The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Please enter a word or phrase into the search box to find relevant materials. If you want to search for a phrase, please use quotes, eg “Macmillan Cancer Support”, “Breast cancer”. If you have any questions about the web directory please contact Sue Hawkins firstname.lastname@example.org
Macmillan Cancer Support
This booklet is about breast cancer in men. It is for men who are having tests for breast cancer and men who have been diagnosed with breast cancer. It explains the signs and symptoms of breast cancer in men. It explains how it is diagnosed and how it may be treated. It also has information about emotional, practical and financial issues.
Children's Cancer and Leukaemia Group
Hair loss is a common side effect of having chemotherapy and of radiotherapy to the head. This book tells the story of Anna, Jack and Laura who all lose their hair while having treatment for cancer and helps young children to understand what might happen.
Breast Cancer Care
Many people will lose either some or all of their hair as a result of treatment for breast cancer. For some, this is the most distressing side effect of treatment. Some people find that being prepared for hair loss before it occurs helps them cope better when it happens. This booklet explains how you may lose your hair and the effect it can have. It looks at how to care for your hair and scalp during and after treatment and the different headwear you may want to try, including wigs and headscarves. It includes step-by-step guides to tying headscarves and tips on recreating the illusion of eyebrows and eyelashes. The final part of the booklet discusses what usually happens when your hair grows back and how to look after it.
Breast Cancer Care
A booklet for women who are experiencing menopausal symptoms after breast cancer treatment. It has advice on treatments (prescription drugs and complementary therapies) and practical measures for coping with hot flushes, vaginal dryness, loss of libido, mood swings, joint pain and risk of osteoporosis. Includes details of further support.
Atria Books (Simon and Schuster)
In this evocative and gorgeously wrought memoir reminiscent of Rob Sheffield’s Love Is a Mixtape and George Hodgman’s Bettyville, Michael Ausiello—a respected TV columnist and founder and editor-in-chief of TVLine.com—remembers his late husband, and the lessons, love, and laughter that they shared throughout their fourteen years together. For the past decade, TV fans of all stripes have counted upon Michael Ausiello’s insider knowledge to get the scoop on their favorite shows and stars. From his time at Soaps in Depth to his influential stints at TV Guide and Entertainment Weekly to his current role as founder and editor-in-chief of the wildly popular website TVLine.com, Michael has established himself as the go-to expert when it comes to our most popular form of entertainment. What many of his fans don’t know, however, is that while his professional life was in full swing, Michael had to endure the greatest of personal tragedies: his husband, Kit Cowan, was diagnosed with a rare and very aggressive form of neuroendocrine cancer. Over the course of eleven months, Kit and Michael did their best to combat the deadly disease, but Kit succumbed to his illness in February 2015. In this heartbreaking and darkly hilarious memoir, Michael tells the story of his harrowing and challenging last year with Kit while revisiting the thirteen years that preceded it, and how the undeniably powerful bond between him and Kit carried them through all manner of difficulty—always with laughter front and center in their relationship. Instead of a tale of sadness and loss, Spoiler Alert: The Hero Dies is an unforgettable, inspiring, and beautiful testament to the resilience and strength of true love. (Publisher)
Macmillan Cancer Support|Winston's Wish
This booklet is written with the childhood bereavement charity, Winston’s Wish. It’s for parents or guardians who are near the end of life and aims to help you prepare and talk to a child or children about your death. Partners, grandparents and close family members may find it useful, too. It may also help you talk to children who are already dealing with the death of a family member.
