The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Austin Macauley
In Chemo Summer Jane Hoggar takes the reader through a light-hearted and informative account of her discovery of breast cancer and its cure. Cancer of any description has the capacity to chill those it affects and their loved ones. But for Jane Hoggar early discovery and diagnosis provided for a satisfactory resolution. And it's these small details that might well help people in a similar situation. For example, Jane did not discover a lump, which is the usual thing in breast cancer, but a sag' when she raised her arms and it was her insistence that something was wrong that resulted in a vital early medical diagnosis. All the side issues are covered in the book, effects of chemo and radiotherapy, hair loss and wigs, changes in diet and exercise, making Chemo Summer a valuable and engaging look into a serious and often frightening subject. (Publisher)
The Royal Marsden NHS Foundation Trust
This booklet describes what chemotherapy is, how it works, how treatment is planned and carried out, and possible side-effects; for example, anaemia, infection, appetite changes, nausea, skin changes, hair loss, and fertility problems. It also briefly discusses issues such as emotional well-being and fatigue. Includes further sources of information and support.
Coronet (Hodder & Stoughton)
Award-winning TV comedy writer Carl Gorham's account of his bereavement is by turns deeply moving and darkly humorous. Part love story, part widower's diary, part tales of single parenting, it tells of his wife's cancer, her premature death and his attempts to rebuild his life afterwards with his six -year old daughter. Realised in a series of vivid snapshots, it takes the reader on an extraordinary journey from Oxford to Australia, from Norfolk to Hong Kong through fear, despair, pain and anger to hope, laughter and renewal. The Owl at the Window is a fresh and original exploration of what it means to lose a partner in your forties, and how Carl learned to live again. (Publisher)
Need2Know
Breast cancer is the most common cancer in women in the UK; there are approximately 45,000 new cases every year. A new diagnosis can be very frightening and many people will have no prior knowledge of the disease. This book is for women and their families who are looking for a comprehensive but plain language guide to breast cancer and its treatments. Many people find that doctors, although highly qualified and well meaning, can forget how little the layperson knows about medical procedures and terminology. Starting with the basics, this guide will look at what breast cancer is and how it’s diagnosed, right through to support options, the treatment available and how to care for your carers. The emotional after-effects of being a survivor are also covered in detail. Written by a survivor of breast cancer and peer reviewed by a breast cancer specialist, this book will provide everything women need to know about breast care, being diagnosed with breast cancer and the road to recovery. (Publisher)
Bloodaxe Books
To be alive is to be inside the wave, always travelling until it breaks and is gone. These poems are concerned with the borderline between the living and the dead - the underworld and the human living world - and the exquisitely intense being of both. They possess a spare, eloquent lyricism as they explore the bliss and anguish of the voyage. Inside the Wave, Helen Dunmore's tenth and final book of poetry. Her final poem, 'Hold out your arms', written shortly before her death and not included in the first printing of Inside the Wave, has now been added to the reprint. (Publisher)
Oakleigh House Limited
Receiving a life-changing diagnosis can be overwhelming. This resource aims to you find your way through. It has exercises to help you focus one day at a time, audio recordings to help you relax and a daily planner to get you through difficult times.
The Johns Hopkins University Press
The prospect of entering treatment is overwhelming for anyone facing a diagnosis of cancer. While patients have access to a vast amount of medical information online, this advice is often unreliable or confusing. In Living with Cancer, Drs. Vicki A. Jackson and David P. Ryan have crafted the first step-by-step guide aimed at helping people with this life-defining disease grasp what’s happening to them while coping physically and emotionally with cancer treatment. An empathetic resource full of relatable patient stories, this book teaches patients and caregivers how to ask the right questions to get the best possible care―beginning at the moment of diagnosis. Drs. Jackson and Ryan explain how to work with a team of doctors and nurse practitioners to minimize symptoms and side effects while living as fully as possible in the face of cancer. They relay important information about understanding prognosis, and they translate what doctors mean when they describe tests, treatments, and medical procedures. Finally, they discuss hospice care and answer questions about continuing treatment and managing the final phase of life. Based on new research and a groundbreaking program in which patients are treated with palliative care―along with the best cancer care―during the course of their illness, this honest and caring book provides the right advice to use at the right time throughout a journey with cancer. It allows a person with cancer to concentrate on living the best life possible, despite an uncertain future. Patients at every stage will find Living with Cancer a comprehensive, thoughtful, and accessible guide for navigating the illness and its treatment. (Publisher)
Lymphoma Association
Understanding the causes of hair loss and knowing how to cover it, if you choose to, can help you cope with this change in your appearance. This factsheet offers advice on how to care for your hair and scalp during and after treatment. It also tells you about some of the headwear options you may wish to consider using until your hair grows back
Macmillan Cancer Support
This leaflet explains how cancer treatment may affect the condition and appearance of your skin, hair and nails and has advice and tips on caring for them.
Lymphoma Action
This booklet describes autologous stem cell transplant in detail.
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