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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 426

Cover image of 'Physical activity'

Physical activity (May 2016)

Penny Brohn Cancer Care

This factsheet explains what is meant by physical activity, how much people need, the benefits, what Penny Brohn Cancer Care recommends and offers, and safety concerns. It includes a summary of the research evidence to date about its effectiveness.

Cover image of 'Inflammatory breast cancer'

Inflammatory breast cancer (August 2017)

Breast Cancer Care

This factsheet describes inflammatory breast cancer, the signs and symptoms, how a diagnosis is made, treatment options and coping with the condition.

Cover image of 'Goserelin (Zoladex)'

Goserelin (Zoladex) (February 2018)

Breast Cancer Care

This leaflet explains briefly what goserelin (Zoladex®) is, when it may be prescribed, how it works, and the possible side-effects.

Cover image of 'How to cope with tiredness in cancer'

How to cope with tiredness in cancer (November 2014)

Cancer Focus Northern Ireland

This leaflet explains what causes fatigue and describes its effects on daily life and how to cope. Includes details of services offered by Cancer Focus Northern Ireland.

Cover image of 'The little white book. Tees Valley and surrounding areas. A directory of resources to help people affected by a brain tumour'

The little white book. Tees Valley and surrounding areas. A directory of resources to help people affected by a brain tumour (November 2016)

Brainstrust

A directory of support services and resources for people with a brain tumour in the Tees Valley and surrounding areas 

Cover image of 'Taking care of your breasts [English/Punjabi]'

Taking care of your breasts [English/Punjabi] (August 2014)

Breast Cancer Care

This leaflet uses illustrations to show women how to check their breasts and the changes to look for.

Cover image of 'A family companion to the Together for Short Lives core care pathway for children with life-limiting and life-threatening conditions'

A family companion to the Together for Short Lives core care pathway for children with life-limiting and life-threatening conditions (August 2014)

Together for Short Lives

This booklet is for parents, family members and carers of children and young people who have been diagnosed with a life-limiting and life-threatening condition. It acts as a step-by-step guide through what happens after diagnosis, explaining what should happen, and the support that should be available.

Cover image of 'Do not attempt cardiopulmonary resuscitation (DNACPR). An easy read guide'

Do not attempt cardiopulmonary resuscitation (DNACPR). An easy read guide (March 2016)

Blackpool Teaching Hospitals NHS Foundation Trust

This leaflet explains what happens when we die, what CPR is and what to do if you decide you do not want CPR.

Cover image of 'Supporting your grandchild and family. An information guide for grandparents of a child or young person diagnosed with cancer'

Supporting your grandchild and family. An information guide for grandparents of a child or young person diagnosed with cancer (April 2019)

Children's Cancer and Leukaemia Group

Being told your grandchild has cancer comes as a terrible shock. Most grandparents worry not only about their grandchild, but also about how their own son/daughter will cope. Many are also concerned about the effects a cancer diagnosis will have on other children within the family, how they can support their family and how, as grandparents, they themselves will cope. Sometimes, it is not as easy for grandparents to access information first hand and this can lead to feelings of isolation. This guide answers some of the many questions grandparents might have during diagnosis and treatment.

Cover image of 'The little white book. Greater London. A directory of resources to help people affected by a brain tumour'

The little white book. Greater London. A directory of resources to help people affected by a brain tumour (May 2016)

Brainstrust

A directory of support services and resources for people with a brain tumour in Greater London.

Cover image of 'Understanding the decision process. Who is proton beam therapy suitable for?'

Understanding the decision process. Who is proton beam therapy suitable for? (January 2019)

Brainstrust

This leaflet explains who proton beam therapy is suitable for and how the decision is made. Includes Care Pathway and Clinical Dependencies Referral and Care Pathway 1 (NHS and overseas) and Pathway 2 (NHS only).

Cover image of 'Taking care of your breasts [English/Arabic]'

Taking care of your breasts [English/Arabic] (August 2014)

Breast Cancer Care

This leaflet uses illustrations to show women how to check their breasts and the changes to look for.