This book has been written with the average reader in mind; all the information compiled is easy to understand and directed to a public that may be diagnosed with or fear the diagnosis of testicular cancer. The volume walks the reader through each step, starting from the self-examination all the way through diagnosis, treatment, recovery and returning back to normal after the fight. By reading through this book, readers will gain a better understanding of the condition and will have all the information necessary to empower themselves to fight the cancer successfully and react appropriately to the changes that are about to come. Readers affected by testicular cancer, either directly or if you have a friend/family member who have been diagnosed; this book will be there to guide them every step of the way. (Publisher)
Poetry Space Ltd
Mark Sims, a young doctor was diagnosed with advanced skin cancer just before his 27th birthday. This is the story of his 23-month wrestle with the disease, his passion to raise awareness and funds for vital research and how he found love quite unexpectedly, while working through his bucket list. Sadly, Mark died on January 19th 2017. His book is being published posthumously. (Publisher)
Vermilion (Random House)
“You have cancer.” These are perhaps the most feared three words that will ever come out of a doctor’s mouth, and more and more people are hearing them. Yet most patients (and some doctors) do not realize that lifestyle changes can dramatically reduce risk, assist treatment and improve chances of surviving and even thriving after a diagnosis. Over the course of a major study Servan-Schreiber designed with Dr Lorenzo Cohen at the MD Anderson Cancer Center, six key areas have emerged: love and social support, stress management, rest, movement, nutrition and avoiding environmental toxins. Each plays a role--but it's the synergies created by this potent "Mix of Six" that can bring about real shifts in health and well-being, significantly improving quality of life and positively supporting conventional cancer treatments. Dr. David Servan-Schreiber's Anticancer introduced a revolutionary way to understand and confront cancer, changing the lives of millions around the world. He laid out the principles of integrative care that had allowed him to live many years beyond expectations for his own cancer, but readers have long requested a specific plan to implement his approach. Anti cancer Living is that book. (Publisher)
"Cancer is not a laughing matter, as I was told by a cross German lady from Dortmund when I showed her this journal. She had herself had breast cancer and is right of course; there are lots of things that are not fun about cancer, most of them unavoidable. I was therefore as surprised as the next person to realise that a huge amount of funny things happen on the way to chemo, or indeed on the way to most places, and that once you get your eye in, you completely forget to be scared..." This is not just an educational book about cancer, although it is certainly safe to give to cancer patients as a cheerful present. More importantly, it sheds new light on why Kim Kardashian is worth Keeping Up With, what playlists to make for MRI scans, the truth behind the legend of Medea, bikini etiquette on a deserted beach, what to do with a glut of rainbow chard, what an Oscar-winner should say in an acceptance speech, how to deal with cold-callers selling life insurance, and what to wear on a March Against Menopause (layers, obviously)... (Publisher)
NHS Health Scotland
This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active, are lesbian/bisexual, menopausal, or pregnant.
12 June 1995. On his twenty-eighth birthday, Raz Shaw was a directionless gambling addict doing a telesales job that was eating up every trace of what soul he had left. The next day he would be diagnosed with stage 4 sclerosing mediastinal non-Hodgkin’s lymphoma of the large cell type. As he tells it, cancer saved his life. He was given the all-clear in March 1996, and stopped gambling for good that April. After a year away recuperating, he turned his back on the highly paid job that had devoured him and re-assimilated himself into the world of theatre that had once made him feel so alive. It took him a long time to realise quite how much these recoveries were bound up with one another – now he is ready to tell his story. Death and the Elephant is a memoir of living through and beyond illness and addiction. Blessed with the ability to find humour even in life’s darkest moments, Raz charts his struggles with irreverence and unflinching perspective. This is his story, but it’s also a universal one – an honest, funny, sometimes raw, and often inappropriate glimpse into the mind of a young man dealing with a life-threatening illness in the only way he knows how: by laughing in its face. (Publisher)
World Cancer Research Fund
A comprehensive guide to the World Cancer Research Fund's Cancer Prevention Recommendations, packed with tips on simple changes you can make to your diet and lifestyle that will help reduce your risk of cancer.
