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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 418

Cover image of 'Chronic lymphocytic leukaemia (CLL). A guide for patients'

Chronic lymphocytic leukaemia (CLL). A guide for patients (October 2019)

Leukaemia CARE

Being told that you have chronic lymphocytic leukaemia (CLL) can be a shock. This booklet describes CLL, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life and CLL and talking about CLL. Includes a glossary of terms and details of useful contacts and further support.   

Cover image of 'Autologous stem cell transplants. A guide for patients'

Autologous stem cell transplants. A guide for patients (December 2019)

Leukaemia CARE

This booklet explains what an autologous stem cell transplant is and who receives one. It describes the procedure and what happens on transplant day, the side effects, graft-versus-host dsease, and what happens if the transplant doesn’t work. It also has a glossary and details of useful contacts and further support. 

Cover image of 'Spirituality and religion at the end of life'

Spirituality and religion at the end of life (2016)

CHANGE

An easy read booklet that talks about the role religion and faith may play at the end of life and other things that might help you feel spiritual. 

Cover image of 'All about leukaemia [Easy read] [Bengali]'

All about leukaemia [Easy read] [Bengali] (December 2017)

Leukaemia CARE

This booklet explains what leukaemia is, what tests you might have, and the different treatments you might get.

Cover image of 'All about leukaemia [Easy read] [Punjabi]'

All about leukaemia [Easy read] [Punjabi] (December 2017)

Leukaemia CARE

This booklet explains what leukaemia is, what tests you might have, and the different treatments you might get.

Cover image of 'Getting help at home'

Getting help at home (May 2018)

Age UK

Information on the services available to older people and their carers to enable them to stay in their own home, including local authority social services, voluntary organisations, private care agencies, and the NHS. 

Cover image of 'Acute myelomonocytic leukaemia (AMML). A guide for patients'

Acute myelomonocytic leukaemia (AMML). A guide for patients (October 2019)

Leukaemia CARE

Acute myelomonocytic leukaemia (AMML) is a rare type of acute myeloid leukaemia (AML). This booklet explains it what it is, and describes the symptoms, diagnosis, prognosis, and treatment options. It also covers issues such as telling your family, managing your emotions, and survivorship. Includes a glossary and sources of support.

Cover image of 'All about leukaemia [Easy read] [Gujarati]'

All about leukaemia [Easy read] [Gujarati] (December 2017)

Leukaemia CARE

This booklet explains what leukaemia is, what tests you might have, and the different treatments you might get.

Cover image of 'Time to care. How to love your patients and your job'

Time to care. How to love your patients and your job (2012)

Rebelheart Publishers

In today's beleaguered healthcare system, burdened with epidemic levels of stress, depression and burnout, 'Time to care' offers health professionals the opportunity of renewal. Here are the secrets to building a happy and fulfilling practice, wellbeing and resilience. Youngson bravely relates his own transition, from a detached clinician to a champion for humane whole-patient care; at times poignant, sometimes funny but always brutally honest. TIME to CARE offers a deeply compassionate and insightful account of a health system that is failing both patients and practitioners all over the world. But there’s more…. Drawing on advances in neuroscience and positive psychology, and tapping the power of appreciative inquiry, Youngson conveys in clear and simple language how health workers can strengthen their hearts, learn the skills of compassionate caring, and rise above institutional limitations to transform patient care - and rediscover their vocation. Tipped to become an international best-seller, 'Time to care' is recommended reading for today’s health professionals, students, health leaders, patients, and all those passionate about re-humanizing healthcare. (Publisher)

Cover image of 'Diet and nutrition'

Diet and nutrition (December 2019)

The Brain Tumour Charity

This leaflet is for anyone receiving treatment or who has recently completed their treatment.There’s no specific food or type of diet that can control or treat brain tumours, but controlling your diet may help to improve your quality of life and manage the side-effects of treatment, such as dry mouth, nausea, poor appetite, and weight loss.

Cover image of 'Flying home. Helping patients to arrange international travel'

Flying home. Helping patients to arrange international travel (September 2017)

hospice information

This publication was originally written to help with arrangements for ‘final journeys’. However, much of the information also applies to those who would like to take a holiday when seriously ill.

Cover image of 'Mesothelioma'

Mesothelioma (November 2017)

British Lung Foundation

This booklet describes mesothelioma, the link with asbestos, who is at risk, the symptoms, diagnosis and treatment options. It also discusses financial support and end-of-life care. Includes a glossary of medical terms and further sources of support and information.

