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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 382

Cover image of 'Understanding myelodysplastic syndromes'

Understanding myelodysplastic syndromes (November 2016)

MDS UK|Leukaemia CARE|Bloodwise

This booklet has been written to help people understand more about MDS. It describes what they are, how they are diagnosed and treated and also the expected outcome (prognosis). It also provides information on coping with the emotional impact of an MDS diagnosis.

Cover image of 'Fallopian tube cancer'

Fallopian tube cancer (December 2018)

Ovacome

This factsheet has about fallopian tube cancer. It describes what fallopian tube cancer is, the risk factors, symptoms, diagnostic tests, treatment options (surgery, chemotherapy), and follow-up care.

Cover image of 'Know your breasts. A guide to breast awareness and screening'

Know your breasts. A guide to breast awareness and screening (July 2019)

Breast Cancer Care

This booklet aims to help women understand more about their breasts, how they develop and age, and the normal changes that can occur before a period, during pregnancy, when breastfeeding, and before, during and after the menopause. It uses illustrations to show women how to check their breasts and advises what to do if a change is noticed. It also describes routine breast screening, what happens at the clinic, and the limitations of screening.

Cover image of 'Managing lung cancer symptoms'

Managing lung cancer symptoms (August 2018)

Roy Castle Lung Cancer Foundation

If you or someone you care for has just been diagnosed with lung cancer you may have lots of questions. This booklet was produced with input from people affected by lung cancer and lung cancer experts, and is designed to help answer those questions.It describes the possible symptoms that may experienced when living with lung cancer and how to cope with them.

Cover image of 'Caring for someone with pancreatic cancer. Information for families and carers'

Caring for someone with pancreatic cancer. Information for families and carers (August 2019)

Pancreatic Cancer UK

This booklet is for family members of someone with pancreatic cancer. It includes information on managing symptoms and side effects, and accessing the right care and support.

Cover image of 'Invasive lobular breast cancer'

Invasive lobular breast cancer (December 2017)

Breast Cancer Care

This leaflet discusses the main aspects of invasive lobular breast cancer. It describes what it is, the symptoms, how a diagnosis is made, the treatment options and coping with the diagnosis.

Cover image of 'Looking after someone. Information and support for carers in England'

Looking after someone. Information and support for carers in England (November 2019)

Carers UK

This guide is designed to outline your rights as a carer and give an overview of the support available.

Cover image of 'Invasive ductal breast cancer'

Invasive ductal breast cancer (November 2018)

Breast Cancer Care

This leaflet discusses the main aspects of invasive ductal breast cancer. It describes what it is, the symptoms, how a diagnosis is made, the treatment options and coping with the diagnosis.

Cover image of 'Autologous stem cell transplant'

Autologous stem cell transplant (November 2016)

Lymphoma Action

This booklet describes autologous stem cell transplant in detail. 

Cover image of 'Chemotherapy for lung cancer'

Chemotherapy for lung cancer (February 2019)

Roy Castle Lung Cancer Foundation

This booklet was produced in partnership with lung cancer experts and people affected by lung cancer to help you make positive, informed choices about your care and treatment.

Cover image of 'What causes breast cancer? And how can I lower my chances of developing it'

What causes breast cancer? And how can I lower my chances of developing it (November 2018)

Breast Cancer Now

This booklet looks at the causes of breast cancer and lifestyle choices that may help reduce the risk of developing it. 

Cover image of 'Primary breast cancer information pack'

Primary breast cancer information pack (December 2018)

Breast Cancer Care

This pack is for women who have been told they have primary (early) breast cancer. It includes information about breast cancer, its diagnosis and treatments.

Cover image of 'Patient guide. Diagnosis'

Patient guide. Diagnosis (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'Understanding kidney cancer'

Understanding kidney cancer (April 2017)

Kidney Cancer UK

This booklet has information about kidney cancer, including the symptoms, diagnosis, staging and grading, and the treatment options. It also briefly discusses life with kidney cancer, including feelings, day-to-day living, money, and support. Includes sources of further information and a glossary.

Cover image of 'Phyllodes tumours: malignant and borderline malignant'

Phyllodes tumours: malignant and borderline malignant (August 2017)

Breast Cancer Care

This leaflet describes what malignant and borderline malignant phyllodes tumours are, the symptoms, how they are diagnosed, and the treatment options.

