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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 382

Cover image of 'Your support and follow-up care.'

Your support and follow-up care. (October 2016)

Macmillan Cancer Support

This leaflet is about how you can take an active role in your care. It describes types of support that your healthcare team may call the Recovery Package. This leaflet looks at: some of the support you can ask for after a cancer diagnosis; what options may be available to you for your follow-up care, and what information you need; ways you can look after yourself.

Cover image of 'Dealing with diagnosis'

Dealing with diagnosis (April 2015)

AMEND (Association for Multiple Endocrine Neoplasia Disorders)

This leaflet is for people recently diagnosed with a multiple enodcrine neoplasia. It covers what MEN is, the feelings that people may experience, becoming an active member of your own care team and other sources of help and support.

Cover image of 'Dying: a guide for prisoners  in England and Wales'

Dying: a guide for prisoners in England and Wales (June 2015)

Macmillan Cancer Support

This booklet is for prisoners with cancer who are likely to die within a few months. It may also be useful for prisoners who are dying from other diseases. It discusses what is likely to happen, how you may feel and what support you may need. There is also information about what happens after death and the support available for family and friends.

Cover image of 'Mesothelioma'

Mesothelioma (November 2017)

British Lung Foundation

This booklet describes mesothelioma, the link with asbestos, who is at risk, the symptoms, diagnosis and treatment options. It also discusses financial support and end-of-life care. Includes a glossary of medical terms and further sources of support and information.

Cover image of 'Advance decisions, advance statements and living wills'

Advance decisions, advance statements and living wills (April 2019)

Age UK

This factsheet explains what an advance decision to refuse treatment (often called an advance decision or a ‘living will’) and an advance statement are, why people might want to prepare one or both of them, requirements for drawing them up and ways to ensure other people know they exist. 

Cover image of 'When someone dies. Practical and emotional help at a difficult time [Welsh]'

When someone dies. Practical and emotional help at a difficult time [Welsh] (March 2019)

Marie Curie

This booklet provides an overview of the practical and emotional issues that may come up when someone close to you dies. 

Cover image of 'Working while caring for someone with cancer'

Working while caring for someone with cancer (April 2019)

Macmillan Cancer Support

This booklet aims to help working carers cope with work issues they may face because of the impact of their caring role on working life. It describes who a carer is, the different ways of caring, and the impact of cancer treatment on the working carer. It has advice about what to say at work, talking to employers, the legal rights of carers in paid work, social care, financial support, and bereavement. Includes details of useful organisations and websites.

Cover image of 'Financial support - benefits [Turkish]'

Financial support - benefits [Turkish] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits.

Cover image of 'Who can help if you are dying'

Who can help if you are dying (2016)

CHANGE

An easy read booklet about the different people who can support you if you are dying and what they can help with.  

Cover image of 'Caring for someone with an illness they will probably die from. Looking after yourself [Easy read]'

Caring for someone with an illness they will probably die from. Looking after yourself [Easy read] (June 2019)

Marie Curie

Marie Curie has written this Easy Read booklet to help you think about looking after yourself if you are caring for someone with a an illness they will probably die from.

Cover image of 'Regaining bowel control after bowel cancer treatment'

Regaining bowel control after bowel cancer treatment (August 2018)

Bowel Cancer UK

Regaining bowel control can be one of the biggest challenges that you face after surgery for bowel cancer. In this booklet we explain approaches you can take and the support available to you. 

Cover image of 'Understanding head and neck cancers'

Understanding head and neck cancers (July 2018)

Macmillan Cancer Support

This booklet is about head and neck cancers. Head and neck cancers include cancers of the mouth and throat, as well as rarer cancers of the nasal cavity (inside the nose), sinuses, salivary glands and middle ear. This booklet is for anyone who has a head and neck cancer. The booklet explains: what head and neck cancer is; the signs and symptoms; the different treatment options; coping with head and neck cancer treatment.

