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Publications directory

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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 414

Cover image of 'The man manual. Men's health made easy'

The man manual. Men's health made easy (February 2019)

Haynes Publishing for Men's Health Forum

One careful owner? With a little care, the high-performance machine that is the male body will run smoothly for a lifetime with just basic maintenance and minimal need for spare parts. The new fully-revised 2019 edition of this easy-to-read handbook will show you how to fine tune your engine, choose the right fuel and keep your mind on the road ahead. There are also brand new interviews with men who've been on the journey and have a tale to tell. (Publisher)

Cover image of 'Menopausal symptoms and breast cancer'

Menopausal symptoms and breast cancer (March 2018)

Breast Cancer Care

A booklet for women who are experiencing menopausal symptoms after breast cancer treatment. It has advice on treatments (prescription drugs and complementary therapies) and practical measures for coping with hot flushes, vaginal dryness, loss of libido, mood swings, joint pain and risk of osteoporosis. Includes details of further support.

Cover image of 'Osteonecrosis of the jaw (ONJ)'

Osteonecrosis of the jaw (ONJ) (February 2019)

Myeloma UK

This factsheet has information about osteonecrosis of the jaw (ONJ), a rare condition that can occur during long-term treatment of myeloma with bisphosphonates.It describes bisphosphonates, why they are linked to ONJ, the risk factors for ONJ, its symptoms, and how it is treated and managed. Includes self-care tips to reduce the risk of ONJ.

Cover image of 'Looking after someone. Information and support for carers in Wales'

Looking after someone. Information and support for carers in Wales (November 2019)

Carers Wales

Guidance and advice for carers in Wales. This guide sets out what rights carers have and how they can get financial and practical help and support.

Cover image of 'Breast prostheses, bras and clothes after surgery'

Breast prostheses, bras and clothes after surgery (December 2017)

Breast Cancer Care

This booklet provides practical information about breast prostheses (artificial breast forms), bras and clothes for women who have had surgery for breast cancer. Includes photographs, quotes from women, and details of suppliers.

Cover image of 'Vertebral compression fractures in myeloma'

Vertebral compression fractures in myeloma (September 2019)

Myeloma UK

This Infoguide has information about vertebral compression fractures (VCFs), how and why they occur in myeloma, and how they are treated. It also includes information on two surgical procedures used in the treatment of VCFs: percutaneous vertebroplasty and balloon kyphoplasty. 

Cover image of 'Know your breasts. A quick guide to being breast aware [Bengali]'

Know your breasts. A quick guide to being breast aware [Bengali] (January 2020)

Breast Cancer Now

This leaflet uses illustrations to show women how to check their breasts and the changes to look for.

Cover image of 'Caring for someone with an illness they will probably die from. Looking after yourself [Easy read]'

Caring for someone with an illness they will probably die from. Looking after yourself [Easy read] (June 2019)

Marie Curie

Marie Curie has written this Easy Read booklet to help you think about looking after yourself if you are caring for someone with a an illness they will probably die from.

Cover image of 'Caring for someone who has lymphoma'

Caring for someone who has lymphoma (February 2020)

Lymphoma Action

A carer is someone who looks after a person with an illness or disability without getting paid for it. You are a carer if you’re looking after a relative or a friend with lymphoma. This factsheet outlines the kind of help a carer might provide and lists sources of specialist support available to carers. Contents: Am I a carer?; Offering emotional support; Offering practical support; What if someone doesn’t accept help?; Emotional impact of being a carer; Emotional support for you as a care; Practical support for you as a carer.

Cover image of 'After someone dies. A leaflet about death, bereavement and grief for young people'

After someone dies. A leaflet about death, bereavement and grief for young people (2004)

Cruse Bereavement Care

Leaflet with support and advice for young people who have been bereaved. It covers the following issues: What is bereavement?; What might I feel?; How can I cope with it all?; I feel so alone; What can help?; How long will it take?

Cover image of 'Breast cancer and you: coping with diagnosis, treatment and the future'

Breast cancer and you: coping with diagnosis, treatment and the future (August 2018)

Breast Cancer Care

This booklet is for anyone who is dealing with a diagnosis of primary breast cancer and its treatment. It discusses the emotions that may arise, how to tell other people, how to find out more, making decisions about treatment, and the effects of treatment, and looks ahead to the time when treatment is finished.

