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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 426

Cover image of 'Phyllodes tumours: malignant and borderline malignant'

Phyllodes tumours: malignant and borderline malignant (August 2017)

Breast Cancer Care

This leaflet describes what malignant and borderline malignant phyllodes tumours are, the symptoms, how they are diagnosed, and the treatment options.

Cover image of 'Looking after someone. Information for carers 2018'

Looking after someone. Information for carers 2018 (October 2017)

Carers UK

This guide is designed to outline your rights as a carer and give an overview of the support available.

Cover image of 'How to check your lymph nodes'

How to check your lymph nodes (November 2015)

Wessex Cancer Trust

This leaflet has been written for people who wish to check their lymph nodes between clinic appointments. It describes the lymphatic system and uses illustrations and photographs to explain how to check lymph nodes in the head and neck, in the armpit, and in the groin.

Cover image of 'Living well. Beyond bowel cancer'

Living well. Beyond bowel cancer (June 2016)

Beating Bowel Cancer

Information and advice for people with bowel cancer after treatment has finished.

Cover image of 'High-grade non-Hodgkin lymphoma'

High-grade non-Hodgkin lymphoma (June 2017)

Lymphoma Action

This booklet aims to help people understand more about the different types of high-grade non-Hodgkin lymphoma. It describes how they typically affect people, the usual treatments, and what people can expect during and after treatment.

Cover image of 'Breast prostheses, bras and clothes after surgery'

Breast prostheses, bras and clothes after surgery (December 2017)

Breast Cancer Care

This booklet provides practical information about breast prostheses (artificial breast forms), bras and clothes for women who have had surgery for breast cancer. Includes photographs, quotes from women, and details of suppliers.

Cover image of 'Osteonecrosis of the jaw (ONJ)'

Osteonecrosis of the jaw (ONJ) (May 2015)

Myeloma UK

Osteonecrosis of the jaw (ONJ) appears to be related to long-term treatment with bisphosphonates. This factsheet describes bisphosphonates, why they are linked to ONJ, the risk factors for ONJ, its symptoms, and how it is treated and managed. Includes self-care tips to reduce the risk of ONJ.

Cover image of 'Understanding head and neck cancers'

Understanding head and neck cancers (July 2018)

Macmillan Cancer Support

This booklet is about head and neck cancers. Head and neck cancers include cancers of the mouth and throat, as well as rarer cancers of the nasal cavity (inside the nose), sinuses, salivary glands and middle ear. This booklet is for anyone who has a head and neck cancer. The booklet explains: what head and neck cancer is; the signs and symptoms; the different treatment options; coping with head and neck cancer treatment.

Cover image of 'Understanding your pathology results'

Understanding your pathology results (February 2018)

Breast Cancer Care

This booklet explains the information in a pathology report for women who have been diagnosed with breast cancer. It explains the terms used and what the information means, and also suggests questions that women may want to ask their doctor.

Cover image of 'How can the internet help us? A guide for parents and families using online childhood cancer information'

How can the internet help us? A guide for parents and families using online childhood cancer information (May 2014)

Children's Cancer and Leukaemia Group

Leaflet with guidance on using the internet to find information on cancer care and treatment for young people and children. Includes details of 16 useful websites.

Cover image of 'Secondary breast cancer in the bone'

Secondary breast cancer in the bone (March 2018)

Breast Cancer Care

A booklet for people who have been diagnosed with secondary cancer in the bones that has spread from the breast. It describes what secondary breast cancer in the bone is, the symptoms, and the investigations. It also describes the treatment options, but not in great detail. Lists useful organisations.

Cover image of 'When your partner has breast cancer'

When your partner has breast cancer (June 2018)

Breast Cancer Care

A booklet for anyone in a relationship with someone who has been diagnosed with breast cancer.

Cover image of 'After breast cancer treatment: what now?'

After breast cancer treatment: what now? (June 2019)

Breast Cancer Care

This booklet explains what happens after your hospital-based treatments finish. It includes information on follow-up care, being breast and body aware, the ways breast cancer may come back, and how you might feel after treatment ends.

Cover image of 'Understanding sarcoma: a new patient's guide'

Understanding sarcoma: a new patient's guide (October 2013)

Sarcoma UK

This booklet is for anyone recently diagnosed with a sarcoma. It explains what sarcoma is, how it is diagnosed, and the treatment options. It includes space to record details of your diagnosis, the names and contact details of your health care team, and your appointments.

