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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 426

Cover image of 'Supportive care'

Supportive care (December 2011)

Bloodwise

This booklet describes supportive care for people with leukaemia. It covers blood product support (red cell transfusions, platelet transfusions), erythropoietin treatment for anaemia, the prevention and management of infection (neutropenia, bacterial infections, fungal infections, viral infections), mucositis, management of pain, tumour lysis syndrome and leucophoresis.

Cover image of 'Financial support - benefits [Welsh]'

Financial support - benefits [Welsh] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits. Includes the English-language version.. 

Cover image of 'Financial support - benefits [Polish]'

Financial support - benefits [Polish] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits. Includes the English-language version.. 

Cover image of 'Financial support - benefits [Russian]'

Financial support - benefits [Russian] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits. Includes the English-language version.. 

Cover image of 'Supporting people with learning disabilities to take care of their breasts'

Supporting people with learning disabilities to take care of their breasts (March 2017)

Breast Cancer Care

This resource is designed to help people with learning disabilities be breast aware, with the support of their carer. It aims to help people feel safe and confident about checking their breasts, and to seek help early if they are worried. 

Cover image of 'Radiotherapy for primary breast cancer'

Radiotherapy for primary breast cancer (May 2019)

Breast Cancer Care

This booklet describes radiotherapy for primary (early) breast cancer. It explains what radiotherapy is, why it might be needed, how it is given, what to expect, treatment planning, and the possible side-effects. 

Cover image of 'Trastuzumab (Herceptin)'

Trastuzumab (Herceptin) (February 2019)

Breast Cancer Care

This booklet explains what trastuzumab is, how it works, when it may be prescribed and the side effects you may experience. 

Cover image of 'FEC chemotherapy'

FEC chemotherapy (February 2019)

Breast Cancer Care

This leaflet describes the FEC chemotherapy combination (5 fluorouracil, epirubicin and cyclophosphamide), when it may be used, how it works, how it is given and the possible side-effects.

Cover image of 'Financial support - benefits [Portuguese]'

Financial support - benefits [Portuguese] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits. Includes the English-language version.. 

Cover image of 'Taking care of your breasts [English/Hindi]'

Taking care of your breasts [English/Hindi] (September 2016)

Breast Cancer Care

This leaflet uses illustrations to show women how to check their breasts and the changes to look for.

Cover image of 'Financial support - benefits [Punjabi]'

Financial support - benefits [Punjabi] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits. Includes the English-language version.. 

Cover image of 'Preparing for your death. A guide for people with learning difficulties and their carers.'

Preparing for your death. A guide for people with learning difficulties and their carers. (2014)

Family Advice and Information Resource

This booklet is for people with learning difficulties. Using illustrations and simple language it looks at topics such as the changes that may happen at the end of life, planning ahead and making funeral arrangements.

Cover image of 'Caring for colostomates. A practical guide for staff in nursing and residential homes and those who care for a colostomate at home'

Caring for colostomates. A practical guide for staff in nursing and residential homes and those who care for a colostomate at home (March 2016)

Colostomy UK

Guidance on the different types of appliances, changing the appliance, disposing of used appliances, day-to-day life with a colostomy (eating, bathing and showering) and common concerns (sore skin, bleeding, parastomal hernia, leaking, ballooning, pancaking, constipation, diarrhoea, odour, rectal discharge and rectal discomfort).

Cover image of 'The little white book. Aberdeen, The Highlands and surrounding areas. A directory of resources to help people  affected by a brain tumour'

The little white book. Aberdeen, The Highlands and surrounding areas. A directory of resources to help people affected by a brain tumour (January 2017)

Brainstrust

A directory of support services and resources for people with a brain tumour in Aberdeen, The Highlands and surrounding areas.

Cover image of 'Lung cancer'

Lung cancer (April 2015)

Cancer Focus Northern Ireland

Lists the risk factors for and the signs and symptoms of lung cancer and describes what to expect when visiting the GP. Also has information about how the Cancer Focus Northern Ireland can help.

Cover image of 'When someone has died - advice for those who are left behind. A guide for people with learning difficulties and their carers.'

When someone has died - advice for those who are left behind. A guide for people with learning difficulties and their carers. (2014)

Family Advice and Information Resource

This booklet is for people with learning difficulties. Using illustrations and simple language it explains what needs to be done after someone dies. It also covers bereavement.

Cover image of 'Pancreatic cancer and end of life care. Information for people in the last few months, weeks or days of life'

Pancreatic cancer and end of life care. Information for people in the last few months, weeks or days of life (March 2018)

Pancreatic Cancer UK

This booklet is for people with pancreatic cancer, their family, friends and carers who want to know more about what may happen in the last few months of life. It includes information about the symptoms that people with pancreatic cancer may get towards the end of their life and how to manage them. There is also information about how to get the care and support you might need, dealing with the emotional impact of dying from pancreatic cancer, and specific information for family members. 

