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Publications directory

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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 418

Cover image of 'Explaining the NICE guidelines for diagnosing and managing pancreatic cancer'

Explaining the NICE guidelines for diagnosing and managing pancreatic cancer (August 2018)

Pancreatic Cancer UK

The National Institute for Health and Care Excellence (NICE) has produced guidelines for health professionals diagnosing and caring for people with pancreatic cancer. These guidelines are for the most common type of pancreatic cancer, pancreatic ductal adenocarcinoma. Health professionals don’t have to follow these guidelines, but they must take them into account when making decisions about care. They should also take your needs and wishes into account.

Cover image of 'Secondary breast cancer in the bone'

Secondary breast cancer in the bone (March 2018)

Breast Cancer Care

A booklet for people who have been diagnosed with secondary cancer in the bones that has spread from the breast. It describes what secondary breast cancer in the bone is, the symptoms, and the investigations. It also describes the treatment options, but not in great detail. Lists useful organisations.

Cover image of 'If you are diagnosed with cancer – a quick guide'

If you are diagnosed with cancer – a quick guide (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support.  

Cover image of 'Clinical diagnosis'

Clinical diagnosis (November 2019)

Orchid – Fighting Male Cancer

This leaflet has information about how testicular cancer is diagnosed and treated, including prosthesis and possible complications, and care after surgery. It also describes staging and the different types of testicular cancer.

Cover image of 'Holistic needs assessment. Planning your care and support'

Holistic needs assessment. Planning your care and support (May 2017)

Macmillan Cancer Support

This booklet explains what assessment and care planning is and describes what to expect from the appointment, where and when the appointment may take place, and how to prepare for the appointment.

Cover image of 'Fallopian tube cancer'

Fallopian tube cancer (December 2018)

Ovacome

This factsheet has about fallopian tube cancer. It describes what fallopian tube cancer is, the risk factors, symptoms, diagnostic tests, treatment options (surgery, chemotherapy), and follow-up care.

Cover image of 'Primary peritoneal cancer'

Primary peritoneal cancer (December 2018)

Ovacome

This factsheet has information on primary peritoneal cancer, a rare variant of ovarian cancer. It describes what primary peritoneal cancer is, the signs and symptoms, diagnosis, treatment - surgery and chemotherapy - and follow-up care.

Cover image of 'Breast awareness and screening'

Breast awareness and screening (May 2017)

Action Cancer

This leaflet describes when and how to check the breasts for changes and what to look for. It briefly explains what a mammogram is. Contains information on local services and describes the work of Action Cancer in Northern Ireland.

Cover image of 'My care, my future. A guide for women living with incurable ovarian cancer'

My care, my future. A guide for women living with incurable ovarian cancer (May 2017)

Target Ovarian Cancer

This guide has been written to help women deal with the challenges of living with ovarian cancer that is terminal.

Cover image of 'Understanding lymphoedema'

Understanding lymphoedema (August 2018)

Macmillan Cancer Support

This booklet is about lymphoedema. It is for anyone who has lymphoedema, or is at risk of developing it. It may also be helpful for family members, friends or carers. The booklet explains the signs and symptoms of lymphoedema and how you may be able to reduce your risk of it developing. It explains how it is diagnosed and how it may be treated. It also has information about emotional, practical and financial issues.

Cover image of 'Your life and your choices: plan ahead (Northern Ireland)'

Your life and your choices: plan ahead (Northern Ireland) (May 2016)

Macmillan Cancer Support and the Public Health Agency

This spiral-bound booklet is about some of the ways that people with cancer in Northern Ireland can plan ahead and make choices about their future care. It is divided into the following sections: Planning ahead; Making a will; Advance care plans; Enduring power of attorney; Advance decisions to refuse treatment; Organ and tissue donation; Your plans for after you die; Managing your care if you haven't planned ahead; Mental capacity; Further information and support.

Cover image of 'Having a syringe driver'

Having a syringe driver (December 2019)

Marie Curie

This leaflet explains why you might have a syringe driver, how it works and things to look out for. 

Cover image of 'Complementary therapy'

Complementary therapy (June 2019)

Lymphoma Action

This factsheet describes complementary therapies and how they may be used in lymphoma. It has brief information about the different types (acupuncture, aromatherapy, art therapy, chiropractic care, massage, mindfulness, music therapy, tai chi and yoga), and also looks at choosing a complementary therapy, finding a practitioner, the availability of complementary therapy and regulation.

