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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 1730

Cover image of 'The bowel screening test. What you need to know [Arabic]'

The bowel screening test. What you need to know [Arabic] (October 2018)

NHS Health Scotland

This leaflet explains the benefits of the bowel screening test, how the test is done, and the signs and symptoms of bowel cancer, and has tips on how to reduce the risk of bowel cancer.

Cover image of 'Radiotherapy (localised penile cancer)'

Radiotherapy (localised penile cancer) (March 2019)

Orchid – Fighting Male Cancer

This leaflet describes the use of radiotherapy to treat cancer that has not spread to other parts of the body.

Cover image of 'Graft versus host disease (GvHD)'

Graft versus host disease (GvHD) (August 2017)

Children's Cancer and Leukaemia Group

Graft versus host disease (GvHD) is a complication of donor (allogeneic) stem cell transplantation (SCT), in which the cells from the stem cell donor (graft) react to the cells in the patient (host). This factsheet has been written to help you to understand how GvHD may affect you/your child and what possible treatments there are. The factsheet will complement the information given by the nurses and doctors who make up your stem cell transplant (SCT) team. They will be able to give you information specific to you, and will always be very happy to answer any questions you might have.

Cover image of 'Taking part in clinical trials. Information for parents and carers of a child or young person with cancer'

Taking part in clinical trials. Information for parents and carers of a child or young person with cancer (August 2017)

Children's Cancer and Leukaemia Group

Many children and young people with cancer are treated on clinical trials. This booklet, designed for parents and carers of children and young people with cancer, aims to help you to understand more about clinical trials and answer some of the questions you may have.

Cover image of 'Understanding kidney cancer'

Understanding kidney cancer (April 2017)

Kidney Cancer UK

This booklet has information about kidney cancer, including the symptoms, diagnosis, staging and grading, and the treatment options. It also briefly discusses life with kidney cancer, including feelings, day-to-day living, money, and support. Includes sources of further information and a glossary.

Cover image of 'What you can do to help yourself [Romanian]'

What you can do to help yourself [Romanian] (September 2017)

Macmillan Cancer Support

This factsheet has information about things you can do to help yourself when you have cancer. Includes the English-language version.  

Cover image of 'Exemestane'

Exemestane (February 2019)

Breast Cancer Care

This booklet explains what exemestane is, how it works, when it may be prescribed and possible side effects. 

Cover image of 'Secondary breast cancer in the liver'

Secondary breast cancer in the liver (March 2017)

Breast Cancer Care

This booklet is for anyone diagnosed with secondary cancer in the liver that has spread from the breast. It describes what secondary breast cancer in the liver is, the possible symptoms and how they can be managed, the investigations that might be needed, and the treatment options.

Cover image of 'The bowel screening test. What you need to know'

The bowel screening test. What you need to know (2018)

NHS Health Scotland

This leaflet explains the benefits of the bowel screening test, how the test is done, and the signs and symptoms of bowel cancer, and has tips on how to reduce the risk of bowel cancer.

Cover image of 'Caring for colostomates. A practical guide for staff in nursing and residential homes and those who care for a colostomate at home'

Caring for colostomates. A practical guide for staff in nursing and residential homes and those who care for a colostomate at home (March 2016)

Colostomy UK

Guidance on the different types of appliances, changing the appliance, disposing of used appliances, day-to-day life with a colostomy (eating, bathing and showering) and common concerns (sore skin, bleeding, parastomal hernia, leaking, ballooning, pancaking, constipation, diarrhoea, odour, rectal discharge and rectal discomfort).

Cover image of 'Anastrazole'

Anastrazole (February 2019)

Breast Cancer Care

This leaflet explains briefly what Arimidex® is, how it works, when it may be prescribed, how it is taken and the possible side-effects.

Cover image of 'A younger woman's guide to ovarian cancer'

A younger woman's guide to ovarian cancer (May 2017)

Ovacome|Ovarian Cancer Action|Target Ovarian Cancer|The Eve Appeal

A guide for younger women who have been diagnosed with ovarian cancer. It was developed through consultation with women who have had ovarian cancer. Highly commended in the 2016 British Medical Association (BMA) Patient Information Awards. 

Cover image of 'Focus on women's health'

Focus on women's health (January 2019)

Cancer Focus Northern Ireland

Lifestyle tips for women to help reduce the risk of cancer.

Cover image of 'Complementary therapies'

Complementary therapies (August 2019)

Ovacome

This briefing looks at the complementary therapies that are most commonly used by people with ovarian cancer, how they can help to manage treatment side effects and improve quality of life.

Cover image of 'Support garments'

Support garments (May 2017)

Colostomy UK

Details of companies that supply garments to support a hernia.

Cover image of 'Going back to work'

Going back to work (March 2019)

Ovacome

This briefing looks at the experience of returning to work after an ovarian cancer diagnosis and treatment, the importance of talking to your employer as soon as possible, your rights under the law and what to expect from your employer. 

