The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Pancreatic Cancer UK
This booklet is for anyone with pancreatic cancer. Their family may also find it helpful. It explains how pancreatic cancer and the treatments for it can cause problems with diet, eating and nutrition. It has information on how to manage these problems, and some tips for dealing with some of the different symptoms. It also has details of other sources of support and information about diet.
British Lung Foundation
This leaflet is for people who have been diagnosed with mesothelioma. It explains what mesothelioma is, what causes it, symptoms, how it is diagnosed, and treatments. It also provides information on where to go for further information and support.
Brain Tumour Action
This booklet explains what epilepsy is, the types of seizures, how it is diagnosed,and treatment options. it also has tips on people can help themselves, what family and friends should do if someone has a seizure, and how seizures may affect daily life (driving, work, home life, sport).
Anthony Nolan
After having a stem cell or bone marrow transplant, some patients will develop GvHD. This brief guide aims to help you understand what GvHD is, who might get it, where and when it might occur, and who to go to for help and support. It includes tips from patients.
Bone Cancer Research Trust
This factsheet describes primary bone caner, the types, who it affects, symptoms, causes and risk factors, diagnosis, treatment, follow-up care, and rehabitation and support.
Anthony Nolan
This booklet is for anyone concerned about their relationship or sex life after their stem cell or bone marrow transplant. It has been written with guidance and advice from patients, their partners, and healthcare professionals, to help you come to terms with your current situation and what can be done to help.
Lymphoma Action
This factsheet is about MALT lymphoma – a slow-growing type of non-Hodgkin lymphoma. It most commonly develops in the stomach (gastric MALT lymphoma) but can develop in other parts of the body (non-gastric MALT lymphoma). Contents: What is MALT lymphoma?; Who gets MALT lymphoma and what causes it?; Symptoms; Diagnosis and staging; Outlook; Treatment; Transformation; Follow-up; Relapsed and refractory MALT lymphoma; Research and targeted treatments.
Children's Cancer and Leukaemia Group
Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what liver tumours are, and describes the signs, symptoms, tests and treatment options.
Orchid – Fighting Male Cancer
This leaflet has information on prostate, testicular and penile cancer - from signs and symptoms, risk factors and causes through to tests to determine a diagnosis and treatment options.
Action Cancer
Z-card with facts about prostate cancer (what is the prostate, the symptoms of prostate cancer) and testicular cancer (what it is, the causes, how to examine the testicles, what to do of a change is noticed).
Bloodwise
Brief information about watch and wait: what it is; why it is recommended; who is on it; frquency of appointments; symptoms to look out for; and where to go for support.
Macmillan Cancer Support
This audiobook explains rectal cancer, covering causes and symptoms, diagnosis, staging and grading, treatments and clinical trials. It also looks at emotional, practical and financial issues.
The Eve Appeal
Key information about womb cancer including signs and symptoms, risk factors and how to reduce your risk of developing cancer.
Children's Cancer and Leukaemia Group
Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what a brain tumour is, and describes the signs and symptoms, tests and treatment options.
Bloodwise
Mucositis is a condition that affects your mucous membrane, the thin skin that covers and protects the inside surface of parts of your body. It can be a painful side effect of chemotherapy or radiotherapy. This factsheet explains how it is caused and who gets it, and describes the signs and symptoms, and how to look after yourself.
The Eve Appeal
Key information about vaginal cancer including signs and symptoms, risk factors and how to reduce your risk of developing cancer.
The Eve Appeal
Key information about ovarian cancer including signs and symptoms, risk factors and how to reduce your risk of developing cancer.
Macmillan Cancer Support
This factsheet is about some of the side effects of cancer treatment. Includes English-language version.
Macmillan Cancer Support
This factsheet is about some of the side effects of cancer treatment. Includes English-language version.
Breast Cancer Care
This booklet explores the feelings and experiences of younger women diagnosed with breast cancer, covering topics such as treatment, physical effects, relationships, finding support, and practical issues. Individual women share their thoughts and experiences.
The Eve Appeal
Key information about cervical cancer including signs and symptoms, risk factors and how to reduce your risk of developing cancer.
Macmillan Cancer Support
This factsheet is about some of the side effects of cancer treatment. Includes the English-language version.
Bloodwise
This factsheet describes what chronic myelomonocytic leukaemia is, the signs and symptoms, diagnosis, treatment and prognosis.
Brain and Spine Foundation
This booklet provides information on spinal tumours in adults. It provides information on common symptoms, tests and investigations, and possible treatments. It also provides information on recovery and returning to everyday activities.
Lymphoma Action
This booklet aims to help people understand more about the different types of low-grade non-Hodgkin lymphoma. It describes how they typically affect people, the usual treatments, and what to expect during and after treatment.
