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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 382

Cover image of 'Looking after someone. Information and support for carers in England [Gujarati]'

Looking after someone. Information and support for carers in England [Gujarati] ()

Carers UK

This guide is designed to outline your rights as a carer and give an overview of the support available. Includes the English-language version.

Cover image of 'Choosing where to die'

Choosing where to die (2016)

CHANGE

An easy read booklet about the different places you can be looked after in the last few months, weeks or days of your life.  

Cover image of 'High-dose therapy and autologous stem cell transplantation'

High-dose therapy and autologous stem cell transplantation (November 2018)

Myeloma UK

High-dose therapy and stem cell transplantation is a treatment option for many people who have myeloma. This booklet explains what high-dose therapy and stem cell transplantation is, why it is needed, and the advantages and disadvantages of this treatment. It also discusses what will happen during the procedure, what to do on returning home, and feelings and relationships.

Cover image of 'Understanding lymphoedema'

Understanding lymphoedema (August 2018)

Macmillan Cancer Support

This booklet is about lymphoedema. It is for anyone who has lymphoedema, or is at risk of developing it. It may also be helpful for family members, friends or carers. The booklet explains the signs and symptoms of lymphoedema and how you may be able to reduce your risk of it developing. It explains how it is diagnosed and how it may be treated. It also has information about emotional, practical and financial issues.

Cover image of 'The man manual. Men's health made easy'

The man manual. Men's health made easy (February 2019)

Haynes Publishing for Men's Health Forum

One careful owner? With a little care, the high-performance machine that is the male body will run smoothly for a lifetime with just basic maintenance and minimal need for spare parts. The new fully-revised 2019 edition of this easy-to-read handbook will show you how to fine tune your engine, choose the right fuel and keep your mind on the road ahead. There are also brand new interviews with men who've been on the journey and have a tale to tell. (Publisher)

Cover image of 'Caring for carers. A guide for carers'

Caring for carers. A guide for carers (June 2019)

Leukaemia CARE

This booklet for carers discusses the emotions that they may experience when caring for someone with a blood cancer: anxiety; stress; guilt; fear; loneliness; anger. It also looks at dealing with the practicalities of being a carer, including financial support, self employment and legal rights at work.

Cover image of 'Vertebral compression fractures in myeloma'

Vertebral compression fractures in myeloma (September 2019)

Myeloma UK

This Infoguide has information about vertebral compression fractures (VCFs), how and why they occur in myeloma, and how they are treated. It also includes information on two surgical procedures used in the treatment of VCFs: percutaneous vertebroplasty and balloon kyphoplasty. 

Cover image of 'Thinking about your funeral'

Thinking about your funeral (2016)

CHANGE

An easy read booklet about what a funeral is and things you might want to plan for your funeral, such as the music or who should come. 

Cover image of 'Your life and your choices: plan ahead (Northern Ireland)'

Your life and your choices: plan ahead (Northern Ireland) (May 2016)

Macmillan Cancer Support and the Public Health Agency

This spiral-bound booklet is about some of the ways that people with cancer in Northern Ireland can plan ahead and make choices about their future care. It is divided into the following sections: Planning ahead; Making a will; Advance care plans; Enduring power of attorney; Advance decisions to refuse treatment; Organ and tissue donation; Your plans for after you die; Managing your care if you haven't planned ahead; Mental capacity; Further information and support.

Cover image of 'High-grade non-Hodgkin lymphoma'

High-grade non-Hodgkin lymphoma (June 2017)

Lymphoma Action

This booklet aims to help people understand more about the different types of high-grade non-Hodgkin lymphoma. It describes how they typically affect people, the usual treatments, and what people can expect during and after treatment.

Cover image of 'Living with an illness that you will probably die from. Who can help? [Easy read]'

Living with an illness that you will probably die from. Who can help? [Easy read] (June 2019)

Marie Curie

This Easy Read booklet is for people living with an illness that they will probably die from. It tells them about the different people who can help them and care for them.

