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Publications directory

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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 600

Cover image of 'Looking after someone with cancer'

Looking after someone with cancer (May 2019)

Macmillan Cancer Support

This booklet is about looking after someone who has cancer. It explains: what it means to be a carer; who can help support you and the person you care for; the practical, emotional and financial issues you may face, and how to cope with them; ways you can help the person you care for manage symptoms or side effects; how to look after yourself.

Cover image of 'Understanding oesophageal cancer'

Understanding oesophageal cancer (November 2019)

Macmillan Cancer Support

This booklet is about oesophageal cancer. It is for anyone who is having tests for oesophageal cancer or has been diagnosed with it. There is also information for carers, family members and friends. The booklet talks about the signs and symptoms of oesophageal cancer. It explains how it is diagnosed and how it may be treated. It also has information about emotional, practical and financial issues. 

Cover image of 'Understanding stomach cancer'

Understanding stomach cancer (September 2019)

Macmillan Cancer Support

This booklet is for anyone who has been diagnosed with stomach cancer. There is also information for carers, family members and friends. It talks about the signs and symptoms of stomach cancer and explains how it is diagnosed and how it may be treated. It also has information about emotional, practical and financial issues. 

Cover image of 'NHS breast screening. Helping you decide [Punjabi]'

NHS breast screening. Helping you decide [Punjabi] (2019)

Department of Health in association with the NHS Cancer Screening Programmes

This leaflet has information about breast screening, including false positive and false negative results, to help women make an informed choice about taking part. It explains what breast screening is, what happens during the test, what happens to the mammograms once read, and the benefits and difficulties of breast screening.

Cover image of 'This free NHS test kit could save your life'

This free NHS test kit could save your life (January 2019)

Bowel Screening Wales

This leaflet describes the benefits of the bowel screening test kit, what the kit looks for, and what happens if blood is found in your sample. It also has information on how to reduce your risk of bowel cancer and the symptoms to look out for.

Cover image of 'NHS breast screening. Helping you decide [Russian]'

NHS breast screening. Helping you decide [Russian] (2019)

Department of Health in association with the NHS Cancer Screening Programmes

This leaflet has information about breast screening, including false positive and false negative results, to help women make an informed choice about taking part. It explains what breast screening is, what happens during the test, what happens to the mammograms once read, and the benefits and difficulties of breast screening.

Cover image of 'NHS breast screening. Helping you decide [Latvian]'

NHS breast screening. Helping you decide [Latvian] (2019)

Department of Health in association with the NHS Cancer Screening Programmes

This leaflet has information about breast screening, including false positive and false negative results, to help women make an informed choice about taking part. It explains what breast screening is, what happens during the test, what happens to the mammograms once read, and the benefits and difficulties of breast screening.

Cover image of 'Acute megakaryoblastic leukaemia (AMKL). A guide for patients'

Acute megakaryoblastic leukaemia (AMKL). A guide for patients (March 2019)

Leukaemia Care

Acute megakaryoblastic leukaemia (AMKL) is a rare subtype of acute myeloid leukaemia (AML). It is more common in children than in adults. In children with Down syndrome, AMKL is the most common type of AML. This booklet explains what it is, the signs and symptoms, how it is diagnosed and the treatment options. Includes a glossary and details of support.

Cover image of 'NHS breast screening. Helping you decide [Portuguese]'

NHS breast screening. Helping you decide [Portuguese] (2019)

Department of Health in association with the NHS Cancer Screening Programmes

This leaflet has information about breast screening, including false positive and false negative results, to help women make an informed choice about taking part. It explains what breast screening is, what happens during the test, what happens to the mammograms once read, and the benefits and difficulties of breast screening.

Cover image of 'Managing breathlessness [Polish]'

Managing breathlessness [Polish] (March 2019)

Macmillan Cancer Support

Polish translation of selected pages from the Macmillan booklet "Managing breathlessness" (MAC12918_E04_N).

