The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Please enter a word or phrase into the search box to find relevant materials. If you want to search for a phrase, please use quotes, eg “Macmillan Cancer Support”, “Breast cancer”. If you have any questions about the web directory please contact Sue Hawkins firstname.lastname@example.org
A compassionate, practical guide to end-of-life matters, empowering us to clarify and share our wishes and continue to live life to the fullest. Many people say “I wish I had known what they wanted” when their loved one has died. Too often, a person’s wishes for end-of-life care, and for after they have gone, have not been recorded. With this valuable guide, you can now begin to do this for yourself, so your relatives will be able to honor your wishes more easily, saving them unnecessary stress and upset at a potentially intense time. Before I Go addresses the emotional, spiritual, and practical aspects of end-of-life planning to help you make well-informed decisions about your end-of-life care and prepare well for your death. Jane Duncan Rogers guides you with equanimity, care, and humor through subjects such as how to have a conversation about dying, the impact of grief on relatives responsible for estate matters, DIY funerals and what that entails. She states clearly what you need to have in place to ensure the best end of life possible, helps you identify your values and beliefs in this area, and demonstrates which actions you then need to take, and when. With a full resource pack of essential information available to you, including guiding questions, exercises, and recording tools, as well as downloadable worksheets and supportive online courses, decision-making will be much easier and you will find relief and peace of mind knowing you have taken care of outstanding matters. You will also be giving a great gift to your loved ones. When they have this information in advance, you spare them many difficult decisions and administrative hassle at a time when they will be grieving and not in a fit state to cope. It can bring great comfort to those left behind to know they are indeed carrying out your wishes. It also provides an opportunity for you to record your achievements and history, giving them a legacy they would otherwise not have. (Publisher)
The Pond is a touching picture book about a young boy, and his family, overcoming the loss of his father. This colourful, emotional book is filled with natural imagery, and will teach children not only about death and loss, but the importance of the natural world. From Nicola Davies and Cathy Fisher, the duo behind the beautiful children’s book Perfect. (Publisher)
Stronger than before is the book Alison Porter went looking for when she first learned she had breast cancer. It's a practical handbook to guide you - and your friends and family - through every stage of the illness, from early diagnosis to treatment choices, and ultimately to a life beyond cancer. In this book, you'll discover: the different types of breast cancer, what to ask your doctor and how to make the choices that are right for you; self-help techniques on every level - physical, emotional, mental and spiritual - to support you through treatment and recovery; how to view your illness as a catalyst for post-traumatic growth, and move on with your life with greater meaning and purpose; your options for reconstruction and how to maintain a cancer-preventative lifestyle; advice for friends and family, so they can be truly helpful in how they offer you support. Written by a breast cancer survivor and thriver, Stronger than before contains invaluable information, guidance and tips, as well as tools and techniques to help you emerge from this life-changing experience healthier, more purposeful and stronger than before. (Publisher)
Self-published using CreateSpace Independent Publishing Platform
In this, his first venture into the literary world, Terry Barry has succeeded in producing a distinctive, perceptive and truly heartwarming story about his battle with life-threatening illness and disease, drawing on medical records and diary entries and written in an engagingly immediate style, skilfully and sympathetically addressing the physical, psychological and emotional turmoil that affected him, his family and friends, prompting him to re-evaluate his recollection of past events and determining his aspirations and goals for the future (Publisher).
This information gives details about the symptoms of lymphoma and the possible reasons for them: B symptoms; swollen lymph nodes; fatigue; unexplained weight loss; night sweats; itching; fever; difficulty getting over infections; chest symptoms; abdominal (tummy) symptoms; pain; skin symptoms; brain and nerve symptoms; swelling in the arms or legs; anaemia (low red blood cells).
This factsheet has general guidance for coping with some of the symptoms of lymphoma, including: swollen lymph nodes; fatigue; weight loss; night sweats; itching; pain; skin symptoms; swollen arms or legs; and coping with your emotions.
Jessica Kingsley Publishers
An exploration of death, bereavement and grief. This first hand account gives Geoff Mead's experience of responding to the loss of his wife from a brain tumour. Giving insight into the grieving process and how Geoff learned to manage his grief, this book will offer hope to anyone experiencing something similar. After coming to the realisation that mourning is a conscious process, to which we can apply creativity, passion and intelligence, Geoff explored the unknown territory of bereavement through his writing. The book shows how artful practice, such as writing, can help to make sense of our experience and navigate the wreckage of grief. (Publishers)
Bantam Press (imprint of Transworld Publications)
All we think, feel and dream, how we move, if we move, everything that makes us who we are, comes from the brain. We are the brain. So what happens when the brain fails? What happens when we lose our mind? In January 2015, renowned neuroscientist Barbara Lipska's melanoma spread to her brain. It was, in effect, a death sentence. She had surgery, radiation treatments and entered an immunotherapy clinical trial. And then her brain started to play tricks on her. The expert on mental illness - who had spent a career trying to work out how the brain operates and what happens when it fails - experienced what it is like to go mad. She began to exhibit paranoia and schizophrenia-like symptoms. She became disinhibited, completely unaware of her inappropriate behaviour. She got lost driving home from work, a journey she did every day. She couldn't remember things that had just happened to her. Small details like what she was having for breakfast became an obsession, but she ignored the fact that she was about to die. And she remembers every moment with absolute clarity. Weaving the science of the mind and the biology of the brain into her deeply personal story, this is the dramatic account of Dr Lipska's own brilliant brain gone awry. (Publisher)
The cruel early death of his wife Helen tears up the script of Adam Golightly's middle-class, middle-aged existence. Miserably single, outnumbered by his kids and haunted by life's screaming fragility, he recounts his fight back against the hand of fate. This irreverent and frank memoir follows Adam's snakes-and-ladders journey through his grief in the year following his wife's death, as he struggles with small town tongue wagging, the trauma of teenage bra shopping and online dating anarchy.Adam's is the biggest mid-life crisis anyone could face and as he starts to build a new, alternative life for himself and his children, he shows not just how to survive bereavement but how to be transformed by it. (Publisher)
How do you start a new life when the person you love is about to die? At the age of thirty-six, Gordon Darroch's wife was diagnosed with breast cancer. It was a devastating blow just as he, and their two children with autism, were preparing to move to her native Holland. Eighteen months later, as their plans seemed to be back on course, came the second blow: Magteld was terminally ill and possibly had only a few months to live. As her health rapidly deteriorated, they became caught up in a race against time to get a dying mother home and give their children a future in a country they hardly knew. How could they build a new life in the midst of grief and loss? How would their two sons adjust to such enormous changes? And what would remain of Magteld once she was gone? All the Time We Thought We Had is a story of love and loss and a meditation on grief and memory. It's about how events shape our lives and how we cope with them. And it raises important questions about what we value in life and the legacies we leave behind. (Publisher)