The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Please enter a word or phrase into the search box to find relevant materials. If you want to search for a phrase, please use quotes, eg “Macmillan Cancer Support”, “Breast cancer”. If you have any questions about the web directory please contact Sue Hawkins email@example.com
If you have cancer, eating well is one of the most important contributions you can make towards your own treatment. This book, by a leading cancer dietician, helps put the flavour back into food at a time when eating may seem like a chore, with meals that will nourish and comfort you. There are no fad diets or special foods - just delicious tips to help strengthen and boost you. It suggests practical ways to maintain your weight and nutrient intake while battling treatment side effects such as nausea, fatigue, lack of appetite, taste changes, and dry or sore mouth. Other topics include: surgery - preparation and recovery; other methods of eating, including nutritional supplement drinks and enteral feeding; food safety and avoiding infection; questions about red meat, dairy products, 'superfoods' and supplements; healthy eating and cancer prevention; the latest research, including polyphenols. (Publisher)
John Blake Publishing
Chemo Cookery Club is packed with delicious recipes to help make everyday food a positive part of life for cancer sufferers and their carers. With tempting treats and healthy food ideas, the emphasis is on the nutritional values that can make a difference, but most importantly this is a book that lifts the spirits - especially when food and diet can become a bit tricky. If you or someone you love are going through treatment, this book will help you create delicious meals and snacks that tantalise the tastebuds no matter how experienced - or otherwise - you are in the kitchen. Penny Ericson, experienced cook and carer, celebrates everyday meals and how they contribute to wellness, both physically and emotionally. If you're struggling with loss of appetite, wondering how to get more iron into your diet, wanting to relieve 'metal mouth' or dismayed that the foods you used to love now seem boring and tasteless as a result of treatment, Penny can help. Nutritional information and recipe analysis has been contributed by leading cancer research dietician Barbara Parry MSc PD, and the book has been enthusiastically endorsed by major cancer charities. (Publisher)
Hearing the words “You have cancer” can be devastating - some cancer patients even say that the emotional pain and loss of certainty from hearing this are worse than the pains from the cancer, surgeries, radiation, chemotherapy, and other treatments. This is the intimate journey of a melanoma and breast cancer survivor who honestly, and sometimes even humorously, shares her own story and offers supportive emotional tools to help people diagnosed with cancer, and their loved ones and caregivers, work through the emotional pain and upheaval of a cancer diagnosis. You will be supported in knowing what it feels like to hear you have cancer and be given a variety of helpful ideas to start feeling better whether you are newly diagnosed, in treatment, or months or years after treatment. If you are a caregiver, friend, or family member who wants to help, you will get a better understanding of the cancer experience as well as tools to help the person you care about. (Publisher)
Cancer Focus Northern Ireland
This has tips to help cancer patients with their recovery and to help them stay well in the future. There are sections on fighting fatigue, simple comfort foods, calorie boosters and sweet things to tempt your appetite when you’re feeling low. There’s also a special section on breathing and relaxation techniques to help calm the mind and de-stress the body.
Jones and Bartlett Publishers
Johns Hopkins Patient Guide to Colon and Rectal Cancer is a concise patient guide on treating and coping with colorectal cancer. Learning that you or someone you love has cancer is devastating, and feeling lost and powerless is a common immediate response. The Johns Hopkins Patients’ Guides are designed to alleviate your anxiety, empower you with information, and enable you to fully understand your treatment options. Each book in this series is dedicated to a specific type of cancer. The information is there to help lighten your burden and to assist you in becoming an active participant in your care. Cancer rarely allows us to take a diversion from life, and offering guidance on how to continue to live life while working hard on getting well is part of the outcome we hope to help you achieve. (Publisher)
Cancer Focus Northern Ireland
This illustrated book for young children aims to help them understand and prepare for the death of a parent or significant adult.