Cover image of 'Radiotherapy. Your questions answered'

Radiotherapy. Your questions answered (June 2017)

The Royal Marsden NHS Foundation Trust

This booklet describes what radiotherapy is, how it works, the benefits and risks, how treatment is planned, and what happens during treatment. It also discusses the possible side-effects, how people feel during treatment, and what happens after treatment is finished.

Cover image of 'Skin care for people with lymphoedema'

Skin care for people with lymphoedema (May 2016)

Lymphoedema Support Network

This leaflet explains why skin care is important for people with lymphoedema and gives general advice on skin care, including the use of emollients. It also covers special problems that can occur in lymphoedema, such as dermatitis, fungal infections and lymphorrhoea.

Cover image of 'Signs and symptoms of cancer and how to reduce your risk'

Signs and symptoms of cancer and how to reduce your risk (March 2017)

Macmillan Cancer Support

This leaflet explains how to recognise the early signs of cancer and how to reduce the risk. It describes the symptoms to look out for (unexplained bleeding, weight loss, lumps, pain) and how to reduce the risk by making lifestyle changes (smoking, diet, exercise, alcohol drinking and taking care in the sun).

Cover image of 'Feel more like you. Expert advice on caring for your skin, nails and hair during cancer treatment'

Feel more like you. Expert advice on caring for your skin, nails and hair during cancer treatment (September 2019)

Macmillan Cancer Support

This booklet explains how certain cancer treatments can cause changes to your appearance. It is for people who have had changes to their skin, nails and hair because of cancer treatment. It gives advice on how to manage these changes to help you feel more like you again. We hope it helps you deal with some of the questions or feelings you may have. 

Cover image of '10 top tips'

10 top tips (March 2018)

Target Ovarian Cancer|Macmillan Cancer Support

This set of ten tips was developed by a workshop group comprising people affected by ovarian cancer and GPs. It aims to help women get the best out of a visit to their GP if they are concerned about symptoms.

Cover image of 'Travel and cancer'

Travel and cancer (April 2017)

Macmillan Cancer Support

This booklet is for people with cancer who would like to travel. It covers issues such as insurance, vaccinations and immunisations, avoiding health problems, taking care in the sun, taking medicines abroad, and stoma care. Includes details of useful organisations.

Cover image of 'Looking after someone. Information and support for carers in Wales [Welsh]'

Looking after someone. Information and support for carers in Wales [Welsh] (November 2019)

Carers Wales

Guidance and advice for carers in Wales. This guide sets out what rights carers have and how they can get financial and practical help and support.

Cover image of 'Implantable ports [Punjabi]'

Implantable ports [Punjabi] (September 2018)

Macmillan Cancer Support

Implantable ports are often used to give chemotherapy treatment. This factsheet describes what an implantable port is, how it is put in, how it is used, how to care for it, and possible problems.

Cover image of 'Going home from hospital'

Going home from hospital (March 2019)

Macmillan Cancer Support

This booklet explains how care and support is arranged for people with cancer when they are discharged from hospital.

Cover image of 'Planning ahead. An infopack for myeloma patients.'

Planning ahead. An infopack for myeloma patients. (February 2018)

Myeloma UK

This pack, produced with support from Marie Curie, covers the key questions and topics that myeloma patients may want to know more about when considering end of life. Topics include: why planning ahead can be beneficial; what to expect when myeloma treatment is no longer an option; what is likely to happen as the end of life draws near; choosing where to be looked after; and getting your affairs in order. 

Cover image of 'If you are diagnosed with cancer – a quick guide [Bulgarian]'

If you are diagnosed with cancer – a quick guide [Bulgarian] (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support.

Cover image of 'Your life and your choices: plan ahead (Scotland)'

Your life and your choices: plan ahead (Scotland) (March 2016)

Macmillan Cancer Support and the Public Health Agency

This booklet is about some of the ways that people with cancer in Scotland can plan and make choices about their future care. 

Cover image of 'Managing the late effects of head and neck cancer treatment'

Managing the late effects of head and neck cancer treatment (July 2018)

Macmillan Cancer Support

Information for people who have had treatment for head and neck cancer and who are experiencing side-effects after treatment has ended.

