The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Please enter a word or phrase into the search box to find relevant materials. If you want to search for a phrase, please use quotes, eg “Macmillan Cancer Support”, “Breast cancer”. If you have any questions about the web directory please contact Sue Hawkins email@example.com
Bowel Cancer UK
Regaining bowel control can be one of the biggest challenges that you face after surgery for bowel cancer. In this booklet we explain approaches you can take and the support available to you.
Prostate Cancer UK
Prostate cancer and its treatment can be a cause of urinary problems. This factsheet describes how different treatments cause these problems and ways to manage them. It includes information on pelvic floor exercises and continence products as well as surgical treatments.
This leaflet explains why a urinary infection might occur following a urostomy, how to prevent an infection, and how to obtain a urine sample. It also briefly describes the symptoms and treatment and what happens in the case of recurrent infections.
This leaflet gives advice on the following problems: leaks, infection, mucus in the urine, hernias, stones, bleeding from the stoma and bleeding from the urethra. It also has tips on taking a urine sample, diet, night drainage systems, and travelling.
PCaSO Prostate Cancer Support Network
This booklet covers diagnosis (including the DRE and the PSA test), the Gleason score and the staging of prostate cancer, treatment options (active surveillance, watchful waiting, radical prostatectomy, external beam radiotherapy, brachytherapy, cryotherapy, high intensity focused ultrasound, hormone treatment, chemotherapy and photodynamic therapy), clinical trials, side effects (sexual problems, continence, bone health), and diet and lifestyle.
Prostate Cancer UK
This factsheet describes pelvic floor muscle exercises for men to help deal with urinary problems such as incontinence following treatment for prostate cancer.
Lymphoedema Support Network
This leaflet explains why skin care is important for people with lymphoedema and gives general advice on skin care, including the use of emollients. It also covers special problems that can occur in lymphoedema, such as dermatitis, fungal infections and lymphorrhoea.
Macmillan Cancer Support
Practical advice on the common and less common symptoms that may occur with cancer, such as fatigue, eating problems, mouth problems, emotional effects, bowel problems, bladder problems, breathing difficulties, and skin problems. It describes the causes of each symptom and the medical and complementary therapies that can help. It has sections on how other people can help, support services, and practical and financial support. Includes a pullout symptom diary and details of useful organisations.
Advice and guidance about reducing the risk of infection while travelling abroad and vaccines for people with lymphoma.
This factsheet explains how the immune system works and how it may be affected by lymphoma and its treatments (chemotherapy, steroids, stem cell transplants, splenectomy, radiotherapy).
Bladder and Bowel Foundation
Urinary incontinence may be a complication of prostate surgery. This factsheet describes what happens after surgery and how to cope at home. It explains the five types of incontinence and how they can be treated. It also describes pelvic floor exercises and includes a bladder training chart.
Prostate Cancer UK
A folder of factsheets for men who have been diagnosed with prostate cancer. It contains factsheets on how prostate cancer is diagnosed, how it is treated and lifestyle issues. The Tool Kit is individually tailored in response to requests from men diagnosed with prostate cancer, but additional factsheets can be requested or downloaded from the website.
This booklet has been written to help teenagers and young people (13+) understand more about cancer, its treatment, how it may affect them, and how to look after themselves while having treatment. It briefly describes cancer, diagnosis and tests, treatment options (surgery, chemotherapy, radiotherapy, steroids, stem cell treatment), the care team, and bone marrow, and neutropaenia and infection. It also has advice on handling side effects and what happens after treatment ends.
This booklet has advice and information for men who have continence problems due to a problem with their prostate or treatment for prostate disease.
This factsheet explains what neutropaenia is and why it occurs in people with lymphoma. It describes the symptoms of an infection and how to deal with it and has tips to help reduce the risk of infection.
This leaflet has information about continent urinary diversion, which avoids the need to wear a urostomy pouch over the stoma to collect urine. It describes pre-operative and post-operative care, and care of the new reservoir.
Guidelines for people with a continent urinary diversion (Mitrofanoff) in the event of problems with pouch function, urinary tract infections, bleeding or discharge.
This guide has been written for people who have been diagnosed with myeloma, and for their families and friends. While it explains what myeloma is and briefly describes treatment options, the focus of the booklet is the emotional response to a diagnosis, with advice on self-care (diet, exercise, coping with pain and fatigue, avoiding infections) finance and travel, and the concerns of carers. Includes a self-help checklist, a list of questions to ask, and details of useful organisations.
Piatkus (Little, Brown Book Group)
Six million people in the UK provide unpaid care for disabled or elderly relatives or neighbours, often unnoticed. Their job is long, lonely and hard, yet there is limited support and no formal training. As a result, carers suffer frequent damage to physical and mental health and are liable to feelings of guilt brought on by fatigue and isolation. Hugh Marriott, a carer himself, has written this book for them - and also for the rest of us who hadn't realised what went on behind those closed doors. The Selfish Pig's Guide to Caring airs topics such as sex, thoughts of murder, coping with incontinence and dealing with friends and officials who fail to understand. It's a must-read for anyone involved with caring. (Publisher)
Guidelines for people with an ileal conduit (urostomy) in the event of problems such as urinary tract infections, bleeding, discharge, a hernia or sore skin.
Guidelines for people with a neobladder in the event of problems with neobladder function, urinary tract infections, or bleeding.
This leaflet has information about travelling with a urostomy. It covers travel by car, train or by air, travel insurance, RADAR keys, 'No waiting' cards, and medical identification bracelets.
Information about prescription charges in England, Wales, Scotland and Northern Ireland.
Macmillan Cancer Support
This booklet is about muscle-invasive and advanced bladder cancer. It is for anyone who is having tests for this type of cancer or has been diagnosed with it. It may also be helpful for family members, friends or carers. The booklet explains the symptoms of muscle-invasive and advanced bladder cancer. It also explains how it is diagnosed and treated, and ways to cope. This includes your feelings, relationships, work and finances.
This booklet describes the use of these three treatments to treat the urinary symptoms that may be caused by an enlarged prostate or by prostate cancer.