Ebury Press (Penguin Random House)
Patrick Dillon and Nicola Thorold were together for twenty-eight years. Patrick was an award-winning architect and writer and Nicola a leading figure in theatre, awarded an OBE for her contribution to the arts at London’s Roundhouse. Their two children were almost grown-up. Life was good. And then, in May 2015, Nicola was diagnosed with leukaemia. After several rounds of treatment, a bone marrow transplant and many waves of recovery and decline, she died thirteen months after her diagnosis. Six months later, at Christmas, Patrick started to write. A Moment of Grace is the searing, tender account of Patrick’s life with Nicola and her illness, and his life after her loss. But it is more than a story of illness and unbearable grief: it is a book of memory, of home, of family. It is a tale of the transfiguring power of love. Heartbreaking, life-affirming and truly unforgettable, A Moment of Grace is one man’s journey to find life after his wife’s death. (Publisher)
Macmillan Cancer Support
This booklet is about hair loss. It is for anyone coping with changes to their hair during and after cancer treatment. It explains how cancer treatment may affect your hair, how to prepare for and cope with hair loss, and what to expect after treatment finishes.
Macmillan Cancer Support
This factsheet is about some of the side effects of cancer treatment.
The Royal Marsden NHS Foundation Trust
This booklet describes what chemotherapy is, how it works, how treatment is planned and carried out, and possible side-effects; for example, anaemia, infection, appetite changes, nausea, skin changes, hair loss, and fertility problems. It also briefly discusses issues such as emotional well-being and fatigue. Includes further sources of information and support.
Clare C Davison
“Tomorrow, you will feel a little bit better.” From a loving childhood, belonging to a large family with no history of breast cancer, Clare was alarmed at age 42 to accidentally discover she had the disease. As a self-employed single mum, Clare documents her memoirs of personal experience and knowledge of the cruel decisions made for the aggressive treatments and hair loss ahead. With an inner strength of humour, Clare’s first book includes her lunch arrangements with Peter Andre, a cake nationally released in her honour, an experience of public speaking, media attention and continued fundraising with a moving excerpt from her son. (Publisher)
Comprehensive booklet for young people with lymphoma.
In 2005 Emma Hannigan was 32, happily married to her long-time love, with two young children. Her world was shattered when she discovered that she had the rare gene BRCA1, meaning a 50% chance of developing ovarian cancer and an 85% chance of breast cancer. To reduce the risk, Emma had a double mastectomy and both ovaries removed, but in 2007 received the news that cancer had struck anyway. Twelve years later, Emma is battling cancer for the tenth time. With warmth and wisdom, she shares her journey and her advice on everything from skincare and hair loss to how to keep a sense of humour through it all. All to Live For is a story of one woman's determination not to let cancer win; a story of strength and inspiration, hope and love. And of never giving up. (Publisher)
In Chemo Summer Jane Hoggar takes the reader through a light-hearted and informative account of her discovery of breast cancer and its cure. Cancer of any description has the capacity to chill those it affects and their loved ones. But for Jane Hoggar early discovery and diagnosis provided for a satisfactory resolution. And it's these small details that might well help people in a similar situation. For example, Jane did not discover a lump, which is the usual thing in breast cancer, but a sag' when she raised her arms and it was her insistence that something was wrong that resulted in a vital early medical diagnosis. All the side issues are covered in the book, effects of chemo and radiotherapy, hair loss and wigs, changes in diet and exercise, making Chemo Summer a valuable and engaging look into a serious and often frightening subject. (Publisher)
Breast Cancer Care
A booklet for people having treatment for, or recovering from, breast cancer. It explains what is meant by a healthy diet and what to do if the effects of treatment cause problems such as changes in appetite or taste, nausea, sore mouth, constipation or diarrhoea. It also covers weight gain, weight loss, bone health, dietary supplements, phyto-oestrogens, alcohol, and complementary and alternative diets such as the Bristol diet, dairy-free diets and macrobiotics. Also available as an e-book (Kindle, Kobe or Sony Reader)
Macmillan Cancer Support
Guidance on eating a healthy diet and coping with poor appetite and weight loss, with plenty of recipes for people living with cancer or those caring for them.
Macmillan Cancer Support
Many people find it difficult to eat enough to maintain their weight during and after treatment for cancer. This booklet has suggestions on how to help boost energy and protein levels when appetite is poor. It explains healthy eating and includes sample menus and a suggested shopping list of items to stock up on.