Cover image of 'Taking care of your breasts'

Taking care of your breasts (September 2016)

Breast Cancer Care

Illustrated mini leaflet showing women how to check their breasts.

Cover image of 'The little white book. Glasgow and surrounding areas. A directory of resources to help people affected by a brain tumour'

The little white book. Glasgow and surrounding areas. A directory of resources to help people affected by a brain tumour (May 2016)

Brainstrust

A directory of support services and resources for people with a brain tumour in Glasgow and the surrounding areas.

Cover image of 'Invasive ductal breast cancer'

Invasive ductal breast cancer (November 2018)

Breast Cancer Care

This leaflet discusses the main aspects of invasive ductal breast cancer. It describes what it is, the symptoms, how a diagnosis is made, the treatment options and coping with the diagnosis.

Cover image of 'Financial support - benefits [Romanian]'

Financial support - benefits [Romanian] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits. Includes the English-language version.. 

Cover image of 'A parent's guide: making critical care choices for your child'

A parent's guide: making critical care choices for your child (December 2011)

Together for Short Lives

This leaflet is for parents, carers or legal guardians of a child with a life-limiting or life-threatening condition who are thinking about critical care options. It explains what critical care choices are, describes an end of life care plan and discusses concerns such as: making an informed choice; making the most of time left; feeling under pressure to make a quick decision; talking to the child; and disagreeing with the health care professionals. Includes details of sources of support.

Cover image of 'Breast calcifications'

Breast calcifications (April 2016)

Breast Cancer Care

This leaflet explains about breast calcifications, what they are, how they're found and what happens if they need to be followed up.

Cover image of 'Lobular neoplasia'

Lobular neoplasia (February 2019)

Breast Cancer Care

This leaflet discusses lobular neoplasia, which includes atypical lobular hyperplasia (ALH) and lobular carcinoma in situ (LCIS). It describes the features, diagnosis, and treatment options, and concludes with guidance on how to cope with a diagnosis of lobular neoplasia and sources of support.

Cover image of 'If you are diagnosed with cancer – a quick guide [Portuguese]'

If you are diagnosed with cancer – a quick guide [Portuguese] (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support. Includes the English-language version.

Cover image of 'Breast reconstruction'

Breast reconstruction (January 2018)

Breast Cancer Care

This booklet is for women considering breast reconstruction after breast surgery to treat breast cancer.

Cover image of 'Take control of your health and be wellaware. Cancer awareness for men'

Take control of your health and be wellaware. Cancer awareness for men (June 2013)

Cancer Focus Northern Ireland

Advice on reducing the risk of cancer by making lifestyle changes (weight, diet, physical activity, alcohol intake, sun care, smoking) and by being body aware.

Cover image of 'Reducing the risk of lymphoedema'

Reducing the risk of lymphoedema (April 2019)

Breast Cancer Care

This leaflet explains what lymphoedema is and who is at risk. It describes how to reduce the risk of developing lymphoedema, and what to do if problems occur (swelling and skin damage).

Cover image of 'Focus on bowel cancer'

Focus on bowel cancer (August 2013)

Cancer Focus Northern Ireland

This leaflet has facts about bowel cancer and the bowel and describes the symptoms, who is at risk and how to reduce the risk. It mentions the bowel screening programme in Northern Ireland.

Cover image of 'The little white book. Mersyside. A directory of resources to help people affected by a brain tumour'

The little white book. Mersyside. A directory of resources to help people affected by a brain tumour (May 2016)

Brainstrust

A directory of support services and resources for people with a brain tumour in Merseyside.

Cover image of 'Zoledronic acid for primary breast cancer'

Zoledronic acid for primary breast cancer (April 2019)

Breast Cancer Care

Zoledronic acid is a drug that’s given to reduce the risk of breast cancer spreading to the bones and other parts of the body. This booklet explains what it is, who might be offered it and the side effects it can cause.

