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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 452

Cover image of 'Supporting your grandchild and family. An information guide for grandparents of a child or young person diagnosed with cancer'

Supporting your grandchild and family. An information guide for grandparents of a child or young person diagnosed with cancer (April 2019)

Children's Cancer and Leukaemia Group

Being told your grandchild has cancer comes as a terrible shock. Most grandparents worry not only about their grandchild, but also about how their own son/daughter will cope. Many are also concerned about the effects a cancer diagnosis will have on other children within the family, how they can support their family and how, as grandparents, they themselves will cope. Sometimes, it is not as easy for grandparents to access information first hand and this can lead to feelings of isolation. This guide answers some of the many questions grandparents might have during diagnosis and treatment.

Cover image of 'Lobular neoplasia'

Lobular neoplasia (February 2019)

Breast Cancer Care

This leaflet discusses lobular neoplasia, which includes atypical lobular hyperplasia (ALH) and lobular carcinoma in situ (LCIS). It describes the features, diagnosis, and treatment options, and concludes with guidance on how to cope with a diagnosis of lobular neoplasia and sources of support.

Cover image of 'Peripheral neuropathy'

Peripheral neuropathy (April 2019)

Lymphoma Action

Peripheral neuropathy may be a side-effect of chemotherapy. This factsheet describes peripheral neuropathy, the chemotherapy drugs that most commonly cause it, the symptoms and diagnosis, reducing the risk and managing the symptoms.

Cover image of 'Your breast clinic appointment'

Your breast clinic appointment (April 2019)

Breast Cancer Care

This booklet has been written for anyone referred to a breast clinic. It describes what to expect and the tests that may be carried out, such as a mammogram, an ultrasound scan, fine needle aspiration cytology, core biopsy, punch biopsy and vacuum-assisted biopsy.

Cover image of 'How to get a second opinion'

How to get a second opinion (January 2019)

Brainstrust

This factsheet describes the pros and cons of a second opinion, clarifies the options, and explains how to seek another opinion.

Cover image of 'Understanding ductal carcinoma in situ (DCIS)'

Understanding ductal carcinoma in situ (DCIS) (January 2019)

Macmillan Cancer Support

This booklet has information for women who have ductal carcinoma in situ (DCIS). It describes DCIS, the risk factors and causes, symptoms, diagnosis and tests, staging and grading, and the treatment options (surgery, radiotherapy, hormonal therapies). It also covers issues such as life after treatment and feelings.

Cover image of 'Understanding breast cancer in women'

Understanding breast cancer in women (January 2019)

Macmillan Cancer Support

This booklet is about breast cancer in women. It is for women who are having tests for breast cancer and women who have been diagnosed with breast cancer. It covers breast cancer that has not spread to other parts of the body and describes the causes, symptoms, diagnosis, stages, and treatment (including surgery, radiotherapy, chemotherapy and hormonal therapy). It also discusses issues such as fertility, hormone replacement therapy, and feelings. Includes details of useful organisations and other resources.

Cover image of 'How are you feeling? The emotional effects of cancer'

How are you feeling? The emotional effects of cancer (February 2019)

Macmillan Cancer Support

Having cancer affects all areas of your life, including the way you feel. This booklet is about the main emotions that many people with cancer have. This may be after diagnosis, during treatment or after treatment has ended.

Cover image of '10 top tips for line managers'

10 top tips for line managers (April 2019)

Macmillan Cancer Support

Ten tips to help line managers support an employee through the cancer journey, from diagnosis through treatment and living with cancer.

Cover image of 'Be there for someone facing cancer'

Be there for someone facing cancer (January 2019)

Macmillan Cancer Support

This information is for you if you are supporting a friend, family member or partner who has cancer. You probably want to help, but you might not know what you can do. This leaflet talks about the different stages of having cancer to help you understand what your friend, family member or partner is going through. We explain diagnosis, treatment and what happens after treatment. Each section has practical tips on how you can support the other person and suggestions for how to talk to them about what they are going through. 

Cover image of 'Working while caring for someone with cancer'

Working while caring for someone with cancer (April 2019)

Macmillan Cancer Support

This booklet aims to help working carers cope with work issues they may face because of the impact of their caring role on working life. It describes who a carer is, the different ways of caring, and the impact of cancer treatment on the working carer. It has advice about what to say at work, talking to employers, the legal rights of carers in paid work, social care, financial support, and bereavement. Includes details of useful organisations and websites.