Cover image of 'Understanding cancer of the pancreas'

Understanding cancer of the pancreas (June 2018)

Macmillan Cancer Support

This booklet has information about the most common type of cancer of the pancreas - adenocarcinoma. It describes the risk factors, causes, symptoms, diagnosis, staging, treatment options and follow-up. It also discusses feelings and self-help and includes details of further support and websites.

Cover image of 'Follow-up after prostate cancer treatment. What happens next?'

Follow-up after prostate cancer treatment. What happens next? (July 2019)

Prostate Cancer UK

This booklet is for men who have had treatment aimed at getting rid of their prostate cancer, such as surgery (radical prostatectomy), radiotherapy or brachytherapy. It describes the care and support men can expect after treatment.

Cover image of 'Looking after someone. Information and support for carers in Northern Ireland'

Looking after someone. Information and support for carers in Northern Ireland (November 2019)

Carers Northern Ireland

Guidance and advice for carers in Northern Ireland. This guide is designed to outline the support available and your rights as a carer. 

Cover image of 'What happens next? A guide for women with a recent diagnosis of ovarian cancer'

What happens next? A guide for women with a recent diagnosis of ovarian cancer (November 2016)

Target Ovarian Cancer

This guide is for women with a recent diagnosis of ovarian cancer. It focuses on the practical and emotional needs in the months following diagnosis and offers advice on where to find support.

Cover image of 'Advanced prostate cancer. Managing symptoms and getting support'

Advanced prostate cancer. Managing symptoms and getting support (March 2017)

Prostate Cancer UK

This booklet is for men who have prostate cancer that has spread to other parts of the body and are experiencing symptoms such as bone pain.

Cover image of 'Getting help at home'

Getting help at home (May 2018)

Age UK

Information on the services available to older people and their carers to enable them to stay in their own home, including local authority social services, voluntary organisations, private care agencies, and the NHS. 

Cover image of 'Living well. After bowel cancer treatment'

Living well. After bowel cancer treatment (August 2019)

Bowel Cancer UK

The information in this booklet is for anyone who has had treatment for bowel cancer. It may also be helpful for family and friends. It describes follow-up care, possible side effects from treatment, and some of the feelings people might have after finishing treatment. It also explains how a healthy lifestyle can help and your rights are work. 

Cover image of 'Looking after someone. Information and support for carers in Wales'

Looking after someone. Information and support for carers in Wales (November 2019)

Carers Wales

Guidance and advice for carers in Wales. This guide sets out what rights carers have and how they can get financial and practical help and support.

Cover image of 'Thinking about end of life. Finding support and getting your affairs in order'

Thinking about end of life. Finding support and getting your affairs in order (May 2018)

Age UK

Thinking about the end of life can be difficult, but being well informed can help people consider all their options at a time that’s right for them. This guide will make suggestions about the options and services available to help people make the best choices. It will explain how to make wishes and treatment preferences known, and help peole consider where they would like to be looked after towards the end of life.

Cover image of 'The next stage. Recovery and adjustment'

The next stage. Recovery and adjustment (June 2019)

Leukaemia CARE

This booklet is for people adjusting to life after diagnosis and treatment of a blood cancer.

Cover image of 'What to expect from your doctor: a guide for patients [large print]'

What to expect from your doctor: a guide for patients [large print] (April 2013)

General Medical Council

This guide explains how to create a partnership with your doctor and get the most out of the consultation.

Cover image of 'If you are dying from cancer'

If you are dying from cancer (2016)

CHANGE

An easy read booklet about how you might feel if you find out your cancer cannot be cured. The booklet talks about things that might help and people who can support you.  

Cover image of 'When someone dies. Practical and emotional help at a difficult time'

When someone dies. Practical and emotional help at a difficult time (March 2019)

Marie Curie

This booklet provides an overview of the practical and emotional issues that may come up when someone close to you dies. 

Cover image of 'Looking after someone. Information and support for carers in Scotland'

Looking after someone. Information and support for carers in Scotland (November 2019)

Carers Scotland

Guidance and advice for carers in Scotland. This guide sets out what rights carers have and how they can get financial and practical help and support.

Cover image of 'Changes that can happen at the end of life'

Changes that can happen at the end of life (2016)

CHANGE

An easy read booklet about symptoms you might have with advanced cancer and things that can help. 

