The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Please enter a word or phrase into the search box to find relevant materials. If you want to search for a phrase, please use quotes, eg “Macmillan Cancer Support”, “Breast cancer”. If you have any questions about the web directory please contact Sue Hawkins firstname.lastname@example.org
The NHS is our most treasured institution, but even caring doctors have too many patients and too little time, while patients often feel too overwhelmed, embarrassed, intimidated or ill to ask the right questions. Your chances of getting the best care that's right for you are greatly improved if you are able to share in decisions about your treatment. In Staying Alive, Dr Phil Hammond, a GP and campaigner with unrivalled sympathy for patients' needs, helps give you the confidence and the tools to take control of your health care, and shows you in a friendly but authoritative way how to navigate the system. This book will show you how to get your GP to listen to you and take your symptoms seriously, how to get hold of your patient records so you can ensure they're correct, how to get a second opinion and, most importantly, how to get better (and in turn help make the NHS better too). (Publisher)
My son Andrew was only three years old when he was diagnosed with Leukaemia. Now he’s a healthy, happy six-year-old. We Beat Leukemia is my honest account of chemo, childhood and being a mummy to cancer – written over 1235 days from diagnosis to remission. I started writing daily posts to record the highs and lows, frustrations and elations of his childhood cancer treatment. My posts and photos form this book. I’m sharing my family’s experience to raise awareness of childhood cancer (and the UK charities who can offer so much), but also to offer support to families facing the challenges that any child cancer diagnosis brings. I hope to make a difference in the cancer community. (Publisher)
BBC film of the book by Lisa Lynch, starring Sheridan Smith and Paul Nicholls.
Thousand Words Press
The little girl in Nowhere Hair knows two things: Her mom's hair is not on her head anymore, so therefore it must be somewhere around the house. After searching the obvious places, the story reveals that her mother, although going through cancer treatment, is still silly, attentive, happy and yes, sometimes very tired and cranky. She learns that she didn't cause the cancer, can't catch it, and that Mommy still is very much up for the job of mothering. The book, written in rhyme, explains hats, scarves, wigs, going bald in public, and the idea of being nice to people who may look a little different than you. It ends with the idea that what is inside of us is far more important than how we look on the outside. For any parent or grandparent, Nowhere Hair offers a comfortable platform to explain something that is inherently very difficult. (Publisher)
Look Good...Feel Better
This booklet and accompanying DVD has information and advice about make-up, skincare, hand and nail care, wig selection and cutting, scarf tying and head coverings to help manage changes in personal appearance caused by treatment for cancer.
Urbane Publications Limited
At the age of 45, wife and mother Jackie Buxton was diagnosed with breast cancer. Lurching between the crippling fear that the cancer had spread, and the great comfort of knowing she was one of the lucky ones who could be treated, she did what she always does when life presents her with a challenge: she wrote it down. Jackie quickly realised that even with cancer, life was far from bad. Never known for her scientific prowess, she nonetheless became a 'bit of an expert' - at least in the field of hair loss, water retention and biscuits - and decided to use her writing to share experiences and help others recognise you don't have to be defined by your cancer. Tea & Chemo is full of laughter, tears, honesty and hope, and offers inspirational words to everyone facing the life challenges that cancer inevitably brings. All proceeds from the sales of Tea & Chemo will go to three incredibly important charities, whose compassionate care and professionalism make the difference to so many lives: The Haven, Breast Cancer Now and The Robert Ogden Macmillan Centre, Harrogate. (Publisher)
Johns Hopkins University Press
This updated and expanded second edition offers a wealth of information to ease the physical and emotional suffering of women who have ovarian cancer. The expert authors include highly respected and experienced oncologists, gynecologic oncology nurse specialists, researchers, and ovarian cancer survivors. Throughout the book they emphasize the concepts of survivorship, or living life well in the face of daunting uncertainties, and self-determination: the right of each patient to be informed, involved, and in control of her care. Detailed information on diagnosis and treatment, including surgery, chemotherapy, radiation, pain management, and integrative medicine, constitutes a key feature of the book. Also covered in depth are image recovery, nutrition, pain control, and genetic testing. Women who have ovarian cancer share advice on coping with the life-changing disease and its treatments. Offering candor, compassion, and hope, this remarkable book explains how to add quality to your life and take care of medical and social needs while living with ovarian cancer. (Publisher)
This factsheet for children and young people with cancer aged 13 and over has advice about healthy eating during treatment and how to cope with common problems, such as: loss of appetite; weight loss; sore mouth and throat; dry mouth; changes in taste; diarrhoea; and constipation.
The book is divided into three: a detailed section by Clare Shaw about diet and cancer and the problems you may face during treatment (like loss of appetite, nausea, sore mouth, change of taste); recipes to cook during treatment, which are nutritionally beneficial and wholesome enough to keep you strong even if you can’t eat too much; and a section of recipes for after treatment aimed at keeping you healthy. These recipes are designed to serve smaller portions and two people as well as for families, and there are lots of tips about budgeting, leftovers and freezing. Clare and Catherine want to emphasise that you don’t have to cook ‘special’, separate meals for one, the rest of the family can eat in the same way, saving on time and stress as well as encouraging a healthier diet for all. (Publisher)
Iris (or balletgirl-42 as she's known on the internet dating circuit) is a zookeeper looking for love when she is diagnosed with breast cancer. Overnight, her life becomes populated with a carnival of daunting hospital characters. Despite the attempts of her friends – Maud, Granma Suggs, Larry the Monkey and a group of singing penguins – to comfort her, Iris's fears begin to encircle her until all she has to cling to is the attention of a lighthouse keeper called sailor_buoy_39. The Inflatable Woman combines magic realism with the grit of everyday life to create a poignant and surreal journey inside the human psyche. (Publisher)