Cover image of 'Art therapy'

Art therapy (March 2016)

Penny Brohn Cancer Care

This factsheet explains what art therapy is and what happens in an art therapy session. It includes a summary of the research evidence published to date about its effectiveness.

Cover image of 'Tamoxifen'

Tamoxifen (February 2018)

Breast Cancer Care

This leaflet explains what tamoxifen is, when it may be prescribed, how it works, the benefits, and possible side-effects.

Cover image of 'Financial support - benefits [Gujarati]'

Financial support - benefits [Gujarati] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits. Includes the English-language version.. 

Cover image of 'The little white book. South East Scotland. A directory of resources to help people affected by a brain tumour'

The little white book. South East Scotland. A directory of resources to help people affected by a brain tumour (April 2016)

Brainstrust

A directory of support services and resources for people with a brain tumour in South East Scotland.

Cover image of 'Financial support - benefits'

Financial support - benefits (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits.

Cover image of 'The little white book. Sheffield and the surrounding area. A directory of resources to help people affected by a brain tumour'

The little white book. Sheffield and the surrounding area. A directory of resources to help people affected by a brain tumour (November 2014)

Brainstrust

A directory of support services and resources for people with a brain tumour in South East Scotland.

Cover image of 'The little white book. Greater Manchester. A directory of resources to help people  affected by a brain tumour'

The little white book. Greater Manchester. A directory of resources to help people affected by a brain tumour (October 2016)

Brainstrust

A directory of support services and resources for people with a brain tumour in Greater Manchester.

Cover image of 'Music therapy'

Music therapy (February 2016)

Penny Brohn Cancer Care

This factsheet explains what music therapy is and what happens in a music therapy session. It includes a summary of the research evidence published to date about its effectiveness.

Cover image of 'Exemestane'

Exemestane (February 2019)

Breast Cancer Care

This booklet explains what exemestane is, how it works, when it may be prescribed and possible side effects. 

Cover image of 'Anastrazole'

Anastrazole (February 2019)

Breast Cancer Care

This leaflet explains briefly what Arimidex® is, how it works, when it may be prescribed, how it is taken and the possible side-effects.

Cover image of 'Massage'

Massage (April 2016)

Penny Brohn Cancer Care

This factsheet explains what massage is and what happens in a massage session. It includes a summary of the research evidence published to date about its effectiveness.

Cover image of 'The little white book. North West Children’s. A directory of resources to help children affected by a brain tumour'

The little white book. North West Children’s. A directory of resources to help children affected by a brain tumour (October 2016)

Brainstrust

A directory of support services and resources for children with a brain tumour in the North West of England.

Cover image of 'Taking care of your breasts [English/Gujarati]'

Taking care of your breasts [English/Gujarati] (September 2016)

Breast Cancer Care

This leaflet uses illustrations to show women how to check their breasts and the changes to look for. 

Cover image of 'Physical activity'

Physical activity (May 2016)

Penny Brohn Cancer Care

This factsheet explains what is meant by physical activity, how much people need, the benefits, what Penny Brohn Cancer Care recommends and offers, and safety concerns. It includes a summary of the research evidence to date about its effectiveness.

Cover image of 'Inflammatory breast cancer'

Inflammatory breast cancer (August 2017)

Breast Cancer Care

This factsheet describes inflammatory breast cancer, the signs and symptoms, how a diagnosis is made, treatment options and coping with the condition.

Cover image of 'Goserelin (Zoladex)'

Goserelin (Zoladex) (February 2018)

Breast Cancer Care

This leaflet explains briefly what goserelin (Zoladex®) is, when it may be prescribed, how it works, and the possible side-effects.

Cover image of 'How to cope with tiredness in cancer'

How to cope with tiredness in cancer (November 2014)

Cancer Focus Northern Ireland

This leaflet explains what causes fatigue and describes its effects on daily life and how to cope. Includes details of services offered by Cancer Focus Northern Ireland.

Cover image of 'The little white book. Tees Valley and surrounding areas. A directory of resources to help people affected by a brain tumour'

The little white book. Tees Valley and surrounding areas. A directory of resources to help people affected by a brain tumour (November 2016)

Brainstrust

A directory of support services and resources for people with a brain tumour in the Tees Valley and surrounding areas 

Cover image of 'Taking care of your breasts [English/Punjabi]'

Taking care of your breasts [English/Punjabi] (August 2014)

Breast Cancer Care

This leaflet uses illustrations to show women how to check their breasts and the changes to look for.