Cover image of 'After someone dies. A leaflet about death, bereavement and grief for young people'

After someone dies. A leaflet about death, bereavement and grief for young people (2004)

Cruse Bereavement Care

Leaflet with support and advice for young people who have been bereaved. It covers the following issues: What is bereavement?; What might I feel?; How can I cope with it all?; I feel so alone; What can help?; How long will it take?

Cover image of 'Advanced prostate cancer. Managing symptoms and getting support'

Advanced prostate cancer. Managing symptoms and getting support (March 2017)

Prostate Cancer UK

This booklet is for men who have prostate cancer that has spread to other parts of the body and are experiencing symptoms such as bone pain.

Cover image of 'Talking with your children about breast cancer'

Talking with your children about breast cancer (June 2018)

Breast Cancer Care

This booklet explains what children of different ages can understand about a serious illness such as cancer and how they may respond to the news that someone in the family has breast cancer. Individual parents describe their experiences and the booklet has advice on what, when and how to tell children about the diagnosis.

Cover image of 'Your medical team'

Your medical team (April 2018)

Lymphoma Action

If you have lymphoma, your care and treatment are planned and managed by a team of health professionals, known as a multi-disciplinary team (MDT). This factsheet covers the multi-disciplinary team, key workers, and MDT members.

Cover image of 'Patient guide. Receiving diagnosis after biopsy'

Patient guide. Receiving diagnosis after biopsy (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'Primary breast cancer information pack'

Primary breast cancer information pack (December 2018)

Breast Cancer Care

This pack is for women who have been told they have primary (early) breast cancer. It includes information about breast cancer, its diagnosis and treatments.

Cover image of 'Caring for someone with an illness they will probably die from. Who can help? [Easy read]'

Caring for someone with an illness they will probably die from. Who can help? [Easy read] (June 2017)

Marie Curie

Marie Curie has written this Easy Read booklet to tell you about the different people who can help if you are caring for someone with an illness they will probably die from.

Cover image of 'Secondary breast cancer information pack'

Secondary breast cancer information pack (April 2018)

Breast Cancer Care

This pack is for anyone with secondary breast cancer. It may also be useful for family, friends, or carers. It contains information that may be useful from diagnosis throughout treatment and care. The pack has four main parts. 1. The first part of the pack explains what secondary breast cancer is, looks at treatments and side effects, and has information about monitoring and coping with the physical effects of your condition. 2. The second part is called Your needs and concerns with secondary breast cancer. This looks at how to make sure your needs are met, from emotional and practical needs to concerns about relationships, work and finances, and health and wellbeing. 3. Personal organiser to help you record symptoms or side effects from treatment, which you can take with you to hospital appointments. You can also record appointment details and names and contact details of people involved in your care. 4. A small booklet called Planning ahead: choices and decisions about the end of life is for if and when you want to start thinking about these things. 

Cover image of 'Follow-up after prostate cancer treatment. What happens next?'

Follow-up after prostate cancer treatment. What happens next? (November 2015)

Prostate Cancer UK

This booklet is for men who have had treatment aimed at getting rid of their prostate cancer, such as surgery (radical prostatectomy), radiotherapy or brachytherapy. It describes the care and support men can expect after treatment.

Cover image of 'Caring for someone with an illness they will probably die from. Money and work [Easy read]'

Caring for someone with an illness they will probably die from. Money and work [Easy read] (June 2017)

Marie Curie

Marie Curie has written this Easy Read booklet to help you think about money and work if you are caring for someone with an illness they will probably die from.

Cover image of 'Side effects of cancer treatment'

Side effects of cancer treatment (March 2017)

Macmillan Cancer Support

An overview of some of the more common side-effects that might happen with cancer treatments: bone marrow and blood, fatigue, mouth problems, nausea and vomiting, diarrhoea and constipation, eating problems, skin, fertility, sex life, hormonal changes. The booklet suggests ways of dealing with them.

Cover image of 'Living well with myeloma. Your essential guide'

Living well with myeloma. Your essential guide (December 2016)

Myeloma UK

This guide has been written for people who have been diagnosed with myeloma, and for their families and friends. While it explains what myeloma is and briefly describes treatment options, the focus of the booklet is the emotional response to a diagnosis, with advice on self-care (diet, exercise, coping with pain and fatigue, avoiding infections) finance and travel, and the concerns of carers. Includes a self-help checklist, a list of questions to ask, and details of useful organisations.

