The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
The Eve Appeal
Key information about vaginal cancer including signs and symptoms, risk factors and how to reduce your risk of developing cancer.
Lymphoma Action
This booklet aims to help people understand more about the different types of high-grade non-Hodgkin lymphoma. It describes how they typically affect people, the usual treatments, and what people can expect during and after treatment.
Breast Cancer Care
This booklet is for anyone diagnosed with secondary lung cancer that has spread from the breast. It describes what secondary breast cancer in the lung is, the symptoms and how they can be managed, the investigations that may be needed, and the treatment options. Support organisations are listed.
The Eve Appeal
Key information about cervical cancer including signs and symptoms, risk factors and how to reduce your risk of developing cancer.
Macmillan Cancer Support
This factsheet is about some of the side effects of cancer treatment. Includes English-language version.
Breast Cancer Care
A booklet for people who have been diagnosed with secondary cancer in the brain that has spread from the breast. It describes what secondary breast cancer in the brain is, what the symptoms are, and the investigations. Briefly outlines the treatment options. Lists useful organisations.
Bloodwise
Brief information about watch and wait: what it is; why it is recommended; who is on it; frquency of appointments; symptoms to look out for; and where to go for support.
Children's Cancer and Leukaemia Group
Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what a brain tumour is, and describes the signs and symptoms, tests and treatment options.
Breast Cancer Care
This factsheet describes inflammatory breast cancer, the signs and symptoms, how a diagnosis is made, treatment options and coping with the condition.
Bloodwise
While you’re on watch and wait, your doctor will regularly check your blood counts. You can use this sheet to record the results.
Breast Cancer Care
This leaflet describes what malignant and borderline malignant phyllodes tumours are, the symptoms, how they are diagnosed, and the treatment options.
Macmillan Cancer Support
This booklet describes the causes, symptoms, diagnosis and treatment of cancer of the colon. It explores the emotions that arise on diagnosis, and has advice on coping with these, as well as on practical issues such as financial help. It also includes details of useful organisations and websites.
Macmillan Cancer Support
This booklet has been written to help understanding of cancer of the oesophagus. It includes information on symptoms, diagnosis, the stages, and treatment options (surgery, radiotherapy and chemotherapy). It also explores emotions, talking to children, self-help, and sources of support. Includes details of useful organisations and other resources .
Cancer Research UK
This leaflet for women highlights the early signs and symptoms of cancer. It explains what to look out for and why it is important to get any symptoms checked out.
Macmillan Cancer Support
This booklet describes the different types of primary liver cancer, the risk factors and causes, the symptoms, how a diagnosis is made, the stages, and the treatment options. It also covers emotions, coping and financial issues.
Macmillan Cancer Support
An overview of some of the more common side-effects that might happen with cancer treatments: bone marrow and blood, fatigue, mouth problems, nausea and vomiting, diarrhoea and constipation, eating problems, skin, fertility, sex life, hormonal changes. The booklet suggests ways of dealing with them.
Macmillan Cancer Support|Diabetes UK
This booklet is about diabetes and cancer treatment. It is for anyone who has been diagnosed with cancer and who also has diabetes. It may also be useful for anyone with an increased risk of developing diabetes because of cancer treatment. It explains how some cancer treatments can affect diabetes and make it difficult to control blood sugar. It also has some tips to help people cope with side effects of cancer treatment if they have diabetes.
Cancer Research UK
This leaflet for men highlights the early signs and symptoms of cancer. It explains what to look out for and why it is important to get any symptoms checked out.
Macmillan Cancer Support|Dementia UK
Some people who have cancer also have dementia. Having both conditions can be difficult for you and the people close to you. The number of people living with both cancer and dementia is growing. We have written this booklet to give people information about living with both conditions and tell people where they may be able to get help.
Macmillan Cancer Support
This factsheet explains what breast cancer is and describes the possible causes, the symptoms, how it is diagnosed, and the treatment options.
Macmillan Cancer Support
This booklet describes the causes, symptoms, diagnosis and treatment of cancer of the rectum. It explores the emotions that arise on diagnosis, and has advice on coping with these, as well as on practical issues such as financial help. It also includes details of useful organisations and websites.
Macmillan Cancer Support
This booklet is about cancer and dementia. It is for anyone who looks after a friend or family member who has both cancer and dementia. Living with two conditions can be very difficult for you and the person you care for. This booklet talks about some of the worries you may have and ways to cope. It also gives practical information about getting help and support.
Macmillan Cancer Support
This booklet has detailed information about chronic myeloid leukaemia, its symptoms, diagnosis, and treatments. It also covers issues such as fertility and feelings, and includes details of useful organisations, and websites.
Macmillan Cancer Support
This factsheet explains what breast cancer is and describes the possible causes, the symptoms, how it is diagnosed, and the treatment options.
Macmillan Cancer Support
This booklet is for people who are preparing for life after treatment. It has information on follow-up care, managing treatment effects and making healthy lifestyle changes.
Macmillan Cancer Support
Suggestions to help people get the best care and support after treatment ends and to live as healthy and active a life as possible.
Macmillan Cancer Support|Mummy's Star
This booklet is for women who have been diagnosed with cancer during pregnancy. It explains the emotional and practical issues you may experience in this situation. It also talks about the treatment you may have and support that will be available to you.
Macmillan Cancer Support
This booklet is about hair loss. It is for anyone coping with changes to their hair during and after cancer treatment. It explains how cancer treatment may affect your hair, how to prepare for and cope with hair loss, and what to expect after treatment finishes.
British Lung Foundation
This booklet describes mesothelioma, the link with asbestos, who is at risk, the symptoms, diagnosis and treatment options. It also discusses financial support and end-of-life care. Includes a glossary of medical terms and further sources of support and information.