Colostomy Association in association with Coloplast and Dansac
Ebury Press (Penguin Random House)
For Kelly Corrigan, family was everything. At thirty-six, she had a marriage that worked, two funny, active kids, and a weekly newspaper column. Yet even as a thriving adult, Kelly still saw herself as the daughter of garrulous charmer George Corrigan. She was living deep within what she calls the Middle Place - 'that sliver of time when parenthood and childhood overlap' - comfortably wedged between her adult duties and her parents' care. But Kelly is abruptly shoved into coming-of-age when she finds a lump in her breast - and gets the diagnosis no one wants to hear. When George, too, learns that he has late-stage cancer, it is Kelly's turn to take care of the man who had always taken care of her - and to show us a woman who finally takes the leap and grows up. (Publisher)
The must-have book for every mum battling breast cancer whilst trying to raise a family. • How do you tell your children you have breast cancer? • How do you allay their fears when you’re terrified yourself? • How will you take care of them when you’re recovering from a mastectomy or undergoing treatment? Parenting can be a challenge under normal circumstances, throw in a diagnosis of breast cancer and it can become overwhelming. How to Cope with Breast Cancer When You Have Children: Parenting for Breast Cancer Mums looks at the situation from a mother’s perspective and shows you how to successfully navigate yourself and your family through the most challenging time of your life. • Discover practical techniques that enable you to parent effectively through surgery, radiotherapy and chemotherapy. • Follow simple step-by-step guides on how to cope with every aspect of parenting through breast cancer. • Find answers to questions such as how to tell your kids your kids you have cancer or how to explain your hair will fall out. • Learn how to utilize your natural maternal instincts as a weapon to fight breast cancer. How to Cope with Breast Cancer When You Have Children: Parenting for Breast Cancer Mums provides the inspiration, coping mechanisms and solutions you need to help you and those you love most – your children. (Publisher)
Macmillan Cancer Support
Audio CD of the booklet, which describes the lymphatic system, what causes lymphoedema, the effects of lymphoedema (including feelings), how to get treatment, and the treatment options (skin care, compression garments, limb positioning and movement, exercises, and massage). Includes details of useful organisations and suppliers of compression garments, as well as other resources such as books and websites.
This compassionate guide presents an array of new perspectives on the emotional effects of breast cancer and includes many personal testimonies from women who have been diagnosed with this disease. Written by a breast cancer survivor and practising psychologist, it shares practical ideas to help support sufferers at all stages, be it at diagnosis, during treatment or during life after the initial treatments are over. The concise, easy-to-read format includes exercises to develop an acceptance of thoughts and feelings, whilst the individual accounts validate the multitude of emotions felt by sufferers. It is a must for all breast cancer patients and sufferers, their families and friends. Its real-life approach, using first hand accounts, is also highly recommended for all health and social care professionals wanting a fresh approach to managing the emotional impacts of breast cancer. (Publisher)
Urban Traffic Publishing
If someone you love and care about has just been diagnosed with breast cancer and you're feeling a little helpless, scared and not sure what to do next, then this is the book for you. 'Your Guide Through Her Breast Cancer Journey' will provide you with what you need to know right now. Everything from diagnosis and treatment to coming out the other end and most importantly, this book explains clearly how you can make a difference. Written by a recent breast cancer survivor, this book will give you first hand information on how you can support her with easy-to-understand explanations, tips and advice so you can be there every step of the way for the person that you love. (Publisher)
Cumbria Partnership NHS Foundation Trust
