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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 414

Cover image of 'Finding your way. Caring for yourself while caring for someone else'

Finding your way. Caring for yourself while caring for someone else (2019)

Rippling Print

If you are caring for someone, this book is for you. It contains everything that helped Verran to find his way as he cared for his wife Karen, from her initial diagnosis to her death 8½ years later. “This is so beautiful, so helpful right now.” Rachel, caring for her mother. Whenever he discovered a new way to do something, or a new way of thinking, or being that worked for him, he wrote it down in a notebook. Page by page, that notebook became this book - a collection of reminders that helped him time and time again, and especially when he was struggling. “This book connects to the human in all of us, a hand to hold, and a guiding light.” Lee, caring for his wife. The thoughts within this book still help Verran today, and he now offers it to you in the hope that it will help you too. He invites you to try whatever catches your eye, whatever makes sense to you in your heart. Also to notice whenever you find a new way that works for you, and to add your own reminders. It is Verran’s hope that these thoughts will help you to adapt, and to grow, and to find your way. Your way to truly be with those that you care for, to nurture your own peace of mind, and to create the space you need for you. (Publisher)

Cover image of 'The cancer roller coaster. How to manage the emotional and mental impact'

The cancer roller coaster. How to manage the emotional and mental impact (2019)

Librotas

Two days after celebrating her 50th birthday, Juliette Chan had an unexpected birthday present: bowel cancer. Luckily, they caught it early, but once the treatment was over, the psychological side-effects surfaced. For many months, Juliette was adrift and felt lost. It seemed that everything in her life was up for review and she struggled to gain clarity about what to do next. There were many questions, such as: When will I feel normal again; Why am I not as motivated as before; Will the cancer come back; Why am I mentally exhausted. It took her a while to realise that the cancer had caused a whole load of losses: loss of trust in her body, self-image as a fit and healthy person, energy, confidence, motivation, income and much more. And that’s when the penny dropped; she was grieving. Cancer not only involves coping with the physical disease and treatment – it also means experiencing and dealing with hidden losses that will affect how you view and live your life. Every time you experience a loss, there is an emotional response: grief. Most people only associate grief with bereavement but it is in fact a natural reaction to any and all losses, including the hidden and intangible losses you face with cancer. Anyone who has or has had cancer, as well as their family and friends, will experience grief – because life has changed. This can show up as anger, frustration, anxiety, ‘depression’, fear, sadness, for example. If left unchecked or suppressed, grief will affect your mental health and emotional wellbeing. It doesn’t have to be like this; it is possible to take care of the emotional and mental impact of cancer and to live well. In her easy, relaxed style of writing, Juliette explains the emotional and mental impact of cancer and highlights the limitations of Mindfulness and positive thinking. She has also included a workbook with simple practical exercises that help to release the psychological side-effects and provide clarity. You can also read the candid stories of eight others who faced cancer: Robert describes his initial feelings of shock on diagnosis and how others helped him to cope, whereas Meena recounts going it alone; Petra shares how she continued to run throughout her treatment, and Susan talks movingly about the seemingly endless decision-making from diagnosis onwards; Mary, Tony and June recount their unique experiences of the same cancer

Cover image of 'Focus on mouth cancer'

Focus on mouth cancer (September 2018)

Cancer Focus Northern Ireland

This leaflet has facts about mouth cancer and describes the symptoms, who is at risk and how to reduce the risk. 

Cover image of 'Caring for someone with a lung condition. Information for carers, family and friends'

Caring for someone with a lung condition. Information for carers, family and friends (November 2018)

British Lung Foundation

Information and support for those caring for someone with a lung condition (not specifically lung cancer).

Cover image of 'Patient charter. The care you should expect and receive'

Patient charter. The care you should expect and receive (September 2018)

Pancreatic Cancer UK

This booklet explains the standards of care everybody with pancreatic cancer should have while they are being diagnosed and treated for pancreatic cancer. You can use it as a guide to what you should expect. It can also help you talk to your doctors and nurses about the care you should receive.

Cover image of '7 steps to equal healthcare. Your guide to getting good health care if you have a learning disability [Easy read]'

7 steps to equal healthcare. Your guide to getting good health care if you have a learning disability [Easy read] (June 2018)

ENABLE Scotland|Macmillan Cancer Support|CHANGE

This booklet is about getting good health care if you have cancer and a learning disability.

