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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 555

Cover image of 'Diet and nutrition for pancreatic cancer'

Diet and nutrition for pancreatic cancer (June 2015)

Pancreatic Cancer Action

This booklet for patients and carers contains information about how pancreatic cancer can affect diet and nutrition. It covers managing dietary symptoms such as poor appetite, weight loss and diarrhoea, dietary supplements and diabetes and diet. Contains dietary advice for patients undergoing surgery and for patients undergoing treatments such as chemotherapy.

Cover image of 'Acute promyelocytic leukaemia (APL)'

Acute promyelocytic leukaemia (APL) (January 2015)

Bloodwise

Acute promyelocytic leukaemia (APL) is a form of cancer affecting the stem cells that produce myeloid blood cells in the bone marrow. This booklet explains who gets APL and what causes it, and describes the signs and symptoms, the diagnosis, the two types of APL, the treatment options (including the long-term effects of treatment) and the prognosis.

Cover image of 'Neuroblastoma. Information and support for parents'

Neuroblastoma. Information and support for parents (November 2015)

Children's Cancer and Leukaemia Group|Neuroblastoma UK

This booklet is for parents and carers of a child who has been diagnosed with neuroblastoma. There is information about neuroblastoma, the treatments that are used and their possible side effects. It also discusses how a cancer diagnosis can affect you, your child and the rest of the family.

Cover image of 'Understanding bone sarcoma'

Understanding bone sarcoma (August 2015)

Sarcoma UK

This booklet is aimed at anyone who has been diagnosed with a bone sarcoma. It explains what bone sarcoma is, how it is diagnosed and the treatment options available. It also has information on where to go for support. There is space to keep diagnosis information, details of hospital appointments and contact details of health professionals.

Cover image of 'Constipation'

Constipation (November 2015)

Wessex Cancer Trust

Brief tips on dealing with constipation during and after treatment for cancer.

Cover image of 'Acute myeloid leukaemia (AML) in children and young adults up to 16 years'

Acute myeloid leukaemia (AML) in children and young adults up to 16 years (September 2015)

Bloodwise

This booklet describes acute myeloid leukaemia: the causes, signs and symptoms, diagnosis, and treatment and follow-up.

Cover image of 'Diarrhoea'

Diarrhoea (November 2015)

Wessex Cancer Trust

Brief tips on how to cope with diarrhoea during and after treatment for cancer.

Cover image of 'Taste changes'

Taste changes (November 2015)

Wessex Cancer Trust

Brief tips on how to cope with taste changes during and after treatment for cancer.

Cover image of 'Nausea and vomiting'

Nausea and vomiting (November 2015)

Wessex Cancer Trust

Brief tips on how to cope with nausea and vomiting during and after treatment for cancer.

Cover image of 'Dry or sore mouth'

Dry or sore mouth (November 2015)

Wessex Cancer Trust

Brief tips on how to cope with a dry or sore mouth during and after treatment for cancer.

Cover image of 'Acute myeloid leukaemia (AML)'

Acute myeloid leukaemia (AML) (March 2015)

Bloodwise

This booklet explains what acute myeloid leukaemia is, and describes the causes and the symptoms, and how it is diagnosed and treated.

Cover image of 'Myeloproliferative neoplasms'

Myeloproliferative neoplasms (March 2015)

Bloodwise

This booklet describes the myeloproliferative disorders - a group of diseases that shares some common features. It covers polycythaemia vera, essential thrombocythaemia, and myelofibrosis, with information on causes, signs and symptoms, diagnosis, and treatment.

Cover image of 'MSCC alert card'

MSCC alert card (August 2015)

Macmillan Cancer Support

A fold-out patient alert card that explains the symptoms of malignant spinal cord compression (MSCC). It explains when patients should see a doctor immediately. The card is business-card size so it can easily fit inside a wallet or purse. 

