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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 385

Cover image of 'The cancer guide [Audio CD]'

The cancer guide [Audio CD] (August 2018)

Macmillan Cancer Support

Audio CD of the booklet, which is designed to inform people affected by cancer about cancer treatment and care. It explains the different stages that people go through when they have cancer, the roles of various cancer care professionals, and how to get additional support and information.

Cover image of 'Osteoporosis and breast cancer treatment'

Osteoporosis and breast cancer treatment (November 2018)

Breast Cancer Care

A booklet for people who have been treated for breast cancer and who may be concerned about their risk of osteoporosis. It describes osteoporosis, who is at risk, breast cancer treatment and bone density, how to look after your bones, and what to do if you think you have osteoporosis.

Cover image of 'When your partner has breast cancer'

When your partner has breast cancer (June 2018)

Breast Cancer Care

A booklet for anyone in a relationship with someone who has been diagnosed with breast cancer.

Cover image of 'Who's who in your clinical team?'

Who's who in your clinical team? (July 2018)

Brainstrust

A who's who of healthcare professionals involved in the care of someone with a brain tumour: GP; consultant neurosurgeon; consultant neurologist; consultant radiologist; neuro-oncologist; clinical psychologist; neuro-ophthalmologist; community neurological rehabilitation nurse; neuro-oncology clinical nurse specialist; epilepsy nurse; palliative care nurse; specialist allied health professional; disability co-ordinator (higher education). It describes the role of each professional and how they can help.

Cover image of 'Being cared for at home'

Being cared for at home (July 2019)

Marie Curie

This booklet is for people living with a terminal illness, and their family and friends. Inside you’ll find information about the care and support that’s available for you at home. 

Cover image of 'Looking after someone. Information and support for carers in England'

Looking after someone. Information and support for carers in England (November 2019)

Carers UK

This guide is designed to outline your rights as a carer and give an overview of the support available.

Cover image of 'Caring for someone with pancreatic cancer. Information for families and carers'

Caring for someone with pancreatic cancer. Information for families and carers (August 2019)

Pancreatic Cancer UK

This booklet is for family members of someone with pancreatic cancer. It includes information on managing symptoms and side effects, and accessing the right care and support.

Cover image of 'My child has a kidney tumour. Information and support for parents'

My child has a kidney tumour. Information and support for parents (August 2016)

Children's Cancer and Leukaemia Group

This booklet provides general information about kidney cancer (renal tumours) that occur in children.

Cover image of 'Breast cancer and you: coping with diagnosis, treatment and the future'

Breast cancer and you: coping with diagnosis, treatment and the future (August 2018)

Breast Cancer Care

This booklet is for anyone who is dealing with a diagnosis of primary breast cancer and its treatment. It discusses the emotions that may arise, how to tell other people, how to find out more, making decisions about treatment, and the effects of treatment, and looks ahead to the time when treatment is finished.

Cover image of 'Managing lung cancer symptoms'

Managing lung cancer symptoms (August 2018)

Roy Castle Lung Cancer Foundation

If you or someone you care for has just been diagnosed with lung cancer you may have lots of questions. This booklet was produced with input from people affected by lung cancer and lung cancer experts, and is designed to help answer those questions.It describes the possible symptoms that may experienced when living with lung cancer and how to cope with them.

Cover image of 'Planning ahead. Thinking about your care and wishes ahead of time'

Planning ahead. Thinking about your care and wishes ahead of time (July 2019)

Marie Curie

You may not feel like planning when you’re ill, but thinking about the future now and making your wishes known will help you feel more in control. It can also help those close to you handle your affairs if you aren’t able to. This booklet has information about some of the things you might want to think about, like deciding where and how you want to be cared for, or making a Will. 

Cover image of 'Secondary breast cancer in the liver'

Secondary breast cancer in the liver (March 2017)

Breast Cancer Care

This booklet is for anyone diagnosed with secondary cancer in the liver that has spread from the breast. It describes what secondary breast cancer in the liver is, the possible symptoms and how they can be managed, the investigations that might be needed, and the treatment options.