Cover image of 'Having tests for prostate cancer'

Having tests for prostate cancer (May 2018)

Macmillan Cancer Support

This booklet is for men who may be having tests for prostate cancer; these may be diagnostic (DRE, PSA, PCA3, TRUS, biopsy, MRI) or tests that may be carried out to determine the stage and grade of prostate cancer (Isotope bone scan, X-rays, MRI and CT scans). It also covers issues such as waiting for test results and talking to healthcare staff. Includes a list of questions to ask and details of further support.

Cover image of 'Chemotherapy. Your questions answered'

Chemotherapy. Your questions answered (November 2017)

The Royal Marsden NHS Foundation Trust

This booklet describes what chemotherapy is, how it works, how treatment is planned and carried out, and possible side-effects; for example, anaemia, infection, appetite changes, nausea, skin changes, hair loss, and fertility problems. It also briefly discusses issues such as emotional well-being and fatigue. Includes further sources of information and support.

Cover image of 'Making decisions about the future if you are dying'

Making decisions about the future if you are dying (2016)

CHANGE

An easy read booklet about how to plan for your future, including making an Advance Care Plan.  

Cover image of 'Clinical trials. Your questions answered'

Clinical trials. Your questions answered (June 2018)

The Royal Marsden NHS Trust

This booklet uses a question and answer format to help people with cancer decide whether to participate in a clinical trial of cancer treatment. It includes sources of further information and support.

Cover image of 'Spirituality and religion at the end of life'

Spirituality and religion at the end of life (2016)

CHANGE

An easy read booklet that talks about the role religion and faith may play at the end of life and other things that might help you feel spiritual. 

Cover image of 'All about leukaemia [Easy read]'

All about leukaemia [Easy read] (September 2019)

Leukaemia CARE

This booklet explains what leukaemia is, what tests you might have, and the different treatments you might get.

Cover image of 'Living with a terminal illness. Support for you and those close to you [Welsh]'

Living with a terminal illness. Support for you and those close to you [Welsh] (April 2019)

Marie Curie

This booklet aims to help you understand your feelings and gives information about how to live well and get the most from your time. It’s divided into short chapters so you can read through it at your own pace. People caring for someone who is living with a terminal illness may also find this information useful. 

Cover image of 'Head, face and neck lymphoedema'

Head, face and neck lymphoedema (November 2016)

Lymphoedema Support Network

Lymphoedema of the head, face and neck may occur following surgery or radiotherapy. This leaflet describes the treatment and management options, including manual lymphatic drainage, simple lymphatic drainage, exercise, skin care, positioning and compression. Psychological distress is briefly considered.

Cover image of 'Being there for someone with a terminal illness. Practical and emotional support for carers'

Being there for someone with a terminal illness. Practical and emotional support for carers (April 2019)

Marie Curie

This booklet is for anyone providing care and support for someone living with a terminal illness. It includes details on day-to-day caring, your rights as a carer and how to access professional support. It also focuses on the emotional impact of caring and how to look after your own wellbeing. 

Cover image of 'Cancer and dementia. A guide for carers'

Cancer and dementia. A guide for carers (September 2017)

Macmillan Cancer Support

This booklet is about cancer and dementia. It is for anyone who looks after a friend or family member who has both cancer and dementia. Living with two conditions can be very difficult for you and the person you care for. This booklet talks about some of the worries you may have and ways to cope. It also gives practical information about getting help and support.

Cover image of 'Swollen feet and legs'

Swollen feet and legs (April 2016)

Lymphoedema Support Network

Information on skin hygiene, foot protection, and footwear for people with lymphoedema. Includes details of companies supplying specialist footwear.

Cover image of 'What can help you feel better when someone dies'

What can help you feel better when someone dies (2016)

CHANGE

An easy read booklet about coping with grief and things that can help you. 

Cover image of 'Living with a terminal illness. Support for you and those close to you'

Living with a terminal illness. Support for you and those close to you (April 2019)

Marie Curie

This booklet aims to help you understand your feelings and gives information about how to live well and get the most from your time. It’s divided into short chapters so you can read through it at your own pace. People caring for someone who is living with a terminal illness may also find this information useful. 