Cover image of 'When your brother or sister has cancer. An information guide for teenagers and young adults whose sibling is diagnosed with cancer'

When your brother or sister has cancer. An information guide for teenagers and young adults whose sibling is diagnosed with cancer (November 2019)

Children's Cancer and Leukaemia Group

Being told that your brother or sister has cancer can be overwhelming and you may be full of questions. It is a difficult time for everyone in your family as life is turned upside down almost overnight. You will likely feel many different emotions as you try and come to terms with what your sibling’s diagnosis means for you and your family. You may feel worried or upset at this sudden change that you didn’t want or ask for, and you may desperately want everything to go back to normal as it was before their diagnosis. Life can seem very unfair. These feelings are completely normal and you are not alone. This guide covers how your brother or sister’s diagnosis might affect you, your feelings and emotions, and how it is important to take care of yourself during this difficult time. It explains more about cancer, and what you can expect over the coming weeks and months.

Cover image of 'Eating problems and cancer [Portuguese]'

Eating problems and cancer [Portuguese] (September 2018)

Macmillan Cancer Support

Cancer can cause problems with eating and drinking. This information is about the different problems that can happen and ways of dealing with them. Includes English-language version. 

Cover image of 'End of life [Chinese, Traditional]'

End of life [Chinese, Traditional] (January 2017)

Macmillan Cancer Support

This factsheet is about what happens at the end of life and how to prepare for it. Includes English language version.

Cover image of 'Pelvic radiation disease'

Pelvic radiation disease (2018)

Guts UK

Pelvic radiation disease is a term used to describe a collection of symptoms that can arise after radiotherapy treatment to the abdomen or pelvis for cancers such as cervical, prostate, bladder and bowel cancers. This leaflet describes the causes, symptoms, how it is diagnosed, the treatment options, and the impact.

Cover image of 'Ben's stem cell transplant. A children’s guide to donor (allogeneic) stem cell transplant'

Ben's stem cell transplant. A children’s guide to donor (allogeneic) stem cell transplant (June 2017)

Children's Cancer and Leukaemia Group

This illustrated booklet is for children who need a stem cell transplant. Using the story of Ben it explains what stem cells are, what the treatment involves, what happens in hospital and going home.

Cover image of 'What you can do to help yourself [Portuguese]'

What you can do to help yourself [Portuguese] (September 2017)

Macmillan Cancer Support

This factsheet has information about things you can do to help yourself when you have cancer. Includes the English-language version.  

Cover image of 'Tamoxifen'

Tamoxifen (February 2018)

Breast Cancer Care

This leaflet explains what tamoxifen is, when it may be prescribed, how it works, the benefits, and possible side-effects.

Cover image of 'Posterior fossa syndrome'

Posterior fossa syndrome (May 2016)

Children's Cancer and Leukaemia Group

This factsheet has been written to help parents understand posterior fossa syndrome (PFS), the name given to a collection of symptoms that may occur together following surgery to the back of the brain. PFS is also sometimes known as cerebellar mutism syndrome. 

Cover image of 'Radiotherapy [Welsh]'

Radiotherapy [Welsh] (December 2018)

Macmillan Cancer Support

This factsheet describes radiotherapy: what it is; how treatment is planned; external and internal radiotherapy; and the possible side-effects. It also has tips on coping with radiotherapy. Includes English language version. 

Cover image of 'Breast reconstruction'

Breast reconstruction (January 2018)

Breast Cancer Care

This booklet is for women considering breast reconstruction after breast surgery to treat breast cancer.

Cover image of 'Make time for breast screening [Slovakian]'

Make time for breast screening [Slovakian] (2019)

NHS Health Scotland

This leaflet explains what breast screening is, who is offered screening, the benefits and disadvantages of screening, what happens before, during, and after screening, and what it means to be called back. Includes breast awareness advice. Concludes with answers to questions that women may ask.

Cover image of 'Chemotherapy [Welsh]'

Chemotherapy [Welsh] (September 2018)

Macmillan Cancer Support

This factsheet provides information about chemotherapy, including possible side-effects. Includes English language version.

Cover image of 'Radiotherapy for advanced prostate cancer'

Radiotherapy for advanced prostate cancer (March 2019)

Prostate Cancer UK

This factsheet is for men with advanced prostate cancer who would like to know more about treatment with palliative radiotherapy. It explains who can have palliative radiotherapy, how it treats advanced prostate cancer and the advantages and disadvantages. It covers external beam radiotherapy and internal radiotherapy (radioisotopes), describing what the treatment involves and the side effects. It does not cover the treatment of localised or locally-advanced prostate cancer.

Cover image of 'Lumbar puncture'

Lumbar puncture (October 2017)

Brain and Spine Foundation

This factsheet provides information on lumbar punctures, including what one is and why it might be carried out, and what happens before, during and after the procuedure.

Cover image of 'Radiotherapy and chemotherapy (for non localised cancer)'

Radiotherapy and chemotherapy (for non localised cancer) (March 2019)

Orchid – Fighting Male Cancer

This leaflet describes the use of radiotherapy and chemotherapy to treat cancer that has spread beyond the penis to other parts of the body.

Cover image of 'End of life [Urdu]'

End of life [Urdu] (January 2017)

Macmillan Cancer Support

This factsheet is about what happens at the end of life and how to prepare for it. Includes the English-language version.  