Cover image of 'A family companion to the Together for Short Lives core care pathway for children with life-limiting and life-threatening conditions'

A family companion to the Together for Short Lives core care pathway for children with life-limiting and life-threatening conditions (August 2014)

Together for Short Lives

This booklet is for parents, family members and carers of children and young people who have been diagnosed with a life-limiting and life-threatening condition. It acts as a step-by-step guide through what happens after diagnosis, explaining what should happen, and the support that should be available.

Cover image of 'Do not attempt cardiopulmonary resuscitation (DNACPR). An easy read guide'

Do not attempt cardiopulmonary resuscitation (DNACPR). An easy read guide (March 2016)

Blackpool Teaching Hospitals NHS Foundation Trust

This leaflet explains what happens when we die, what CPR is and what to do if you decide you do not want CPR.

Cover image of 'Supporting your grandchild and family. An information guide for grandparents of a child or young person diagnosed with cancer'

Supporting your grandchild and family. An information guide for grandparents of a child or young person diagnosed with cancer (April 2019)

Children's Cancer and Leukaemia Group

Being told your grandchild has cancer comes as a terrible shock. Most grandparents worry not only about their grandchild, but also about how their own son/daughter will cope. Many are also concerned about the effects a cancer diagnosis will have on other children within the family, how they can support their family and how, as grandparents, they themselves will cope. Sometimes, it is not as easy for grandparents to access information first hand and this can lead to feelings of isolation. This guide answers some of the many questions grandparents might have during diagnosis and treatment.

Cover image of 'The little white book. Greater London. A directory of resources to help people affected by a brain tumour'

The little white book. Greater London. A directory of resources to help people affected by a brain tumour (May 2016)

Brainstrust

A directory of support services and resources for people with a brain tumour in Greater London.

Cover image of 'Understanding the decision process. Who is proton beam therapy suitable for?'

Understanding the decision process. Who is proton beam therapy suitable for? (January 2019)

Brainstrust

This leaflet explains who proton beam therapy is suitable for and how the decision is made. Includes Care Pathway and Clinical Dependencies Referral and Care Pathway 1 (NHS and overseas) and Pathway 2 (NHS only).

Cover image of 'Taking care of your breasts [English/Arabic]'

Taking care of your breasts [English/Arabic] (August 2014)

Breast Cancer Care

This leaflet uses illustrations to show women how to check their breasts and the changes to look for.

Cover image of 'Taking care of your breasts'

Taking care of your breasts (September 2016)

Breast Cancer Care

Illustrated mini leaflet showing women how to check their breasts.

Cover image of 'The little white book. Glasgow and surrounding areas. A directory of resources to help people affected by a brain tumour'

The little white book. Glasgow and surrounding areas. A directory of resources to help people affected by a brain tumour (May 2016)

Brainstrust

A directory of support services and resources for people with a brain tumour in Glasgow and the surrounding areas.

Cover image of 'Invasive ductal breast cancer'

Invasive ductal breast cancer (November 2018)

Breast Cancer Care

This leaflet discusses the main aspects of invasive ductal breast cancer. It describes what it is, the symptoms, how a diagnosis is made, the treatment options and coping with the diagnosis.

Cover image of 'Financial support - benefits [Romanian]'

Financial support - benefits [Romanian] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits. Includes the English-language version.. 

Cover image of 'A parent's guide: making critical care choices for your child'

A parent's guide: making critical care choices for your child (December 2011)

Together for Short Lives

This leaflet is for parents, carers or legal guardians of a child with a life-limiting or life-threatening condition who are thinking about critical care options. It explains what critical care choices are, describes an end of life care plan and discusses concerns such as: making an informed choice; making the most of time left; feeling under pressure to make a quick decision; talking to the child; and disagreeing with the health care professionals. Includes details of sources of support.

Cover image of 'Breast calcifications'

Breast calcifications (April 2016)

Breast Cancer Care

This leaflet explains about breast calcifications, what they are, how they're found and what happens if they need to be followed up.

Cover image of 'Lobular neoplasia'

Lobular neoplasia (February 2019)

Breast Cancer Care

This leaflet discusses lobular neoplasia, which includes atypical lobular hyperplasia (ALH) and lobular carcinoma in situ (LCIS). It describes the features, diagnosis, and treatment options, and concludes with guidance on how to cope with a diagnosis of lobular neoplasia and sources of support.

Cover image of 'If you are diagnosed with cancer – a quick guide [Portuguese]'

If you are diagnosed with cancer – a quick guide [Portuguese] (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support. Includes the English-language version.

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