Cover image of 'Your support and follow-up care.'

Your support and follow-up care. (October 2016)

Macmillan Cancer Support

This leaflet is about how you can take an active role in your care. It describes types of support that your healthcare team may call the Recovery Package. This leaflet looks at: some of the support you can ask for after a cancer diagnosis; what options may be available to you for your follow-up care, and what information you need; ways you can look after yourself.

Cover image of 'Head, face and neck lymphoedema'

Head, face and neck lymphoedema (November 2016)

Lymphoedema Support Network

Lymphoedema of the head, face and neck may occur following surgery or radiotherapy. This leaflet describes the treatment and management options, including manual lymphatic drainage, simple lymphatic drainage, exercise, skin care, positioning and compression. Psychological distress is briefly considered.

Cover image of 'Chronic eosinophilic leukaemia (CEL). A guide for patients'

Chronic eosinophilic leukaemia (CEL). A guide for patients (September 2018)

Leukaemia CARE

Being told that you have chronic eosinophilic leukaemia (CEL) can be a shock and very upsetting, particularly when you may never have heard of the disease. This booklet describes CEL, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life and CEL and talking about CEL. Includes a glossary of terms and details of useful contacts and further support.  

Cover image of 'Adult acute myeloid leukaemia (AML). A guide for patients'

Adult acute myeloid leukaemia (AML). A guide for patients (March 2018)

Leukaemia CARE

This booklet describes acute myeloid leukaemia (AML) in adults, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life with AML and how to talk to your haematologist and family and friends. Includes a glossary and details of further support.

Cover image of 'Adult-T-cell-leukaemia/lymphoma (ATL). A guide for patients'

Adult-T-cell-leukaemia/lymphoma (ATL). A guide for patients (October 2019)

Leukaemia CARE

This booklet describes T-cell-leukaemia/lymphoma (ATL) in adults, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life with ATL and how to talk to your haematologist and family and friends. Includes a glossary and details of further support. 

Cover image of 'Acute megakaryoblastic leukaemia (AMKL). A guide for patients'

Acute megakaryoblastic leukaemia (AMKL). A guide for patients (March 2019)

Leukaemia CARE

Acute megakaryoblastic leukaemia (AMKL) is a rare subtype of acute myeloid leukaemia (AML). It is more common in children than in adults. In children with Down syndrome, AMKL is the most common type of AML. This booklet explains what it is, the signs and symptoms, how it is diagnosed and the treatment options. Includes a glossary and details of support.

Cover image of 'Chronic myelomonocytic leukaemia (CMML). A guide for patients'

Chronic myelomonocytic leukaemia (CMML). A guide for patients (June 2018)

Leukaemia CARE

Being diagnosed with chronic myelomonocytic leukaemia can be a shock (CMML). This booklet describes CMML, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life and CMML and talking about CMML. Includes a glossary of terms and details of useful contacts and further support.  

Cover image of '10 top tips'

10 top tips (March 2018)

Target Ovarian Cancer|Macmillan Cancer Support

This set of ten tips was developed by a workshop group comprising people affected by ovarian cancer and GPs. It aims to help women get the best out of a visit to their GP if they are concerned about symptoms.

Cover image of 'Atypical chronic myeloid leukaemia (aCML). A guide for patients'

Atypical chronic myeloid leukaemia (aCML). A guide for patients (July 2019)

Leukaemia CARE

This booklet describes atypical chronic myeloid leukaemia (aCML), what causes it, who it affects, what symptoms to expect, and likely treatments. It also covers everyday life with AML and how to talk to your haematologist and family and friends. Includes a glossary and details of further support.  

Cover image of 'Things that are important to me. Sharing what is important to my healthcare team [Easy read]'

Things that are important to me. Sharing what is important to my healthcare team [Easy read] (June 2018)

Macmillan Cancer Support|ENABLE Scotland|CHANGE

It is helpful to tell your doctors and nurses what is important to you. This will help them give you the best care. You can use this book to write about what is important to you.

Cover image of 'What to do after cancer treatment ends: 10 top tips'

What to do after cancer treatment ends: 10 top tips (May 2017)

Macmillan Cancer Support

Suggestions to help people get the best care and support after treatment ends and to live as healthy and active a life as possible.