Cover image of 'Ibrutinib'

Ibrutinib (May 2019)

Lymphoma Action

This factsheet describes the use of ibrutinib for the treatment of certain types of lymphoma (relapsed or refractory mantle cell lymphoma; relapsed or refractory CLL; CLL and a 17p deletion). It covers what ibrutinib is, who can have it and who cannnot, its benefits, how it is given, side effects and precautions while being treated.

Cover image of 'Total penectomy'

Total penectomy (March 2019)

Orchid – Fighting Male Cancer

This leaflet describes the aftercare, including catheters, and possible complications of a total penectomy

Cover image of 'Breast cancer in younger women'

Breast cancer in younger women (July 2017)

Breast Cancer Care

This booklet explores the feelings and experiences of younger women diagnosed with breast cancer, covering topics such as treatment, physical effects, relationships, finding support, and practical issues. Individual women share their thoughts and experiences.

Cover image of 'Side effects of cancer treatment [Chinese, Traditional]'

Side effects of cancer treatment [Chinese, Traditional] (January 2017)

Macmillan Cancer Support

This factsheet is about some of the side effects of cancer treatment. Includes English-language version.

Cover image of 'Focus on being breast aware'

Focus on being breast aware (July 2018)

Cancer Focus Northern Ireland

This leaflet briefly describes who is most at risk of developing breast cancer, how to examine the breasts for changes, and what to look out for.

Cover image of 'Polyps in the bowel'

Polyps in the bowel (2018)

Guts UK

Polyps are usually benign (non-cancerous) but some may eventually become malignant (cancerous). This leaflet explains what polyps are, what symptoms they may cause, and how they are diagnosed and treated.

Cover image of 'Managing family life and cancer. A practical guide for parents of a child with cancer'

Managing family life and cancer. A practical guide for parents of a child with cancer (December 2016)

Children's Cancer and Leukaemia Group

This booklet, witten by parents for parents, aims to help parents manage and enjoy family life when a child has cancer.

Cover image of 'PSA testing for you and your prostate. Get the knowledge!'

PSA testing for you and your prostate. Get the knowledge! (July 2013)

Prostate Scotland

Guidance for men who may be considering the PSA test.

Cover image of 'MTC. Medullary thyroid cancer'

MTC. Medullary thyroid cancer (February 2016)

AMEND (Association for Multiple Endocrine Neoplasia Disorders)

This booklet explains what medullary thyroid cancer is, how it is diagnosed, the tests that may be carried out and the treatment options.

Cover image of 'Blocked bowel'

Blocked bowel (May 2018)

Ovacome

A blocked bowel (or bowel obstruction) is a possible complication of ovarian cancer. This factsheet describes how a low fibre (fibre-restricted) diet may help.

Cover image of 'Borderline ovarian tumours'

Borderline ovarian tumours (May 2018)

Ovacome

This factsheet explains what is meant by borderline ovarian cancer and the three situations that might cause concern or uncertainty: borderline ovarian tumours that have spread beyond the ovary (non-invasive and invasive implants); mucinous borderline tumours; stage-1 borderline ovarian tumours in young women treated with limited surgery.

Cover image of 'Make time for breast screening [Pashto]'

Make time for breast screening [Pashto] (2019)

NHS Health Scotland

This leaflet explains what breast screening is, who is offered screening, the benefits and disadvantages of screening, what happens before, during, and after screening, and what it means to be called back. Includes breast awareness advice. Concludes with answers to questions that women may ask.

Cover image of 'Surgical menopause'

Surgical menopause (May 2018)

Ovacome

This factsheet describes treatment-induced menopause and offers advice about symptoms such as hot flushes, vaginal dryness and osteoporosis.

Cover image of 'What happens if you are diagnosed'

What happens if you are diagnosed (May 2018)

Ovacome

A checklist of questions for women with ovarian cancer to ask their doctor. It is divided into sections such as: What can I expect to happen now?; At your appointment; What if I have ovarian cancer?; My treatment has finished. Now what?. It also has advice on how women can help themselves; for example, talking to others, support groups, and counselling.

Cover image of 'Medical terms explained'

Medical terms explained (May 2018)

Ovacome

A glossary of medical terms that women with ovarian cancer may come across.

Cover image of 'Rare ovarian tumours'

Rare ovarian tumours (May 2018)

Ovacome

This factsheet describes some of the rarer ovarian cancers and how they may be treated, namely: germ cell tumours; sex-cord stromal tumours (granulosa cell tumour and Sertoli-Leydig cell tumours); small-cell carcinoma of the ovary; Brenner tumours; and Krukenberg tumours.

Cover image of 'TLC. Touch. Look. Check.'

TLC. Touch. Look. Check. (November 2017)

Breast Cancer Now

Illustrated credit-card-sized mini-leaflet with information about breast changes.

Cover image of 'Treatment decisions'

Treatment decisions (December 2016)

Bloodwise

If you have blood cancer or a related condition, you’ll be asked to make decisions about your treatment. This can be a difficult thing to do, particularly if you have to make these decisions very quickly. This factsheet will help you understand the types of treatments available and the choices you’ll be asked to make. 

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