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Publications directory

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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 600

Cover image of 'Possible effects of brain tumours and their treatment for adults'

Possible effects of brain tumours and their treatment for adults (September 2017)

The Brain Tumour Charity

A poster to help people with a brain tumour make their employer or colleagues aware of the possible effects of brain tumours and their treatment.

Cover image of 'You just hear that word cancer and you just can’t take it'

You just hear that word cancer and you just can’t take it (2017)

Austin Macauley

Written as a diary, Lisa Primrose goes through the lows and highs of her experiences after being diagnosed with cancer. She takes the reader on an emotional rollercoaster: always positive but not afraid to give the reader a ‘warts and all' description of events. Her interactions with the Health Service are invariably good but she only gets the best out of the system by having a positive attitude to her condition no matter how physically disabling the symptoms are. (Publishers)

Cover image of 'Living with cancer. A step-by-step guide for coping medically and emotionally with a serious diagnosis'

Living with cancer. A step-by-step guide for coping medically and emotionally with a serious diagnosis (2017)

Johns Hopkins University Press

The prospect of entering treatment is overwhelming for anyone facing a diagnosis of cancer. While patients have access to a vast amount of medical information online, this advice is often unreliable or confusing. In Living with Cancer, Drs. Vicki A. Jackson and David P. Ryan have crafted the first step-by-step guide aimed at helping people with this life-defining disease grasp what’s happening to them while coping physically and emotionally with cancer treatment. An empathetic resource full of relatable patient stories, this book teaches patients and caregivers how to ask the right questions to get the best possible care―beginning at the moment of diagnosis. Drs. Jackson and Ryan explain how to work with a team of doctors and nurse practitioners to minimize symptoms and side effects while living as fully as possible in the face of cancer. They relay important information about understanding prognosis, and they translate what doctors mean when they describe tests, treatments, and medical procedures. Finally, they discuss hospice care and answer questions about continuing treatment and managing the final phase of life. Based on new research and a groundbreaking program in which patients are treated with palliative care―along with the best cancer care―during the course of their illness, this honest and caring book provides the right advice to use at the right time throughout a journey with cancer. It allows a person with cancer to concentrate on living the best life possible, despite an uncertain future. Patients at every stage will find Living with Cancer a comprehensive, thoughtful, and accessible guide for navigating the illness and its treatment. (Publisher)

Cover image of 'What to do after cancer treatment ends: 10 top tips [Welsh]'

What to do after cancer treatment ends: 10 top tips [Welsh] (May 2017)

Macmillan Cancer Support

Suggestions to help people get the best care and support after treatment ends and to live as healthy and active a life as possible.

Cover image of 'Fast facts: Chronic and cancer pain'

Fast facts: Chronic and cancer pain (2017)

Health Press

All health professionals, regardless of specialty, will care for patients with pain that has persisted for more than 6 months. This fully updated fourth edition of Fast Facts: Chronic and Cancer Pain, written by two internationally renowned experts in the field, is designed to bring busy health professionals up to speed with the latest information in this area, including: easy-to-read overviews of pain mechanisms; a practical approach to pain assessment; developments in stepped care and multimodal management; the latest thinking on opioids. With health services around the world responding to calls to improve the management of painful long-term conditions, develop preventive and cost-effective solutions, and respond to patient choice and voice, this easy-to-read fact-packed book is essential reading for all GPs, nurses, junior hospital doctors, physical therapists, clinical psychologists, occupational therapists, pharmacists, medical specialists and medical students wanting – and needing – to know more. (Publisher)

Cover image of 'Sex and breathlessness'

Sex and breathlessness (March 2017)

British Lung Foundation

This illustrated leaflet has guidance for people with lung disease on how to enjoy a fulfilling sex life.

Cover image of 'Breathlessness. What to do if you get out of breath'

Breathlessness. What to do if you get out of breath (November 2017)

British Lung Foundation

This booklet explains what breathlessness is, the causes of acute and chronic breathlessness, the tests that might be necessary and management of breathlessness. It is not cancer specific.

Cover image of 'Managing symptoms at home. Palliative care information for families'

Managing symptoms at home. Palliative care information for families (February 2016)

Children's Cancer and Leukaemia Group

This booklet provides information about common symptoms, their causes and available treatments and includes suggestions for things parents and carers can do at home to help their child.