Cover image of 'The cancer guide [Audio CD]'

The cancer guide [Audio CD] (August 2018)

Macmillan Cancer Support

Audio CD of the booklet, which is designed to inform people affected by cancer about cancer treatment and care. It explains the different stages that people go through when they have cancer, the roles of various cancer care professionals, and how to get additional support and information.

Cover image of 'Patient guide. Palliative care'

Patient guide. Palliative care (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'Breast reconstruction'

Breast reconstruction (January 2018)

Breast Cancer Care

This booklet is for women considering breast reconstruction after breast surgery to treat breast cancer.

Cover image of 'Patient guide. End of life care'

Patient guide. End of life care (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'Who's who in your clinical team?'

Who's who in your clinical team? (July 2018)

Brainstrust

A who's who of healthcare professionals involved in the care of someone with a brain tumour: GP; consultant neurosurgeon; consultant neurologist; consultant radiologist; neuro-oncologist; clinical psychologist; neuro-ophthalmologist; community neurological rehabilitation nurse; neuro-oncology clinical nurse specialist; epilepsy nurse; palliative care nurse; specialist allied health professional; disability co-ordinator (higher education). It describes the role of each professional and how they can help.

Cover image of 'Pancreatic cancer and end of life care. Information for people in the last few months, weeks or days of life'

Pancreatic cancer and end of life care. Information for people in the last few months, weeks or days of life (March 2018)

Pancreatic Cancer UK

This booklet is for people with pancreatic cancer, their family, friends and carers who want to know more about what may happen in the last few months of life. It includes information about the symptoms that people with pancreatic cancer may get towards the end of their life and how to manage them. There is also information about how to get the care and support you might need, dealing with the emotional impact of dying from pancreatic cancer, and specific information for family members. 

Cover image of 'If you are diagnosed with cancer – a quick guide [Russian]'

If you are diagnosed with cancer – a quick guide [Russian] (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support. Includes the English-language version.

Cover image of 'If you are diagnosed with cancer – a quick guide [Polish]'

If you are diagnosed with cancer – a quick guide [Polish] (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support. Includes the English-language version.

Cover image of 'Managing lung cancer symptoms'

Managing lung cancer symptoms (August 2018)

Roy Castle Lung Cancer Foundation

If you or someone you care for has just been diagnosed with lung cancer you may have lots of questions. This booklet was produced with input from people affected by lung cancer and lung cancer experts, and is designed to help answer those questions.It describes the possible symptoms that may experienced when living with lung cancer and how to cope with them.

Cover image of 'If you are diagnosed with cancer – a quick guide [Urdu]'

If you are diagnosed with cancer – a quick guide [Urdu] (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support.  

Cover image of 'If you are diagnosed with cancer – a quick guide [Bengali]'

If you are diagnosed with cancer – a quick guide [Bengali] (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support. Includes the English-language version.

Cover image of 'If you are diagnosed with cancer – a quick guide [Welsh]'

If you are diagnosed with cancer – a quick guide [Welsh] (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support.  

Cover image of 'If you are diagnosed with cancer – a quick guide [Gujarati]'

If you are diagnosed with cancer – a quick guide [Gujarati] (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support. Includes the English-language version.

Cover image of 'Tamoxifen'

Tamoxifen (February 2018)

Breast Cancer Care

This leaflet explains what tamoxifen is, when it may be prescribed, how it works, the benefits, and possible side-effects.

Cover image of 'If you are diagnosed with cancer – a quick guide [Punjabi]'

If you are diagnosed with cancer – a quick guide [Punjabi] (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support. Includes the English-language version. 

Cover image of 'Osteoporosis and breast cancer treatment'

Osteoporosis and breast cancer treatment (November 2018)

Breast Cancer Care

A booklet for people who have been treated for breast cancer and who may be concerned about their risk of osteoporosis. It describes osteoporosis, who is at risk, breast cancer treatment and bone density, how to look after your bones, and what to do if you think you have osteoporosis.