Cover image of 'Patient guide. Receiving diagnosis after biopsy'

Patient guide. Receiving diagnosis after biopsy (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'Expectations of care for patients with an ileal conduit (urostomy) in the primary care setting'

Expectations of care for patients with an ileal conduit (urostomy) in the primary care setting (November 2017)

Urostomy Association

Guidelines for people with an ileal conduit (urostomy) in the event of problems such as urinary tract infections, bleeding, discharge, a hernia or sore skin.

Cover image of 'Palbociclib with fulvestrant for treating hormone receptor-positive, HER2-negative, advanced breast cancer. Information for the public'

Palbociclib with fulvestrant for treating hormone receptor-positive, HER2-negative, advanced breast cancer. Information for the public ()

National Institute for Health and Care Excellence (NICE)

Information about palbociclib (Ibrance), with fulvestrant, which is available through the Cancer Drugs Fund, and which may be used to treat hormone receptor-positive, HER2-negative, advanced breast cancer.

Cover image of 'Grief and loss when someone dies'

Grief and loss when someone dies (2016)

CHANGE

An easy read booklet explaining what dying is, how you might feel if someone you love dies and where you can get support.  

Cover image of 'A guide for people with cancer and dementia'

A guide for people with cancer and dementia (September 2017)

Macmillan Cancer Support|Dementia UK

Some people who have cancer also have dementia. Having both conditions can be difficult for you and the people close to you. The number of people living with both cancer and dementia is growing. We have written this booklet to give people information about living with both conditions and tell people where they may be able to get help.

Cover image of 'Getting care and planning for the future. Information for LGBTQ+ people affected by terminal illness, and their family and friends'

Getting care and planning for the future. Information for LGBTQ+ people affected by terminal illness, and their family and friends (November 2019)

Marie Curie

Living with a terminal illness and getting the best care and support can be challenging for everyone. We all have individual needs and will have different experiences. Being LGBTQ+ may mean that you have specific concerns or questions about getting the care and support you need. In this booklet, we explain the care and support that’s available. We also answer questions you might have, such as how you can plan ahead and make decisions for the future.

Cover image of 'Signs and symptoms of cancer and how to reduce your risk'

Signs and symptoms of cancer and how to reduce your risk (March 2017)

Macmillan Cancer Support

This leaflet explains how to recognise the early signs of cancer and how to reduce the risk. It describes the symptoms to look out for (unexplained bleeding, weight loss, lumps, pain) and how to reduce the risk by making lifestyle changes (smoking, diet, exercise, alcohol drinking and taking care in the sun).

Cover image of 'The emotional impact of a blood cancer. A guide for patients'

The emotional impact of a blood cancer. A guide for patients (October 2018)

Leukaemia CARE

This booklet describes some of the more challenging emotional responses you may experience as you adjust to life following a diagnosis of blood cancer. It must be noted that this information is mainly written in the context of acute leukaemia and is for those who are receiving intensive treatment. However, anyone with a blood cancer diagnosis may find this information useful.

Cover image of 'Thinking about your funeral'

Thinking about your funeral (2016)

CHANGE

An easy read booklet about what a funeral is and things you might want to plan for your funeral, such as the music or who should come. 

Cover image of 'Autologous stem cell transplant'

Autologous stem cell transplant (November 2016)

Lymphoma Action

This booklet describes autologous stem cell transplant in detail. 

Cover image of 'Planning ahead. An infopack for myeloma patients.'

Planning ahead. An infopack for myeloma patients. (February 2018)

Myeloma UK

This pack, produced with support from Marie Curie, covers the key questions and topics that myeloma patients may want to know more about when considering end of life. Topics include: why planning ahead can be beneficial; what to expect when myeloma treatment is no longer an option; what is likely to happen as the end of life draws near; choosing where to be looked after; and getting your affairs in order. 

Cover image of 'How to check your lymph nodes'

How to check your lymph nodes (November 2015)

Wessex Cancer Trust

This leaflet has been written for people who wish to check their lymph nodes between clinic appointments. It describes the lymphatic system and uses illustrations to explain how to check lymph nodes in the head and neck, in the armpit, and in the groin.