Cover image of 'Coping with advanced cancer'

Coping with advanced cancer (January 2019)

Macmillan Cancer Support

This booklet is for people who have cancer that has come back or spread. This is sometimes called advanced cancer. It looks at some of the concerns you may be dealing with and has advice about ways of coping. It also talks about treatments and your feelings and has practical information about getting help and support.

Cover image of 'Depression and low mood'

Depression and low mood (October 2019)

The Brain Tumour Charity

This leaflet explains what depression is and describes the signs and symptoms and possible causes.

Cover image of 'Spotting cancer early saves lives [Easy read]'

Spotting cancer early saves lives [Easy read] (February 2019)

Cancer Research UK

This leaflet tells you about some of the signs of cancer and what to look out for. It also gives tips on seeing your doctor and information about screening. 

Cover image of 'NHS breast screening. Helping you decide [Polish]'

NHS breast screening. Helping you decide [Polish] (2019)

Department of Health in association with the NHS Cancer Screening Programmes

This leaflet has information about breast screening, including false positive and false negative results, to help women make an informed choice about taking part. It explains what breast screening is, what happens during the test, what happens to the mammograms once read, and the benefits and difficulties of breast screening.

Cover image of 'Pancreatic cancer. What is it? How is it diagnosed? An Easy Read booklet'

Pancreatic cancer. What is it? How is it diagnosed? An Easy Read booklet (July 2019)

Pancreatic Cancer UK

Easy read information using pictures and simple words to explain what pancreatic cancer is and how it is diagnosed. 

Cover image of 'This free NHS test kit could save your life [Welsh]'

This free NHS test kit could save your life [Welsh] (January 2019)

Bowel Screening Wales

This leaflet describes the benefits of the bowel screening test kit, what the kit looks for, and what happens if blood is found in your sample. It also has information on how to reduce your risk of bowel cancer and the symptoms to look out for.

Cover image of 'Caring for your child at end of life. A guide for parents and carers'

Caring for your child at end of life. A guide for parents and carers (October 2019)

Together for Short Lives

Practical information to support parents and carers at this difficult time. It aims to answer some of the questions that you might have, and sets out what you should expect from children’s palliative care services with useful links to further sources of information and support. Includes reflections from families on their experience of losing a child. 

Cover image of 'NHS breast screening. Helping you decide [Romanian]'

NHS breast screening. Helping you decide [Romanian] (2019)

Department of Health in association with the NHS Cancer Screening Programmes

This leaflet has information about breast screening, including false positive and false negative results, to help women make an informed choice about taking part. It explains what breast screening is, what happens during the test, what happens to the mammograms once read, and the benefits and difficulties of breast screening.

Cover image of 'NHS breast screening. Helping you decide [Lithuanian]'

NHS breast screening. Helping you decide [Lithuanian] (2019)

Department of Health in association with the NHS Cancer Screening Programmes

This leaflet has information about breast screening, including false positive and false negative results, to help women make an informed choice about taking part. It explains what breast screening is, what happens during the test, what happens to the mammograms once read, and the benefits and difficulties of breast screening.

Cover image of 'Heart health and cancer treatment'

Heart health and cancer treatment (February 2019)

Macmillan Cancer Support and British Heart Foundation

Some people affected by cancer have problems with their heart health. This is because some cancer treatments can affect the heart. Problems can also arise if you already have a heart condition when you’re diagnosed with cancer. This booklet is for you if: you’ve been told that your cancer treatment may affect your heart; you have a heart condition and need cancer treatment; you’d like to find out how you can improve the health of your heart before, during and after cancer treatment.

Cover image of 'Managing cancer pain'

Managing cancer pain (July 2019)

Macmillan Cancer Support

This booklet aims to help people understand more about cancer pain and the wide range of medical and complementary treatments available for controlling it. It describes pain and its possible causes, before covering individual methods of pain control. It includes a section on how to describe pain, a pullout pain diary, information about sources of support, and lists of useful organisation and websites.