Cover image of 'Indigestion and heartburn'

Indigestion and heartburn (November 2015)

Wessex Cancer Trust

Brief tips on how to cope with indigestion and heartburn during and after treatment for cancer.

Cover image of 'Poor appetite'

Poor appetite (November 2015)

Wessex Cancer Trust

Brief tips on how to cope with a poor appetite during and after treatment for cancer.

Cover image of 'Nourishing snacks and drinks'

Nourishing snacks and drinks (November 2015)

Wessex Cancer Trust

Ideas for nourishing snacks and drinks for people with a poor appetite, or who are losing weight, during and after treatment for cancer.

Cover image of 'Food safety guidelines for people at risk of neutropenia'

Food safety guidelines for people at risk of neutropenia (November 2015)

Wessex Cancer Trust

Tips for people at risk of neutropaenia about basic food hygiene, storing and preparing food and drink, and foods to avoid.

Cover image of 'Malignant spinal cord compression. Information for patients'

Malignant spinal cord compression. Information for patients (August 2015)

Macmillan Cancer Support

A leaflet for patients who are at risk of malignant spinal cord compression (MSCC). It explains what MSCC is, the symptoms to look out for and what to do if they develop symptoms. There is also a patient alert card available.

Cover image of 'Dying: a guide for prisoners  in England and Wales'

Dying: a guide for prisoners in England and Wales (June 2015)

Macmillan Cancer Support

This booklet is for prisoners with cancer who are likely to die within a few months. It may also be useful for prisoners who are dying from other diseases. It discusses what is likely to happen, how you may feel and what support you may need. There is also information about what happens after death and the support available for family and friends.

Cover image of 'Ovarian cancer. What do you need to know'

Ovarian cancer. What do you need to know (March 2015)

Ovarian Cancer Action

Information about ovarian cancer as follows: Your body and your ovaries; What is ovarian cancer?; Not one disease, but many; The stages of ovarian cancer; How quickly does ovarian cancer spread?; What's my risk of developing ovarian cancer?; Symptoms to look out for; Could my symptoms be caused by anything else?; What should I do if I'm worried about my symptoms?; How to talk to your GO about your concerns; Where to find more information.

Cover image of 'Diuretics and lymphoedema'

Diuretics and lymphoedema (November 2015)

Lymphoedema Support Network

This leaflet explains what diuretics are, when they should be used, and why they are not recommended for routine use in lymphoedema.

Cover image of 'Genital lymphoedema'

Genital lymphoedema (September 2015)

Lymphoedema Support Network

Information on the causes of primary and secondary genital lymphoedema, its symptoms, and management options, which include skin care, compression garments, exercise, manual lymphatic drainage and surgery.

Cover image of 'What you need to know about cancer'

What you need to know about cancer (September 2015)

Raintree (imprint of Capstone Global Library Limited)

Cancer can be a scary word. But the more you know about the causes, symptoms, and treatment of cancer, the better equipped you are to understand this disease. Clear, concise information breaks down the disease, the experience of having it, or relating to someone who has cancer. Be inspired by true stories from youths who have experienced cancer in their own lives and how they fought this disease. (Publisher) 

Cover image of 'Look good...feel better confidence kit. A guide to managing the appearance-related effects of cancer treatment'

Look good...feel better confidence kit. A guide to managing the appearance-related effects of cancer treatment (2015)

Look Good...Feel Better

This booklet and accompanying DVD has information and advice about make-up, skincare, hand and nail care, wig selection and cutting, scarf tying and head coverings to help manage changes in personal appearance caused by treatment for cancer.

Cover image of 'Emotional and social aspects of lymphoedema'

Emotional and social aspects of lymphoedema (September 2015)

Lymphoedema Support Network

This leaflet explores the emotions that people with lymphoedema may experience, such as anger, depression or anxiety. It also considers body image and personal, sexual and social relationships, and concludes with advice on coping with the changes that lymphoedema can bring.

