The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Macmillan Cancer Support
This booklet is about head and neck cancers. Head and neck cancers include cancers of the mouth and throat, as well as rarer cancers of the nasal cavity (inside the nose), sinuses, salivary glands and middle ear. This booklet is for anyone who has a head and neck cancer. The booklet explains: what head and neck cancer is; the signs and symptoms; the different treatment options; coping with head and neck cancer treatment.
Leukaemia CARE
Being told that you have chronic eosinophilic leukaemia (CEL) can be a shock and very upsetting, particularly when you may never have heard of the disease. This booklet describes CEL, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life and CEL and talking about CEL. Includes a glossary of terms and details of useful contacts and further support.
Leukaemia CARE
This booklet describes acute myeloid leukaemia (AML) in adults, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life with AML and how to talk to your haematologist and family and friends. Includes a glossary and details of further support.
Macmillan Cancer Support
This booklet gives information about advanced or metastatic cancer of the prostate gland, i.e. cancer that has spread beyond the prostate gland to other parts of the body. It describes the prostate gland and advanced prostate cancer, the symptoms, how it is diagnosed, tests, the grading and staging of prostate cancer, and the treatment options. It concludes with guidance on coping with advanced prostate cancer, financial help and benefits, and sources of further information and support.
Leukaemia CARE
Hairy cell leukaemia (HCL) is a blood cancer that affects the lymphocytic (antibody producing) white blood cells produced by the bone marrow. This booklet describes what causes it, who it affects, how it affects your body, the symptoms and diagnosis, and treatment options. It also covers everyday life and HCL and talking about HCL. Includes a glossary of terms and details of useful contacts and further support.
Macmillan Cancer Support
This booklet is about a type of leukaemia called acute myeloid leukaemia (AML). It is for anyone who has been diagnosed with AML, or who wants to know more about it. It also has information for carers, family members and friends. The booklet covers: what AML is; symptoms and how AML is diagnosed; how AML is treated; coping with AML.
Leukaemia CARE
Essential thrombocythaemia (ET) belongs to a group of conditions called myeloproliferative neoplasms (MPNs), which also includes polycythaemia vera and myelofibrosis. ET is a chronic condition that is characterised by too many platelets (blood cells that helps the blood clot) in the blood. This booklet explains what ET is, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments.
Macmillan Cancer Support
This booklet is for men who may be having tests for prostate cancer; these may be diagnostic (DRE, PSA, PCA3, TRUS, biopsy, MRI) or tests that may be carried out to determine the stage and grade of prostate cancer (Isotope bone scan, X-rays, MRI and CT scans). It also covers issues such as waiting for test results and talking to healthcare staff. Includes a list of questions to ask and details of further support.
Leukaemia CARE
Being told that you have chronic myeloid leukaemia (CML) can be a shock. This booklet describes CML, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life and CML and talking about CML. Includes a glossary of terms and details of useful contacts and further support.
Public Health England
Leaflet aimed at alerting general public to symptoms of bladder and kidney cancer and encouraging people to go to the doctor if they have blood in their urine.
The Brain Tumour Charity
This booklet summarises some of the key types of vision problems that may occur as a result of brain tumours or their treatment, and how to adapt to them.
Public Health England
Leaflet aimed at alerting general public to symptoms of bladder and kidney cancer and encouraging people to go to the doctor if they have blood in their urine.
Macmillan Cancer Support
An easy read booklet on the signs, symptoms, treatments and tests for lung cancer.
Leukaemia CARE
Being diagnosed with chronic myelomonocytic leukaemia can be a shock (CMML). This booklet describes CMML, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life and CMML and talking about CMML. Includes a glossary of terms and details of useful contacts and further support.
Leukaemia CARE
Cancer treatment can cause side-effects and sometimes these can be more difficult to manage than the illness itself. Some of these are common and experienced by many, some are much rarer and occur in very few patients. This booklet is designed to provide you with information about the common side-effects you may experience, what to expect and how they may be managed. It covers the following side effects: increased chance of infection; fatigue; hair loss; anaemia; gastrointestinal side-effects (nausea and vomiting, appetitie changes, constipation, diarrhoea); mouth changes; cognitive effects; pain and tingling; fertility; cardiac and lung toxicity; and secondary cancer risk. It also includes a glossary and details of useful contacts and further support.