Cover image of 'Pancreatic cysts and cystic tumours'

Pancreatic cysts and cystic tumours (May 2016)

Pancreatic Cancer Action

A booklet for patients and carers describing the types of pancreatic cyst, their symptoms and risks. It gives detailed information on the diagnostic tests used, the different types of treatment given for cancerous and non-cancerous cysts. It includes a glossary to explain many of the terms used. 

Cover image of 'Coughing for three weeks? Get out of breath easily? Do you have either of these symptoms? Tell your doctor'

Coughing for three weeks? Get out of breath easily? Do you have either of these symptoms? Tell your doctor (2016)

Department of Health

Leaflet aimed at alerting general public to symptoms of lung cancer and encouraging people to go to the doctor if they have a cough that last more than three weeks or get out of breath easily.

Cover image of 'An essential guide for dealing with infections'

An essential guide for dealing with infections (March 2016)

Anthony Nolan

After a transplant your immune system is gradually recovering and you will be more prone to infections. This leaflet has information about how to protect yourself from infections, as well as signs and symptoms to look out for.

Cover image of 'Understanding brain tumours [Audio CD]'

Understanding brain tumours [Audio CD] (November 2016)

Macmillan Cancer Support

This audiobook explains brain tumours, covering causes and symptoms, diagnosis, staging and grading, treatments and clinical trials. It also talks about emotional, practical and financial issues.

Cover image of 'What women need to know about... vulval cancer'

What women need to know about... vulval cancer (February 2016)

The Eve Appeal

Key information about vulval cancer including signs and symptoms, risk factors and how to reduce your risk of developing cancer. 

Cover image of 'Fatigue and prostate cancer'

Fatigue and prostate cancer (November 2016)

Prostate Cancer UK

This fact sheet is for people who want to know more about fatigue (extreme tiredness). Fatigue is a feeling of extreme tiredness that doesn’t go away, even after you rest. It's very common in men with prostate cancer. 

Cover image of 'Manversation family and friends guide. Helping you have a conversation about prostate cancer'

Manversation family and friends guide. Helping you have a conversation about prostate cancer (October 2016)

Orchid – Fighting Male Cancer|Tackle Prostate Cancer

The Manversation campaign aims to challenge outdated stereotypes, raise awareness of the symptoms of advanced prostate cancer and encourage men to speak up about potential symptoms as soon as they experience them. This leaflet describes how family and friends can support men with advanced prostate cancer.

Cover image of 'Manversation patient guide. Helping you have a conversation about prostate cancer'

Manversation patient guide. Helping you have a conversation about prostate cancer (October 2016)

Orchid – Fighting Male Cancer|Tackle Prostate Cancer

The Manversation campaign aims to challenge outdated stereotypes, raise awareness of the symptoms of advanced prostate cancer and encourage men to speak up about potential symptoms as soon as they experience them. This leaflet describes the impact of advanced prostate cancer and encourages men to talk to family and friends about their feelings and get support.

Cover image of 'My child has a kidney tumour. Information and support for parents'

My child has a kidney tumour. Information and support for parents (August 2016)

Children's Cancer and Leukaemia Group

This booklet provides general information about kidney cancer (renal tumours) that occur in children.

Cover image of 'Breast cancer treatments and osteoporosis'

Breast cancer treatments and osteoporosis (January 2016)

National Osteoporosis Society

This factsheet describes what osteoporosis is, and considers the link between breast cancer treatments and the risk of developing osteoporosis.

Cover image of 'Acute myeloid leukaemia (AML)'

Acute myeloid leukaemia (AML) (September 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what acute myeloid leukaemia is, and describes the signs, symptoms, tests and treatment options.

Cover image of 'Posterior fossa syndrome'

Posterior fossa syndrome (May 2016)

Children's Cancer and Leukaemia Group

This factsheet has been written to help parents understand posterior fossa syndrome (PFS), the name given to a collection of symptoms that may occur together following surgery to the back of the brain. PFS is also sometimes known as cerebellar mutism syndrome. 

Cover image of 'Osteosarcoma'

Osteosarcoma (May 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what osteosarcoma is, and describes the signs, symptoms, tests and treatment options.

Cover image of 'Acute lymphoblastic leukaemia (ALL)'

Acute lymphoblastic leukaemia (ALL) (December 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what acute lymphoblastic leukaemia is, and describes the signs, symptoms, tests and treatment options.