Cover image of 'Staying alive. How to get the best from the NHS'

Staying alive. How to get the best from the NHS (2015)

Quercus

The NHS is our most treasured institution, but even caring doctors have too many patients and too little time, while patients often feel too overwhelmed, embarrassed, intimidated or ill to ask the right questions. Your chances of getting the best care that's right for you are greatly improved if you are able to share in decisions about your treatment. In Staying Alive, Dr Phil Hammond, a GP and campaigner with unrivalled sympathy for patients' needs, helps give you the confidence and the tools to take control of your health care, and shows you in a friendly but authoritative way how to navigate the system. This book will show you how to get your GP to listen to you and take your symptoms seriously, how to get hold of your patient records so you can ensure they're correct, how to get a second opinion and, most importantly, how to get better (and in turn help make the NHS better too). (Publisher)

Cover image of 'How to live well with chronic pain and illness'

How to live well with chronic pain and illness (2015)

Wisdom Publications

Comfort, understanding, and advice for those who are suffering--and those who care for them. Chronic illness creates many challenges, from career crises and relationship issues to struggles with self-blame, personal identity, and isolation. Toni Bernhard addresses these challenges and many more, using practical examples to illustrate how mindfulness, equanimity, and compassion can help readers make peace with a life turned upside down. In her characteristic conversational style, Bernhard shows how to cope and make the most of life despite the challenges of chronic illness. Benefit from: Mindfulness exercises to mitigate physical and emotional pain Concrete advice for negotiating the everyday hurdles of medical appointments, household chores, and social obligations Tools for navigating the strains illness can place on relationships Several chapters are directed toward family and friends of the chronically ill, helping them to understand what their loved one is going through and how they can help. Humorous and empathetic, Bernhard shares her own struggles and setbacks with unflinching honesty, offering invaluable support in the search to find peace and well-being. (Publisher)

Cover image of 'How to hold a difficult conversation'

How to hold a difficult conversation (October 2014)

Brainstrust

Many people are unsure about how to talk to someone who might be distressed or in difficulty. Questions about the illness, its symptoms, its meaning or its impact can be hard to ask. This guide will help people talk to those close to them,.

Cover image of 'Lung cancer'

Lung cancer (February 2014)

British Lung Foundation

This booklet describes lung cancer, who is at risk, the symptoms, how it is diagnosed and the treatment options. It also discusses feelings and includes a glossary and other sources of information.

Cover image of 'Feeling bloated most days for 3 weeks? Tell your doctor [Large print]'

Feeling bloated most days for 3 weeks? Tell your doctor [Large print] (2014)

Department of Health

Leaflet aimed at encouraging women to go to the doctor if they are experience bloating on most days. It also has information on how to reduce the risk of ovarian cancer.

Cover image of 'Heartburn most days for three weeks or more? Tell your doctor [Large print]'

Heartburn most days for three weeks or more? Tell your doctor [Large print] (2014)

Department of Health

Leaflet aimed at encouraging people to go to the doctor if they have been experiencing heartburn on most days. It also has information on how to reduce the risk of oesophageal and stomach cancer.

Cover image of 'Are you a woman? Have you been feeling full up for 3 weeks or more? Then it is time to tell your doctor [Easy read]'

Are you a woman? Have you been feeling full up for 3 weeks or more? Then it is time to tell your doctor [Easy read] (2014)

Public Health England

Leaflet aimed at encouraging women to go to the doctor if they are experience bloating on most days. It also has information on how to reduce the risk of ovarian cancer.

Cover image of 'Have you had heartburn for three weeks or more? Then it is time to tell your doctor [Easy read]'

Have you had heartburn for three weeks or more? Then it is time to tell your doctor [Easy read] (2014)

Public Health England

Leaflet aimed at encouraging people to go to the doctor if they have been experiencing heartburn on most days. It also has information on how to reduce the risk of oesophageal and stomach cancer.