Cover image of 'Going to a funeral when someone dies'

Going to a funeral when someone dies (2016)

CHANGE

An easy read booklet about what a funeral is, what might happen and other ways of remembering someone who has died.  

Cover image of 'Grief and loss when someone dies'

Grief and loss when someone dies (2016)

CHANGE

An easy read booklet explaining what dying is, how you might feel if someone you love dies and where you can get support.  

Cover image of 'Central venous access devices. A guide for patients receiving intravenous therapies'

Central venous access devices. A guide for patients receiving intravenous therapies (January 2017)

The Royal Marsden NHS Foundation Trust

This booklet explains what a central venous access device (CVAD) is and describes the advantages and disadvantages of the different types, namely peripherally inserted central catheters (PICCs); skin-tunnelled catheters; and implanted ports.

Cover image of 'Coping with advanced cancer'

Coping with advanced cancer (January 2019)

Macmillan Cancer Support

This booklet is for people who have cancer that has come back or spread. This is sometimes called advanced cancer. It looks at some of the concerns you may be dealing with and has advice about ways of coping. It also talks about treatments and your feelings and has practical information about getting help and support.

Cover image of 'Caring for someone with an illness they will probably die from. Who can help? [Easy read]'

Caring for someone with an illness they will probably die from. Who can help? [Easy read] (June 2019)

Marie Curie

Marie Curie has written this Easy Read booklet to tell you about the different people who can help if you are caring for someone with an illness they will probably die from.

Cover image of 'Looking after someone with cancer'

Looking after someone with cancer (May 2019)

Macmillan Cancer Support

This booklet is about looking after someone who has cancer. It explains: what it means to be a carer; who can help support you and the person you care for; the practical, emotional and financial issues you may face, and how to cope with them; ways you can help the person you care for manage symptoms or side effects; how to look after yourself.

Cover image of 'Life after cancer treatment'

Life after cancer treatment (June 2017)

Macmillan Cancer Support

This booklet is for people who are preparing for life after treatment. It has information on follow-up care, managing treatment effects and making healthy lifestyle changes.

Cover image of 'How you may feel when someone dies'

How you may feel when someone dies (2016)

CHANGE

An easy read booklet that explains grief and talks about the different emotions or changes you might experience if someone you love dies. There is also information about where to get support. 

Cover image of 'Getting care and planning for the future. Information for LGBTQ+ people affected by terminal illness, and their family and friends'

Getting care and planning for the future. Information for LGBTQ+ people affected by terminal illness, and their family and friends (November 2019)

Marie Curie

Living with a terminal illness and getting the best care and support can be challenging for everyone. We all have individual needs and will have different experiences. Being LGBTQ+ may mean that you have specific concerns or questions about getting the care and support you need. In this booklet, we explain the care and support that’s available. We also answer questions you might have, such as how you can plan ahead and make decisions for the future.

Cover image of 'How will a colostomy affect me? Information for patients before stoma surgery'

How will a colostomy affect me? Information for patients before stoma surgery (August 2019)

Colostomy UK

This booklet seeks to answer the many questions and concerns that patietns or a family member or carer might have about a colostomy. 

Cover image of 'Pain and myeloma'

Pain and myeloma (June 2017)

Myeloma UK

This Infoguide aims to help you understand what pain is, the different types of pain and causes of pain in myeloma patients. It provides information on the different methods of pain treatment available, and gives guidance on non-medical strategies that may help to improve your pain and make living with pain a little easier.

Cover image of 'Caring for someone with an illness they will probably die from. Money and work [Easy read]'

Caring for someone with an illness they will probably die from. Money and work [Easy read] (June 2019)

Marie Curie

Marie Curie has written this Easy Read booklet to help you think about money and work if you are caring for someone with an illness they will probably die from.

Cover image of 'Help with the cost of cancer in England, Scotland, Wales and Northern Ireland'

Help with the cost of cancer in England, Scotland, Wales and Northern Ireland (April 2019)

Macmillan Cancer Support

This easy to use booklet contains up-to-date information about benefits and other sources of financial help for people affected by cancer.