Leukaemia CARE
This booklet explains what acute lymphopblastic leukaemia (ALL) is, and describes the symptoms, diagnosis, and treatment options. It also covers everday life with ALL and how to talk to your haematologist, family and friends.
Leukaemia CARE
Being told that your child has acute myeloid leukaemia (AML) can be a shock and very upsetting, particularly when you may never have heard of the disease. This booklet describes childhood AML, what causes it, who it affects, how it affects your child’s body, what symptoms to expect and likely treatments. It also covers everyday life and childhood AML and talking about childhood AML. Includes a glossary of terms and details of useful contacts and further support.
Prostate Scotland
This brief guide to prostate disease looks at the symptoms and risk factors of prostate disease. It also describes what is available on the Prostate Scotland website.
The Brain Tumour Charity
This introduction to seizures addresses the following concerns: what is a seizure; what is epilepsy; what is the risk of having seizures; and what happens during a seizure.
Macmillan Cancer Support
Coping with the death of someone close to you involves dealing with difficult feelings and emotions, as well as practical tasks that have to be done. This booklet is for the relatives and friends of anyone who has died from cancer. It gives you some practical information about what to do and what to expect when someone dies. It also looks at some of the emotions you may have, and the support that can help.
The Brain Tumour Charity
If you have a brain tumour or have received treatment for a brain tumour, you may experience memory difficulties; these could be because of the tumour itself or may be a result of surgery or treatment such as chemotherapy or radiotherapy. This factsheet describes what memory is, the types of memory, how a brain tumour may affect memory and answers some common questions about memory problems.
Need2Know
This book has been written with the average reader in mind; all the information compiled is easy to understand and directed to a public that may be diagnosed with or fear the diagnosis of testicular cancer. The volume walks the reader through each step, starting from the self-examination all the way through diagnosis, treatment, recovery and returning back to normal after the fight. By reading through this book, readers will gain a better understanding of the condition and will have all the information necessary to empower themselves to fight the cancer successfully and react appropriately to the changes that are about to come. Readers affected by testicular cancer, either directly or if you have a friend/family member who have been diagnosed; this book will be there to guide them every step of the way. (Publisher)
Public Health England
Information for people who have been called for a colonoscopy because polyps were found when they had bowel scope screening: What is bowel cancer?; What is a colonoscopy? What does a colonoscopy involve?; Does colonoscopy have risks?; What are the possible results of colonoscopy?; Outcomes for 100 people who have a colonoscopy after bowel scope screening; What are the symptoms of bowel cancer; What can I do lower my chances of getting bowel cancer?; Who can I contact if I have a question?
Need2Know
Generally affecting men over the age of 50, there are around 47,000 cases of prostate cancer are diagnosed each year in the UK. There is currently no screening programme for the disease and the symptoms could be quite easily ignored, as they don’t tend to cause too many problems in the early stages. Prostate cancer is the most common male cancer in the UK. This essential guide provides straightforward information on the disease: from what the prostate is and how to recognise the symptoms of the condition, to what happens during screening and diagnosis, and the treatments available. Presented in an informative but conversational way, the book is aimed primarily at men who have just been diagnosed with prostate cancer, but anyone wanting further information on the condition can use it. All the medical issues are covered in an easy-to-follow way, together with sections that deal specifically with the emotional effects of the disease and strategies you can use to help your body fight the cancer. (Publisher)
The Brain Tumour Charity
This factsheet addresses the impact of living with seizures, including the emotional aspects, driving, identifying triggers, and safety and first aid.
The Brain Tumour Charity
This factsheet describes the options that are available for the treatment of seizures: anti-epileptic drugs; surgery; and vagus nerve stimulation. It also discusses the use of complementary therapies (ketogenic diet and cannabis).
Macmillan Cancer Support
The new Macmillan Organiser includes a copy of The cancer guide and My records for recording key contacts, appointments, medication and symptoms. There is also space for keeping appointment letters or other information resources. Additional copies of the My Records booklet can be ordered separately.
