Eating – help yourself. A guide for patients and their carers'

Eating – help yourself. A guide for patients and their carers (February 2019)

Christie Hospital NHS Trust

Eating may be a problem for people with cancer or other illnesses, particularly when undergoing treatment such as radiotherapy or chemotherapy. This booklet has advice on how to eat well when trying to cope with loss of appetite, changes in taste, dry mouth, difficulties swallowing, feeling full, nausea, diarrhoea, and constipation. It has tips on how to make food as nourishing as possible and ideas for snacks and drinks.

Cover image of 'Lymphoma and the end of life'

Lymphoma and the end of life (September 2019)

Lymphoma Action

This factsheet is about what someone in the final stages of life might experience and gives suggestions to help you get the practical, social and emotional support you need. It covers the following topics: How do I know when to stop active treatment?; How does lymphoma lead to the end of life?; What symptoms might I have towards the end of life?; How can my medical team help?; Your emotions towards the end of your life; Emotional support; Frequently asked questions about lymphoma and the end of life.

Cover image of 'Extranodal NK-T-cell lymphoma, nasal type'

Extranodal NK-T-cell lymphoma, nasal type (August 2019)

Lymphoma Action

This factsheet is about extranodal NK/T-cell lymphoma, nasal type – a rare lymphoma associated with Epstein-Barr virus (EBV) infection, which usually develops in the nose. It covers: What is extranodal NK/T-cell lymphoma? Who gets it? Symptoms; Treatment; Relapsed or refractory extranodal NK/T-cell lymphoma; Research and targeted treatments.

Cover image of 'Living with skin lymphoma'

Living with skin lymphoma (April 2019)

Lymphoma Action

This factsheet has advice and support to help you manage symptoms and to live well with skin (cutaneous) lymphoma. It overs the following topics: Alleviating itching and dryness; Minimising skin irritation; Treating an infection; Controlling your temperature; Managing pain; Improving the appearance of your skin; Day-to-day life.

Cover image of 'Hepatosplenic T-cell lymphoma'

Hepatosplenic T-cell lymphoma (August 2019)

Lymphoma Action

Hepatosplenic T-cell lymphoma is a rare type of lymphoma that affects the liver and spleen. This factsheet covers the following topics: What is hepatosplenic T-cell lymphoma?; Who gets it?; Symptoms; Treatment; Relapsed or refractory hepatosplenic T-cell lymphoma; Research and targeted treatments.

Cover image of 'T-cell lymphomas'

T-cell lymphomas (August 2019)

Lymphoma Action

An overview of T-cell lymphomas – non-Hodgkin lymphomas that develop from a type of white blood cell called a T lymphocyte or T cell. Contents: What are T-cell lymphomas?; Who gets T-cell lymphomas?; Symptoms; Diagnosis and staging; Types of T-cell lymphoma; Outlook; Treatment; Follow-up.

Cover image of 'Bowel problems'

Bowel problems (August 2019)

Lymphoma Action

Lymphoma, and some of the treatments for lymphoma, can cause bowel problems. Although these are usually mild and temporary, any change in bowel habits can have a considerable impact on day-to-day life and can be difficult to discuss. This factsheet has practical advice to help you cope with diarrhoea, constipation, and wind (flatulence).

Cover image of 'Follicular lymphoma'

Follicular lymphoma (October 2019)

Lymphoma Action

This factsheet is about follicular lymphoma, the most common type of low-grade non-Hodgkin lymphoma (NHL). Contents include: Quick overview; What is follicular lymphoma?; Who gets follicular lymphoma and what causes it?; Symptoms; Diagnosis and staging; Outlook; Treatment; Paediatric follicular lymphoma; Follow-up; Transformation; Relapse; Research and targeted treatments.

Cover image of 'Bowel cancer'

Bowel cancer (2019)

Guts UK

Information about bowel cancer, including causes, symptoms, diagnosis, treatment options, and secondary bowel cancer.

Cover image of 'After breast cancer treatment: what now?'

After breast cancer treatment: what now? (June 2019)

Breast Cancer Care

This booklet explains what happens after your hospital-based treatments finish. It includes information on follow-up care, being breast and body aware, the ways breast cancer may come back, and how you might feel after treatment ends.

Cover image of 'Peripheral T-cell lymphoma not otherwise specified (PTCL-NOS)'

Peripheral T-cell lymphoma not otherwise specified (PTCL-NOS) (August 2019)

Lymphoma Action

When a T-cell lymphoma doesn’t fit into any particular category of T-cell lymphoma, it is called peripheral T-cell lymphoma not otherwise specified (PTCL-NOS). This factsheet covers: What is PTCL-NOS?; Who gets it?; Symptoms; Treatment; Relapsed or refractory PTCL-NOS; Research and targeted treatments.