Cover image of 'Information for people affected by insulinomas'

Information for people affected by insulinomas (July 2014)

NET Patient Foundation

Information on insulinomas, including the symptoms, diagnostic tests, and treatment options.

Cover image of '[Urgent toilet card]'

[Urgent toilet card] (March 2014)

Prostate Cancer UK

A wallet sized card for men with prostate problems, who may need urgent access to a toilet. It does not guarantee access but may make it easier to ask for help.

Cover image of 'Toby the teapot's daddy has a poorly lid'

Toby the teapot's daddy has a poorly lid (2014)

Paula and Richard Middleton

A short story for children that uses accessible characters to help explain to a child about a parent being diagnosed with a brain tumour. It follows Toby the teapot's daddy through the journey of the first signs and symptoms, diagnosis and treatment.

Cover image of '100 questions and answers about lung cancer'

100 questions and answers about lung cancer (2014)

Jones and Bartlett Publishers

The only text to provide both a doctor's and patient's point of view, '100 questions and answers about lung cancer' gives you authoritative, practical answers to your questions about treatment options, post-treatment quality of life, sources of support, and much more. (Publisher)

Cover image of 'Shrinking the smirch. A workbook to enable and inspire people with physical or mental health challenges'

Shrinking the smirch. A workbook to enable and inspire people with physical or mental health challenges (2014)

Speechmark Publishing Ltd

Shrinking the Smirch is a unique workbook for anybody who is living with a long term physical or psychological condition including MS, Parkinson's, brain injury, epilepsy, chronic fatigue, epilepsy, stroke, cancer, depression, eating disorders, trauma or anxiety. The workbook asks the reader to think about their symptoms as something external to them - a smirch. A smirch is an annoying little imaginary creature who seeks to make humans sad and unhealthy, helps you work out what your smirch makes you think, feel and do and create an image or description of your own smirch, includes twenty practical ways to shrink your smirch ideas, based on psychological approaches that have been proven to work including narrative therapy, CBT. ACT, systemic and solution focused models as well as mindfulness and positive psychological. This book offers a dynamic approach to managing mental and physical health challenges. Written in an accessible but unpatronising manner with marvellous pictures and some positive humour make it an easy read and will be a very useful resource for individuals with health conditions as well as therapists, teachers, life coaches and health professionals. (Publishing)

Cover image of 'Medicine hands. Massage therapy for people with cancer'

Medicine hands. Massage therapy for people with cancer (2014)

Findhorn Press

The field of oncology massage is maturing into a discipline with a deeper and deeper body of knowledge. The 3rd edition of Medicine Hands reflects this maturation. Every chapter contains updated information and insights into massaging people affected by cancer. New chapters have been added to cover each stage of the cancer experience: treatment, recovery, survivorship, side effects from the disease, and end of life. These new chapters and organizational structure will make it easier for the reader to find the information needed to plan the massage session for a given client. In addition, a new chapter has been added that focuses on the Pressure/Site/Positioning framework. This is the clinical framework around which the massage session is planned. (Publisher)

Cover image of 'The HLRCC handbook'

The HLRCC handbook (March 2013)

The HLRCC Family Alliance

This booklet has detailed information about hereditary leiomyomatosis and renal cell carcinoma (sometimes known as Reed’s syndrome), a rare genetic condition.

Cover image of 'Incontinence as a symptom of prostate problems'

Incontinence as a symptom of prostate problems (August 2013)

Prostate Scotland

This booklet has advice and information for men who have continence problems due to a problem with their prostate or treatment for prostate disease.

Cover image of 'Been coughing for 3 weeks? Tell your doctor'

Been coughing for 3 weeks? Tell your doctor (2013)

Department of Health

Leaflet aimed at alerting general public to symptoms of lung cancer and encouraging people to go to the doctor if they have a cough that last more than three weeks.