Cover image of 'Chemotherapy for lung cancer'

Chemotherapy for lung cancer (February 2019)

Roy Castle Lung Cancer Foundation

This booklet was produced in partnership with lung cancer experts and people affected by lung cancer to help you make positive, informed choices about your care and treatment.

Cover image of 'Lobular neoplasia'

Lobular neoplasia (February 2019)

Breast Cancer Care

This leaflet discusses lobular neoplasia, which includes atypical lobular hyperplasia (ALH) and lobular carcinoma in situ (LCIS). It describes the features, diagnosis, and treatment options, and concludes with guidance on how to cope with a diagnosis of lobular neoplasia and sources of support.

Cover image of 'Patient guide. Diagnosis'

Patient guide. Diagnosis (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'Know your breasts. A guide to breast awareness and screening'

Know your breasts. A guide to breast awareness and screening (July 2019)

Breast Cancer Care

This booklet aims to help women understand more about their breasts, how they develop and age, and the normal changes that can occur before a period, during pregnancy, when breastfeeding, and before, during and after the menopause. It uses illustrations to show women how to check their breasts and advises what to do if a change is noticed. It also describes routine breast screening, what happens at the clinic, and the limitations of screening.

Cover image of 'Facing the death of your child. Suggestions and help for families, before and afterwards'

Facing the death of your child. Suggestions and help for families, before and afterwards (April 2015)

Children's Cancer and Leukaemia Group

This booklet is for parents of children who can no longer be cured. It provides suggestions and help for families on all aspects of bereavement.

Cover image of 'Breast cancer in younger women'

Breast cancer in younger women (July 2017)

Breast Cancer Care

This booklet explores the feelings and experiences of younger women diagnosed with breast cancer, covering topics such as treatment, physical effects, relationships, finding support, and practical issues. Individual women share their thoughts and experiences.

Cover image of 'I have finished my treatment. What happens next'

I have finished my treatment. What happens next (November 2019)

Children's Cancer and Leukaemia Group

This booklet for children and teenagers aged 10-16 aims to help answer questions and concerns that arise when treatment for cancer finishes. It covers feelings and emotions, coping with worry, coping with family and friends, school and college, healthy living, and practical issues such as what happens at follow-up, medicines, and what to look out for.

Cover image of 'Know your breasts. A quick guide to being breast aware [Gujarati]'

Know your breasts. A quick guide to being breast aware [Gujarati] (July 2019)

Breast Cancer Care

This leaflet uses illustrations to show women how to check their breasts and the changes to look for. Includes English-language version.

Cover image of 'Breast prostheses, bras and clothes after surgery'

Breast prostheses, bras and clothes after surgery (December 2017)

Breast Cancer Care

This booklet provides practical information about breast prostheses (artificial breast forms), bras and clothes for women who have had surgery for breast cancer. Includes photographs, quotes from women, and details of suppliers.

Cover image of 'Men's health guide'

Men's health guide (2019)

World Cancer Research Fund

Diet and lifestyle recommendations to reduce cancer risk, including weight, diet, alcohol, and physical activity. Includes brief information on the most common symptoms of prostate, bowel, lung, mouth and throat, oesophageal and testicular cancer and information on screening tests where applicable.

Cover image of 'Invasive ductal breast cancer'

Invasive ductal breast cancer (November 2018)

Breast Cancer Care

This leaflet discusses the main aspects of invasive ductal breast cancer. It describes what it is, the symptoms, how a diagnosis is made, the treatment options and coping with the diagnosis.

Cover image of 'Advice for carers. A practical guide'

Advice for carers. A practical guide (May 2019)

Age UK

This guide looks at the practical and emotional sides of caring. It has information about areas such as benefits and flexible working hours, as well as how a caring role could affect wellbeing and social life. 

Cover image of 'If you are diagnosed with cancer – a quick guide'

If you are diagnosed with cancer – a quick guide (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support.  

Cover image of 'Primary breast cancer information pack'

Primary breast cancer information pack (December 2018)

Breast Cancer Care

This pack is for women who have been told they have primary (early) breast cancer. It includes information about breast cancer, its diagnosis and treatments.

Cover image of 'Living with lymphoedema after breast cancer'

Living with lymphoedema after breast cancer (April 2019)

Breast Cancer Care

This booklet explains what lymphoedema is, and describes the physical symptoms and the treatment options.