Cover image of 'Tubular breast cancer'

Tubular breast cancer (January 2018)

Breast Cancer Care

This booklet describes tubular breast cancer, diagnosis, treatment options and coping with the condition.

Cover image of 'Breast awareness and screening'

Breast awareness and screening (May 2017)

Action Cancer

This leaflet describes when and how to check the breasts for changes and what to look for. It briefly explains what a mammogram is. Contains information on local services and describes the work of Action Cancer in Northern Ireland.

Cover image of 'If you are diagnosed with cancer – a quick guide'

If you are diagnosed with cancer – a quick guide (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support.  

Cover image of 'Secondary breast cancer information pack'

Secondary breast cancer information pack (April 2018)

Breast Cancer Care

This pack is for anyone with secondary breast cancer. It may also be useful for family, friends, or carers. It contains information that may be useful from diagnosis throughout treatment and care. The pack has four main parts. 1. The first part of the pack explains what secondary breast cancer is, looks at treatments and side effects, and has information about monitoring and coping with the physical effects of your condition. 2. The second part is called Your needs and concerns with secondary breast cancer. This looks at how to make sure your needs are met, from emotional and practical needs to concerns about relationships, work and finances, and health and wellbeing. 3. Personal organiser to help you record symptoms or side effects from treatment, which you can take with you to hospital appointments. You can also record appointment details and names and contact details of people involved in your care. 4. A small booklet called Planning ahead: choices and decisions about the end of life is for if and when you want to start thinking about these things. 

Cover image of 'Side effects of cancer treatment'

Side effects of cancer treatment (March 2017)

Macmillan Cancer Support

An overview of some of the more common side-effects that might happen with cancer treatments: bone marrow and blood, fatigue, mouth problems, nausea and vomiting, diarrhoea and constipation, eating problems, skin, fertility, sex life, hormonal changes. The booklet suggests ways of dealing with them.

Cover image of 'Moving forward: for people living with and beyond a diagnosis of primary breast cancer'

Moving forward: for people living with and beyond a diagnosis of primary breast cancer (November 2018)

Breast Cancer Care

This book is designed to help you move forward after breast cancer. From signs and symptoms of recurrence to dealing with fatigue and financial issues, it offers practical solutions and sources of further support. Whether you have just reached the end of your treatment or your diagnosis of breast cancer was several years ago, this book is for you.

Cover image of 'How to check your lymph nodes'

How to check your lymph nodes (November 2015)

Wessex Cancer Trust

This leaflet has been written for people who wish to check their lymph nodes between clinic appointments. It describes the lymphatic system and uses illustrations to explain how to check lymph nodes in the head and neck, in the armpit, and in the groin.

Cover image of 'Explaining the NICE guidelines for diagnosing and managing pancreatic cancer'

Explaining the NICE guidelines for diagnosing and managing pancreatic cancer (August 2018)

Pancreatic Cancer UK

The National Institute for Health and Care Excellence (NICE) has produced guidelines for health professionals diagnosing and caring for people with pancreatic cancer. These guidelines are for the most common type of pancreatic cancer, pancreatic ductal adenocarcinoma. Health professionals don’t have to follow these guidelines, but they must take them into account when making decisions about care. They should also take your needs and wishes into account.

Cover image of 'Advice for carers. A practical guide'

Advice for carers. A practical guide (May 2019)

Age UK

This guide looks at the practical and emotional sides of caring. It has information about areas such as benefits and flexible working hours, as well as how a caring role could affect wellbeing and social life. 

Cover image of 'After someone dies. A leaflet about death, bereavement and grief for young people'

After someone dies. A leaflet about death, bereavement and grief for young people (2004)

Cruse Bereavement Care

Leaflet with support and advice for young people who have been bereaved. It covers the following issues: What is bereavement?; What might I feel?; How can I cope with it all?; I feel so alone; What can help?; How long will it take?

Cover image of 'Understanding your pathology results'

Understanding your pathology results (February 2018)

Breast Cancer Care

This booklet explains the information in a pathology report for women who have been diagnosed with breast cancer. It explains the terms used and what the information means, and also suggests questions that women may want to ask their doctor.