Cover image of 'The two faces of cancer'

The two faces of cancer (2019)

Troubador Publishing

Half of the UK population will receive a diagnosis of cancer at some point in their lives and most people will know someone who has been affected by this complex disease. Drawing from her three personal experiences with cancer alongside her professional experience as a counsellor and personal coach, Rebecca Brazier chronicles her journey through diagnosis, treatment and recovery. When talking about cancer we tend to think about the physical side effects of treatment. Although medical advances are saving and extending lives, less consideration is given to the emotional and psychological trauma which cancer creates. The Two Faces of Cancer describes and addresses this trauma and explores why cancer is difficult to recover from both personally and within society. It describes the devastation and powerful feelings cancer created for Rebecca and how she channelled these to create a meaningful life. It also draws from Rebecca's professional knowledge to analyse the emotional and psychological impact of cancer and to suggest routes to recovery. (Publisher)

Cover image of 'Faith over fear. My journey through bone marrow transplant'

Faith over fear. My journey through bone marrow transplant (2019)

Xulon Press

Sherry's story reveals her testimony through a blood cancer diagnosis and into treatment with a bone marrow transplant. Sherry's faith was tested many times throughout a four year period and especially during the days of her transplant. Her attention to detail and documentation of daily events through the process will prove to be invaluable to so many that may be facing the same type of treatment. Sherry is a Christian, wife, mother, health coach and independent consultant for a health and wellness company. She holds a Masters Degree in Public Administration and is retired from the Federal Government where she served as a Systems Accountant for over 30 years. She is active in her church and aspires to help others through her testimony. (Publisher) 

Cover image of 'Understanding primary bone cancer'

Understanding primary bone cancer (March 2019)

Macmillan Cancer Support

This booklet provides information about primary bone cancer, including the different types, its causes, symptoms, diagnosis and treatment. It also explores emotions, and issues such as living with an amputation. Includes details of useful organisations and other resources such as websites.

Cover image of 'The cancer roller coaster. How to manage the emotional and mental impact'

The cancer roller coaster. How to manage the emotional and mental impact (2019)

Librotas

Two days after celebrating her 50th birthday, Juliette Chan had an unexpected birthday present: bowel cancer. Luckily, they caught it early, but once the treatment was over, the psychological side-effects surfaced. For many months, Juliette was adrift and felt lost. It seemed that everything in her life was up for review and she struggled to gain clarity about what to do next. There were many questions, such as: When will I feel normal again; Why am I not as motivated as before; Will the cancer come back; Why am I mentally exhausted. It took her a while to realise that the cancer had caused a whole load of losses: loss of trust in her body, self-image as a fit and healthy person, energy, confidence, motivation, income and much more. And that’s when the penny dropped; she was grieving. Cancer not only involves coping with the physical disease and treatment – it also means experiencing and dealing with hidden losses that will affect how you view and live your life. Every time you experience a loss, there is an emotional response: grief. Most people only associate grief with bereavement but it is in fact a natural reaction to any and all losses, including the hidden and intangible losses you face with cancer. Anyone who has or has had cancer, as well as their family and friends, will experience grief – because life has changed. This can show up as anger, frustration, anxiety, ‘depression’, fear, sadness, for example. If left unchecked or suppressed, grief will affect your mental health and emotional wellbeing. It doesn’t have to be like this; it is possible to take care of the emotional and mental impact of cancer and to live well. In her easy, relaxed style of writing, Juliette explains the emotional and mental impact of cancer and highlights the limitations of Mindfulness and positive thinking. She has also included a workbook with simple practical exercises that help to release the psychological side-effects and provide clarity. You can also read the candid stories of eight others who faced cancer: Robert describes his initial feelings of shock on diagnosis and how others helped him to cope, whereas Meena recounts going it alone; Petra shares how she continued to run throughout her treatment, and Susan talks movingly about the seemingly endless decision-making from diagnosis onwards; Mary, Tony and June recount their unique experiences of the same cancer

Cover image of 'Patient guide. Diagnosis'

Patient guide. Diagnosis (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'Patient guide. Receiving diagnosis after biopsy'

Patient guide. Receiving diagnosis after biopsy (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'Pancreatic cancer. An overview of diagnosis and treatment'

Pancreatic cancer. An overview of diagnosis and treatment (January 2018)

Pancreatic Cancer UK

This booklet describes pancreatic cancer, what it is, how it is diagnosed, staging, and treatment options. Includes a glossary.

Cover image of 'Breast cancer and you: coping with diagnosis, treatment and the future'

Breast cancer and you: coping with diagnosis, treatment and the future (August 2018)

Breast Cancer Care

This booklet is for anyone who is dealing with a diagnosis of primary breast cancer and its treatment. It discusses the emotions that may arise, how to tell other people, how to find out more, making decisions about treatment, and the effects of treatment, and looks ahead to the time when treatment is finished.

Cover image of 'Moving forward: for people living with and beyond a diagnosis of primary breast cancer'

Moving forward: for people living with and beyond a diagnosis of primary breast cancer (November 2018)

Breast Cancer Care

This book is designed to help you move forward after breast cancer. From signs and symptoms of recurrence to dealing with fatigue and financial issues, it offers practical solutions and sources of further support. Whether you have just reached the end of your treatment or your diagnosis of breast cancer was several years ago, this book is for you.