Cover image of 'My child has a kidney tumour. Information and support for parents'

My child has a kidney tumour. Information and support for parents (August 2016)

Children's Cancer and Leukaemia Group

This booklet provides general information about kidney cancer (renal tumours) that occur in children.

Cover image of 'Side effects of cancer treatment'

Side effects of cancer treatment (March 2017)

Macmillan Cancer Support

An overview of some of the more common side-effects that might happen with cancer treatments: bone marrow and blood, fatigue, mouth problems, nausea and vomiting, diarrhoea and constipation, eating problems, skin, fertility, sex life, hormonal changes. The booklet suggests ways of dealing with them.

Cover image of 'Your operation and recovery'

Your operation and recovery (January 2018)

Breast Cancer Care

This booklet provides information for anyone going into hospital for breast cancer surgery. It describes what may happen before admission, what to take into hospital, what happens before and after surgery, what to expect after surgery (normal changes, possible problems) and leaving hospital and recovering from surgery. Includes details of further support and useful organisations.

Cover image of 'Know your breasts. A quick guide to being breast aware [Urdu]'

Know your breasts. A quick guide to being breast aware [Urdu] (January 2020)

Breast Cancer Now

This leaflet uses illustrations to show women how to check their breasts and the changes to look for.

Cover image of 'Facing the death of your child. Suggestions and help for families, before and afterwards'

Facing the death of your child. Suggestions and help for families, before and afterwards (April 2015)

Children's Cancer and Leukaemia Group

This booklet is for parents of children who can no longer be cured. It provides suggestions and help for families on all aspects of bereavement.

Cover image of 'High-grade non-Hodgkin lymphoma'

High-grade non-Hodgkin lymphoma (June 2017)

Lymphoma Action

This booklet aims to help people understand more about the different types of high-grade non-Hodgkin lymphoma. It describes how they typically affect people, the usual treatments, and what people can expect during and after treatment.

Cover image of 'My child has a brain or spinal tumour. A guide for parents and carers'

My child has a brain or spinal tumour. A guide for parents and carers (January 2017)

Children's Cancer and Leukaemia Group

This booklet has detailed information for parents whose child has a brain or spinal tumour. It covers the typical signs and symptoms, diagnosis, the treatment options, clinical trials, supportive care during treatment, and ongoing needs after therapy. Appendices include the structure and function of the brain, a glossary of terms, support groups and useful sources of information.

Cover image of 'Osteoporosis and breast cancer treatment'

Osteoporosis and breast cancer treatment (November 2018)

Breast Cancer Care

A booklet for people who have been treated for breast cancer and who may be concerned about their risk of osteoporosis. It describes osteoporosis, who is at risk, breast cancer treatment and bone density, how to look after your bones, and what to do if you think you have osteoporosis.

Cover image of 'Looking after someone. Information and support for carers in Northern Ireland'

Looking after someone. Information and support for carers in Northern Ireland (November 2019)

Carers Northern Ireland

Guidance and advice for carers in Northern Ireland. This guide is designed to outline the support available and your rights as a carer. 

Cover image of 'Patient guide. Diagnosis'

Patient guide. Diagnosis (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'Living with an illness you will probably die from. Who can help? [Easy read]'

Living with an illness you will probably die from. Who can help? [Easy read] (June 2019)

Marie Curie

This Easy Read booklet is for people living with an illness that they will probably die from. It tells them about the different people who can help them and care for them.

Cover image of 'Talking with your children about breast cancer'

Talking with your children about breast cancer (June 2018)

Breast Cancer Care

This booklet explains what children of different ages can understand about a serious illness such as cancer and how they may respond to the news that someone in the family has breast cancer. Individual parents describe their experiences and the booklet has advice on what, when and how to tell children about the diagnosis.

Cover image of 'Looking after someone. Information and support for carers in Scotland'

Looking after someone. Information and support for carers in Scotland (November 2019)

Carers Scotland

Guidance and advice for carers in Scotland. This guide sets out what rights carers have and how they can get financial and practical help and support.

Cover image of 'Secondary breast cancer in the brain'

Secondary breast cancer in the brain (June 2017)

Breast Cancer Care

A booklet for people who have been diagnosed with secondary cancer in the brain that has spread from the breast. It describes what secondary breast cancer in the brain is, what the symptoms are, and the investigations. Briefly outlines the treatment options. Lists useful organisations.