Words for Wellbeing' is an edited collection of prose and poems from patients, health care staff, carers and the general public. The authors included in the book all have their own story to tell about how writing has helped improve their health and wellbeing. The contributors include people from across Cumbria and from ages 7 to 94 years old, and include emotional pieces about a variety of subjects, and includes a foreword is written by award-winning writer Jim Eldridge. There are 14 chapters, including one written by leading author Dr Gillie Bolton. (Publisher)
Millions of breast cancer survivors have two things in common: a renewed gratitude for their good health and a recharged commitment to taking care of their bodies. The Whole-Food Guide for Breast Cancer Survivors is an integrative, whole foods guide to rebuilding health after surviving breast cancer and reducing the chance of breast cancer reoccurrence. Although cancer does have a significant genetic component, lifestyle factors such as nutrition also play a role in determining the likelihood that cancer will reappear. This program helps readers get the nutrition they need in order to keep breast cancer at bay, with specific guidance for managing hormone levels with food. The guide also explains how nutritional deficiencies, environmental factors, and antioxidants affect cancer's ability to attack the body. Using holistic health and nutrition leader Edward Bauman's Eating for Health model, readers learn to eat for pleasure, eat for energy, eat for recovery, and eat for health in order to starve cancer and enjoy stronger, healthier bodies. (Publisher)
Books For Caring Kids
Jonny is a little superhero with a BIG problem. His Mum is sick. How can he help? Join Super Jonny and Bear, as they go to the hospital to investigate. LEARN who the staff working in the hospital are and what they do. DISCOVER Jonny's secret weapon. Super Jonny is recommended by teachers for teachers. The question page links to the English and New Zealand national curriculums. These questions teach the children how to help the sick. Some people need regular hospital care to manage their disease. These people have their own page entitled: Preparing for a hospital admission: 5 tips for chronically ill moms. This ensures that any mother who is going into hospital, has some supplies when her children visit. This list of simple suggestions could also be filled by any adult wanting to help a Mom who is suddenly sick. With its big bold professionally drawn illustrations, Super Jonny is a valuable resource for your family, school or medical centre. (Publisher).
Self-published using CreateSpace Independent Publishing Platform
I was diagnosed with Triple Negative Breast Cancer on the 15th June 2007. I remember that day so vividly. It will be ingrained in my memory forever as it is the day I felt my perfect little world crumble. I remember hearing those terrifying words, “I’m sorry it’s cancer” and falling to pieces. I hollered as my mind froze and my body went numb. I was frightened, felt incredibly vulnerable and my greatest fear stared me in the face. I could potentially die, and leave behind my two beautiful daughters and a husband who is also my best friend, and the person I love to have at my side. I’m pleased to report those initial feelings softened as time passed. Now it is important to share my story to give hope, encouragement and inspiration to others faced with a life-threatening illness. I believe that sharing stories helps to inspire those who are touched by cancer. You seek hope reassurance that treatments can be very successful today. Breast Cancer isn’t the only illness I have overcome. I had a near death experience in Africa as a child, I was an accident-prone youngster and the sickly one in my family. I was diagnosed with Hodgkin Disease, a cancer of the lymphatic system at 16, yes, I’m very greedy one cancer wasn’t enough. Fingers crossed cancer will leave me alone now. I will not give in! However, it is quite possible that radiation treatment for that cancer caused my breast cancer 20 years later. Yet from all the mishaps I experienced, I walk away truly blessed that people who entered my life as strangers ended up making the greatest impact on my life. What makes Worms On Parachutes special is that I was inspired to write after receiving outstanding medical care. Therefore, it deals with relationships from medical professionals to family and friends so openly and honestly. It is an insightful read that I believe will be helpful and supportive to anyone experiencing cancer today in whatever role you play. (Publisher)
Ulster Cancer Foundation
This illustrated book for young children aims to help them understand and prepare for the death of a parent or significant adult.
