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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 418

Cover image of 'Looking after someone with cancer'

Looking after someone with cancer (May 2019)

Macmillan Cancer Support

This booklet is about looking after someone who has cancer. It explains: what it means to be a carer; who can help support you and the person you care for; the practical, emotional and financial issues you may face, and how to cope with them; ways you can help the person you care for manage symptoms or side effects; how to look after yourself.

Cover image of 'Living with an illness that you will probably die from. Work, money and getting the best out of life [Easy read]'

Living with an illness that you will probably die from. Work, money and getting the best out of life [Easy read] (June 2019)

Marie Curie

This Easy Read booklet is for people living with an illness that they will probably die from. It tells them about work, money and benefits.

Cover image of 'Changes that can happen at the end of life'

Changes that can happen at the end of life (2016)

CHANGE

An easy read booklet about symptoms you might have with advanced cancer and things that can help. 

Cover image of 'A guide for talking about advanced cancer. Advice for people living with advanced cancer, their friends and family'

A guide for talking about advanced cancer. Advice for people living with advanced cancer, their friends and family (July 2019)

Advanced Cancers Coalition

This short guide has been designed to support conversations in advanced cancer. It explains why good communication matters and has tips to support productive conversations. It can be used on an ongoing basis to support you in either living with or knowing someone with advanced cancer. [The ACC is a coalition of UK cancer patient groups with a shared interest in delivering improvements in care and treatments for people with advanced cancer. The activity of the ACC is funded by Roche Products Limited.]

Cover image of 'Expectations of care for patients with a continent urinary diversion (eg Mitrofanoff) in the primary care setting'

Expectations of care for patients with a continent urinary diversion (eg Mitrofanoff) in the primary care setting (November 2017)

Urostomy Association

Guidelines for people with a continent urinary diversion (Mitrofanoff) in the event of problems with pouch function, urinary tract infections, bleeding or discharge.

Cover image of 'Coping with advanced cancer'

Coping with advanced cancer (January 2019)

Macmillan Cancer Support

This booklet is for people who have cancer that has come back or spread. This is sometimes called advanced cancer. It looks at some of the concerns you may be dealing with and has advice about ways of coping. It also talks about treatments and your feelings and has practical information about getting help and support.

Cover image of 'What can help you feel better when someone dies'

What can help you feel better when someone dies (2016)

CHANGE

An easy read booklet about coping with grief and things that can help you. 

Cover image of 'Understanding cancer of the pancreas'

Understanding cancer of the pancreas (June 2018)

Macmillan Cancer Support

This booklet has information about the most common type of cancer of the pancreas - adenocarcinoma. It describes the risk factors, causes, symptoms, diagnosis, staging, treatment options and follow-up. It also discusses feelings and self-help and includes details of further support and websites.

Cover image of 'Adrenal gland surgery'

Adrenal gland surgery (2016)

AMEND (Association for Multiple Endocrine Neoplasia Disorders)

Information for anyone who may be about to have surgery to remove an adrenal gland. This leaflet explains what an adrenal gland is, why an operation may be needed, and who should care for you during your treatment.

Cover image of 'Managing the late effects of head and neck cancer treatment'

Managing the late effects of head and neck cancer treatment (July 2018)

Macmillan Cancer Support

Information for people who have had treatment for head and neck cancer and who are experiencing side-effects after treatment has ended.

Cover image of 'Life after cancer treatment'

Life after cancer treatment (June 2017)

Macmillan Cancer Support

This booklet is for people who are preparing for life after treatment. It has information on follow-up care, managing treatment effects and making healthy lifestyle changes.

Cover image of 'Planning ahead for the end of life (Scotland) [in press]'

Planning ahead for the end of life (Scotland) [in press] (November 2019)

Macmillan Cancer Support and the Public Health Agency

This booklet is about some of the ways you can plan ahead and make choices about your future care if you live in Scotland. It is for anyone who wants to plan ahead, whether they have a serious illness or not. Planning for your future care is also called advance care planning. It is important in case you ever become unable to make choices yourself. The booklet talks about the ways you can plan ahead, for example writing a will, or making a power of attorney or an advance directive. It also tells you how to talk about planning ahead with your family, friends and health and social care professionals.