Cover image of 'Goserelin (Zoladex)'

Goserelin (Zoladex) (February 2018)

Breast Cancer Care

This leaflet explains briefly what goserelin (Zoladex®) is, when it may be prescribed, how it works, and the possible side-effects.

Cover image of 'Capecitabine (Xeloda)'

Capecitabine (Xeloda) (March 2018)

Breast Cancer Care

This booklet explains briefly what capecitabine (Xeloda®) is, when it may be prescribed, how it works, and possible side-effects.

Cover image of 'Paget's disease of the breast'

Paget's disease of the breast (August 2018)

Breast Cancer Care

This leaflet discusses the main aspects of Paget's disease of the breast, including what it is, the signs and symptoms, how a diagnosis is made, and the treatment options.

Cover image of 'Managing your lung cancer diagnosis'

Managing your lung cancer diagnosis (August 2018)

Roy Castle Lung Cancer Foundation

If you or someone you care for has just been diagnosed with lung cancer, then it’s almost certain that you’ll have a lot of questions. We have produced this booklet in partnership with lung cancer experts and people affected by lung cancer to help you make positive informed choices about your care and treatment. 

Cover image of 'Invasive ductal breast cancer'

Invasive ductal breast cancer (November 2018)

Breast Cancer Care

This leaflet discusses the main aspects of invasive ductal breast cancer. It describes what it is, the symptoms, how a diagnosis is made, the treatment options and coping with the diagnosis.

Cover image of 'If you are diagnosed with cancer – a quick guide [Chinese, Traditional]'

If you are diagnosed with cancer – a quick guide [Chinese, Traditional] (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support. Includes the English-language version.

Cover image of 'Menopausal symptoms and breast cancer'

Menopausal symptoms and breast cancer (March 2018)

Breast Cancer Care

A booklet for women who are experiencing menopausal symptoms after breast cancer treatment. It has advice on treatments (prescription drugs and complementary therapies) and practical measures for coping with hot flushes, vaginal dryness, loss of libido, mood swings, joint pain and risk of osteoporosis. Includes details of further support.

Cover image of 'Ductal carcinoma in situ (DCIS)'

Ductal carcinoma in situ (DCIS) (March 2018)

Breast Cancer Care

This booklet describes ductal carcinoma in situ (DCIS), the symptoms, how a diagnosis is made, the different types of DCIS, and the treatment options. It also has a short section on coping with breast cancer.

Cover image of 'Patient guide. Diagnosis'

Patient guide. Diagnosis (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'Radiotherapy for lung cancer'

Radiotherapy for lung cancer (August 2018)

Roy Castle Lung Cancer Foundation

If you or someone one you care for has a diagnosis of lung cancer and radiotherapy is a possible treatment option, then it’s almost certain that you will have a lot of questions. We have produced this booklet in partnership with expertise from lung oncologists (cancer doctors), radiographers, lung cancer nurse specialists and people affected by lung cancer to help you make positive, informed choices about your care and treatment.

Cover image of 'Patient guide. Treatment'

Patient guide. Treatment (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'Patient guide. Survivorship'

Patient guide. Survivorship (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'Breast cancer and hair loss'

Breast cancer and hair loss (January 2018)

Breast Cancer Care

Many people will lose either some or all of their hair as a result of treatment for breast cancer. For some, this is the most distressing side effect of treatment. Some people find that being prepared for hair loss before it occurs helps them cope better when it happens. This booklet explains how you may lose your hair and the effect it can have. It looks at how to care for your hair and scalp during and after treatment and the different headwear you may want to try, including wigs and headscarves. It includes step-by-step guides to tying headscarves and tips on recreating the illusion of eyebrows and eyelashes. The final part of the booklet discusses what usually happens when your hair grows back and how to look after it.

Cover image of 'Ovarian suppression and breast cancer'

Ovarian suppression and breast cancer (November 2018)

Breast Cancer Care

This factsheet is written for women who have been offered ovarian ablation as a treatment for breast cancer. It explains what ovarian ablation is, how it is achieved (surgery, radiotherapy, or hormone manipulation), when it is used, and the possible side-effects. Includes a list of useful organisations.

