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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 367

Cover image of 'Understanding lymphoedema'

Understanding lymphoedema (August 2018)

Macmillan Cancer Support

This booklet is about lymphoedema. It is for anyone who has lymphoedema, or is at risk of developing it. It may also be helpful for family members, friends or carers. The booklet explains the signs and symptoms of lymphoedema and how you may be able to reduce your risk of it developing. It explains how it is diagnosed and how it may be treated. It also has information about emotional, practical and financial issues.

Cover image of 'Holistic needs assessment. Planning your care and support'

Holistic needs assessment. Planning your care and support (May 2017)

Macmillan Cancer Support

This booklet explains what assessment and care planning is and describes what to expect from the appointment, where and when the appointment may take place, and how to prepare for the appointment.

Cover image of 'Caring for someone who has lymphoma'

Caring for someone who has lymphoma (April 2018)

Lymphoma Action

A carer is someone who looks after a person with an illness or disability without getting paid for it. You are a carer if you’re looking after a relative or a friend with lymphoma. This factsheet outlines the kind of help a carer might provide and lists sources of specialist support available to carers. Contents: Am I a carer?; Offering emotional support; Offering practical support; What if someone doesn’t accept help?; Emotional impact of being a carer; Emotional support for you as a care; Practical support for you as a carer.

Cover image of 'Looking after someone. Information and support for carers in England [Gujarati]'

Looking after someone. Information and support for carers in England [Gujarati] (October 2018)

Carers UK

This guide is designed to outline your rights as a carer and give an overview of the support available. Includes the English-language version.

Cover image of 'Primary peritoneal cancer'

Primary peritoneal cancer (December 2018)

Ovacome

This factsheet has information on primary peritoneal cancer, a rare variant of ovarian cancer. It describes what primary peritoneal cancer is, the signs and symptoms, diagnosis, treatment - surgery and chemotherapy - and follow-up care.

Cover image of 'Cancer awareness in the Muslim community [Urdu]'

Cancer awareness in the Muslim community [Urdu] (September 2014)

Sheffield Hallam University. Centre for Health and Social Care Research

The aim of this leaflet is to improve cancer awareness amongst the Muslim community in the UK.

Cover image of 'Thinking about end of life. Finding support and getting your affairs in order'

Thinking about end of life. Finding support and getting your affairs in order (May 2018)

Age UK

Thinking about the end of life can be difficult, but being well informed can help people consider all their options at a time that’s right for them. This guide will make suggestions about the options and services available to help people make the best choices. It will explain how to make wishes and treatment preferences known, and help peole consider where they would like to be looked after towards the end of life.

Cover image of 'Your support and follow-up care.'

Your support and follow-up care. (October 2016)

Macmillan Cancer Support

This leaflet is about how you can take an active role in your care. It describes types of support that your healthcare team may call the Recovery Package. This leaflet looks at: some of the support you can ask for after a cancer diagnosis; what options may be available to you for your follow-up care, and what information you need; ways you can look after yourself.

Cover image of 'Getting ready to die'

Getting ready to die (2016)

CHANGE

An easy read booklet about things you might want to think if you will not get better from cancer. For example, things you want to do before you die, people you want to see and things you want to remember and think about.  

Cover image of 'Choosing where to die'

Choosing where to die (2016)

CHANGE

An easy read booklet about the different places you can be looked after in the last few months, weeks or days of your life.  

Cover image of 'The cancer guide'

The cancer guide (August 2018)

Macmillan Cancer Support

This booklet is for people living with cancer, and their family, friends and carers. It aims to help you understand what cancer means and what to expect. It also explains where you can get more information and support.

Cover image of 'Dealing with diagnosis'

Dealing with diagnosis (April 2015)

AMEND (Association for Multiple Endocrine Neoplasia Disorders)

This leaflet is for people recently diagnosed with a multiple enodcrine neoplasia. It covers what MEN is, the feelings that people may experience, becoming an active member of your own care team and other sources of help and support.