Mirror Books
With four children (three of them triplets!) and a relationship break-up to contend with, some things get a little lost in the mix. Like symptoms. Emma Campbell bravely and honestly offers heartfelt thoughts on what happens when cancer becomes an unwelcome guest at an already crowded party. She shares her own terror and pain, mixed with the heartwarming and unexpected. The extraordinary kindness of people and the gritty detail of battling a life-threatening illness, all while being a single mum to four children. She opens up about her angels and demons, losing and then finding love again, a constant fear of death mixed with the joy and relief of living, the anxiety of cancer returning - then facing it when it does. This book has grown from Emma's blog Me And My Four. Eager to share with her followers in more detail, the secrets, the fears, the triumphs and the terrors that she faces each day, in a life as unpredictable as your own... (Publisher)
Bantam Press (imprint of Transworld Publications)
All we think, feel and dream, how we move, if we move, everything that makes us who we are, comes from the brain. We are the brain. So what happens when the brain fails? What happens when we lose our mind? In January 2015, renowned neuroscientist Barbara Lipska's melanoma spread to her brain. It was, in effect, a death sentence. She had surgery, radiation treatments and entered an immunotherapy clinical trial. And then her brain started to play tricks on her. The expert on mental illness - who had spent a career trying to work out how the brain operates and what happens when it fails - experienced what it is like to go mad. She began to exhibit paranoia and schizophrenia-like symptoms. She became disinhibited, completely unaware of her inappropriate behaviour. She got lost driving home from work, a journey she did every day. She couldn't remember things that had just happened to her. Small details like what she was having for breakfast became an obsession, but she ignored the fact that she was about to die. And she remembers every moment with absolute clarity. Weaving the science of the mind and the biology of the brain into her deeply personal story, this is the dramatic account of Dr Lipska's own brilliant brain gone awry. (Publisher)
Target Ovarian Cancer
This leaflet describes the symptoms of ovarian cancer and what to do if you are worried.
Target Ovarian Cancer
This leaflet describes the symptoms of ovarian cancer and what to do if you are worried.
Macmillan Cancer Support
This z-card gives the signs and symptoms of the main cancers for men and women and advice on cancer prevention for anyone worried about their cancer risk.
Macmillan Cancer Support
This leaflet explains how to recognise the early signs of cancer and how to reduce the risk. It describes the symptoms to look out for (unexplained bleeding, weight loss, lumps, pain) and how to reduce the risk by making lifestyle changes (smoking, diet, exercise, alcohol drinking and taking care in the sun).
Target Ovarian Cancer
This leaflet describes the symptoms of ovarian cancer and what to do if you are worried.
Target Ovarian Cancer
This leaflet describes the symptoms of ovarian cancer and what to do if you are worried.
Target Ovarian Cancer
This leaflet describes the symptoms of ovarian cancer and what to do if you are worried.
Target Ovarian Cancer
This leaflet describes the symptoms of ovarian cancer and what to do if you are worried.
Target Ovarian Cancer
This leaflet describes the symptoms of ovarian cancer and what to do if you are worried.
Target Ovarian Cancer
This leaflet describes the symptoms of ovarian cancer and what to do if you are worried.
Jo's Cervical Cancer Trust
This booklet describes what cervical cancer is, the symptoms, causes, the different types and (briefly) the treatment options.
Target Ovarian Cancer
This leaflet describes the symptoms of ovarian cancer and what to do if you are worried.
Macmillan Cancer Support
This z-card gives the signs and symptoms of the main cancers for men and women and advice on cancer prevention for anyone worried about their cancer risk.
Macmillan Cancer Support
This factsheet gives the signs and symptoms of the main cancers for men and women and advice on cancer prevention for anyone worried about their cancer risk.
Macmillan Cancer Support
This z-card gives the signs and symptoms of the main cancers for men and women and advice on cancer prevention for anyone worried about their cancer risk.
Macmillan Cancer Support
This z-card gives the signs and symptoms of the main cancers for men and women and advice on cancer prevention for anyone worried about their cancer risk.
Target Ovarian Cancer
This leaflet describes the symptoms of ovarian cancer and what to do if you are worried.
Prostate Cancer UK
This booklet is for men who have prostate cancer that has spread to other parts of the body and are experiencing symptoms such as bone pain.
Target Ovarian Cancer
This leaflet describes the symptoms of ovarian cancer and what to do if you are worried.
Jo's Cervical Cancer Trust
Credit-card leaflet with facts about cervical cancer, including incidence, the symptoms to look out for, how to reduce the risk, and cervical screening.
Prostate Cancer UK
A factsheet for men who have been diagnosed with high-grade prostatic intrapeithelial neoplasia (PIN) or atypical small acinar proliferation (ASAP) after having a prostate biopsy. It explains what ASAP and 'high-grade' PIN are and how they might be monitored.
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