Cover image of 'Things that are important to me. Sharing what is important to my healthcare team [Easy read]'

Things that are important to me. Sharing what is important to my healthcare team [Easy read] (June 2018)

Macmillan Cancer Support|ENABLE Scotland|CHANGE

It is helpful to tell your doctors and nurses what is important to you. This will help them give you the best care. You can use this book to write about what is important to you.

Cover image of 'Expectations of care for patients with a neobladder in the primary care setting'

Expectations of care for patients with a neobladder in the primary care setting (November 2017)

Urostomy Association

Guidelines for people with a neobladder in the event of problems with neobladder function, urinary tract infections, or bleeding.

Cover image of 'Cancer and pregnancy'

Cancer and pregnancy (January 2017)

Macmillan Cancer Support|Mummy's Star

This booklet is for women who have been diagnosed with cancer during pregnancy. It explains the emotional and practical issues you may experience in this situation. It also talks about the treatment you may have and support that will be available to you. 

Cover image of 'What to do after cancer treatment ends: 10 top tips'

What to do after cancer treatment ends: 10 top tips (May 2017)

Macmillan Cancer Support

Suggestions to help people get the best care and support after treatment ends and to live as healthy and active a life as possible.

Cover image of 'Understanding lung cancer'

Understanding lung cancer (December 2017)

Macmillan Cancer Support

This booklet has detailed information on the causes of lung cancer, symptoms, diagnosis, and treatment options. Includes information on clinical trials and issues such as feelings, talking to children, and financial support. 

Cover image of 'What to expect at the end of someone's life. Information for family, friends and carers'

What to expect at the end of someone's life. Information for family, friends and carers (July 2019)

Marie Curie

This leaflet aims to help you prepare for the end of your partner, relative or friend’s life. Knowing what to expect can help you prepare yourself for their last few weeks and days. 

Cover image of 'If you are diagnosed with cancer – a quick guide [Nepali]'

If you are diagnosed with cancer – a quick guide [Nepali] (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support. 

Cover image of 'Blood clot prevention. A guide for patients and carers'

Blood clot prevention. A guide for patients and carers (May 2019)

The Royal Marsden NHS Foundation Trust

This booklet explains the risk of developing a blood clot while in hospital. It describes the signs of a blood clot, who is at risk, and how to reduce the risk of developing a blood clot. Please note: this booklet includes contact details and instructions specific to the Royal Marsden Hospital.

Cover image of 'Expectations of care for patients with an ileal conduit (urostomy) in the primary care setting'

Expectations of care for patients with an ileal conduit (urostomy) in the primary care setting (November 2017)

Urostomy Association

Guidelines for people with an ileal conduit (urostomy) in the event of problems such as urinary tract infections, bleeding, discharge, a hernia or sore skin.

Cover image of 'Expectations of care for patients with a continent urinary diversion (eg Mitrofanoff) in the primary care setting'

Expectations of care for patients with a continent urinary diversion (eg Mitrofanoff) in the primary care setting (November 2017)

Urostomy Association

Guidelines for people with a continent urinary diversion (Mitrofanoff) in the event of problems with pouch function, urinary tract infections, bleeding or discharge.

Cover image of 'What now? A practical guide for parents and carers'

What now? A practical guide for parents and carers (February 2018)

CLIC Sargent

A booklet for parents of children diagnosed with cancer.

Cover image of 'Cancer WTF? Want the facts?'

Cancer WTF? Want the facts? (February 2018)

CLIC Sargent

Hearing you have cancer throws you into a world of “unknowns”. It’s like finding yourself in the middle of a maze with no clue how you’re supposed to find your way back out again. It’s confusing and scary when you don’t know which way to turn. But that’s where we all step in – your loved ones, care and medical professionals and the many organisations dedicated to supporting you. We’ll make sure that you will never be alone through this, and can set you on the right path until everything starts making sense again. This booklet should help you on your way.

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