Cover image of 'How will a colostomy affect me? Information for patients before stoma surgery'

How will a colostomy affect me? Information for patients before stoma surgery (August 2019)

Colostomy UK

This booklet seeks to answer the many questions and concerns that patietns or a family member or carer might have about a colostomy. 

Cover image of 'Expectations of care for patients with a neobladder in the primary care setting'

Expectations of care for patients with a neobladder in the primary care setting (November 2017)

Urostomy Association

Guidelines for people with a neobladder in the event of problems with neobladder function, urinary tract infections, or bleeding.

Cover image of 'Targeted therapies for lung cancer'

Targeted therapies for lung cancer (February 2019)

Roy Castle Lung Cancer Foundation

If you or someone you care for has lung cancer, and targeted therapy is a possible treatment, then it’s almost certain that you will have a lot of questions. We have produced this booklet in partnership with lung cancer experts and people affected by lung cancer to help you make positive, informed choices about your care and treatment.

Cover image of 'Breast care for women'

Breast care for women (August 2019)

Macmillan Cancer Support|CHANGE

An easy read booklet about breast cancer, how to check your breasts, changes to look for and breast screening. 

Cover image of 'Things to do before you die'

Things to do before you die (2020)

Hospice UK|Dying Matters

Things to think through so that you and your loved ones will have fewer things to worry about when you are dying: make a will; make a funeral plan; start planning for your future care and support; kake your thoughts on organ donation known; manage your digital legacy; make sure your loved ones know your plans.

Cover image of 'Getting ready to die'

Getting ready to die (2016)

CHANGE

An easy read booklet about things you might want to think if you will not get better from cancer. For example, things you want to do before you die, people you want to see and things you want to remember and think about.  

Cover image of 'The cancer guide'

The cancer guide (August 2018)

Macmillan Cancer Support

This booklet is for people living with cancer, and their family, friends and carers. It aims to help you understand what cancer means and what to expect. It also explains where you can get more information and support.

Cover image of 'Caring for someone who has lymphoma'

Caring for someone who has lymphoma (April 2018)

Lymphoma Action

A carer is someone who looks after a person with an illness or disability without getting paid for it. You are a carer if you’re looking after a relative or a friend with lymphoma. This factsheet outlines the kind of help a carer might provide and lists sources of specialist support available to carers. Contents: Am I a carer?; Offering emotional support; Offering practical support; What if someone doesn’t accept help?; Emotional impact of being a carer; Emotional support for you as a care; Practical support for you as a carer.

Cover image of 'Managing pain. A guide for people living with a terminal illness and their carers'

Managing pain. A guide for people living with a terminal illness and their carers (May 2018)

Marie Curie

If you’re living with a terminal illness, or caring for someone who is, you may be worried about pain. This booklet explains what causes pain and how it can be effectively managed. 

Cover image of 'Follow-up after prostate cancer treatment. What happens next?'

Follow-up after prostate cancer treatment. What happens next? (July 2019)

Prostate Cancer UK

This booklet is for men who have had treatment aimed at getting rid of their prostate cancer, such as surgery (radical prostatectomy), radiotherapy or brachytherapy. It describes the care and support men can expect after treatment.

Cover image of 'Living with a terminal illness. Support for you and those close to you'

Living with a terminal illness. Support for you and those close to you (April 2019)

Marie Curie

This booklet aims to help you understand your feelings and gives information about how to live well and get the most from your time. It’s divided into short chapters so you can read through it at your own pace. People caring for someone who is living with a terminal illness may also find this information useful. 

Cover image of 'What happens next? A guide for women with a recent diagnosis of ovarian cancer'

What happens next? A guide for women with a recent diagnosis of ovarian cancer (November 2016)

Target Ovarian Cancer

This guide is for women with a recent diagnosis of ovarian cancer. It focuses on the practical and emotional needs in the months following diagnosis and offers advice on where to find support.

Cover image of 'The end of life'

The end of life (2016)

CHANGE

An easy read booklet about what happens to your body and how you might feel during the last few days of life. 

Cover image of 'Living with a terminal illness. Support for you and those close to you [Welsh]'

Living with a terminal illness. Support for you and those close to you [Welsh] (April 2019)

Marie Curie

This booklet aims to help you understand your feelings and gives information about how to live well and get the most from your time. It’s divided into short chapters so you can read through it at your own pace. People caring for someone who is living with a terminal illness may also find this information useful. 