Cover image of 'Looking after someone. Information and support for carers in Wales [Welsh]'

Looking after someone. Information and support for carers in Wales [Welsh] (November 2019)

Carers Wales

Guidance and advice for carers in Wales. This guide sets out what rights carers have and how they can get financial and practical help and support.

Cover image of 'If you are dying from cancer'

If you are dying from cancer (2016)

CHANGE

An easy read booklet about how you might feel if you find out your cancer cannot be cured. The booklet talks about things that might help and people who can support you.  

Cover image of 'Dealing with diagnosis'

Dealing with diagnosis (April 2015)

AMEND (Association for Multiple Endocrine Neoplasia Disorders)

This leaflet is for people recently diagnosed with a multiple enodcrine neoplasia. It covers what MEN is, the feelings that people may experience, becoming an active member of your own care team and other sources of help and support.

Cover image of 'Regaining bowel control after bowel cancer treatment'

Regaining bowel control after bowel cancer treatment (August 2018)

Bowel Cancer UK

Regaining bowel control can be one of the biggest challenges that you face after surgery for bowel cancer. In this booklet we explain approaches you can take and the support available to you. 

Cover image of 'Acute promyelocytic leukaemia (APL). A guide for patients'

Acute promyelocytic leukaemia (APL). A guide for patients (January 2020)

Leukaemia CARE

Acute promyelocytic leukaemia (APL) is a rare sub-type of acute myeloid leukaemia (AML). This booklet explains it what it is, and describes the symptoms, diagnosis, and treatment options. It also covers practical issues of living with APL and how to talk to your haematologist, family and friends.

Cover image of 'Who can help if you are dying'

Who can help if you are dying (2016)

CHANGE

An easy read booklet about the different people who can support you if you are dying and what they can help with.  

Cover image of 'Allogeneic stem cell transplants. A guide for patients'

Allogeneic stem cell transplants. A guide for patients (January 2020)

Leukaemia CARE

This booklet explains what an allogeneic stem cell transplant is and who receives one. It describes the procedure and what happens on transplant day, the side effects, graft-versus-host dsease, and what happens if the transplant doesn’t work. It also has a glossary and details of useful contacts and further support.

Cover image of 'CAR-T therapy. A guide for patients'

CAR-T therapy. A guide for patients (October 2019)

Leukaemia CARE

Chimeric antigen receptor T-cell (CAR-T) therapy is a new type of cancer treatment that may be used to treat B-cell acute lymphoblastic leukaemia and diffuse large B-cell lymphoma (DLBCL). This booklet explains how CAR-T therapy works and who may currently receive it, and describes the possible side-effects. It also discusses the likely future for CAR-T therapy and the clinical trials currently taking place in the UK. It includes a glossary of terms and details of further information and support.

Cover image of 'Understanding lung cancer'

Understanding lung cancer (December 2017)

Macmillan Cancer Support

This booklet has detailed information on the causes of lung cancer, symptoms, diagnosis, and treatment options. Includes information on clinical trials and issues such as feelings, talking to children, and financial support. 

Cover image of 'If you are diagnosed with cancer – a quick guide [Bulgarian]'

If you are diagnosed with cancer – a quick guide [Bulgarian] (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support.

Cover image of 'Understanding risk-reducing breast surgery'

Understanding risk-reducing breast surgery (October 2018)

Macmillan Cancer Support

This booklet is for anyone who is thinking about having risk-reducing breast surgery. You may consider this if you have a high risk of developing breast cancer. This is usually because you have a strong family history of breast cancer. The booklet explains what risk-reducing breast surgery is and what it involves. It talks about the different options for risk-reducing breast surgery. There is information about the benefits, limitations and risks of each type of surgery. We also talk about some physical and emotional issues you may experience, and ways to cope with these. We have included photographs of women who have had breast reconstruction after risk-reducing surgery. This is to help show how a reconstruction may look.

Cover image of 'Aplastic anaemia. A guide for patients'

Aplastic anaemia. A guide for patients (October 2018)

Leukaemia CARE

This booklet describes aplastic anaemia, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life with AML and how to talk to your haematologist and family and friends. Includes a glossary and details of further support. 

Cover image of 'Going to a funeral when someone dies'

Going to a funeral when someone dies (2016)

CHANGE

An easy read booklet about what a funeral is, what might happen and other ways of remembering someone who has died.  