Breast cancer is the most common cancer in women in the UK; there are approximately 45,000 new cases every year. A new diagnosis can be very frightening and many people will have no prior knowledge of the disease. This book is for women and their families who are looking for a comprehensive but plain language guide to breast cancer and its treatments. Many people find that doctors, although highly qualified and well meaning, can forget how little the layperson knows about medical procedures and terminology. Starting with the basics, this guide will look at what breast cancer is and how it’s diagnosed, right through to support options, the treatment available and how to care for your carers. The emotional after-effects of being a survivor are also covered in detail. Written by a survivor of breast cancer and peer reviewed by a breast cancer specialist, this book will provide everything women need to know about breast care, being diagnosed with breast cancer and the road to recovery. (Publisher)
North Staffordshire Press
Flo has two of the most fun and competitive grandads in the world who can never resist the chance to get one over on the other. That is until Flo is faced with some devastating news when one of her grandads is diagnosed with a serious illness. Although her world is turned upside down, Flo continues to be inspired by her grandad whose sheer will, determination and positive attitude will not be diminished no matter what. So join Flo as she embarks on an emotional roller coaster as she laughs, cries, makes new friends and discovers what it truly means to never, ever give up. The Grandad Grand Prix is a fictional story inspired by true events and a must read for all age groups. (Publisher)
Macmillan Cancer Support
An overview of some of the more common side-effects that might happen with cancer treatments: bone marrow and blood, fatigue, mouth problems, nausea and vomiting, diarrhoea and constipation, eating problems, skin, fertility, sex life, hormonal changes. The booklet suggests ways of dealing with them.
Hair Everywhere is the story of one family and how they manage to cope when the mother is diagnosed with cancer. It is a delicate tale that balances itself between the generations, revealing their strengths and weaknesses in times of trouble. It is also a story about how roles within a family can change when things become challenging, due to sickness or death, allowing some to grow and others to fade. Ultimately, this is a book about life; full of humour and absurdity as well as sadness, and set against an everyday background where the ordinary takes on new significance and colour. Tea Tulic’s debut novel is a brave glance at the human condition. (Publisher)
Macmillan Cancer Support
This leaflet explains how to recognise the early signs of cancer and how to reduce the risk. It describes the symptoms to look out for (unexplained bleeding, weight loss, lumps, pain) and how to reduce the risk by making lifestyle changes (smoking, diet, exercise, alcohol drinking and taking care in the sun).
To be alive is to be inside the wave, always travelling until it breaks and is gone. These poems are concerned with the borderline between the living and the dead - the underworld and the human living world - and the exquisitely intense being of both. They possess a spare, eloquent lyricism as they explore the bliss and anguish of the voyage. Inside the Wave, Helen Dunmore's tenth and final book of poetry. Her final poem, 'Hold out your arms', written shortly before her death and not included in the first printing of Inside the Wave, has now been added to the reprint. (Publisher)
Glioblastoma and anaplastic astrocytoma are two of the most common form of brain tumours in adults. Too often they can be life changing, even life limiting for patients, wreaking devastation on their families. This readable, moving and non-technical guide is your comprehensive patient focused guide to these obstinate brain cancers. It covers everything from getting an accurate diagnosis, to dealing with the physical, mental and emotional impact of the disease. From treatment options and how to cope with their side effects, to newly developing techniques and future research. This book presents an honest and realistic picture, with a personal approach. Featuring dozens of personal testimonies from those with these high-grade brain tumours and their loved ones, the book offers information, reassurance and support on these, the most complex of brain tumours. (Publisher)
Hodder & Stoughton
When film producer Martino Sclavi began experiencing intense headaches, he attributed them to his frenetic lifestyle. As it turned out, he had grade 4 brain cancer and was given 18 months to live. After undergoing brain surgery - while awake - Martino found he had lost the ability to recognise words. His response was to close his eyes and begin to move his fingers across the keyboard to write this, an account of life before diagnosis and since. Defying all predictions Martino is still very much alive, words read out to him by the monotone of a computerised voice he calls Alex. But he must now live in a new way. This book - that he has written but cannot read - charts the effects of his experience: on his relationship with his young son, his marriage, his work and with himself. In the wake of his illness, everything must be reconfigured and Martino is made to question the habits, dreams and beliefs of his old life and confront the present. What he finds is strange and beautiful. Searching for the words between life and death, Sclavi shows that with determination and a subtle, persistent sense of humour, it is possible to change the story of our lives. (Publisher)
Macmillan Cancer Support
During and after cancer treatment, many people can experience eating problems. This may be as a result of treatment or the cancer itself. This booklet highlights some common eating problems and why they may happen and suggest some practical ways to manage them.