Bowel Cancer UK
Carers can play an important role in helping people make the best choices about their health. This booklet will help you talk with the person or people you support, about keeping their bowel healthy and getting their bowel checked.
Macmillan Cancer Support
This booklet has detailed information on the causes of lung cancer, symptoms, diagnosis, and treatment options. Includes information on clinical trials and issues such as feelings, talking to children, and financial support.
Macmillan Cancer Support
A booklet written to help provide a better understanding of cancer of the thyroid, with sections on causes, symptoms, diagnosis, treatments, and follow-up. It explores feelings and includes advice on self-help and support.
British Lung Foundation
This booklet explains what breathlessness is, the causes of acute and chronic breathlessness, the tests that might be necessary and management of breathlessness. It is not cancer specific.
Macmillan Cancer Support
This booklet explains what Hodgkin lymphoma is, and provides information on symptoms, diagnosis, the stages, and treatment options. It also covers issues such as fertility, feelings, and practical and financial support.
British Lung Foundation
This illustrated leaflet has guidance for people with lung disease on how to enjoy a fulfilling sex life.
Macmillan Cancer Support
During and after cancer treatment, many people can experience eating problems. This may be as a result of treatment or the cancer itself. This booklet highlights some common eating problems and why they may happen and suggest some practical ways to manage them.
Macmillan Cancer Support
This booklet deals with the two common types of skin cancer - basal cell carcinoma (also called rodent ulcer) and squamous cell carcinoma - and their causes, symptoms, diagnosis and treatment. It includes details of useful organisations.
Look Good...Feel Better
Macmillan Cancer Support
This audiobook explains lung cancer, covering the causes and symptoms, diagnosis, staging and grading, treatments and clinical trials. It also talks about emotional, practical and financial issues.
Prostate Cancer UK
Z-card with information from the booklet 'Know your prostate. A guide to common prostate problems'. It describes the prostate gland, the changes to look out for, benign prostatic hyperplasia, prostatitis and prostate cancer (what it is, the symptoms and the risk factors).
Austin Macauley
Written as a diary, Lisa Primrose goes through the lows and highs of her experiences after being diagnosed with cancer. She takes the reader on an emotional rollercoaster: always positive but not afraid to give the reader a ‘warts and all' description of events. Her interactions with the Health Service are invariably good but she only gets the best out of the system by having a positive attitude to her condition no matter how physically disabling the symptoms are. (Publishers)
Urostomy Association
This leaflet explains why a urinary infection might occur following a urostomy, how to prevent an infection, and how to obtain a urine sample. It also briefly describes the symptoms and treatment and what happens in the case of recurrent infections.
Macmillan Cancer Support
Suggestions to help people get the best care and support after treatment ends and to live as healthy and active a life as possible.
Johns Hopkins University Press
The prospect of entering treatment is overwhelming for anyone facing a diagnosis of cancer. While patients have access to a vast amount of medical information online, this advice is often unreliable or confusing. In Living with Cancer, Drs. Vicki A. Jackson and David P. Ryan have crafted the first step-by-step guide aimed at helping people with this life-defining disease grasp what’s happening to them while coping physically and emotionally with cancer treatment. An empathetic resource full of relatable patient stories, this book teaches patients and caregivers how to ask the right questions to get the best possible care―beginning at the moment of diagnosis. Drs. Jackson and Ryan explain how to work with a team of doctors and nurse practitioners to minimize symptoms and side effects while living as fully as possible in the face of cancer. They relay important information about understanding prognosis, and they translate what doctors mean when they describe tests, treatments, and medical procedures. Finally, they discuss hospice care and answer questions about continuing treatment and managing the final phase of life. Based on new research and a groundbreaking program in which patients are treated with palliative care―along with the best cancer care―during the course of their illness, this honest and caring book provides the right advice to use at the right time throughout a journey with cancer. It allows a person with cancer to concentrate on living the best life possible, despite an uncertain future. Patients at every stage will find Living with Cancer a comprehensive, thoughtful, and accessible guide for navigating the illness and its treatment. (Publisher)
Health Press
All health professionals, regardless of specialty, will care for patients with pain that has persisted for more than 6 months. This fully updated fourth edition of Fast Facts: Chronic and Cancer Pain, written by two internationally renowned experts in the field, is designed to bring busy health professionals up to speed with the latest information in this area, including: easy-to-read overviews of pain mechanisms; a practical approach to pain assessment; developments in stepped care and multimodal management; the latest thinking on opioids. With health services around the world responding to calls to improve the management of painful long-term conditions, develop preventive and cost-effective solutions, and respond to patient choice and voice, this easy-to-read fact-packed book is essential reading for all GPs, nurses, junior hospital doctors, physical therapists, clinical psychologists, occupational therapists, pharmacists, medical specialists and medical students wanting – and needing – to know more. (Publisher)
Children's Cancer and Leukaemia Group
This booklet provides information about common symptoms, their causes and available treatments and includes suggestions for things parents and carers can do at home to help their child.
Pancreatic Cancer Action
A booklet for patients and carers describing the types of pancreatic cyst, their symptoms and risks. It gives detailed information on the diagnostic tests used, the different types of treatment given for cancerous and non-cancerous cysts. It includes a glossary to explain many of the terms used.
CHANGE
An easy read booklet about prostate cancer and symptoms to look out for.
Myeloma UK
Ellen Watters, Myeloma Information Nurse Specialist at Myeloma UK gives an overview of myeloma. The video includes the causes of myeloma, symptoms and brief overview of treatment strategies for myeloma patients.
Department of Health
Leaflet aimed at alerting general public to symptoms of lung cancer and encouraging people to go to the doctor if they have a cough that last more than three weeks or get out of breath easily.
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