Cover image of 'Feeling bloated most days for 3 weeks? Tell your doctor'

Feeling bloated most days for 3 weeks? Tell your doctor (2013)

Department of Health

Leaflet aimed at encouraging women to go to the doctor if they are experience bloating on most days. It also has information on how to reduce the risk of ovarian cancer.

Cover image of 'Navigating life with a brain tumour'

Navigating life with a brain tumour (2013)

Oxford University Press

Navigating Life with a Brain Tumor is a guide for anyone affected by brain tumors and their associated conditions - patients, family members, friends, and caregivers. Providing readily accessible information and real-world encouragement to people living with primary and metastatic brain tumors and their caregivers, this book discusses the basics of brain tumors, types of tumors, management of different tumors, related symptoms, treatments and side effects, the role of medical team members, and coping strategies from initial diagnosis throughout the course of the illness. At the same time, it also offers practical suggestions on symptom management and lifestyle modification, as well as real-life anecdotes and advice from both patients and family members and friends who are experiencing this diagnosis. Balancing the uncertainties of prognosis with hope, Navigating Life with a Brain Tumor is an authoritative, realistic, yet compassionate guide to living with brain cancer. (Publisher)

Cover image of 'Treatment for an enlarged prostate by 1. Trans urethral resection of the prostate (TURP); 2. Green light laser (GLL); 3. Holmium laser enucleation of the prostate (HoLEP)'

Treatment for an enlarged prostate by 1. Trans urethral resection of the prostate (TURP); 2. Green light laser (GLL); 3. Holmium laser enucleation of the prostate (HoLEP) (November 2013)

Prostate Scotland

This booklet describes the use of these three treatments to treat the urinary symptoms that may be caused by an enlarged prostate or by prostate cancer.

Cover image of 'Brain tumours. Living low grade. The patient guide to life with a slow-growing brain tumour'

Brain tumours. Living low grade. The patient guide to life with a slow-growing brain tumour (2013)

ngo media

Slow-growing brain tumours change lives forever. This readable and moving non-technical guide is about living with a low grade tumour, a diagnosis given to thousands of people every year. Featuring dozens of personal testimonies from those dealing daily with the impact of their tumours, this book offers information, support and reassurance for those with a low grade brain tumour, their family and friends. Father of two Gideon Burrows was told he had an incurable and inoperable low grade glioma brain tumour aged just 35. He discovered information was scarce for those with slow growing brain tumours and about the particular challenges patients like him face. In this book, he shares his own experiences and those of many others as they came to understand their diagnosis and learned how to live low grade. (Publisher)

Cover image of 'The dog, the chick and the reindeer. The story of a family living with cancer'

The dog, the chick and the reindeer. The story of a family living with cancer (2013)

Apollo Publishing

In 2004 my mother asked us to donate to the Macmillan team in lieu of a present. It is ironic that she then developed and survived endometrial cancer in 2006 and was diagnosed with and died from ovarian cancer in 2012, especially as the Macmillan team supported us to keep her in the home she loved right to the end. The story tells of the effects of both cancers on Mum and the rest of the family. Naturally there were sad times and some excruciatingly painful and stressful times but there were also some funny and touching moments. Audrey, Mum's sister was coincidentally diagnosed with oesophageal cancer and at one point they were in different wards at opposite ends of the same hospital. The day we were told of Mum’s diagnosis, we wheeled her down to sit with Audrey and they held hands and hugged, one in a wheelchair and the other hooked up to all kinds of machinery. Audrey died thirteen days after mum. There is no doubt that my mother loved her family - she had nearly ninety children, grandchildren, great grandchildren and great, great grandchildren, both biological and adopted; whilst the story is written from my perspective, I wasn't the only one to suffer and it could easily have been written by thirty or forty other people. When I found out mum had a terminal illness I made up my mind to take her back to her home, which is the only place she wanted to be; some people thought I was mad but we had a dedicated team of family and were lucky to be further supported by her GP, the DN’s and Macmillan team. I organised weekly rotas to ensure 24 hour care: The book tells how we coped with this and of my panic the day I found out the Macmillan support team didn’t have any sitters for the following week. It also portrays the “normal” things we did along as we rode our six year emotional roller coaster, such as going on holidays and dealing with other family crises. The last twelve months before her death were intolerable. The last six months a nightmare, and the ten weeks between diagnosis and her passing were hell on earth but we had some laughs, we cried and we sang songs. A few weeks before she died, as my daughter entered the room Mum was playing a game with my younger grandchildren, throwing the tiny purple chick to each of them in turn and giggling along with them, its tail flashing as though it too was enjoying the fun. I initially wrote the book to help me deal with my own grief, stress and feelings of guilt that I was glad she had finally let g