Cover image of 'The end of life'

The end of life (2016)

CHANGE

An easy read booklet about what happens to your body and how you might feel during the last few days of life. 

Cover image of 'Adrenal gland surgery'

Adrenal gland surgery (2016)

AMEND (Association for Multiple Endocrine Neoplasia Disorders)

Information for anyone who may be about to have surgery to remove an adrenal gland. This leaflet explains what an adrenal gland is, why an operation may be needed, and who should care for you during your treatment.

Cover image of 'Caring for a person with a stoma and dementia'

Caring for a person with a stoma and dementia (December 2017)

Colostomy UK

Teaching a person with dementia how to care for their stoma is not possible in all cases, but where it is possible, attempts should be made to encourage them. The level of independence achievable will vary. A person with dementia may benefit from extra time and repetition of the tips in this booklet, which were suggested by healthcare professionals who have been actively involved in the care of ostomates with dementia.

Cover image of 'Advance decisions, advance statements and living wills'

Advance decisions, advance statements and living wills (April 2019)

Age UK

This factsheet explains what an advance decision to refuse treatment (often called an advance decision or a ‘living will’) and an advance statement are, why people might want to prepare one or both of them, requirements for drawing them up and ways to ensure other people know they exist. 

Cover image of 'Your life and your choices: plan ahead (Northern Ireland)'

Your life and your choices: plan ahead (Northern Ireland) (May 2016)

Macmillan Cancer Support and the Public Health Agency

This spiral-bound booklet is about some of the ways that people with cancer in Northern Ireland can plan ahead and make choices about their future care. It is divided into the following sections: Planning ahead; Making a will; Advance care plans; Enduring power of attorney; Advance decisions to refuse treatment; Organ and tissue donation; Your plans for after you die; Managing your care if you haven't planned ahead; Mental capacity; Further information and support.

Cover image of 'What happens next? A guide for women with a recent diagnosis of ovarian cancer'

What happens next? A guide for women with a recent diagnosis of ovarian cancer (November 2016)

Target Ovarian Cancer

This guide is for women with a recent diagnosis of ovarian cancer. It focuses on the practical and emotional needs in the months following diagnosis and offers advice on where to find support.

Cover image of 'Financial support - benefits [Turkish]'

Financial support - benefits [Turkish] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits.

Cover image of 'Eating problems and cancer'

Eating problems and cancer (August 2017)

Macmillan Cancer Support

During and after cancer treatment, many people can experience eating problems. This may be as a result of treatment or the cancer itself. This booklet highlights some common eating problems and why they may happen and suggest some practical ways to manage them.

Cover image of 'How will a colostomy affect me? Information for patients before stoma surgery'

How will a colostomy affect me? Information for patients before stoma surgery (February 2018)

Colostomy UK

This booklet seeks to answer the many questions and concerns that patietns or a family member or carer might have about a colostomy. 

Cover image of 'What to expect from your doctor: a guide for patients [large print]'

What to expect from your doctor: a guide for patients [large print] (April 2013)

General Medical Council

This guide explains how to create a partnership with your doctor and get the most out of the consultation.

Cover image of 'Getting help at home'

Getting help at home (May 2018)

Age UK

Information on the services available to older people and their carers to enable them to stay in their own home, including local authority social services, voluntary organisations, private care agencies, and the NHS. 

Cover image of 'Thinking about your funeral'

Thinking about your funeral (2016)

CHANGE

An easy read booklet about what a funeral is and things you might want to plan for your funeral, such as the music or who should come. 

Cover image of 'Caring for carers. A guide for carers'

Caring for carers. A guide for carers (June 2019)

Leukaemia CARE

This booklet for carers discusses the emotions that they may experience when caring for someone with a blood cancer: anxiety; stress; guilt; fear; loneliness; anger. It also looks at dealing with the practicalities of being a carer, including financial support, self employment and legal rights at work.