Cover image of 'Understanding gynaecological sarcomas'

Understanding gynaecological sarcomas (November 2014)

Sarcoma UK

This booklet is for anyone recently diagnosed with a gynaecological sarcoma. It explains what gynaecological sarcomas are, how they are diagnosed, and the treatment options. It includes space to record details of your diagnosis, the names and contact details of your health care team, and your appointments.

Cover image of 'Breast cancer and you: coping with diagnosis, treatment and the future'

Breast cancer and you: coping with diagnosis, treatment and the future (August 2018)

Breast Cancer Care

This booklet is for anyone who is dealing with a diagnosis of primary breast cancer and its treatment. It discusses the emotions that may arise, how to tell other people, how to find out more, making decisions about treatment, and the effects of treatment, and looks ahead to the time when treatment is finished.

Cover image of 'Going into hospital? A guide for patients, carers and families'

Going into hospital? A guide for patients, carers and families (2015)

Eastdown Publishing

Hospitals are a constant presence in the lives of many people. Almost everyone will visit or go into hospital at some point in their life. This can be a confusing experience: the environment is strange, the daily routine is unfamiliar and it is hard to understand the medical language. Going into hospital is, in many ways, like visiting a foreign country. This book is your guide to the foreign land of the hospital. It provides clear, practical information about how hospitals work, who the staff are and the investigations and treatments you may receive. The book helps you understand hospital-speak by translating it into straightforward English. The book has been written by a consultant surgeon, a pharmacist and a psychologist who have all worked in hospitals for many years. If you are better informed and can understand concepts like choice, risk and benefit, you can work more effectively with your healthcare team to make the right decisions, and you will be better equipped to help yourself and your family. You will find this book an invaluable guide to a journey through the hospital. (Publisher)

Cover image of 'Facing the death of your child. Suggestions and help for families, before and afterwards'

Facing the death of your child. Suggestions and help for families, before and afterwards (April 2015)

Children's Cancer and Leukaemia Group

This booklet is for parents of children who can no longer be cured. It provides suggestions and help for families on all aspects of bereavement.

Cover image of 'Breast cancer in younger women'

Breast cancer in younger women (July 2017)

Breast Cancer Care

This booklet explores the feelings and experiences of younger women diagnosed with breast cancer, covering topics such as treatment, physical effects, relationships, finding support, and practical issues. Individual women share their thoughts and experiences.

Cover image of 'Thinking about end of life. Finding support and getting your affairs in order'

Thinking about end of life. Finding support and getting your affairs in order (May 2018)

Age UK

Thinking about the end of life can be difficult, but being well informed can help people consider all their options at a time that’s right for them. This guide will make suggestions about the options and services available to help people make the best choices. It will explain how to make wishes and treatment preferences known, and help peole consider where they would like to be looked after towards the end of life.

Cover image of 'Cancer awareness in the Muslim community [Urdu]'

Cancer awareness in the Muslim community [Urdu] (September 2014)

Sheffield Hallam University. Centre for Health and Social Care Research

The aim of this leaflet is to improve cancer awareness amongst the Muslim community in the UK.

Cover image of 'Cancer awareness in the Muslim community [Somali]'

Cancer awareness in the Muslim community [Somali] (September 2014)

Sheffield Hallam University. Centre for Health and Social Care Research

The aim of this leaflet is to improve cancer awareness amongst the Muslim community in the UK.

Cover image of 'Secondary breast cancer in the brain'

Secondary breast cancer in the brain (June 2017)

Breast Cancer Care

A booklet for people who have been diagnosed with secondary cancer in the brain that has spread from the breast. It describes what secondary breast cancer in the brain is, what the symptoms are, and the investigations. Briefly outlines the treatment options. Lists useful organisations.

Cover image of 'Understanding GIST: gastrointestinal stromal tumours'

Understanding GIST: gastrointestinal stromal tumours (July 2016)

Sarcoma UK

This booklet is for anyone diagnosed with a gastrointestinal stromal tumour (GIST). It explains hat GIST is, how it is diagnosed, and the treatment options. It includes space to record details of your diagnosis, the names and contact details of your health care team, and your appointments.