Cover image of 'Being cared for at home [Welsh]'

Being cared for at home [Welsh] (October 2018)

Marie Curie

This booklet is for people living with a terminal illness, and their family and friends. Inside you’ll find information about the care and support that’s available for you at home. 

Cover image of 'Having a syringe driver'

Having a syringe driver (December 2019)

Marie Curie

This leaflet explains why you might have a syringe driver, how it works and things to look out for. 

Cover image of 'Living with an illness that you will probably die from. Work, money and getting the best out of life [Easy read]'

Living with an illness that you will probably die from. Work, money and getting the best out of life [Easy read] (June 2019)

Marie Curie

This Easy Read booklet is for people living with an illness that they will probably die from. It tells them about work, money and benefits.

Cover image of 'If your prostate cancer comes back. A guide to treatment and support'

If your prostate cancer comes back. A guide to treatment and support (July 2019)

Prostate Cancer UK

This booklet is for men who are worried that their prostate cancer might come back, or whose cancer has recurred after one or more treatments. It describes why prostate cancer might come back, the treatment options, and how to get support. It has space to record the names and contact details of the health professionals involved in ongoing care, details of appointments, and results of PSA tests. Includes a glossary.

Cover image of 'Managing pain. A guide for people living with a terminal illness and their carers'

Managing pain. A guide for people living with a terminal illness and their carers (May 2018)

Marie Curie

If you’re living with a terminal illness, or caring for someone who is, you may be worried about pain. This booklet explains what causes pain and how it can be effectively managed. 

Cover image of 'Caring for a person with a stoma and dementia'

Caring for a person with a stoma and dementia (December 2017)

Colostomy UK

Teaching a person with dementia how to care for their stoma is not possible in all cases, but where it is possible, attempts should be made to encourage them. The level of independence achievable will vary. A person with dementia may benefit from extra time and repetition of the tips in this booklet, which were suggested by healthcare professionals who have been actively involved in the care of ostomates with dementia.

Cover image of 'Acute myeloid leukaemia (AML) [Japanese]'

Acute myeloid leukaemia (AML) [Japanese] (August 2018)

Macmillan Cancer Support

A translation of selected pages of the Macmillan Cancer Support booklet "Understanding acute myeloid leukaemia", including what it is, symptoms, treatment, self-care, financial support and follow-up.

Cover image of 'A guide for people with dementia'

A guide for people with dementia (September 2017)

Macmillan Cancer Support|Dementia UK

Some people who have cancer also have dementia. Having both conditions can be difficult for you and the people close to you. The number of people living with both cancer and dementia is growing. We have written this booklet to give people information about living with both conditions and tell people where they may be able to get help.

Cover image of 'Osteonecrosis of the jaw (ONJ)'

Osteonecrosis of the jaw (ONJ) (February 2019)

Myeloma UK

This factsheet has information about osteonecrosis of the jaw (ONJ), a rare condition that can occur during long-term treatment of myeloma with bisphosphonates.It describes bisphosphonates, why they are linked to ONJ, the risk factors for ONJ, its symptoms, and how it is treated and managed. Includes self-care tips to reduce the risk of ONJ.

Cover image of 'Understanding risk-reducing breast surgery'

Understanding risk-reducing breast surgery (October 2018)

Macmillan Cancer Support

This booklet is for anyone who is thinking about having risk-reducing breast surgery. You may consider this if you have a high risk of developing breast cancer. This is usually because you have a strong family history of breast cancer. The booklet explains what risk-reducing breast surgery is and what it involves. It talks about the different options for risk-reducing breast surgery. There is information about the benefits, limitations and risks of each type of surgery. We also talk about some physical and emotional issues you may experience, and ways to cope with these. We have included photographs of women who have had breast reconstruction after risk-reducing surgery. This is to help show how a reconstruction may look.

Cover image of '12 ways to reduce your cancer risk. An easy guide to the European Code Against Cancer'

12 ways to reduce your cancer risk. An easy guide to the European Code Against Cancer (January 2017)

Cancer Focus Northern Ireland

Information to help you to lower your risk of cancer and improve your health.

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