Cover image of 'Caring for a person with a stoma and dementia'

Caring for a person with a stoma and dementia (December 2017)

Colostomy UK

Teaching a person with dementia how to care for their stoma is not possible in all cases, but where it is possible, attempts should be made to encourage them. The level of independence achievable will vary. A person with dementia may benefit from extra time and repetition of the tips in this booklet, which were suggested by healthcare professionals who have been actively involved in the care of ostomates with dementia.

Cover image of 'Sorting out your financial affairs'

Sorting out your financial affairs (October 2019)

Macmillan Cancer Support

This booklet is for people affected by cancer who want to plan ahead. It can help you make choices about what will happen to your money and belongings. By planning ahead, you can save family or friends from tough decisions or financial difficulties in the future. This booklet also explains how to arrange for someone to help you if you become unable to look after your finances. 

Cover image of 'Planning ahead for the end of life. England and Wales [in press]'

Planning ahead for the end of life. England and Wales [in press] (November 2019)

Macmillan Cancer Support

This booklet is about some of the ways you can plan ahead and make choices about your future care if you live in England or Wales. It is for anyone who wants to plan ahead, whether they have a serious illness or not. 

Cover image of 'A-Z of leukaemia. A guide for patients'

A-Z of leukaemia. A guide for patients (September 2019)

Leukaemia CARE

This booklet helps to define some of the terms that people may come across when they are diagnosed and treated for a blood cancer. 

Cover image of 'All about leukaemia [Easy read]'

All about leukaemia [Easy read] (September 2019)

Leukaemia CARE

This booklet explains what leukaemia is, what tests you might have, and the different treatments you might get.

Cover image of 'What to expect at the end of someone's life. Information for family, friends and carers'

What to expect at the end of someone's life. Information for family, friends and carers (July 2019)

Marie Curie

This leaflet aims to help you prepare for the end of your partner, relative or friend’s life. Knowing what to expect can help you prepare yourself for their last few weeks and days. 

Cover image of 'Working while caring for someone with cancer'

Working while caring for someone with cancer (April 2019)

Macmillan Cancer Support

This booklet aims to help working carers cope with work issues they may face because of the impact of their caring role on working life. It describes who a carer is, the different ways of caring, and the impact of cancer treatment on the working carer. It has advice about what to say at work, talking to employers, the legal rights of carers in paid work, social care, financial support, and bereavement. Includes details of useful organisations and websites.

Cover image of 'Advance decisions, advance statements and living wills'

Advance decisions, advance statements and living wills (April 2019)

Age UK

This factsheet explains what an advance decision to refuse treatment (often called an advance decision or a ‘living will’) and an advance statement are, why people might want to prepare one or both of them, requirements for drawing them up and ways to ensure other people know they exist. 

Cover image of 'Cancer and dementia. A guide for carers'

Cancer and dementia. A guide for carers (September 2017)

Macmillan Cancer Support

This booklet is about cancer and dementia. It is for anyone who looks after a friend or family member who has both cancer and dementia. Living with two conditions can be very difficult for you and the person you care for. This booklet talks about some of the worries you may have and ways to cope. It also gives practical information about getting help and support.

Cover image of 'Hairy cell leukaemia. A guide for patients'

Hairy cell leukaemia. A guide for patients (April 2018)

Leukaemia CARE

Hairy cell leukaemia (HCL) is a blood cancer that affects the lymphocytic (antibody producing) white blood cells produced by the bone marrow. This booklet describes what causes it, who it affects, how it affects your body, the symptoms and diagnosis, and treatment options. It also covers everyday life and HCL and talking about HCL. Includes a glossary of terms and details of useful contacts and further support.

Cover image of 'Essential thrombocythaemia (ET). A guide for patients'

Essential thrombocythaemia (ET). A guide for patients (April 2018)

Leukaemia CARE

Essential thrombocythaemia (ET) belongs to a group of conditions called myeloproliferative neoplasms (MPNs), which also includes polycythaemia vera and myelofibrosis. ET is a chronic condition that is characterised by too many platelets (blood cells that helps the blood clot) in the blood. This booklet explains what ET is, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments.

Cover image of 'Financial support - benefits [Turkish]'

Financial support - benefits [Turkish] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits.