Cover image of 'Being cared for at home'

Being cared for at home (April 2015)

Marie Curie

This booklet aims to provide practical information and advice for people who are being cared for at home at the end of their life. The booklet may also be useful for other people who are being cared for at home.

Cover image of 'Exercises after breast cancer surgery'

Exercises after breast cancer surgery (April 2019)

Breast Cancer Care

This leaflet explains why exercise is necessary after breast surgery, when to start exercising, and how long to carry on. It opens out into a poster that demonstrates exercises for the days and weeks after surgery.

Cover image of 'My child has a brain or spinal tumour. A guide for parents and carers'

My child has a brain or spinal tumour. A guide for parents and carers (January 2017)

Children's Cancer and Leukaemia Group

This booklet has detailed information for parents whose child has a brain or spinal tumour. It covers the typical signs and symptoms, diagnosis, the treatment options, clinical trials, supportive care during treatment, and ongoing needs after therapy. Appendices include the structure and function of the brain, a glossary of terms, support groups and useful sources of information.

Cover image of 'Taking care of your breasts [English/Welsh]'

Taking care of your breasts [English/Welsh] (August 2014)

Breast Cancer Care

This leaflet uses illustrations to show women how to check their breasts. 

Cover image of 'Capecitabine (Xeloda)'

Capecitabine (Xeloda) (March 2018)

Breast Cancer Care

This booklet explains briefly what capecitabine (Xeloda®) is, when it may be prescribed, how it works, and possible side-effects.

Cover image of 'Meditation and mindfulness'

Meditation and mindfulness (March 2016)

Penny Brohn Cancer Care

This factsheet explains what meditation and mindfulness are and what happens in a meditation and mindfulness session. It includes a summary of the research evidence published to date about its effectiveness.

Cover image of 'Pertuzumab with Perjeta'

Pertuzumab with Perjeta (April 2019)

Breast Cancer Care

This booklet explains what pertuzumab is, when it’s given and its possible side effects. Pertuzumab is the generic (non-branded) name of the drug. Its current brand name is Perjeta®.

Cover image of 'Mummy's lump'

Mummy's lump (April 2015)

Breast Cancer Care

This book is aimed at children under six and follows Elly and Jack as they learn of their mother's diagnosis and treatment for breast cancer. Also available as a read-aloud iPad, iPhone and iPod Touch download, read by Zoe Wanamaker (free iOS version or download from iTunes).

Cover image of 'Patient guide. Treatment'

Patient guide. Treatment (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'High-dose therapy and autologous stem cell transplantation'

High-dose therapy and autologous stem cell transplantation (February 2017)

Myeloma UK

High-dose therapy and stem cell transplantation is a treatment option for many people who have myeloma. This booklet explains what high-dose therapy and stem cell transplantation is, why it is needed, and the advantages and disadvantages of this treatment. It also discusses what will happen during the procedure, what to do on returning home, and feelings and relationships.

Cover image of 'FEC-T chemotherapy'

FEC-T chemotherapy (February 2019)

Breast Cancer Care

This booklet explains what the chemotherapy combination FEC-T is, when it may be prescribed, how it is given and what side effects may occur. FEC-T is a combination of four chemotherapy drugs: 5 fluorouracil (also known as 5FU); epirubicin; cyclophosphamide; docetaxol (also known as Taxotere).

Cover image of 'Breast awareness and screening'

Breast awareness and screening (May 2017)

Action Cancer

This leaflet describes when and how to check the breasts for changes and what to look for. It briefly explains what a mammogram is. Contains information on local services and describes the work of Action Cancer in Northern Ireland.

Cover image of 'Your breast clinic appointment'

Your breast clinic appointment (April 2019)

Breast Cancer Care

This booklet has been written for anyone referred to a breast clinic. It describes what to expect and the tests that may be carried out, such as a mammogram, an ultrasound scan, fine needle aspiration cytology, core biopsy, punch biopsy and vacuum-assisted biopsy.