Cover image of 'DA (Daunarubicin) and ARAc for acute myeloid leukaemia. A guide for patients'

DA (Daunarubicin) and ARAc for acute myeloid leukaemia. A guide for patients (December 2018)

Leukaemia CARE

This booklet describes DA treatment, a combination of the drugs daunorubicin and cytarabine (Ara-C), used primarily as induction chemotherapy in patients with newly diagnosed acute myeloid meukaemia. It describes how DA is given, and the possible side-effects. Includes a glossary and details of further support and information.

Cover image of 'Follow the child. Planning and having the best end-of-life care for your child'

Follow the child. Planning and having the best end-of-life care for your child (2018)

Jessica Kingsley Publishers

Drawing on her family's own experiences and those of other parents facing the death of a child from illness or a life-limiting condition, Sacha Langton-Gilks explains the challenges, planning, and conversations that can be expected during this traumatic period. Practical advice such as how to work with the healthcare professionals, drawing up an Advance Care Plan, and how to move care into the home sit alongside tender observations of how such things worked in her own family's story. The book also includes a template person-centred planning document, developed by experts in the field. Empowering and reassuring, this book will help families plan and ensure the best possible end-of-life care for a child or young person. (Publisher)

Cover image of 'Childhood acute myeloid leukaemia (AML). A guide for parents'

Childhood acute myeloid leukaemia (AML). A guide for parents (April 2018)

Leukaemia CARE

Being told that your child has acute myeloid leukaemia (AML) can be a shock and very upsetting, particularly when you may never have heard of the disease. This booklet describes childhood AML, what causes it, who it affects, how it affects your child’s body, what symptoms to expect and likely treatments. It also covers everyday life and childhood AML and talking about childhood AML. Includes a glossary of terms and details of useful contacts and further support. 

Cover image of 'B-cell acute lymphoblastic leukaemia (ALL). A guide for patients'

B-cell acute lymphoblastic leukaemia (ALL). A guide for patients (May 2019)

Leukaemia CARE

This booklet explains what B-cell acute lymphoblastic leukaemia is, and describes the causes, who it affects, the symptoms and side-effects and treatment options. It also covers issues such as day-to-day life with B-cell acute lymphoblastic leukaemia, managing your emotions, telling family and friends, survivorship, palliative care, and end-of-life care.

Cover image of 'Adult acute lymphoblastic leukaemia (ALL). A guide for patients'

Adult acute lymphoblastic leukaemia (ALL). A guide for patients (October 2018)

Leukaemia CARE

This booklet explains what acute lymphopblastic leukaemia (ALL) is, and describes the symptoms, diagnosis, and treatment options. It also covers everday life with ALL and how to talk to your haematologist, family and friends. 

Cover image of 'Your step by step guide to making a will'

Your step by step guide to making a will (November 2019)

Macmillan Cancer Support

This leaflet is a guide to making or updating your will. It is for anyone affected by cancer. It also explains how inheritance tax works, and who to contact for more information and support. 

Cover image of 'Look good...feel better confidence kit. A guide to managing the appearance-related effects of cancer treatment'

Look good...feel better confidence kit. A guide to managing the appearance-related effects of cancer treatment (2015)

Look Good...Feel Better

This booklet and accompanying DVD has information and advice about make-up, skincare, hand and nail care, wig selection and cutting, scarf tying and head coverings to help manage changes in personal appearance caused by treatment for cancer.

Cover image of 'Radiotherapy. Your questions answered'

Radiotherapy. Your questions answered (June 2017)

The Royal Marsden NHS Foundation Trust

This booklet describes what radiotherapy is, how it works, the benefits and risks, how treatment is planned, and what happens during treatment. It also discusses the possible side-effects, how people feel during treatment, and what happens after treatment is finished.

Cover image of 'ATRA and anthracycline based therapy for acute myeloid leukaemia (AML). A guide for patients'

ATRA and anthracycline based therapy for acute myeloid leukaemia (AML). A guide for patients (March 2018)

Leukaemia CARE

All-trans retinoic acid (ATRA), known as Tretinoin (Vesanoid®) is the acid form of vitamin A, which is used with chemotherapy for induction of remission in patients with confirmed acute promyelocytic leukaemia (APL), a subtype of acute myeloid leukaemia. This booklet describes the use of ATRA along with the chemotherapy drugs idarubicin and mitoxantrone.

Cover image of 'The use of compression garments in lymphoedema management'

The use of compression garments in lymphoedema management (November 2016)

Lymphoedema Support Network

The use of compression garments plays an important role in the management of lymphoedema. This leaflet describes the benefits of wearing compression garments, the factors involved in choosing compression garments, the different types available, and fitting. It concludes with general information about how to wear and care for the garments, and the problems that may occur.