Brain and Spine Foundation
This booklet provides information on brain tumours in adults and focuses on primary brain tumours. It describes brain tumours and provides information on common symptoms, tests and investigations and possible treatments. It also provides information on rehabilitation and returning to everyday activities.
Macmillan Cancer Support
This audiobook explains non-Hodgkin lymphoma, covering the causes and symptoms, diagnosis, staging and grading, treatments and clinical trials. It also talks about emotional, practical and financial issues.
Myeloma UK
Kidney damage is a common complication of myeloma. This booklet describes how damage occurs in myeloma, the symptoms of kidney damage associated with myeloma, and the treatment options.
Macmillan Cancer Support
This factsheet is about some of the side effects of cancer treatment.
Breast Cancer Care
This leaflet describes what malignant and borderline malignant phyllodes tumours are, the symptoms, how they are diagnosed, and the treatment options.
Bloodwise
While you’re on watch and wait, your doctor will regularly check your blood counts. You can use this sheet to record the results.
Breast Cancer Care
This booklet is for anyone diagnosed with secondary cancer in the liver that has spread from the breast. It describes what secondary breast cancer in the liver is, the possible symptoms and how they can be managed, the investigations that might be needed, and the treatment options.
Brainstrust
This resource aims to enable patients and caregivers living with a brain tumour to understand what is meant by fatigue and to self-manage fatigue relating to brain tumours so that they: learn a new pace of living; take steps to mitigate the impact of fatigue; and make the most of what they can do, rather than what they can’t.
Pancreatic Cancer UK
This fact sheet is for people with pancreatic who have fatigue. It explains what fatigue is, what causes it, how it can be managed, and the support available.
Macmillan Cancer Support
This information is about lung cancer and treatments for lung cancer. It is about cancer that starts in the lung (primary lung cancer). It is not about cancer that starts somewhere else in the body and spreads to the lungs (secondary lung cancer). Includes English-language version.
Macmillan Cancer Support
This information is about lung cancer and treatments for lung cancer. It is about cancer that starts in the lung (primary lung cancer). It is not about cancer that starts somewhere else in the body and spreads to the lungs (secondary lung cancer).
Action Cancer
Z-card with facts about cervical and ovarian cancer, including symptoms and risk factors, diagnosis, the smear test, HPV vaccine and ways to lower your risk of getting cervical cancer.
Action Cancer
Z-card with facts about bowel cancer (what it is, risk factors, symptoms, reducing the risk and screening) and lung cancer (what it is, risk factors, what to look out for, how to reduce the risk and stopping smoking).
Mesothelioma UK
This leaflet describes pleural effusion - what causes it, the symptoms and treatment options.
Macmillan Cancer Support
This factsheet is about some of the side effects of cancer treatment. Includes the English-language version.
Bloodwise
This booklet explains what chronic lymphocytic leukaemia is, and describes what causes it, the signs and symptoms, and how it is diagnosed and treated.
Bloodwise
If you have blood cancer or a related blood condition you may develop neutropenia. This means it will be harder for your body to fight infections. Your healthcare team may suggest that you make some changes to your diet to try and lower your risk of getting an infection from your food. This is sometimes called a ‘neutropenic’ or ‘clean’ diet. This booklet provides general advice on safe food handling and storage for people at risk of neutropenia. It also lists some foods to avoid, and has suggestions for suitable snacks.
Macmillan Cancer Support
This factsheet is about some of the side effects of cancer treatment. Includes English-language version.
Breast Cancer Care
This leaflet discusses the main aspects of invasive lobular breast cancer. It describes what it is, the symptoms, how a diagnosis is made, the treatment options and coping with the diagnosis.
Macmillan Cancer Support
This factsheet is about some of the side effects of cancer treatment. Includes English-language version.
Macmillan Cancer Support
This factsheet is about some of the side effects of cancer treatment. Includes the English-language version.
Breast Cancer Care
A booklet for people who have been diagnosed with secondary cancer in the brain that has spread from the breast. It describes what secondary breast cancer in the brain is, what the symptoms are, and the investigations. Briefly outlines the treatment options. Lists useful organisations.
Macmillan Cancer Support
This factsheet is about some of the side effects of cancer treatment. Includes English-language version.
Macmillan Cancer Support
This factsheet is about some of the side effects of cancer treatment. Includes the English-language version.
Children's Cancer and Leukaemia Group
This booklet has detailed information for parents whose child has a brain or spinal tumour. It covers the typical signs and symptoms, diagnosis, the treatment options, clinical trials, supportive care during treatment, and ongoing needs after therapy. Appendices include the structure and function of the brain, a glossary of terms, support groups and useful sources of information.
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