Cover image of 'Living with an illness that you will probably die from. Work, money and getting the best out of life [Easy read]'

Living with an illness that you will probably die from. Work, money and getting the best out of life [Easy read] (June 2017)

Marie Curie

This Easy Read booklet is for people living with an illness that they will probably die from. It tells them about work, money and benefits.

Cover image of 'Your life and your choices: plan ahead'

Your life and your choices: plan ahead (April 2015)

Macmillan Cancer Support

This booklet is about some of the ways that people with cancer in England can plan ahead and make choices about their future care.

Cover image of 'A guide for people with dementia'

A guide for people with dementia (September 2017)

Macmillan Cancer Support|Dementia UK

Some people who have cancer also have dementia. Having both conditions can be difficult for you and the people close to you. The number of people living with both cancer and dementia is growing. We have written this booklet to give people information about living with both conditions and tell people where they may be able to get help.

Cover image of 'Implantable ports [Punjabi]'

Implantable ports [Punjabi] (September 2018)

Macmillan Cancer Support

Implantable ports are often used to give chemotherapy treatment. This factsheet describes what an implantable port is, how it is put in, how it is used, how to care for it, and possible problems.

Cover image of 'Travel and cancer'

Travel and cancer (April 2017)

Macmillan Cancer Support

This booklet is for people with cancer who would like to travel. It covers issues such as insurance, vaccinations and immunisations, avoiding health problems, taking care in the sun, taking medicines abroad, and stoma care. Includes details of useful organisations.

Cover image of 'If you are diagnosed with cancer – a quick guide [Bulgarian]'

If you are diagnosed with cancer – a quick guide [Bulgarian] (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support.

Cover image of 'Help with the cost of cancer in England, Scotland, Wales and Northern Ireland'

Help with the cost of cancer in England, Scotland, Wales and Northern Ireland (April 2019)

Macmillan Cancer Support

This easy to use booklet contains up-to-date information about benefits and other sources of financial help for people affected by cancer.

Cover image of 'Follow-up after prostate cancer treatment. What happens next?'

Follow-up after prostate cancer treatment. What happens next? (July 2019)

Prostate Cancer UK

This booklet is for men who have had treatment aimed at getting rid of their prostate cancer, such as surgery (radical prostatectomy), radiotherapy or brachytherapy. It describes the care and support men can expect after treatment.

Cover image of 'Understanding cancer of the pancreas'

Understanding cancer of the pancreas (June 2018)

Macmillan Cancer Support

This booklet has information about the most common type of cancer of the pancreas - adenocarcinoma. It describes the risk factors, causes, symptoms, diagnosis, staging, treatment options and follow-up. It also discusses feelings and self-help and includes details of further support and websites.

Cover image of 'Who can help if you are dying'

Who can help if you are dying (2016)

CHANGE

An easy read booklet about the different people who can support you if you are dying and what they can help with.  

Cover image of 'The next stage. Recovery and adjustment'

The next stage. Recovery and adjustment (June 2019)

Leukaemia CARE

This booklet is for people adjusting to life after diagnosis and treatment of a blood cancer.

Cover image of 'The man manual. Men's health made easy'

The man manual. Men's health made easy (February 2019)

Haynes Publishing for Men's Health Forum

One careful owner? With a little care, the high-performance machine that is the male body will run smoothly for a lifetime with just basic maintenance and minimal need for spare parts. The new fully-revised 2019 edition of this easy-to-read handbook will show you how to fine tune your engine, choose the right fuel and keep your mind on the road ahead. There are also brand new interviews with men who've been on the journey and have a tale to tell. (Publisher)

Cover image of 'Central venous access devices. A guide for patients receiving intravenous therapies'

Central venous access devices. A guide for patients receiving intravenous therapies (January 2017)

The Royal Marsden NHS Foundation Trust

This booklet explains what a central venous access device (CVAD) is and describes the advantages and disadvantages of the different types, namely peripherally inserted central catheters (PICCs); skin-tunnelled catheters; and implanted ports.