Cover image of 'NHS breast screening. Helping you decide'

NHS breast screening. Helping you decide (2019)

Department of Health in association with the NHS Cancer Screening Programmes

This leaflet has information about breast screening, including false positive and false negative results, to help women make an informed choice about taking part. It explains what breast screening is, what happens during the test, what happens to the mammograms once read, and the benefits and difficulties of breast screening.

Cover image of 'Cancer treatment and fertility. Information for women'

Cancer treatment and fertility. Information for women (September 2019)

Macmillan Cancer Support

This booklet is for anyone who needs information about how cancer and its treatments can affect fertility. It explains how cancer treatments can affect fertility, how fertility can be preserved before cancer treatment, how fertility can be tested after treatment, options for fertility treatment to start a pregnancy, and other options for having a child. This booklet is for anyone who needs information on this before, during or after cancer treatment.

Cover image of 'Breast care for women'

Breast care for women (August 2019)

Macmillan Cancer Support|CHANGE

An easy read booklet about breast cancer, how to check your breasts, changes to look for and breast screening. 

Cover image of 'NHS breast screening. Helping you decide [Chinese, Traditional]'

NHS breast screening. Helping you decide [Chinese, Traditional] (2019)

Department of Health in association with the NHS Cancer Screening Programmes

This leaflet has information about breast screening, including false positive and false negative results, to help women make an informed choice about taking part. It explains what breast screening is, what happens during the test, what happens to the mammograms once read, and the benefits and difficulties of breast screening.

Cover image of 'Coping with thinking difficulties (cognitive impairment)'

Coping with thinking difficulties (cognitive impairment) (September 2019)

The Brain Tumour Charity

This leaflet explains what is meant by cognitive impairment and has suggestions to help people cope.

Cover image of 'Speech and language difficulties'

Speech and language difficulties (September 2019)

The Brain Tumour Charity

This leaflet explains how brain tumours can affect communication. It describes the communication difficulties that someone with a brain tumour may experience, and the emotional difficulties that this may cause for them and their family and friends.

Cover image of 'Blood clot prevention. A guide for patients and carers'

Blood clot prevention. A guide for patients and carers (May 2019)

The Royal Marsden NHS Foundation Trust

This booklet explains the risk of developing a blood clot while in hospital. It describes the signs of a blood clot, who is at risk, and how to reduce the risk of developing a blood clot. Please note: this booklet includes contact details and instructions specific to the Royal Marsden Hospital.

Cover image of 'NHS breast screening. Helping you decide [Chinese, Simplified]'

NHS breast screening. Helping you decide [Chinese, Simplified] (2019)

Department of Health in association with the NHS Cancer Screening Programmes

This leaflet has information about breast screening, including false positive and false negative results, to help women make an informed choice about taking part. It explains what breast screening is, what happens during the test, what happens to the mammograms once read, and the benefits and difficulties of breast screening.

Cover image of 'Chronic lymphocytic leukaemia (CLL). A guide for patients'

Chronic lymphocytic leukaemia (CLL). A guide for patients (October 2019)

Leukaemia Care

Being told that you have chronic lymphocytic leukaemia (CLL) can be a shock. This booklet describes CLL, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life and CLL and talking about CLL. Includes a glossary of terms and details of useful contacts and further support.   

Cover image of 'Adult-T-cell-leukaemia/lymphoma (ATL). A guide for patients'

Adult-T-cell-leukaemia/lymphoma (ATL). A guide for patients (October 2019)

Leukaemia Care

This booklet describes T-cell-leukaemia/lymphoma (ATL) in adults, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life with ATL and how to talk to your haematologist and family and friends. Includes a glossary and details of further support. 