Cover image of 'Your hospital stay. What to expect when going into hospital, while you’re there and when you’re discharged'

Your hospital stay. What to expect when going into hospital, while you’re there and when you’re discharged (June 2019)

Age UK

This guide aims to put older people at ease if they are going to be admitted to hospital. It will help them: prepare for going into hospital; understand their rights in hospital; understand the discharge process; and be more informed about care afterwards. It may also be useful for relatives and friends, as it can be a difficult time for them too. 

Cover image of 'Patient guide. Survivorship'

Patient guide. Survivorship (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'After breast cancer treatment: what now?'

After breast cancer treatment: what now? (June 2019)

Breast Cancer Care

This booklet explains what happens after your hospital-based treatments finish. It includes information on follow-up care, being breast and body aware, the ways breast cancer may come back, and how you might feel after treatment ends.

Cover image of 'Targeted therapies for lung cancer'

Targeted therapies for lung cancer (February 2019)

Roy Castle Lung Cancer Foundation

If you or someone you care for has lung cancer, and targeted therapy is a possible treatment, then it’s almost certain that you will have a lot of questions. We have produced this booklet in partnership with lung cancer experts and people affected by lung cancer to help you make positive, informed choices about your care and treatment.

Cover image of 'Talking with your children about breast cancer'

Talking with your children about breast cancer (June 2018)

Breast Cancer Care

This booklet explains what children of different ages can understand about a serious illness such as cancer and how they may respond to the news that someone in the family has breast cancer. Individual parents describe their experiences and the booklet has advice on what, when and how to tell children about the diagnosis.

Cover image of 'Holistic needs assessment. Planning your care and support'

Holistic needs assessment. Planning your care and support (May 2017)

Macmillan Cancer Support

This booklet explains what assessment and care planning is and describes what to expect from the appointment, where and when the appointment may take place, and how to prepare for the appointment.

Cover image of 'Complementary therapy'

Complementary therapy (June 2019)

Lymphoma Action

This factsheet describes complementary therapies and how they may be used in lymphoma. It has brief information about the different types (acupuncture, aromatherapy, art therapy, chiropractic care, massage, mindfulness, music therapy, tai chi and yoga), and also looks at choosing a complementary therapy, finding a practitioner, the availability of complementary therapy and regulation.

Cover image of 'I have finished my treatment. What happens next'

I have finished my treatment. What happens next (November 2019)

Children's Cancer and Leukaemia Group

This booklet for children and teenagers aged 10-16 aims to help answer questions and concerns that arise when treatment for cancer finishes. It covers feelings and emotions, coping with worry, coping with family and friends, school and college, healthy living, and practical issues such as what happens at follow-up, medicines, and what to look out for.

Cover image of 'When your brother or sister has cancer. An information guide for teenagers and young adults whose sibling is diagnosed with cancer'

When your brother or sister has cancer. An information guide for teenagers and young adults whose sibling is diagnosed with cancer (November 2019)

Children's Cancer and Leukaemia Group

Being told that your brother or sister has cancer can be overwhelming and you may be full of questions. It is a difficult time for everyone in your family as life is turned upside down almost overnight. You will likely feel many different emotions as you try and come to terms with what your sibling’s diagnosis means for you and your family. You may feel worried or upset at this sudden change that you didn’t want or ask for, and you may desperately want everything to go back to normal as it was before their diagnosis. Life can seem very unfair. These feelings are completely normal and you are not alone. This guide covers how your brother or sister’s diagnosis might affect you, your feelings and emotions, and how it is important to take care of yourself during this difficult time. It explains more about cancer, and what you can expect over the coming weeks and months.

Cover image of 'The end of life'

The end of life (2016)

CHANGE

An easy read booklet about what happens to your body and how you might feel during the last few days of life. 