Cover image of 'Understanding secondary cancer in the bone'

Understanding secondary cancer in the bone (April 2019)

Macmillan Cancer Support

This booklet has information on secondary cancer in the bone, what it is, what causes it, the symptoms, how it is diagnosed, and the treatment options. It also covers issues such as emotions, talking to children, and how family and friends can help. 

Cover image of 'Understanding ductal carcinoma in situ (DCIS)'

Understanding ductal carcinoma in situ (DCIS) (January 2019)

Macmillan Cancer Support

This booklet has information for women who have ductal carcinoma in situ (DCIS). It describes DCIS, the risk factors and causes, symptoms, diagnosis and tests, staging and grading, and the treatment options (surgery, radiotherapy, hormonal therapies). It also covers issues such as life after treatment and feelings.

Cover image of 'Understanding breast cancer in women'

Understanding breast cancer in women (January 2019)

Macmillan Cancer Support

This booklet is about breast cancer in women. It is for women who are having tests for breast cancer and women who have been diagnosed with breast cancer. It covers breast cancer that has not spread to other parts of the body and describes the causes, symptoms, diagnosis, stages, and treatment (including surgery, radiotherapy, chemotherapy and hormonal therapy). It also discusses issues such as fertility, hormone replacement therapy, and feelings. Includes details of useful organisations and other resources.

Cover image of 'Know your prostate. A guide to common prostate problems'

Know your prostate. A guide to common prostate problems (June 2019)

Prostate Cancer UK

This booklet is aimed at anyone who wants to know more about the prostate gland. It describes what the prostate gland is, the changes to look out for, benign prostatic hyperplasia, prostatitis and prostate cancer (what it is, the symptoms, the risk factors and what will happen at the doctors). A summary of this information is also available as a Z-card 'Know your prostate. A quick guide.'

Cover image of 'Are you having or have you ever had pelvic radiotherapy?'

Are you having or have you ever had pelvic radiotherapy? (February 2019)

Pelvic Radiation Disease Association

Credit-card leaflet, with general information about the symptoms of pelvic radiation disease. 

Cover image of 'Metastatic spinal cord compression (MSCC)'

Metastatic spinal cord compression (MSCC) (February 2019)

Prostate Cancer UK

This factsheet is for men with advanced prostate cancer that has spread to the bones. It explains what metastatic spinal cord compression is and describes the risk of developing it, the symptoms and the treatment options.

Cover image of 'Understanding breast cancer in men'

Understanding breast cancer in men (January 2019)

Macmillan Cancer Support

This booklet is about breast cancer in men. It is for men who are having tests for breast cancer and men who have been diagnosed with breast cancer. It explains the signs and symptoms of breast cancer in men. It explains how it is diagnosed and how it may be treated. It also has information about emotional, practical and financial issues.

Cover image of 'Self-employment and cancer'

Self-employment and cancer (April 2019)

Macmillan Cancer Support

This booklet is about coping with cancer while you are self-employed or running a small business. It is for sole traders, freelancers, contractors or those running a micro business (one that employs fewer than 10 people). It includes information and guidance about: how treatment might affect your work; things to consider when making decisions about your business; talking to clients or customers about your situation; getting support with your business or personal finances.

Cover image of 'Managing breathlessness'

Managing breathlessness (March 2019)

Macmillan Cancer Support

This booklet is for people who have breathlessness due to cancer or its treatment. It includes information about breathing and relaxation exercises, treatments, practical tips for everyday living and a list of useful contacts for further information and support. It also includes a copy of the 'Relax and breathe' CD.

Cover image of 'Heart health and cancer treatment'

Heart health and cancer treatment (February 2019)

Macmillan Cancer Support and British Heart Foundation

Some people affected by cancer have problems with their heart health. This is because some cancer treatments can affect the heart. Problems can also arise if you already have a heart condition when you’re diagnosed with cancer. This booklet is for you if: you’ve been told that your cancer treatment may affect your heart; you have a heart condition and need cancer treatment; you’d like to find out how you can improve the health of your heart before, during and after cancer treatment.