Cover image of 'Having tests for prostate cancer'

Having tests for prostate cancer (May 2018)

Macmillan Cancer Support

This booklet is for men who may be having tests for prostate cancer; these may be diagnostic (DRE, PSA, PCA3, TRUS, biopsy, MRI) or tests that may be carried out to determine the stage and grade of prostate cancer (Isotope bone scan, X-rays, MRI and CT scans). It also covers issues such as waiting for test results and talking to healthcare staff. Includes a list of questions to ask and details of further support.

Cover image of 'Acute myeloid leukaemia (AML) [Japanese]'

Acute myeloid leukaemia (AML) [Japanese] (August 2018)

Macmillan Cancer Support

A translation of selected pages of the Macmillan Cancer Support booklet "Understanding acute myeloid leukaemia", including what it is, symptoms, treatment, self-care, financial support and follow-up.

Cover image of 'FLAG-Ida for acute myeloid leukaemia (AML). A guide for patients'

FLAG-Ida for acute myeloid leukaemia (AML). A guide for patients (January 2020)

Leukaemia CARE

FLAG-Ida is a combination chemotherapy regimen used in the treatment of acute myeloid leukaemia (AML). It consists of fludarabine, high dose cytarabine (Ara-C0), idarubicin and granulocyte-colony stimulating factor (G-CSF). This booklet explains the drugs, who may be eligible to receive this treatment, how FLAG-Ida is given, and the possible side-effects. Includes a glossary and details of further support and information.

Cover image of 'All about leukaemia [Easy read] [Urdu]'

All about leukaemia [Easy read] [Urdu] (December 2017)

Leukaemia CARE

This booklet explains what leukaemia is, what tests you might have, and the different treatments you might get.

Cover image of 'Making decisions about the future if you are dying'

Making decisions about the future if you are dying (2016)

CHANGE

An easy read booklet about how to plan for your future, including making an Advance Care Plan.  

Cover image of 'Implantable ports [Punjabi]'

Implantable ports [Punjabi] (September 2018)

Macmillan Cancer Support

Implantable ports are often used to give chemotherapy treatment. This factsheet describes what an implantable port is, how it is put in, how it is used, how to care for it, and possible problems.

Cover image of 'Chronic neutrophilic leukaemia (CNL). A guide for patients'

Chronic neutrophilic leukaemia (CNL). A guide for patients (September 2018)

Leukaemia CARE

Chronic neutrophilic leukaemia (CNL) is an extremely rare cancer originating in the bone marrow. Being diagnosed with CNL can be a shock, particularly if you have never heard of it. This booklet has information about CNL: what causes it; who it affects; how it affects your body; symptoms; diagnosis; treatment options. Includes details of further support and information.

Cover image of 'Chronic myeloid leukaemia (CML). A guide for patients'

Chronic myeloid leukaemia (CML). A guide for patients (November 2018)

Leukaemia CARE

Being told that you have chronic myeloid leukaemia (CML) can be a shock. This booklet describes CML, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life and CML and talking about CML. Includes a glossary of terms and details of useful contacts and further support.    

Cover image of 'Central venous access devices. A guide for patients receiving intravenous therapies'

Central venous access devices. A guide for patients receiving intravenous therapies (January 2017)

The Royal Marsden NHS Foundation Trust

This booklet explains what a central venous access device (CVAD) is and describes the advantages and disadvantages of the different types, namely peripherally inserted central catheters (PICCs); skin-tunnelled catheters; and implanted ports.

Cover image of 'If you are diagnosed with cancer – a quick guide [Nepali]'

If you are diagnosed with cancer – a quick guide [Nepali] (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support. 

Cover image of 'All about leukaemia [Easy read] [Welsh]'

All about leukaemia [Easy read] [Welsh] (December 2017)

Leukaemia CARE

This booklet explains what leukaemia is, what tests you might have, and the different treatments you might get.

Cover image of 'Information and advice on skin cancer for patients awaiting an organ transplant'

Information and advice on skin cancer for patients awaiting an organ transplant (February 2017)

British Association of Dermatologists

People who have had an organ transplant are more at risk of developing skin cancer. This leaflet aims to help you reduce your risk by taking good care of your skin in the sun.

Cover image of 'All about leukaemia [Easy read] [Polish]'

All about leukaemia [Easy read] [Polish] (December 2017)

Leukaemia CARE

This booklet explains what leukaemia is, what tests you might have, and the different treatments you might get.

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