Cover image of 'Complementary therapies, relaxation and wellbeing'

Complementary therapies, relaxation and wellbeing (February 2018)

Breast Cancer Care

This booklet is about relaxation and wellbeing during and after breast cancer treatment. It looks at complementary therapies such as acupuncture, Reiki and massage. It also describes some popular relaxation techniques, including meditation and mindfulness, and has information on yoga, Thai Chi and Chi Gung. It discusses why people might use these complementary therapies and relaxation techniques after a diagnosis of breast cancer, and what they may need to think about before trying them. It also explains what herbal medicines and homeopathy are. 

Cover image of 'Ovarian suppression and breast cancer'

Ovarian suppression and breast cancer (November 2018)

Breast Cancer Care

This factsheet is written for women who have been offered ovarian ablation as a treatment for breast cancer. It explains what ovarian ablation is, how it is achieved (surgery, radiotherapy, or hormone manipulation), when it is used, and the possible side-effects. Includes a list of useful organisations.

Cover image of 'Caring for someone with pancreatic cancer. Information for families and carers'

Caring for someone with pancreatic cancer. Information for families and carers (June 2017)

Pancreatic Cancer UK

This booklet is for family and friends who are looking after someone with pancreatic cancer. 

Cover image of 'Osteoporosis and breast cancer treatment'

Osteoporosis and breast cancer treatment (November 2018)

Breast Cancer Care

A booklet for people who have been treated for breast cancer and who may be concerned about their risk of osteoporosis. It describes osteoporosis, who is at risk, breast cancer treatment and bone density, how to look after your bones, and what to do if you think you have osteoporosis.

Cover image of 'Take control of your health and be wellaware. Cancer awareness for women'

Take control of your health and be wellaware. Cancer awareness for women (June 2013)

Cancer Focus Northern Ireland

Advice on reducing the risk of cancer by making lifestyle changes (weight, diet, physical activity, alcohol intake, sun care, smoking) and by being body aware.

Cover image of 'Breast cancer during and after pregnancy'

Breast cancer during and after pregnancy (May 2018)

Breast Cancer Care

A booklet for women whose breast cancer has been diagnosed during pregnancy or within a year of giving birth. It describes how breast cancer is diagnosed in pregnancy and the treatment options. It also covers coping with the diagnosis and continuing with the pregnancy.

Cover image of 'Explaining the NICE guidelines for diagnosing and managing pancreatic cancer'

Explaining the NICE guidelines for diagnosing and managing pancreatic cancer (August 2018)

Pancreatic Cancer UK

The National Institute for Health and Care Excellence (NICE) has produced guidelines for health professionals diagnosing and caring for people with pancreatic cancer. These guidelines are for the most common type of pancreatic cancer, pancreatic ductal adenocarcinoma. Health professionals don’t have to follow these guidelines, but they must take them into account when making decisions about care. They should also take your needs and wishes into account.

Cover image of 'Treating primary breast cancer'

Treating primary breast cancer (December 2018)

Breast Cancer Care

This booklet describes the range of treatments that may be offered to women with newly diagnosed breast cancer.

Cover image of 'Your body, intimacy and sex'

Your body, intimacy and sex (May 2016)

Breast Cancer Care

This booklet is for any woman who has breast cancer and would like more information on how it may affect her sexuality and sexual well-being. It covers sex and sexuality, breast cancer and sexuality, and intimate relationships. Includes photographs, quotes, and sources of information and support.

Cover image of 'Sodium clodronate for primary breast cancer'

Sodium clodronate for primary breast cancer (April 2019)

Breast Cancer Care

This booklet is about the bisphosphonate sodium clodronate given to reduce the risk of breast cancer spreading to the bones and other parts of the body. IIt explains what it is, who might be offered it and the side effects it can cause. 

Cover image of 'Financial support - benefits [Chinese, Traditional]'

Financial support - benefits [Chinese, Traditional] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits. Includes the English-language version.. 

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