Rachel and Simon have been married for a long time. They are both parents and grandparents. They love Portugal, but life isn’t as perfect as it appears on the surface. Rachel had breast cancer and as time goes on, family circumstances threaten the very fabric of the family. Is their family unit strong enough to survive what the future has in store for Rachel, Simon and the rest of their family? (Publisher)
Written as a diary, Lisa Primrose goes through the lows and highs of her experiences after being diagnosed with cancer. She takes the reader on an emotional rollercoaster: always positive but not afraid to give the reader a ‘warts and all' description of events. Her interactions with the Health Service are invariably good but she only gets the best out of the system by having a positive attitude to her condition no matter how physically disabling the symptoms are. (Publishers)
In January 2016, at the age of 30, Fi Munro was diagnosed with non-genetic stage four ovarian cancer. In that moment, after months of pain, tests and assurances that it was ‘nothing to worry about’, her instincts were proved right and her worst fears were realised. In the months that followed, understanding her diagnosis, recovery and health became her full-time job. Using her expertise as a researcher she dedicated her time to understanding everything she could about her diagnosis and subsequent prognosis. In this honest, open and often tear-jerking account of her journey back to wholeness, Fi openly shares her story from diagnosis with stage four ‘terminal’ cancer to living an incredible, healthy life full of joy and laughter. This book is a guide for anyone, not just those with cancer, who wants to embrace a happier, healthier and more caring approach to their life. May it bring you hope, peace and, above all, joy. (Publisher)
Hodder & Stoughton
Abi has been given the second chance she never expected, and now she's trying to get her life - and her family - back on track after facing the worst [colon cancer]. But it's hard to trust in happiness again, and reconnecting with her husband John proves more challenging than she thought. Can you really go back to 'normal' after thinking you're going to lose one another? With Abi's son Seb struggling with a secret of his own, the three of them are in danger of falling apart just when they need each other most. But how do you pick up the pieces of a family still suffering emotional shockwaves? And can Abi bring the people she loves most in the world back together again... before it's too late? (Publisher)
Weidenfeld and Nicholson
Danny Baker's third volume of memoirs barrels along at the same cracking pace as its predecessors, the bestselling Going to Sea in a Sieve (the inspiration for the major TV series Cradle to Grave and subsequent nationwide tour) and Going off Alarming. With his trademark exuberance, he recalls the years which included six years' involvement in the massive TV hit TFI Friday ('piling it up with hellzapoppin' ideas') - during which time he stalked John Cleese in New York, entertained David Bowie and Paul McCartney, bizarrely reunites with Sir Michael Caine, gets befriended by Peter O'Toole and becomes a member of Led Zeppelin for 35 minutes. However, the tales are not reliant on celebrity alone, and the book comes packed with the usual quota of Baker family jewels, including Spud's attitude to doctors, Danny's trip to Amsterdam to get stoned for the first time (he fails), getting caught up in football rioting, and the now infamous 'kaboom' of an outburst following his despatch from BBC London. And then there's the cancer. Spoiler alert: this is the one in which he almost dies. Further spoiler alert: he doesn't. (Publisher)
Surgeon: You’ve got cancer, but we can keep you going for a few months, or maybe a few years. Me: Okay, which is it, months or years? Surgeon: Silence. Me: Will it kill me? Surgeon: Yes, it probably will. That was when my head went into overdrive and I lost the plot. Hearing that you have cancer is a life-changing moment. Connecting with Cancer tells the stories of different people affected by different cancers: how their lives were changed, how they found an inner strength, how they found hope and a life after cancer. Each story is personal and sometimes very intimate; in the pages of this book, you will learn what cancer feels like. (Publisher)
The Johns Hopkins University Press