Cover image of 'Understanding breast cancer in women [Audio CD]'

Understanding breast cancer in women [Audio CD] (January 2019)

Macmillan Cancer Support

Audio CD of the booklet, which describes the causes, symptoms, diagnosis, stages, and treatment of breast cancer including surgery, radiotherapy, chemotherapy and hormonal therapy. It also discusses issues such as fertility, hormone replacement therapy, and feelings. Includes details of useful organisations and other resources such as books and websites.

Cover image of 'Understanding advanced melanoma'

Understanding advanced melanoma (July 2019)

Macmillan Cancer Support

This booklet explains melanoma that has spread to another area (advanced or metastatic melanoma). It describes advanced melanoma, the signs and symptoms, diagnosis and staging, and the treatment options. It also discusses coping with the symptoms of advanced melanoma and the side effects of treatment, feelings and emotions and lists further sources of support.

Cover image of 'How are you feeling? The emotional effects of cancer'

How are you feeling? The emotional effects of cancer (February 2019)

Macmillan Cancer Support

Having cancer affects all areas of your life, including the way you feel. This booklet is about the main emotions that many people with cancer have. This may be after diagnosis, during treatment or after treatment has ended.

Cover image of 'Work and cancer'

Work and cancer (April 2019)

Macmillan Cancer Support

This booklet aims to help people with cancer cope with issues that they may face at work both during treatment and afterwards.

Cover image of 'Living with lung cancer'

Living with lung cancer (February 2019)

Roy Castle Lung Cancer Foundation

This booklet was written with the help of lung cancer experts, people affected by lung cancer, and others who support people with lung cancer to help you make the most of your health and wellbeing. 

Cover image of 'Understanding cancer of unknown primary'

Understanding cancer of unknown primary (June 2019)

Macmillan Cancer Support

Information about cancer of unknown primary (CUP). This booklet explains what CUP is and why the primary cancer cannot be found, and describes how it is diagnosed, the tests that might be carried out, and the treatment options. It also covers coping with CUP, feelings, and financial help.

Cover image of 'Pancreatic cancer. What is it? How is it diagnosed? An Easy Read booklet'

Pancreatic cancer. What is it? How is it diagnosed? An Easy Read booklet (July 2019)

Pancreatic Cancer UK

Easy read information using pictures and simple words to explain what pancreatic cancer is and how it is diagnosed. 

Cover image of 'Coping with advanced cancer'

Coping with advanced cancer (January 2019)

Macmillan Cancer Support

This booklet is for people who have cancer that has come back or spread. This is sometimes called advanced cancer. It looks at some of the concerns you may be dealing with and has advice about ways of coping. It also talks about treatments and your feelings and has practical information about getting help and support.

Cover image of 'Going home from hospital'

Going home from hospital (March 2019)

Macmillan Cancer Support

This booklet explains how care and support is arranged for people with cancer when they are discharged from hospital.

Cover image of 'Looking after someone with cancer'

Looking after someone with cancer (May 2019)

Macmillan Cancer Support

This booklet is about looking after someone who has cancer. It explains: what it means to be a carer; who can help support you and the person you care for; the practical, emotional and financial issues you may face, and how to cope with them; ways you can help the person you care for manage symptoms or side effects; how to look after yourself.

Cover image of 'Bowel cancer risk. What you need to know if you have Crohn's or colitis'

Bowel cancer risk. What you need to know if you have Crohn's or colitis (April 2019)

Crohn's and Colitis UK

Crohn’s and Colitis can increase the risk of bowel cancer in some people, particularly for those whose condition affects all or most of their large bowel. This information sheet looks at the relationship between bowel cancer and Crohn’s and Colitis, and how you can reduce your risk. It also describes changes in the lining of the bowel that may develop into cancer, and how these changes are detected.

Cover image of 'NHS breast screening. Helping you decide [Russian]'

NHS breast screening. Helping you decide [Russian] (2019)

Department of Health in association with the NHS Cancer Screening Programmes

This leaflet has information about breast screening, including false positive and false negative results, to help women make an informed choice about taking part. It explains what breast screening is, what happens during the test, what happens to the mammograms once read, and the benefits and difficulties of breast screening.

Cover image of 'NHS breast screening. Helping you decide [Romanian]'

NHS breast screening. Helping you decide [Romanian] (2019)

Department of Health in association with the NHS Cancer Screening Programmes

This leaflet has information about breast screening, including false positive and false negative results, to help women make an informed choice about taking part. It explains what breast screening is, what happens during the test, what happens to the mammograms once read, and the benefits and difficulties of breast screening.