Cover image of 'Thinking difficulties (cognitive impairment)'

Thinking difficulties (cognitive impairment) (September 2019)

The Brain Tumour Charity

Many people diagnosed with a brain tumour will have some form of cognitive impairment (difficulties with their thinking abilities), due to the presence of the tumour and the pressure it puts on the brain. This leaflet describes the types of impairment that might develop and how they are affected by the location of the tumour, treatment and drugs, and by emotional and psychological factors.

Cover image of 'Personality changes'

Personality changes (September 2019)

The Brain Tumour Charity

This leaflet describes personality changes that may occur in brain tumour patients and the reasons behind these changes. It has advice on coping with personality changes and sources of support.

Cover image of 'Acute myelomonocytic leukaemia (AMML). A guide for patients'

Acute myelomonocytic leukaemia (AMML). A guide for patients (October 2019)

Leukaemia Care

Acute myelomonocytic leukaemia (AMML) is a rare type of acute myeloid leukaemia (AML). This booklet explains it what it is, and describes the symptoms, diagnosis, prognosis, and treatment options. It also covers issues such as telling your family, managing your emotions, and survivorship. Includes a glossary and sources of support.

Cover image of 'Atypical chronic myeloid leukaemia (aCML). A guide for patients'

Atypical chronic myeloid leukaemia (aCML). A guide for patients (July 2019)

Leukaemia Care

This booklet describes atypical chronic myeloid leukaemia (aCML), what causes it, who it affects, what symptoms to expect, and likely treatments. It also covers everyday life with AML and how to talk to your haematologist and family and friends. Includes a glossary and details of further support.  

Cover image of 'Cancer and pregnancy'

Cancer and pregnancy (November 2019)

Macmillan Cancer Support|Mummy's Star

This booklet is for women who have been diagnosed with cancer during pregnancy. It explains the emotional and practical issues you may experience in this situation. It also talks about the treatment you may have and support that will be available to you. 

Cover image of 'Understanding primary bone cancer'

Understanding primary bone cancer (March 2019)

Macmillan Cancer Support

This booklet provides information about primary bone cancer, including the different types, its causes, symptoms, diagnosis and treatment. It also explores emotions, and issues such as living with an amputation. Includes details of useful organisations and other resources such as websites.

Cover image of 'B-cell acute lymphoblastic leukaemia (ALL). A guide for patients'

B-cell acute lymphoblastic leukaemia (ALL). A guide for patients (May 2019)

Leukaemia Care

This booklet explains what B-cell acute lymphoblastic leukaemia is, and describes the causes, who it affects, the symptoms and side-effects and treatment options. It also covers issues such as day-to-day life with B-cell acute lymphoblastic leukaemia, managing your emotions, telling family and friends, survivorship, palliative care, and end-of-life care.

Cover image of 'Eating well when you have cancer'

Eating well when you have cancer (February 2019)

The Royal Marsden NHS Foundation Trust

Cancer and its treatment can affect appetite and enjoyment of food. This booklet has been written to help people eat well when they have a poor appetite or are losing weight. It suggests foods to eat to maintain a healthy diet, foods to avoid, nourishing and supplementary drinks, and high-energy foods. It also has advice for times when eating is difficult, as a result, for example, of fatigue, nausea, sore mouth, diarrhoea, or constipation. Includes recipes and sources of further information and support.

Cover image of 'Cancer treatment and fertility. Information for men'

Cancer treatment and fertility. Information for men (July 2019)

Macmillan Cancer Support

This booklet is about how cancer and its treatments can affect your fertility. It is for anyone who needs information on this before, during or after cancer treatment. It has information about preserving fertility, testing fertility, fertility treatments to start a pregnancy and other options for having a child. This information is for you whether you are in a relationship or not and whatever your sexual orientation. 

Cover image of 'Pampering therapy'

Pampering therapy (April 2019)

Look Good...Feel Better

Information about Look Good Feel Better with details of workshop locations in the UK.