Cover image of 'Living with an illness that you will probably die from. Who can help? [Easy read]'

Living with an illness that you will probably die from. Who can help? [Easy read] (June 2019)

Marie Curie

This Easy Read booklet is for people living with an illness that they will probably die from. It tells them about the different people who can help them and care for them.

Cover image of 'My child has a brain or spinal tumour. A guide for parents and carers'

My child has a brain or spinal tumour. A guide for parents and carers (January 2017)

Children's Cancer and Leukaemia Group

This booklet has detailed information for parents whose child has a brain or spinal tumour. It covers the typical signs and symptoms, diagnosis, the treatment options, clinical trials, supportive care during treatment, and ongoing needs after therapy. Appendices include the structure and function of the brain, a glossary of terms, support groups and useful sources of information.

Cover image of 'What causes breast cancer? And how can I lower my chances of developing it'

What causes breast cancer? And how can I lower my chances of developing it (November 2018)

Breast Cancer Now

This booklet looks at the causes of breast cancer and lifestyle choices that may help reduce the risk of developing it. 

Cover image of 'Explaining the NICE guidelines for diagnosing and managing pancreatic cancer'

Explaining the NICE guidelines for diagnosing and managing pancreatic cancer (August 2018)

Pancreatic Cancer UK

The National Institute for Health and Care Excellence (NICE) has produced guidelines for health professionals diagnosing and caring for people with pancreatic cancer. These guidelines are for the most common type of pancreatic cancer, pancreatic ductal adenocarcinoma. Health professionals don’t have to follow these guidelines, but they must take them into account when making decisions about care. They should also take your needs and wishes into account.

Cover image of 'Low-grade non-Hodgkin lymphoma'

Low-grade non-Hodgkin lymphoma (September 2017)

Lymphoma Action

This booklet aims to help people understand more about the different types of low-grade non-Hodgkin lymphoma. It describes how they typically affect people, the usual treatments, and what to expect during and after treatment.

Cover image of 'Your hospital stay. What to expect when going into hospital, while you’re there and when you’re discharged'

Your hospital stay. What to expect when going into hospital, while you’re there and when you’re discharged (June 2019)

Age UK

This guide aims to put older people at ease if they are going to be admitted to hospital. It will help them: prepare for going into hospital; understand their rights in hospital; understand the discharge process; and be more informed about care afterwards. It may also be useful for relatives and friends, as it can be a difficult time for them too. 

Cover image of 'Tubular breast cancer'

Tubular breast cancer (January 2018)

Breast Cancer Care

This booklet describes tubular breast cancer, diagnosis, treatment options and coping with the condition.

Cover image of 'When your brother or sister has cancer. An information guide for teenagers and young adults whose sibling is diagnosed with cancer'

When your brother or sister has cancer. An information guide for teenagers and young adults whose sibling is diagnosed with cancer (November 2019)

Children's Cancer and Leukaemia Group

Being told that your brother or sister has cancer can be overwhelming and you may be full of questions. It is a difficult time for everyone in your family as life is turned upside down almost overnight. You will likely feel many different emotions as you try and come to terms with what your sibling’s diagnosis means for you and your family. You may feel worried or upset at this sudden change that you didn’t want or ask for, and you may desperately want everything to go back to normal as it was before their diagnosis. Life can seem very unfair. These feelings are completely normal and you are not alone. This guide covers how your brother or sister’s diagnosis might affect you, your feelings and emotions, and how it is important to take care of yourself during this difficult time. It explains more about cancer, and what you can expect over the coming weeks and months.

Cover image of 'Secondary breast cancer in the bone'

Secondary breast cancer in the bone (March 2018)

Breast Cancer Care

A booklet for people who have been diagnosed with secondary cancer in the bones that has spread from the breast. It describes what secondary breast cancer in the bone is, the symptoms, and the investigations. It also describes the treatment options, but not in great detail. Lists useful organisations.