Cover image of 'Nourish. The cancer care cookbook'

Nourish. The cancer care cookbook (2013)

Penny Brohn Cancer Care

Eating well is important when you are living with cancer. Research proves that what you eat can protect you against cancer as well as having a crucial impact before, during and after treatment. But often you may feel too tired, ill or stressed to prepare a balanced and nutritious meal, or you may not feel like eating at all. Don't worry -help is at hand. Nourish, brought to you by the team at Penny Brohn Cancer Care, shows you how to create simple meals, snacks and drinks that are packed with nutrients to support your body. And if you're cooking for a loved one you can rest assured that you will be providing the best possible meals to make them feel better. In Nourish you will find over 70 easy to prepare recipes that incorporate nutrient rich foods to support your body, optimize your enjoyment of food and benefit your health. Whether you are undergoing treatment, have opted to eat healthier as a preventative measure or are supporting someone through cancer and wish to provide nourishing dishes for them, this book will be your culinary guide. (Publisher)

Cover image of 'Swollen feet and legs'

Swollen feet and legs (April 2016)

Lymphoedema Support Network

Information on skin hygiene, foot protection, and footwear for people with lymphoedema. Includes details of companies supplying specialist footwear.

Cover image of 'Understanding primary brain tumours'

Understanding primary brain tumours (September 2019)

Macmillan Cancer Support

This booklet is about primary brain tumours. It is for anyone who has been diagnosed with a primary brain tumour. There is also information for carers, family members and friends. The booklet explains the signs and symptoms of a primary brain tumour, and how it is diagnosed and treated. It also has information about emotional, practical and financial issues. 

Cover image of 'Pampering therapy'

Pampering therapy (April 2019)

Look Good...Feel Better

Information about Look Good Feel Better with details of workshop locations in the UK.

Cover image of 'Fast facts: Prostate cancer'

Fast facts: Prostate cancer (2017)

Health Press

Prostate cancer is a fast-changing field, and recent advances have significantly improved both the survival and quality of life of many men diagnosed with the disease. As well as providing comprehensive information on the diagnosis, staging and management of the disease, the eighth edition of this ever-popular handbook is an invaluable update on new developments, including: evidence for the debate surrounding PSA screening; a better understanding of molecular and genetic advances; the latest methods of delivering radiotherapy; new drug treatments for castrate-resistant prostate cancer; and survivorship issues. This superbly illustrated handbook is a practical resource for all those who provide support and care for men with prostate cancer - including GPs, nurses and allied health professionals - as well as a refreshingly readable source of information for patients wanting to know more about their condition and its treatment. (Publisher)

Cover image of 'The street-wise patient’s guide to surviving cancer'

The street-wise patient’s guide to surviving cancer (2016)

Edward Everett Root, Publishers

This book tells you how you can do everything possible to survive cancer. The author is one of the world's leading experts on cancer care. This is an insider's guide to taking control of your own life, and care. YOU can survive cancer - although many patients do not know this. It: offers short, sharp practical guidance; shows patients how to can take control of their care; is essential to patients, and their family; shows you how to get the system to work for you; it gives 100 advisory websites, with expert notes; is absolutely up-to-date. (Publisher)

Cover image of 'Blastic plasmacytoid dendritic cell neoplasm (BPDCN). A guide for patients'

Blastic plasmacytoid dendritic cell neoplasm (BPDCN). A guide for patients (September 2019)

Leukaemia CARE

Blastic plasmacytoid dendritic cell neoplasm (BPDCN) is a rare cancer of the bone marrow. It was previously known as natural killer (NK) cell leukaemia. This booklet explains what it is, and describes the causes, who it affects, what symptoms to expect, how it is diagnosed, and treatment options. It also covers everyday life, managing your emotions, how to talk to your doctor and family and friends, survivorship, palliative care, and end-of-life care. Includes a glossary and details of further support.  

Cover image of 'Chronic myeloid leukaemia (CML) TKIs and TFR. A guide for patients'

Chronic myeloid leukaemia (CML) TKIs and TFR. A guide for patients (September 2018)

Leukaemia CARE

This booklet is written for patients with Philadelphiachromosome-positive (Ph+) CML. It explains what tyrokinase inhibitors are and how they work. It covers imatinib, nilotinib, dasatinib, bosutinib, ponatinib, including how they are given and possible side-effects.