In 2004 my mother asked us to donate to the Macmillan team in lieu of a present. It is ironic that she then developed and survived endometrial cancer in 2006 and was diagnosed with and died from ovarian cancer in 2012, especially as the Macmillan team supported us to keep her in the home she loved right to the end. The story tells of the effects of both cancers on Mum and the rest of the family. Naturally there were sad times and some excruciatingly painful and stressful times but there were also some funny and touching moments. Audrey, Mum's sister was coincidentally diagnosed with oesophageal cancer and at one point they were in different wards at opposite ends of the same hospital. The day we were told of Mum’s diagnosis, we wheeled her down to sit with Audrey and they held hands and hugged, one in a wheelchair and the other hooked up to all kinds of machinery. Audrey died thirteen days after mum. There is no doubt that my mother loved her family - she had nearly ninety children, grandchildren, great grandchildren and great, great grandchildren, both biological and adopted; whilst the story is written from my perspective, I wasn't the only one to suffer and it could easily have been written by thirty or forty other people. When I found out mum had a terminal illness I made up my mind to take her back to her home, which is the only place she wanted to be; some people thought I was mad but we had a dedicated team of family and were lucky to be further supported by her GP, the DN’s and Macmillan team. I organised weekly rotas to ensure 24 hour care: The book tells how we coped with this and of my panic the day I found out the Macmillan support team didn’t have any sitters for the following week. It also portrays the “normal” things we did along as we rode our six year emotional roller coaster, such as going on holidays and dealing with other family crises. The last twelve months before her death were intolerable. The last six months a nightmare, and the ten weeks between diagnosis and her passing were hell on earth but we had some laughs, we cried and we sang songs. A few weeks before she died, as my daughter entered the room Mum was playing a game with my younger grandchildren, throwing the tiny purple chick to each of them in turn and giggling along with them, its tail flashing as though it too was enjoying the fun. I initially wrote the book to help me deal with my own grief, stress and feelings of guilt that I was glad she had finally let g
British Lung Foundation
This information is for people with a long-term lung condition who are coming to the end of their life. It is also for those who are close to them, including their carers, family and friends.
Books Beyond Words
John has a terminal illness. This book tells his story, dealing with both physical deterioration and the emotional aspects of dying in an honest and moving way. John is shown getting weaker and needing more help. He looks back at his life and makes choices about how to spend his time. The pictures highlight the importance of going on special outings, of remembering good times, and of saying proper goodbyes to family and friends. The final images show John dying at home. Guidelines are provided (as text at the back) for carers and supporters, health and other professionals who provide support to people with learning disabilities who are terminally ill. Lists of other helpful written resources and relevant organisations are also given. Although this story is fictional, it is based on the real life experiences of ten people with learning disabilities who had a terminal illness. They participated in the Veronica Project, a research project conducted by St George’s Hospital, London and funded by Cancer Research UK. The book draws on what was important for the participants when they were ill and dying and demonstrates best practice as identified by them. (Publisher)
Square One Press
Congratulations! You survived breast cancer. This should be a time to celebrate - so why do you feel so empty and alone? Medical professionals prepare you for surgery and other treatments, but do not always address your emotional and sexual health. In 'Intimacy After Breast Cancer', breast cancer survivor Gina Maisano honestly discusses the sensitive issues of self-esteem, body image, and sexuality to help you become the total woman you still are. Part One begins by examining the emotions experienced by breast cancer survivors, including anxiety and fear of recurrence. It then offers guidance on regaining the confidence to start living again. The mental and physical effects of post-surgical medications are discussed, along with solutions for maintaining optimum health. Part Two focuses on rediscovering your sexuality. In a compassionate manner, it addresses the issues that most often challenge both single and married women and presents suggestions for overcoming them. Love and intimacy do not have to end with a breast cancer diagnosis. In 'Intimacy After Breast Cancer', Gina Maisano will help you rediscover the joys of being a woman. (Publisher)
Polperro Heritage Press
Actress Audrey Jenkinson was starring in a BBC television series when she put her career on hold and returned home to Edinburgh to care for her mother suffering from a stroke and her father with cancer. In Past Caring, she describes how she tried to cope with her parents' deaths and recalls the void she felt at the time. `I wondered how others coped in similar situations. When I discovered there were no books on the subject I decided to write one.' Audrey travelled throughout the UK, interviewing former carers and asking them how they rebuilt their lives. 'The stories I heard were both fascinating and uplifting, and I knew other people would find them interesting and helpful. Past Caring also includes a twelve-step recovery guide for 'past carers'. (Publisher)