Cover image of 'Moving forward: for people living with and beyond a diagnosis of primary breast cancer'

Moving forward: for people living with and beyond a diagnosis of primary breast cancer (November 2018)

Breast Cancer Care

This book is designed to help you move forward after breast cancer. From signs and symptoms of recurrence to dealing with fatigue and financial issues, it offers practical solutions and sources of further support. Whether you have just reached the end of your treatment or your diagnosis of breast cancer was several years ago, this book is for you.

Cover image of 'Personal organiser'

Personal organiser (April 2018)

Breast Cancer Care

This organiser is for anyone with secondary (metastatic) breast cancer to keep a record of symptoms, side effects, and details of appointments. It is part of the Secondary breast cancer information pack.

Cover image of 'How to check your lymph nodes'

How to check your lymph nodes (November 2015)

Wessex Cancer Trust

This leaflet has been written for people who wish to check their lymph nodes between clinic appointments. It describes the lymphatic system and uses illustrations to explain how to check lymph nodes in the head and neck, in the armpit, and in the groin.

Cover image of 'Targeted therapies for lung cancer'

Targeted therapies for lung cancer (February 2019)

Roy Castle Lung Cancer Foundation

If you or someone you care for has lung cancer, and targeted therapy is a possible treatment, then it’s almost certain that you will have a lot of questions. We have produced this booklet in partnership with lung cancer experts and people affected by lung cancer to help you make positive, informed choices about your care and treatment.

Cover image of 'Complementary therapy'

Complementary therapy (June 2019)

Lymphoma Action

This factsheet describes complementary therapies and how they may be used in lymphoma. It has brief information about the different types (acupuncture, aromatherapy, art therapy, chiropractic care, massage, mindfulness, music therapy, tai chi and yoga), and also looks at choosing a complementary therapy, finding a practitioner, the availability of complementary therapy and regulation.

Cover image of 'Treating primary breast cancer'

Treating primary breast cancer (December 2018)

Breast Cancer Care

This booklet describes the range of treatments that may be offered to women with newly diagnosed breast cancer.

Cover image of 'Handling animals and pets. Information for parents and carers of children and young people undergoing treatment for cancer'

Handling animals and pets. Information for parents and carers of children and young people undergoing treatment for cancer (September 2017)

Children's Cancer and Leukaemia Group

Guidance on keeping pets when a child has cancer. Covers issues such as general hygiene, pets to avoid, feeding, bedding and litter trays, pet vaccines and veterinary care, and first aid if a child is bitten by a pet.

Cover image of 'Patient guide. Survivorship'

Patient guide. Survivorship (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'Patient guide. Follow-up'

Patient guide. Follow-up (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'Pain and myeloma'

Pain and myeloma (June 2017)

Myeloma UK

This Infoguide aims to help you understand what pain is, the different types of pain and causes of pain in myeloma patients. It provides information on the different methods of pain treatment available, and gives guidance on non-medical strategies that may help to improve your pain and make living with pain a little easier.

Cover image of 'Invasive lobular breast cancer'

Invasive lobular breast cancer (December 2017)

Breast Cancer Care

This leaflet discusses the main aspects of invasive lobular breast cancer. It describes what it is, the symptoms, how a diagnosis is made, the treatment options and coping with the diagnosis.

Cover image of 'Your breast clinic appointment'

Your breast clinic appointment (April 2019)

Breast Cancer Care

This booklet has been written for anyone referred to a breast clinic. It describes what to expect and the tests that may be carried out, such as a mammogram, an ultrasound scan, fine needle aspiration cytology, core biopsy, punch biopsy and vacuum-assisted biopsy.

Cover image of 'Caring for someone with an illness they will probably die from. Who can help? [Easy read]'

Caring for someone with an illness they will probably die from. Who can help? [Easy read] (June 2019)

Marie Curie

Marie Curie has written this Easy Read booklet to tell you about the different people who can help if you are caring for someone with an illness they will probably die from.

Cover image of 'Your operation and recovery'

Your operation and recovery (January 2018)

Breast Cancer Care

This booklet provides information for anyone going into hospital for breast cancer surgery. It describes what may happen before admission, what to take into hospital, what happens before and after surgery, what to expect after surgery (normal changes, possible problems) and leaving hospital and recovering from surgery. Includes details of further support and useful organisations.

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