Cover image of 'Rhabdomyosarcoma'

Rhabdomyosarcoma (September 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what rhabdomyosarcoma is, and describes the signs and symptoms, tests and treatment options.

Cover image of 'Managing the symptoms of cancer'

Managing the symptoms of cancer (November 2016)

Macmillan Cancer Support

Practical advice on the common and less common symptoms that may occur with cancer, such as fatigue, eating problems, mouth problems, emotional effects, bowel problems, bladder problems, breathing difficulties, and skin problems. It describes the causes of each symptom and the medical and complementary therapies that can help. It has sections on how other people can help, support services, and practical and financial support. Includes a pullout symptom diary and details of useful organisations.

Cover image of 'Wilms' tumour'

Wilms' tumour (September 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what Wilm's tumour is, and describes the signs and symptoms, tests and treatment options.

Cover image of 'Hodgkin lymphoma'

Hodgkin lymphoma (August 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what Hodgkin lymphoma is, and briefly describes the signs, symptoms, tests and treatment options.

Cover image of 'Retinoblastoma'

Retinoblastoma (October 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what retinoblastoma is, and describes the signs and symptoms, tests and treatment options.

Cover image of 'Neuroblastoma'

Neuroblastoma (May 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what a neuroblastoma is, and describes the signs, symptoms, tests and treatment options.

Cover image of 'Ewing sarcoma'

Ewing sarcoma (August 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what Ewing's sarcoma is, and describes the signs, symptoms, tests and treatment options.

Cover image of 'Coughing for three weeks? Get out of breath easily? Do you have either of these symptoms? Tell your doctor [Large print]'

Coughing for three weeks? Get out of breath easily? Do you have either of these symptoms? Tell your doctor [Large print] (2016)

Department of Health

Leaflet aimed at alerting general public to symptoms of lung cancer and encouraging people to go to the doctor if they have a cough that last more than three weeks or get out of breath easily.

Cover image of 'Germ cell tumours'

Germ cell tumours (August 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what a germ cell tumour is and describes the signs, symptoms, tests and treatment options.

Cover image of 'Non-Hodgkin lymphoma (NHL)'

Non-Hodgkin lymphoma (NHL) (December 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what non-Hodgkin lymphoma is, and describes the signs, symptoms, tests and treatment options.

Cover image of '10 top tips [Welsh]'

10 top tips [Welsh] (February 2016)

Target Ovarian Cancer|Macmillan Cancer Support

This set of ten tips was developed by a workshop group comprising people affected by ovarian cancer and GPs. It aims to help women get the best out of a visit to their GP if they are concerned about symptoms.

Cover image of 'Side effects from radiotherapy'

Side effects from radiotherapy (2016)

CHANGE

An easy read booklet about the possible side effects of radiotherapy and where to get support. 

Cover image of 'Side effects from chemotherapy'

Side effects from chemotherapy (2016)

CHANGE

An easy read booklet about the possible side effects of chemotherapy and ways of coping with each one. 

Cover image of 'How to check your balls (testicles)'

How to check your balls (testicles) (2016)

CHANGE

An easy read booklet about testicular cancer and how to check your testicles for changes.  

Cover image of 'Changes that can happen at the end of life'

Changes that can happen at the end of life (2016)

CHANGE

An easy read booklet about symptoms you might have with advanced cancer and things that can help. 

Cover image of 'Myeloma. Cancer of the immune system. Fast facts: For patients and their supporters'

Myeloma. Cancer of the immune system. Fast facts: For patients and their supporters (2016)

Health Press

This short workbook is designed to help patients equip themselves with the best information about myeloma. Starting with a simple overview of the biology of the disease, it will help patients to understand the type of myeloma that they have, the remitting-relapsing nature of the disease, and the signs and symptoms they are likely to experience. It takes patients through the initial treatment options and their side effects, what to expect if they have stem cell transplantation, and how they will be treated when their symptoms return. The final sections will help patients understand the supportive care options available, and provide an insight into the latest myeloma research, which is progressing on many fronts. (Publishers)

Cover image of 'Have you had a cough for more than 3 weeks? Do you get out of breath easily?  [Easy read]'

Have you had a cough for more than 3 weeks? Do you get out of breath easily? [Easy read] (2016)

Public Health England

Leaflet aimed at alerting general public to symptoms of lung cancer and encouraging people to go to the doctor if they have a cough that last more than three weeks.