Cover image of 'Caring for your child at end of life. A guide for parents and carers'

Caring for your child at end of life. A guide for parents and carers (October 2019)

Together for Short Lives

Practical information to support parents and carers at this difficult time. It aims to answer some of the questions that you might have, and sets out what you should expect from children’s palliative care services with useful links to further sources of information and support. Includes reflections from families on their experience of losing a child. 

Cover image of 'Having a syringe driver'

Having a syringe driver (December 2019)

Marie Curie

This leaflet explains why you might have a syringe driver, how it works and things to look out for. 

Cover image of 'Pain and myeloma'

Pain and myeloma (June 2017)

Myeloma UK

This Infoguide aims to help you understand what pain is, the different types of pain and causes of pain in myeloma patients. It provides information on the different methods of pain treatment available, and gives guidance on non-medical strategies that may help to improve your pain and make living with pain a little easier.

Cover image of 'Know your breasts. A quick guide to being breast aware [Punjabi]'

Know your breasts. A quick guide to being breast aware [Punjabi] (July 2019)

Breast Cancer Care

This leaflet uses illustrations to show women how to check their breasts and the changes to look for. Includes English-language version.

Cover image of 'Clinical diagnosis'

Clinical diagnosis (November 2019)

Orchid – Fighting Male Cancer

This leaflet has information about how testicular cancer is diagnosed and treated, including prosthesis and possible complications, and care after surgery. It also describes staging and the different types of testicular cancer.

Cover image of 'Caring for carers. A guide for carers'

Caring for carers. A guide for carers (June 2019)

Leukaemia Care

This booklet for carers discusses the emotions that they may experience when caring for someone with a blood cancer: anxiety; stress; guilt; fear; loneliness; anger. It also looks at dealing with the practicalities of being a carer, including financial support, self employment and legal rights at work.

Cover image of 'How will a colostomy affect me? Information for patients before stoma surgery'

How will a colostomy affect me? Information for patients before stoma surgery (August 2019)

Colostomy UK

This booklet seeks to answer the many questions and concerns that patietns or a family member or carer might have about a colostomy. 

Cover image of 'Your breast clinic appointment'

Your breast clinic appointment (April 2019)

Breast Cancer Care

This booklet has been written for anyone referred to a breast clinic. It describes what to expect and the tests that may be carried out, such as a mammogram, an ultrasound scan, fine needle aspiration cytology, core biopsy, punch biopsy and vacuum-assisted biopsy.

Cover image of 'Eating problems and cancer'

Eating problems and cancer (August 2017)

Macmillan Cancer Support

During and after cancer treatment, many people can experience eating problems. This may be as a result of treatment or the cancer itself. This booklet highlights some common eating problems and why they may happen and suggest some practical ways to manage them.

Cover image of 'When someone dies. Practical and emotional help at a difficult time [Welsh]'

When someone dies. Practical and emotional help at a difficult time [Welsh] (March 2019)

Marie Curie

This booklet provides an overview of the practical and emotional issues that may come up when someone close to you dies. 

Cover image of 'Patient guide. Survivorship'

Patient guide. Survivorship (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'Being cared for at home [Welsh]'

Being cared for at home [Welsh] (October 2018)

Marie Curie

This booklet is for people living with a terminal illness, and their family and friends. Inside you’ll find information about the care and support that’s available for you at home. 

Cover image of 'Fallopian tube cancer'

Fallopian tube cancer (December 2018)

Ovacome

This factsheet has about fallopian tube cancer. It describes what fallopian tube cancer is, the risk factors, symptoms, diagnostic tests, treatment options (surgery, chemotherapy), and follow-up care.

Cover image of 'Breast cancer during and after pregnancy'

Breast cancer during and after pregnancy (May 2018)

Breast Cancer Care

A booklet for women whose breast cancer has been diagnosed during pregnancy or within a year of giving birth. It describes how breast cancer is diagnosed in pregnancy and the treatment options. It also covers coping with the diagnosis and continuing with the pregnancy.