Cover image of 'Talking with your children about breast cancer'

Talking with your children about breast cancer (June 2018)

Breast Cancer Care

This booklet explains what children of different ages can understand about a serious illness such as cancer and how they may respond to the news that someone in the family has breast cancer. Individual parents describe their experiences and the booklet has advice on what, when and how to tell children about the diagnosis.

Cover image of 'Being cared for at home [Welsh]'

Being cared for at home [Welsh] (October 2018)

Marie Curie

This booklet is for people living with a terminal illness, and their family and friends. Inside you’ll find information about the care and support that’s available for you at home. 

Cover image of 'Moving forward: for people living with and beyond a diagnosis of primary breast cancer'

Moving forward: for people living with and beyond a diagnosis of primary breast cancer (November 2018)

Breast Cancer Care

This book is designed to help you move forward after breast cancer. From signs and symptoms of recurrence to dealing with fatigue and financial issues, it offers practical solutions and sources of further support. Whether you have just reached the end of your treatment or your diagnosis of breast cancer was several years ago, this book is for you.

Cover image of 'If you are diagnosed with cancer – a quick guide [Arabic]'

If you are diagnosed with cancer – a quick guide [Arabic] (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support. Includes the English-language version.

Cover image of 'Your operation and recovery'

Your operation and recovery (January 2018)

Breast Cancer Care

This booklet provides information for anyone going into hospital for breast cancer surgery. It describes what may happen before admission, what to take into hospital, what happens before and after surgery, what to expect after surgery (normal changes, possible problems) and leaving hospital and recovering from surgery. Includes details of further support and useful organisations.

Cover image of 'If you are diagnosed with cancer – a quick guide'

If you are diagnosed with cancer – a quick guide (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support.  

Cover image of 'Your medical team'

Your medical team (April 2018)

Lymphoma Action

If you have lymphoma, your care and treatment are planned and managed by a team of health professionals, known as a multi-disciplinary team (MDT). This factsheet covers the multi-disciplinary team, key workers, and MDT members.

Cover image of 'Explaining the NICE guidelines for diagnosing and managing pancreatic cancer'

Explaining the NICE guidelines for diagnosing and managing pancreatic cancer (August 2018)

Pancreatic Cancer UK

The National Institute for Health and Care Excellence (NICE) has produced guidelines for health professionals diagnosing and caring for people with pancreatic cancer. These guidelines are for the most common type of pancreatic cancer, pancreatic ductal adenocarcinoma. Health professionals don’t have to follow these guidelines, but they must take them into account when making decisions about care. They should also take your needs and wishes into account.

Cover image of 'Chemotherapy for breast cancer'

Chemotherapy for breast cancer (January 2018)

Breast Cancer Care

This booklet describes chemotherapy and explains how and when it might be used to treat breast cancer, and the possible side-effects. It also discusses issues such as fertility and contraception, and coping with chemotherapy.

Cover image of 'Complementary therapies, relaxation and wellbeing'

Complementary therapies, relaxation and wellbeing (February 2018)

Breast Cancer Care

This booklet is about relaxation and wellbeing during and after breast cancer treatment. It looks at complementary therapies such as acupuncture, Reiki and massage. It also describes some popular relaxation techniques, including meditation and mindfulness, and has information on yoga, Thai Chi and Chi Gung. It discusses why people might use these complementary therapies and relaxation techniques after a diagnosis of breast cancer, and what they may need to think about before trying them. It also explains what herbal medicines and homeopathy are. 

Cover image of 'If you are diagnosed with cancer – a quick guide [Romanian]'

If you are diagnosed with cancer – a quick guide [Romanian] (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support. Includes the English-language version.

Cover image of 'If you are diagnosed with cancer – a quick guide [Portuguese]'

If you are diagnosed with cancer – a quick guide [Portuguese] (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support. Includes the English-language version.

Cover image of 'Patient guide. Receiving diagnosis after biopsy'

Patient guide. Receiving diagnosis after biopsy (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'Primary peritoneal cancer'

Primary peritoneal cancer (December 2018)

Ovacome

This factsheet has information on primary peritoneal cancer, a rare variant of ovarian cancer. It describes what primary peritoneal cancer is, the signs and symptoms, diagnosis, treatment - surgery and chemotherapy - and follow-up care.

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