Cover image of 'Reducing the risk of lower limb lymphoedema'

Reducing the risk of lower limb lymphoedema (August 2016)

Lymphoedema Support Network

This leaflet explains why lymphoedema occurs, who may be at risk, how to recognise the symptoms, how to reduce the risk, what to do if symptoms develop, and what to expect from a lymphoedema clinic.

Cover image of 'Management of oedema in advanced ill health. Information for patients'

Management of oedema in advanced ill health. Information for patients (February 2016)

Lymphoedema Support Network

Information about oedema in advancing disease. treatment. It describes the causes, symptoms, assessment and investigations and management (skin care, exercise, limb positioning and support, compression, manual lymphatic drainage, kinesio taping and medical treatments).

Cover image of 'What is cellulitis?'

What is cellulitis? (December 2016)

Lymphoedema Support Network

This leaflet describes cellulitis, what causes it, why it occurs in lymphoedema, how to recognise the symptoms, what to do if it develops, what to do after an attack, and how to prevent it.

Cover image of 'The use of compression garments in lymphoedema management'

The use of compression garments in lymphoedema management (November 2016)

Lymphoedema Support Network

The use of compression garments plays an important role in the management of lymphoedema. This leaflet describes the benefits of wearing compression garments, the factors involved in choosing compression garments, the different types available, and fitting. It concludes with general information about how to wear and care for the garments, and the problems that may occur.

Cover image of 'Early childhood lymphoedema'

Early childhood lymphoedema (February 2016)

Lymphoedema Support Network

Lymphoedema in children may occur in the treatment of cancer following surgery or radiotherapy. This leaflet describes what lymphoedema is, why it has developed, the treatment options and the impact on daily life.

Cover image of 'Lymphoedema of the breast and trunk'

Lymphoedema of the breast and trunk (September 2016)

Lymphoedema Support Network

This leaflet gives information about swelling (oedema) of the breast following breast cancer treatment. It explains why breast oedema develops, how it is recognised, what to do if it occurs, and the treatment options available. It also has information for people with truncal oedema.

Cover image of 'Understanding myeloma'

Understanding myeloma (2016)

Myeloma UK

Ellen Watters, Myeloma Information Nurse Specialist at Myeloma UK gives an overview of myeloma. The video includes the causes of myeloma, symptoms and brief overview of treatment strategies for myeloma patients. 

Cover image of 'Management of cellulitis in lymphoedema'

Management of cellulitis in lymphoedema (December 2016)

Lymphoedema Support Network

A resource for people with lymphoedema to share with their general practitioner or medical team so that cellulitis can be appropriately and promptly treated. It describes what cellulitis is, the features of cellulitis in lymphoedema, the management of cellulitis at home and in hospital, and recurrent cellulitis.

Cover image of 'Recreational exercise and movement with lymphoedema'

Recreational exercise and movement with lymphoedema (August 2016)

Lymphoedema Support Network

This leaflet describes why exercise is important, what happens during exercise, and how it can help people with lymphoedema. It has advice on exercising with lymphoedema, and what to watch out for, and concludes with information about exercises and activities that people with lymphoedema have found useful, including swimming, golf and racquet sports, cycling, walking, yoga or Tai Chi, and going to the gym.

Cover image of 'The holistic guide for cancer survivors'

The holistic guide for cancer survivors (2016)

Sheldon Press

While cancer causes more than one in four deaths in the UK, many cancers are increasingly chronic diseases, and holistic management is common. Up to a half of all cancer patients admit to visiting CAM providers; more use complementary therapies. Holistic health isn't a quick fix, but many CAMs are now established, respected and effective parts of the treatment journey in cancer, and indeed many cancer drugs come from plants. This book is a balanced, informative look at how holistic methods may help in the cancer journey. Topics include: Understanding cancer; Why does cancer arise; Common symptoms; How holistic methods may help; Diet; CAM treatments such as acupressure, acupuncture and moxibustion, art therapy, aromatherapy; An anti-cancer lifestyle; Spirituality and healing; How to ensure treatment is safe - never trust anyone who claims to cure cancer. (Publisher)

Cover image of 'Skin care for people with lymphoedema'

Skin care for people with lymphoedema (May 2016)

Lymphoedema Support Network

This leaflet explains why skin care is important for people with lymphoedema and gives general advice on skin care, including the use of emollients. It also covers special problems that can occur in lymphoedema, such as dermatitis, fungal infections and lymphorrhoea.

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