Cover image of 'The pink moon lovelies. Empowering stories of survival'

The pink moon lovelies. Empowering stories of survival (2013)

Self-published using CreateSpace Independent Publishing Platform

The Pink Moon Lovelies are members of the Facebook group Beyond the Pink Moon, named after Nicki Boscia Durlester’s memoir that intimately chronicles her journey after a breast cancer diagnosis. Nicki created the group to provide an active forum for discussion to raise awareness about the BRCA gene and breast and ovarian cancer. She never dreamed her homespun story would travel around the globe and Beyond the Pink Moon would become a support group for people from all walks of life coming together to lift each other up with inspiration, humor, faith and love. With Lovelies in Australia, Canada, England, France, Ireland, Israel, Mexico, Namibia, New Zealand, Singapore, Slovakia, South Africa, Sweden, Tasmania and the USA, Nicki, a BRCA2 survivor, and fellow moderator, Melissa Johnson Voight, a BRCA1 previvor, whose journey of steadfast faith and courage of conviction is included in this book, have encouraged their members to tell their stories with one goal in mind, to save lives. With a Foreword written by renowned breast surgeon, Dr. Kristi Funk, this riveting collection of 50 stories includes: the unflinching account of Barbie Ritzco, a United States Marine who kept silent about discovering a lump in her breast in order to deploy with her unit to Afghanistan, putting her country before her health, the moving story of Ally Durlester, Nicki’s daughter, a 25 year old BRCA2 previvor who will undergo prophylactic surgery to try to avoid the same fate as her mother, grandmother and six great-aunts who all had breast, ovarian or fallopian tube cancer, the frustrating story of Erika Grogin Lange, an Israeli Lovely and mother of five, whose nagging symptoms of fatigue, nausea and bloating went undiagnosed for months until she heard the shocking news that she had Stage III ovarian cancer, and the unpredictable journey of Susan Long Martucci, a two-time breast cancer survivor, disease free for 13 years, blindsided by another diagnosis. She is the beacon of hope who coined the term Pink Moon Lovelies. Each story is compelling and has an important message to impart. The Pink Moon Lovelies, Empowering Stories of Survival concludes with the story of the incomparable May Smith, the 32 year old South African Lovely who left a legacy of extraordinary courage, grace and love. Hers was a life well lived. When May sadly passed away on July 22, 2012 from breast cancer she left the Pink Moon Lovelies with one final message filled with wisdom and advice beyond her years. H

Cover image of 'A simple guide to the prostate'

A simple guide to the prostate (May 2012)

Prostate Scotland

This leaflet describes the prostate, the most common symptoms or signs and what they might mean (benign prostatic hyperplasia, prostatis, prostate cancer).

Cover image of 'Let's be clear. If for the last 3 weeks you’ve had blood in your poo or it’s been looser, tell your doctor'

Let's be clear. If for the last 3 weeks you’ve had blood in your poo or it’s been looser, tell your doctor (2012)

Department of Health

Leaflet aimed at alerting general public to symptoms of bowel cancer and encouraging people to go to the doctor if they have blood in their faeces.

Sorry, no publications found.
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