Cover image of 'Complementary therapy'

Complementary therapy (June 2019)

Lymphoma Action

This factsheet describes complementary therapies and how they may be used in lymphoma. It has brief information about the different types (acupuncture, aromatherapy, art therapy, chiropractic care, massage, mindfulness, music therapy, tai chi and yoga), and also looks at choosing a complementary therapy, finding a practitioner, the availability of complementary therapy and regulation.

Cover image of 'Secondary breast cancer in the bone'

Secondary breast cancer in the bone (March 2018)

Breast Cancer Care

A booklet for people who have been diagnosed with secondary cancer in the bones that has spread from the breast. It describes what secondary breast cancer in the bone is, the symptoms, and the investigations. It also describes the treatment options, but not in great detail. Lists useful organisations.

Cover image of 'Breast awareness and screening'

Breast awareness and screening (May 2017)

Action Cancer

This leaflet describes when and how to check the breasts for changes and what to look for. It briefly explains what a mammogram is. Contains information on local services and describes the work of Action Cancer in Northern Ireland.

Cover image of 'Know your breasts. A quick guide to being breast aware [Arabic]'

Know your breasts. A quick guide to being breast aware [Arabic] (July 2019)

Breast Cancer Care

This leaflet uses illustrations to show women how to check their breasts and the changes to look for. Includes English-language version.

Cover image of 'Caring for someone with an illness they will probably die from. Money and work [Easy read]'

Caring for someone with an illness they will probably die from. Money and work [Easy read] (June 2019)

Marie Curie

Marie Curie has written this Easy Read booklet to help you think about money and work if you are caring for someone with an illness they will probably die from.

Cover image of 'Palbociclib with fulvestrant for treating hormone receptor-positive, HER2-negative, advanced breast cancer. Information for the public'

Palbociclib with fulvestrant for treating hormone receptor-positive, HER2-negative, advanced breast cancer. Information for the public (January 2020)

National Institute for Health and Care Excellence (NICE)

Information about palbociclib (Ibrance), with fulvestrant, which is available through the Cancer Drugs Fund, and which may be used to treat hormone receptor-positive, HER2-negative, advanced breast cancer.

Cover image of 'Thinking about end of life. Finding support and getting your affairs in order'

Thinking about end of life. Finding support and getting your affairs in order (May 2018)

Age UK

Thinking about the end of life can be difficult, but being well informed can help people consider all their options at a time that’s right for them. This guide will make suggestions about the options and services available to help people make the best choices. It will explain how to make wishes and treatment preferences known, and help peole consider where they would like to be looked after towards the end of life.

Cover image of 'If you are diagnosed with cancer – a quick guide'

If you are diagnosed with cancer – a quick guide (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support.  

Cover image of 'Secondary breast cancer information pack'

Secondary breast cancer information pack (April 2018)

Breast Cancer Care

This pack is for anyone with secondary breast cancer. It may also be useful for family, friends, or carers. It contains information that may be useful from diagnosis throughout treatment and care. The pack has four main parts. 1. The first part of the pack explains what secondary breast cancer is, looks at treatments and side effects, and has information about monitoring and coping with the physical effects of your condition. 2. The second part is called Your needs and concerns with secondary breast cancer. This looks at how to make sure your needs are met, from emotional and practical needs to concerns about relationships, work and finances, and health and wellbeing. 3. Personal organiser to help you record symptoms or side effects from treatment, which you can take with you to hospital appointments. You can also record appointment details and names and contact details of people involved in your care. 4. A small booklet called Planning ahead: choices and decisions about the end of life is for if and when you want to start thinking about these things. 

Cover image of 'Caring for someone with an illness they will probably die from. Who can help? [Easy read]'

Caring for someone with an illness they will probably die from. Who can help? [Easy read] (June 2019)

Marie Curie

Marie Curie has written this Easy Read booklet to tell you about the different people who can help if you are caring for someone with an illness they will probably die from.

Cover image of 'Getting care and planning for the future. Information for LGBTQ+ people affected by terminal illness, and their family and friends'

Getting care and planning for the future. Information for LGBTQ+ people affected by terminal illness, and their family and friends (November 2019)

Marie Curie

Living with a terminal illness and getting the best care and support can be challenging for everyone. We all have individual needs and will have different experiences. Being LGBTQ+ may mean that you have specific concerns or questions about getting the care and support you need. In this booklet, we explain the care and support that’s available. We also answer questions you might have, such as how you can plan ahead and make decisions for the future.

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