Cover image of 'Menopausal symptoms and breast cancer'

Menopausal symptoms and breast cancer (March 2018)

Breast Cancer Care

A booklet for women who are experiencing menopausal symptoms after breast cancer treatment. It has advice on treatments (prescription drugs and complementary therapies) and practical measures for coping with hot flushes, vaginal dryness, loss of libido, mood swings, joint pain and risk of osteoporosis. Includes details of further support.

Cover image of 'Advance decisions, advance statements and living wills'

Advance decisions, advance statements and living wills (April 2019)

Age UK

This factsheet explains what an advance decision to refuse treatment (often called an advance decision or a ‘living will’) and an advance statement are, why people might want to prepare one or both of them, requirements for drawing them up and ways to ensure other people know they exist. 

Cover image of 'Getting ready to die'

Getting ready to die (2016)

CHANGE

An easy read booklet about things you might want to think if you will not get better from cancer. For example, things you want to do before you die, people you want to see and things you want to remember and think about.  

Cover image of 'How will a colostomy affect me? Information for patients before stoma surgery'

How will a colostomy affect me? Information for patients before stoma surgery (February 2018)

Colostomy UK

This booklet seeks to answer the many questions and concerns that patietns or a family member or carer might have about a colostomy. 

Cover image of 'Caring for a person with a stoma and dementia'

Caring for a person with a stoma and dementia (December 2017)

Colostomy UK

Teaching a person with dementia how to care for their stoma is not possible in all cases, but where it is possible, attempts should be made to encourage them. The level of independence achievable will vary. A person with dementia may benefit from extra time and repetition of the tips in this booklet, which were suggested by healthcare professionals who have been actively involved in the care of ostomates with dementia.

Cover image of 'The best treatment. Your guide to breast cancer treatment in England and Wales'

The best treatment. Your guide to breast cancer treatment in England and Wales (November 2013)

Breast Cancer Now

This set of guidelines for women and men with primary breast cancer brings together expert advice from professional guidelines. The guidelines cover diagnosis, communication and care, treatment for primary breast cancer (surgery, radiotherapy, chemotherapy, hormonal therapy) and follow-up.

Cover image of 'Getting help at home'

Getting help at home (May 2018)

Age UK

Information on the services available to older people and their carers to enable them to stay in their own home, including local authority social services, voluntary organisations, private care agencies, and the NHS. 

Cover image of 'Cancer awareness in the Muslim community [Arabic]'

Cancer awareness in the Muslim community [Arabic] (September 2014)

Sheffield Hallam University. Centre for Health and Social Care Research

The aim of this leaflet is to improve cancer awareness amongst the Muslim community in the UK.

Cover image of 'Expectations of care for patients with an ileal conduit (urostomy) in the primary care setting'

Expectations of care for patients with an ileal conduit (urostomy) in the primary care setting (November 2017)

Urostomy Association

Guidelines for people with an ileal conduit (urostomy) in the event of problems such as urinary tract infections, bleeding, discharge, a hernia or sore skin.

Cover image of 'Expectations of care for patients with a neobladder in the primary care setting'

Expectations of care for patients with a neobladder in the primary care setting (November 2017)

Urostomy Association

Guidelines for people with a neobladder in the event of problems with neobladder function, urinary tract infections, or bleeding.

Cover image of 'Dealing with diagnosis'

Dealing with diagnosis (April 2015)

AMEND (Association for Multiple Endocrine Neoplasia Disorders)

This leaflet is for people recently diagnosed with a multiple enodcrine neoplasia. It covers what MEN is, the feelings that people may experience, becoming an active member of your own care team and other sources of help and support.

Cover image of 'If your prostate cancer comes back. A guide to treatment and support'

If your prostate cancer comes back. A guide to treatment and support (March 2016)

Prostate Cancer UK

This booklet is for men who are worried that their prostate cancer might come back, or whose cancer has recurred after one or more treatments. It describes why prostate cancer might come back, the treatment options, and how to get support. It has space to record the names and contact details of the health professionals involved in ongoing care, details of appointments, and results of PSA tests. Includes a glossary.

Cover image of 'Help with the cost of cancer in England, Scotland, Wales and Northern Ireland'

Help with the cost of cancer in England, Scotland, Wales and Northern Ireland (April 2019)

Macmillan Cancer Support

This easy to use booklet contains up-to-date information about benefits and other sources of financial help for people affected by cancer.

Cover image of 'The end of life'

The end of life (2016)

CHANGE

An easy read booklet about what happens to your body and how you might feel during the last few days of life. 

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