Cover image of '10 top tips'

10 top tips (March 2018)

Target Ovarian Cancer|Macmillan Cancer Support

This set of ten tips was developed by a workshop group comprising people affected by ovarian cancer and GPs. It aims to help women get the best out of a visit to their GP if they are concerned about symptoms.

Cover image of 'Acute myeloid leukaemia (AML) [Japanese]'

Acute myeloid leukaemia (AML) [Japanese] (August 2018)

Macmillan Cancer Support

A translation of selected pages of the Macmillan Cancer Support booklet "Understanding acute myeloid leukaemia", including what it is, symptoms, treatment, self-care, financial support and follow-up.

Cover image of 'Life after cancer treatment'

Life after cancer treatment (June 2017)

Macmillan Cancer Support

This booklet is for people who are preparing for life after treatment. It has information on follow-up care, managing treatment effects and making healthy lifestyle changes.

Cover image of 'Advanced prostate cancer. Managing symptoms and getting support'

Advanced prostate cancer. Managing symptoms and getting support (March 2017)

Prostate Cancer UK

This booklet is for men who have prostate cancer that has spread to other parts of the body and are experiencing symptoms such as bone pain.

Cover image of 'Chemotherapy for lung cancer. Understanding chemotherapy'

Chemotherapy for lung cancer. Understanding chemotherapy (July 2014)

Roy Castle Lung Cancer Foundation

This factsheet describes chemotherapy for small-cell and non-small-cell lung cancer and covers the following topics: anxiety (fear of needles); what happens during treatment; practical advice for dealing with side-effects (tiredness, sickness and nausea, mouth ulcers, hair loss, infection, diarrhoea, constipation, bruising or bleeding); diet during chemotherapy; and how doctors know if chemotherapy is working.

Cover image of 'If you are dying from cancer'

If you are dying from cancer (2016)

CHANGE

An easy read booklet about how you might feel if you find out your cancer cannot be cured. The booklet talks about things that might help and people who can support you.  

Cover image of 'Understanding risk-reducing breast surgery'

Understanding risk-reducing breast surgery (October 2018)

Macmillan Cancer Support

This booklet is for anyone who is thinking about having risk-reducing breast surgery. You may consider this if you have a high risk of developing breast cancer. This is usually because you have a strong family history of breast cancer. The booklet explains what risk-reducing breast surgery is and what it involves. It talks about the different options for risk-reducing breast surgery. There is information about the benefits, limitations and risks of each type of surgery. We also talk about some physical and emotional issues you may experience, and ways to cope with these. We have included photographs of women who have had breast reconstruction after risk-reducing surgery. This is to help show how a reconstruction may look.

Cover image of 'Sorting out your financial affairs'

Sorting out your financial affairs (June 2017)

Macmillan Cancer Support

This booklet will help people affected by cancer to plan for a time when they may not be able to manage their own financial affairs. 

Cover image of 'Grief and loss when someone dies'

Grief and loss when someone dies (2016)

CHANGE

An easy read booklet explaining what dying is, how you might feel if someone you love dies and where you can get support.  

Cover image of 'End of life: a guide.'

End of life: a guide. (September 2015)

Macmillan Cancer Support

This booklet explains what happens at the end of life and how to plan for it. It gives information for people who would like to be looked after at home during the final stages of their life, and also has information for relatives and close friends.

Cover image of 'Dying: a guide for prisoners  in England and Wales'

Dying: a guide for prisoners in England and Wales (June 2015)

Macmillan Cancer Support

This booklet is for prisoners with cancer who are likely to die within a few months. It may also be useful for prisoners who are dying from other diseases. It discusses what is likely to happen, how you may feel and what support you may need. There is also information about what happens after death and the support available for family and friends.

Cover image of 'Going to a funeral when someone dies'

Going to a funeral when someone dies (2016)

CHANGE

An easy read booklet about what a funeral is, what might happen and other ways of remembering someone who has died.  

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