Cover image of 'Cancer and pregnancy'

Cancer and pregnancy (November 2019)

Macmillan Cancer Support|Mummy's Star

This booklet is for women who have been diagnosed with cancer during pregnancy. It explains the emotional and practical issues you may experience in this situation. It also talks about the treatment you may have and support that will be available to you. 

Cover image of 'Azacitidine for acute myeloid leukaemia (AML). A guide for patients'

Azacitidine for acute myeloid leukaemia (AML). A guide for patients (June 2019)

Leukaemia CARE

Azacitidine is a chemotherapy drug used for the treatment of adult patients with acute myeloid leukaemia, high risk myelodysplastic syndrome or chronic myelomonocytic leukaemia who are not eligible for stem cell transplant. This booklet is for patients, family or friends of the patient, or a carer who like to know more about this drug. It describes what azacitidine is, how it is given, and the possible side-effects. It also has details of useful information and support.

Cover image of 'Continent urinary diversion eg Mitrofanoff'

Continent urinary diversion eg Mitrofanoff (November 2017)

Urostomy Association

This leaflet has information about continent urinary diversion, which avoids the need to wear a urostomy pouch over the stoma to collect urine. It describes pre-operative and post-operative care, and care of the new reservoir.

Cover image of 'Childhood acute lymphoblastic leukaemia (ALL). A guide for parents'

Childhood acute lymphoblastic leukaemia (ALL). A guide for parents (March 2019)

Leukaemia CARE

Being told that your child has acute lymphoblastic leukaemia (ALL) can be a shock and very upsetting, particularly when you may never have heard of the disease. This booklet describes childhood ALL, what causes it, who it affects, how it affects your child’s body, what symptoms to expect and likely treatments. It also covers everyday life and childhood ALL and talking about childhood ALL. Includes a glossary of terms and details of useful contacts and further support.

Cover image of 'A guide for prisoners at the end of life [in press]'

A guide for prisoners at the end of life [in press] (January 2020)

Macmillan Cancer Support

This booklet is for you if you may die in prison from a serious illness. It explains what might happen, how you may feel and what support is there to help you. There is some information about what will happen after your death and the support available for any family members and friends.

Cover image of 'The essential guide to breast cancer'

The essential guide to breast cancer (2017)

Need2Know

Breast cancer is the most common cancer in women in the UK; there are approximately 45,000 new cases every year. A new diagnosis can be very frightening and many people will have no prior knowledge of the disease. This book is for women and their families who are looking for a comprehensive but plain language guide to breast cancer and its treatments. Many people find that doctors, although highly qualified and well meaning, can forget how little the layperson knows about medical procedures and terminology. Starting with the basics, this guide will look at what breast cancer is and how it’s diagnosed, right through to support options, the treatment available and how to care for your carers. The emotional after-effects of being a survivor are also covered in detail. Written by a survivor of breast cancer and peer reviewed by a breast cancer specialist, this book will provide everything women need to know about breast care, being diagnosed with breast cancer and the road to recovery. (Publisher)

Cover image of 'Clinical trials. Your questions answered'

Clinical trials. Your questions answered (June 2018)

The Royal Marsden NHS Trust

This booklet uses a question and answer format to help people with cancer decide whether to participate in a clinical trial of cancer treatment. It includes sources of further information and support.

Cover image of 'Future treatments in acute myeloid leukaemia (AML). A guide for patients'

Future treatments in acute myeloid leukaemia (AML). A guide for patients (October 2018)

Leukaemia CARE

The main treatment for acute myeloid leukaemia (AML) is chemotherapy, including targeted therapy. This might be followed by a stem cell transplant, and surgery and radiotherapy may be used in special circumstances. New therapies are being developed and investigated and this booklet describes several of these: clofarabine (DNA synthesis inhibitor); gilteritinib and quizartinib (tyrosine kinase inhibitors); venetoclax (B-cell lymphoma-2 (BCL2) inhibitor); and Vyxeos® (a combination of daunorubicin and cytarabine. 

Cover image of 'Preferred priorities for care'

Preferred priorities for care (2007)

National End of Life Care Programme

The Preferred Priorities for Care (PPC) can help you prepare for the future. It gives you an opportunity to think about, talk about and write down your preferences and priorities for care at the end of your life. Please note: This form is for people living in England and Wales only. We suggest you read it alongside our booklet. Your life and your choices: plan ahead. 

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