Cover image of 'Going into hospital? A guide for patients, carers and families'

Going into hospital? A guide for patients, carers and families (2015)

Eastdown Publishing

Hospitals are a constant presence in the lives of many people. Almost everyone will visit or go into hospital at some point in their life. This can be a confusing experience: the environment is strange, the daily routine is unfamiliar and it is hard to understand the medical language. Going into hospital is, in many ways, like visiting a foreign country. This book is your guide to the foreign land of the hospital. It provides clear, practical information about how hospitals work, who the staff are and the investigations and treatments you may receive. The book helps you understand hospital-speak by translating it into straightforward English. The book has been written by a consultant surgeon, a pharmacist and a psychologist who have all worked in hospitals for many years. If you are better informed and can understand concepts like choice, risk and benefit, you can work more effectively with your healthcare team to make the right decisions, and you will be better equipped to help yourself and your family. You will find this book an invaluable guide to a journey through the hospital. (Publisher)

Cover image of 'Know your breasts. A quick guide to being breast aware [Arabic]'

Know your breasts. A quick guide to being breast aware [Arabic] (July 2019)

Breast Cancer Care

This leaflet uses illustrations to show women how to check their breasts and the changes to look for. Includes English-language version.

Cover image of 'Your medical team'

Your medical team (April 2018)

Lymphoma Action

If you have lymphoma, your care and treatment are planned and managed by a team of health professionals, known as a multi-disciplinary team (MDT). This factsheet covers the multi-disciplinary team, key workers, and MDT members.

Cover image of 'Being cared for at home'

Being cared for at home (July 2019)

Marie Curie

This booklet is for people living with a terminal illness, and their family and friends. Inside you’ll find information about the care and support that’s available for you at home. 

Cover image of 'Primary peritoneal cancer'

Primary peritoneal cancer (December 2018)

Ovacome

This factsheet has information on primary peritoneal cancer, a rare variant of ovarian cancer. It describes what primary peritoneal cancer is, the signs and symptoms, diagnosis, treatment - surgery and chemotherapy - and follow-up care.

Cover image of 'Adrenal gland surgery'

Adrenal gland surgery (2016)

AMEND (Association for Multiple Endocrine Neoplasia Disorders)

Information for anyone who may be about to have surgery to remove an adrenal gland. This leaflet explains what an adrenal gland is, why an operation may be needed, and who should care for you during your treatment.

Cover image of 'Getting ready to die'

Getting ready to die (2016)

CHANGE

An easy read booklet about things you might want to think if you will not get better from cancer. For example, things you want to do before you die, people you want to see and things you want to remember and think about.  

Cover image of 'Eating problems and cancer'

Eating problems and cancer (August 2017)

Macmillan Cancer Support

During and after cancer treatment, many people can experience eating problems. This may be as a result of treatment or the cancer itself. This booklet highlights some common eating problems and why they may happen and suggest some practical ways to manage them.

Cover image of 'Caring for someone who has lymphoma'

Caring for someone who has lymphoma (April 2018)

Lymphoma Action

A carer is someone who looks after a person with an illness or disability without getting paid for it. You are a carer if you’re looking after a relative or a friend with lymphoma. This factsheet outlines the kind of help a carer might provide and lists sources of specialist support available to carers. Contents: Am I a carer?; Offering emotional support; Offering practical support; What if someone doesn’t accept help?; Emotional impact of being a carer; Emotional support for you as a care; Practical support for you as a carer.

Cover image of 'Patient guide. Receiving diagnosis after biopsy'

Patient guide. Receiving diagnosis after biopsy (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'Who's who in your clinical team?'

Who's who in your clinical team? (July 2018)

Brainstrust

A who's who of healthcare professionals involved in the care of someone with a brain tumour: GP; consultant neurosurgeon; consultant neurologist; consultant radiologist; neuro-oncologist; clinical psychologist; neuro-ophthalmologist; community neurological rehabilitation nurse; neuro-oncology clinical nurse specialist; epilepsy nurse; palliative care nurse; specialist allied health professional; disability co-ordinator (higher education). It describes the role of each professional and how they can help.

Cover image of 'Breast care for women'

Breast care for women (2016)

CHANGE

An easy read booklet about breast cancer, how to check your breasts, changes to look for and breast screening. 

Cover image of 'My care, my future. A guide for women living with incurable ovarian cancer'

My care, my future. A guide for women living with incurable ovarian cancer (May 2017)

Target Ovarian Cancer

This guide has been written to help women deal with the challenges of living with ovarian cancer that is terminal.

Cover image of 'The cancer guide'

The cancer guide (August 2018)

Macmillan Cancer Support

This booklet is for people living with cancer, and their family, friends and carers. It aims to help you understand what cancer means and what to expect. It also explains where you can get more information and support.

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