Cover image of 'Feel more like you. Expert advice on caring for your skin, nails and hair during cancer treatment'

Feel more like you. Expert advice on caring for your skin, nails and hair during cancer treatment (September 2019)

Macmillan Cancer Support

This booklet explains how certain cancer treatments can cause changes to your appearance. It is for people who have had changes to their skin, nails and hair because of cancer treatment. It gives advice on how to manage these changes to help you feel more like you again. We hope it helps you deal with some of the questions or feelings you may have. 

Cover image of 'Being there for someone with a terminal illness. Practical and emotional support for carers'

Being there for someone with a terminal illness. Practical and emotional support for carers (April 2019)

Marie Curie

This booklet is for anyone providing care and support for someone living with a terminal illness. It includes details on day-to-day caring, your rights as a carer and how to access professional support. It also focuses on the emotional impact of caring and how to look after your own wellbeing. 

Cover image of 'Skin care for people with lymphoedema'

Skin care for people with lymphoedema (May 2016)

Lymphoedema Support Network

This leaflet explains why skin care is important for people with lymphoedema and gives general advice on skin care, including the use of emollients. It also covers special problems that can occur in lymphoedema, such as dermatitis, fungal infections and lymphorrhoea.

Cover image of 'Advanced prostate cancer. Managing symptoms and getting support'

Advanced prostate cancer. Managing symptoms and getting support (March 2017)

Prostate Cancer UK

This booklet is for men who have prostate cancer that has spread to other parts of the body and are experiencing symptoms such as bone pain.

Cover image of '12 ways to reduce your cancer risk. An easy guide to the European Code Against Cancer'

12 ways to reduce your cancer risk. An easy guide to the European Code Against Cancer (January 2017)

Cancer Focus Northern Ireland

Information to help you to lower your risk of cancer and improve your health.

Cover image of 'The next stage. Recovery and adjustment'

The next stage. Recovery and adjustment (June 2019)

Leukaemia CARE

This booklet is for people adjusting to life after diagnosis and treatment of a blood cancer.

Cover image of 'Going home from hospital'

Going home from hospital (March 2019)

Macmillan Cancer Support

This booklet explains how care and support is arranged for people with cancer when they are discharged from hospital.

Cover image of 'Looking after someone. Information and support for carers in England [Gujarati]'

Looking after someone. Information and support for carers in England [Gujarati] (October 2018)

Carers UK

This guide is designed to outline your rights as a carer and give an overview of the support available. Includes the English-language version.

Cover image of 'Living well. After bowel cancer treatment'

Living well. After bowel cancer treatment (August 2019)

Bowel Cancer UK

The information in this booklet is for anyone who has had treatment for bowel cancer. It may also be helpful for family and friends. It describes follow-up care, possible side effects from treatment, and some of the feelings people might have after finishing treatment. It also explains how a healthy lifestyle can help and your rights are work. 

Cover image of 'Living with an illness that you will probably die from. Work, money and getting the best out of life [Easy read]'

Living with an illness that you will probably die from. Work, money and getting the best out of life [Easy read] (June 2019)

Marie Curie

This Easy Read booklet is for people living with an illness that they will probably die from. It tells them about work, money and benefits.

Cover image of 'Going into hospital? A guide for patients, carers and families'

Going into hospital? A guide for patients, carers and families (2015)

Eastdown Publishing

Hospitals are a constant presence in the lives of many people. Almost everyone will visit or go into hospital at some point in their life. This can be a confusing experience: the environment is strange, the daily routine is unfamiliar and it is hard to understand the medical language. Going into hospital is, in many ways, like visiting a foreign country. This book is your guide to the foreign land of the hospital. It provides clear, practical information about how hospitals work, who the staff are and the investigations and treatments you may receive. The book helps you understand hospital-speak by translating it into straightforward English. The book has been written by a consultant surgeon, a pharmacist and a psychologist who have all worked in hospitals for many years. If you are better informed and can understand concepts like choice, risk and benefit, you can work more effectively with your healthcare team to make the right decisions, and you will be better equipped to help yourself and your family. You will find this book an invaluable guide to a journey through the hospital. (Publisher)

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