Cover image of 'NHS breast screening. Helping you decide [Polish]'

NHS breast screening. Helping you decide [Polish] (2019)

Department of Health in association with the NHS Cancer Screening Programmes

This leaflet has information about breast screening, including false positive and false negative results, to help women make an informed choice about taking part. It explains what breast screening is, what happens during the test, what happens to the mammograms once read, and the benefits and difficulties of breast screening.

Cover image of 'NHS breast screening. Helping you decide [Punjabi]'

NHS breast screening. Helping you decide [Punjabi] (2019)

Department of Health in association with the NHS Cancer Screening Programmes

This leaflet has information about breast screening, including false positive and false negative results, to help women make an informed choice about taking part. It explains what breast screening is, what happens during the test, what happens to the mammograms once read, and the benefits and difficulties of breast screening.

Cover image of 'NHS breast screening. Helping you decide [Latvian]'

NHS breast screening. Helping you decide [Latvian] (2019)

Department of Health in association with the NHS Cancer Screening Programmes

This leaflet has information about breast screening, including false positive and false negative results, to help women make an informed choice about taking part. It explains what breast screening is, what happens during the test, what happens to the mammograms once read, and the benefits and difficulties of breast screening.

Cover image of 'NHS breast screening. Helping you decide [Portuguese]'

NHS breast screening. Helping you decide [Portuguese] (2019)

Department of Health in association with the NHS Cancer Screening Programmes

This leaflet has information about breast screening, including false positive and false negative results, to help women make an informed choice about taking part. It explains what breast screening is, what happens during the test, what happens to the mammograms once read, and the benefits and difficulties of breast screening.

Cover image of 'NHS breast screening. Helping you decide [Chinese, Traditional]'

NHS breast screening. Helping you decide [Chinese, Traditional] (2019)

Department of Health in association with the NHS Cancer Screening Programmes

This leaflet has information about breast screening, including false positive and false negative results, to help women make an informed choice about taking part. It explains what breast screening is, what happens during the test, what happens to the mammograms once read, and the benefits and difficulties of breast screening.

Cover image of 'NHS breast screening. Helping you decide [Lithuanian]'

NHS breast screening. Helping you decide [Lithuanian] (2019)

Department of Health in association with the NHS Cancer Screening Programmes

This leaflet has information about breast screening, including false positive and false negative results, to help women make an informed choice about taking part. It explains what breast screening is, what happens during the test, what happens to the mammograms once read, and the benefits and difficulties of breast screening.

Cover image of 'NHS breast screening. Helping you decide'

NHS breast screening. Helping you decide (2019)

Department of Health in association with the NHS Cancer Screening Programmes

This leaflet has information about breast screening, including false positive and false negative results, to help women make an informed choice about taking part. It explains what breast screening is, what happens during the test, what happens to the mammograms once read, and the benefits and difficulties of breast screening.

Cover image of 'NHS breast screening. Helping you decide [Chinese, Simplified]'

NHS breast screening. Helping you decide [Chinese, Simplified] (2019)

Department of Health in association with the NHS Cancer Screening Programmes

This leaflet has information about breast screening, including false positive and false negative results, to help women make an informed choice about taking part. It explains what breast screening is, what happens during the test, what happens to the mammograms once read, and the benefits and difficulties of breast screening.

Cover image of 'NHS breast screening. Helping you decide [Urdu]'

NHS breast screening. Helping you decide [Urdu] (2019)

Department of Health in association with the NHS Cancer Screening Programmes

This leaflet has information about breast screening, including false positive and false negative results, to help women make an informed choice about taking part. It explains what breast screening is, what happens during the test, what happens to the mammograms once read, and the benefits and difficulties of breast screening.

Cover image of 'Blood clot prevention. A guide for patients and carers'

Blood clot prevention. A guide for patients and carers (May 2019)

The Royal Marsden NHS Foundation Trust

This booklet explains the risk of developing a blood clot while in hospital. It describes the signs of a blood clot, who is at risk, and how to reduce the risk of developing a blood clot. Please note: this booklet includes contact details and instructions specific to the Royal Marsden Hospital.

Cover image of 'Eating well when eating becomes difficult. Support your health during cancer treatment'

Eating well when eating becomes difficult. Support your health during cancer treatment (April 2019)

Penny Brohn UK

This booklet aims to address some of the common difficulties that people may experience with eating during cancer treatment. It has advice and tips to help cope with the common effects of chemotherapy, radiotherapy, immunotherapy and hormonal therapy, such as oral thrush, sore or dry mouth, swallowing difficulties, taste changes, nausea, constipation, diarrhoea, and tenesmus.

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