The prospect of entering treatment is overwhelming for anyone facing a diagnosis of cancer. While patients have access to a vast amount of medical information online, this advice is often unreliable or confusing. In Living with Cancer, Drs. Vicki A. Jackson and David P. Ryan have crafted the first step-by-step guide aimed at helping people with this life-defining disease grasp what’s happening to them while coping physically and emotionally with cancer treatment. An empathetic resource full of relatable patient stories, this book teaches patients and caregivers how to ask the right questions to get the best possible care―beginning at the moment of diagnosis. Drs. Jackson and Ryan explain how to work with a team of doctors and nurse practitioners to minimize symptoms and side effects while living as fully as possible in the face of cancer. They relay important information about understanding prognosis, and they translate what doctors mean when they describe tests, treatments, and medical procedures. Finally, they discuss hospice care and answer questions about continuing treatment and managing the final phase of life. Based on new research and a groundbreaking program in which patients are treated with palliative care―along with the best cancer care―during the course of their illness, this honest and caring book provides the right advice to use at the right time throughout a journey with cancer. It allows a person with cancer to concentrate on living the best life possible, despite an uncertain future. Patients at every stage will find Living with Cancer a comprehensive, thoughtful, and accessible guide for navigating the illness and its treatment. (Publisher)
Understanding the causes of hair loss and knowing how to cover it, if you choose to, can help you cope with this change in your appearance. This factsheet offers advice on how to care for your hair and scalp during and after treatment. It also tells you about some of the headwear options you may wish to consider using until your hair grows back
This booklet describes autologous stem cell transplant in detail.
Macmillan Cancer Support
This leaflet explains how cancer treatment may affect the condition and appearance of your skin, hair and nails and has advice and tips on caring for them.
Breast Cancer Care
This booklet is for any woman who has breast cancer and would like more information on how it may affect her sexuality and sexual well-being. It covers sex and sexuality, breast cancer and sexuality, and intimate relationships. Includes photographs, quotes, and sources of information and support.
Breast Cancer Care
Resource pack for people who have finished, or are about to finish, treatment for breast cancer. Includes the DVD 'Eat well, keep active after breast cancer'.
An easy read booklet explaining what dying is, how you might feel if someone you love dies and where you can get support.
Blue Canoe Books
A beautifully illustrated children's book which takes the reader, aged 4 upwards, on an adventure with Davey and his Really Magic Carpet. Davey's magic carpet was a gift from his daddy as he died, and each thread is made from a memory they had together. It is an uplifting story about making memories as a family, that is valuable and engaging for any child, but especially those preparing for loss or needing support if bereaved. It is soft back, 21cmx21cm and includes 3 activity pages. (Publisher)
Enchanted Lion Books
Aware their grandmother is gravely ill, four siblings make a pact to keep death from taking her away. But Death does arrive all the same, as it must. He comes gently, naturally. And he comes with enough time to share a story with the children that helps them to realize the value of loss to life and the importance of being able to say goodbye. (Publisher)
There can be up to 50,000 cases of breast cancer a year in the UK. Ann, in J.A. Prescott's Living for a Reason, is just one. On receiving the news of her condition Ann greets it with the response - You haven't told me that I'm dying yet?' and that is the spirit she carries throughout the book. It is a moving and powerful portrait of a woman who, faced with the vicissitudes of cancer, determines to live life to the full. The book shows Ann as she goes through the stages of cancer and the phases of treatment; the well known mastectomy, the loss of hair, the cosmetic surgery, the chemotherapy and the less well-known side-effects of the drugs. With her condition compounded with the onset of arthritis Ann's determination is inspirational and her story is one of great courage. (Publisher)