On the basis of comments left on the author's blog, this book should appeal to cancer patients, survivors and those who care for people with cancer - healthcare professionals as well as friends and family - and anyone else wanting an insight into this wretched disease. Cancer sufferers not only have to deal with big issues - like confronting their own mortality - they have to cope with the everyday as well - the effect on relationships, changes in diet, whether or not to replace the dishwasher - and in the case of bowel cancer, perhaps a colostomy or ileostomy - while all the time trying to remain positive. Based on the author's online diaries, this book will enable the reader to get inside the mind of a cancer patient and discover what it feels like to have to cope with this disease. (Publisher)
Oxford University Press
Pink ribbon paraphernalia saturate shopping malls, billboards, magazines, television, and other venues, all in the name of breast cancer awareness. In this compelling and provocative work, Gayle Sulik shows that though this 'pink ribbon culture' has brought breast cancer advocacy much attention, it has not had the desired effect of improving women's health. It may, in fact, have done the opposite. Based on eight years of research, analysis of advertisements and breast cancer awareness campaigns, and hundreds of interviews with those affected by the disease, Pink Ribbon Blues highlights the hidden costs of the pink ribbon as an industry, one in which breast cancer has become merely a brand name with a pink logo. Indeed, while survivors and supporters walk, run, and purchase ribbons for a cure, cancer rates rise, the cancer industry thrives, corporations claim responsible citizenship while profiting from the disease, and breast cancer is stigmatized anew for those who reject the pink ribbon model. But Sulik also outlines alternative organizations that make a real difference, highlights what they do differently, and presents a new agenda for the future. (Publisher)
Michael Baum is recognised as a world authority on breast cancer and surgery. In 2007 he was awarded the St.Gallen prize, the most prestigious award worldwide for breast cancer research. This book is the story of his life, his work and his mission. Part autobiography, part anti-establishment polemic, part scientific empirical dialogue, 'Breast Beating' recounts the story of Michael's extraordinarily gifted family, his attachment and adherence to the Jewish faith, and on a wider scale his profound love for human kind. He propounds his appreciation for the arts, music and the finer things of life. Michael is a man of science and medicine. Having qualified as a surgeon and reached the top of his profession, his career path also led him into battle against breast cancer wherein with colleagues he developed a number of clinical trials that changed the way breast cancer patients were treated. His research, operations and knowledge have contributed to the improvement in care for cancer sufferers worldwide, and have saved many lives. Michael's steadfastly scientific way of thinking with his knowledge firmly grounded in fact and not hypothesis has recently led him into confrontation with Prince Charles and other proponents of homeopathy and alternative medicine. In this book he explains just how and why he holds such strong opinions and beliefs both from a professional and personal point of view. (Publisher)
'How to be sick: A Buddhist-inspired guide for the chronically ill' and their caregiver is about living skilfully with the challenges of any chronic illness or condition. I wrote it for sufferers and for their caregivers (the latter includes people involved in hospice, chaplaincy, and elder care; for those interested in chronic illnesses and conditions (health professionals, family and friends); and for people interested in Buddhism (illness can function as a metaphor for suffering which, along with the cessation of suffering, is at the heart of the Buddha’s teaching). Chronic illnesses or conditions - such as arthritis, heart disease, and diabetes (three among dozens) - while not immediately life-threatening, are life-disrupting and stressful. The book is unique in that each chapter contains easy-to-learn tools and practices to help the chronically ill and their caregivers live skilfully, maintain equanimity, and even find joy despite the profound changes in their lives. A recurring theme in the book is that, although one’s body may be sick, one’s mind can be at peace. Some of the practices presented are traditionally Buddhist. Others I devised after becoming ill. Two are from the work of Byron Katie. Each practice is illustrated with examples from my own experience, so the book is also highly personal. The practices are intended to help with the following types of challenges: Suffering due to the relentlessness of physical symptoms; Blaming oneself for being sick; Cursory or dismissive treatment by doctors and medical professionals; The inability to visit with friends, participate in family gatherings, and take part in other social events; Feeling ignored by family or friends; Suffering due to uncertainty about the future; Coping with the disappointment of failed treatments; Caretaker burnout. At the end of the book is a handy reference guide, summarizing the specific tools and practices that can help with each of the above challenges. (Publisher)