Cover image of 'Blastic plasmacytoid dendritic cell neoplasm (BPDCN). A guide for patients'

Blastic plasmacytoid dendritic cell neoplasm (BPDCN). A guide for patients (September 2019)

Leukaemia Care

Blastic plasmacytoid dendritic cell neoplasm (BPDCN) is a rare cancer of the bone marrow. It was previously known as natural killer (NK) cell leukaemia. This booklet explains what it is, and describes the causes, who it affects, what symptoms to expect, how it is diagnosed, and treatment options. It also covers everyday life, managing your emotions, how to talk to your doctor and family and friends, survivorship, palliative care, and end-of-life care. Includes a glossary and details of further support.  

Cover image of 'Childhood acute lymphoblastic leukaemia (ALL). A guide for parents'

Childhood acute lymphoblastic leukaemia (ALL). A guide for parents (March 2019)

Leukaemia Care

Being told that your child has acute lymphoblastic leukaemia (ALL) can be a shock and very upsetting, particularly when you may never have heard of the disease. This booklet describes childhood ALL, what causes it, who it affects, how it affects your child’s body, what symptoms to expect and likely treatments. It also covers everyday life and childhood ALL and talking about childhood ALL. Includes a glossary of terms and details of useful contacts and further support.

Cover image of 'A guide for the end of life [in press]'

A guide for the end of life [in press] (November 2019)

Macmillan Cancer Support

This booklet explains what happens at the end of someone’s life and how to plan for it. It is for anyone nearing the end of life. There is also information for people caring for someone nearing the end of life.

Cover image of 'Diet and nutrition'

Diet and nutrition (December 2019)

The Brain Tumour Charity

This leaflet is for anyone receiving treatment or who has recently completed their treatment.There’s no specific food or type of diet that can control or treat brain tumours, but controlling your diet may help to improve your quality of life and manage the side-effects of treatment, such as dry mouth, nausea, poor appetite, and weight loss.

Cover image of 'Going home after brain tumour surgery. A discharge guide for people with a brain tumour'

Going home after brain tumour surgery. A discharge guide for people with a brain tumour (July 2019)

The Brain Tumour Charity

Going home after brain tumour surgery can feel quite overwhelming. We know there can be a lot of information to process and you may find that you have more questions, or need additional information or support. This leaflet provides information and answers to questions often asked by people after brain tumour surgery.

Cover image of 'Ependymoma (in children). What you need to know'

Ependymoma (in children). What you need to know (July 2019)

The Brain Tumour Charity

This leaflet gives an overview of ependymoma in children and answers questions you may have about this type of tumour.

Cover image of 'Coping with speech and language difficulties'

Coping with speech and language difficulties (August 2019)

The Brain Tumour Charity

This leaflet has tips for dealing with speech and language difficulties from people affected by a brain tumour and from healthcare professionals specialised in treating brain tumours. 

Cover image of '365 days past the traffic lights'

365 days past the traffic lights (2019)

Independently published

How do you cope with the death of a parent at 24 years old? The time when you’re somewhere between independence and reliance on parents, figuring out who you are and what you want to do, and trying to maintain friendships and a social life when your world is crumbling around you and no one understands. Rose Taylor straddled two worlds; living in both a picturesque English village and an adventure filled Hollywood lifestyle in Los Angeles. But in late 2017 life hurtled her into a new realm, one that was immersed in medical settings and put her life on hold. In this compelling and emotive memoir, Rose Taylor explores the first 365 days following the death of her father. She writes frankly about the moment of diagnosis, the experience of becoming a carer for a parent and sheds light on the psychological and physical symptoms of bereavement. The book takes the reader between London, Atlanta and Los Angeles weaving together the experience of grieving and a narrative of reconciling memory and loss. The book ultimately offers a voice for grieving young adults, with the aim of showing them they are not alone. (Publisher) 

Cover image of 'The symptoms of ovarian cancer'

The symptoms of ovarian cancer (March 2018)

Target Ovarian Cancer

This video describes the symptoms of ovarian cancer.

Sorry, no publications found.
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