Cover image of 'Caring for someone with a lung condition. Information for carers, family and friends'

Caring for someone with a lung condition. Information for carers, family and friends (November 2018)

British Lung Foundation

Information and support for those caring for someone with a lung condition (not specifically lung cancer).

Cover image of 'What is pancreatic cancer and how is it diagnosed?'

What is pancreatic cancer and how is it diagnosed? (September 2018)

Pancreatic Cancer Action

This booklet for patients and carers describes pancreatic cancer, its causes and symptoms. It has detailed information on the diagnostic tests used and the stages of pancreatic cancer. It includes a section on what to ask your doctor, where to go for further information and a glossary to explain many of the terms used.

Cover image of 'If you are diagnosed with cancer – a quick guide [Polish]'

If you are diagnosed with cancer – a quick guide [Polish] (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support. Includes the English-language version.

Cover image of 'The bowel screening test. What you need to know [Urdu]'

The bowel screening test. What you need to know [Urdu] (2018)

NHS Health Scotland

This leaflet explains the benefits of the bowel screening test, how the test is done, and the signs and symptoms of bowel cancer, and has tips on how to reduce the risk of bowel cancer.

Cover image of 'The bowel screening test. What you need to know [Polish]'

The bowel screening test. What you need to know [Polish] (2018)

NHS Health Scotland

This leaflet explains the benefits of the bowel screening test, how the test is done, and the signs and symptoms of bowel cancer, and has tips on how to reduce the risk of bowel cancer.

Cover image of 'If you are diagnosed with cancer – a quick guide [Welsh]'

If you are diagnosed with cancer – a quick guide [Welsh] (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support.  

Cover image of 'If you are diagnosed with cancer – a quick guide [Arabic]'

If you are diagnosed with cancer – a quick guide [Arabic] (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support. Includes the English-language version.

Cover image of 'If you are diagnosed with cancer – a quick guide [Russian]'

If you are diagnosed with cancer – a quick guide [Russian] (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support. Includes the English-language version.

Cover image of 'If you are diagnosed with cancer – a quick guide [Punjabi]'

If you are diagnosed with cancer – a quick guide [Punjabi] (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support. Includes the English-language version. 

Cover image of 'If you are diagnosed with cancer – a quick guide [Gujarati]'

If you are diagnosed with cancer – a quick guide [Gujarati] (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support. Includes the English-language version.

Cover image of 'How is pancreatic cancer diagnosed?'

How is pancreatic cancer diagnosed? (August 2018)

Pancreatic Cancer UK

This factsheet is for anyone having tests for pancreatic cancer. Family members may also find it helpful. It explains the different tests that you might have, what they involve, and what your test results mean. There is also information about the support available. 

Cover image of 'If you are diagnosed with cancer – a quick guide [Urdu]'

If you are diagnosed with cancer – a quick guide [Urdu] (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support.  

Cover image of 'Ultrasound scan'

Ultrasound scan (April 2018)

Lymphoma Action

This factsheet describes the use of ultrasound scans in the diagnosis of lymphoma. It explains why the test is used and describes what happens during the scan.

Cover image of 'Explaining the NICE guidelines for diagnosing and managing pancreatic cancer'

Explaining the NICE guidelines for diagnosing and managing pancreatic cancer (August 2018)

Pancreatic Cancer UK

The National Institute for Health and Care Excellence (NICE) has produced guidelines for health professionals diagnosing and caring for people with pancreatic cancer. These guidelines are for the most common type of pancreatic cancer, pancreatic ductal adenocarcinoma. Health professionals don’t have to follow these guidelines, but they must take them into account when making decisions about care. They should also take your needs and wishes into account.

Cover image of 'Biopsy'

Biopsy (April 2018)

Lymphoma Action

This information sheet describes different types of biopsy and what to expect.

Cover image of 'The bowel screening test. What you need to know [Chinese, Simplified]'

The bowel screening test. What you need to know [Chinese, Simplified] (2018)

NHS Health Scotland

This leaflet explains the benefits of the bowel screening test, how the test is done, and the signs and symptoms of bowel cancer, and has tips on how to reduce the risk of bowel cancer.

Cover image of 'If you are diagnosed with cancer – a quick guide [Bengali]'

If you are diagnosed with cancer – a quick guide [Bengali] (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support. Includes the English-language version.

Cover image of 'A smear test could save your life. Don't ignore your invitation [French]'

A smear test could save your life. Don't ignore your invitation [French] (2018)

NHS Health Scotland

This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active, are lesbian/bisexual, menopausal, or pregnant. 

Cover image of 'The bowel screening test. What you need to know [Arabic]'

The bowel screening test. What you need to know [Arabic] (October 2018)

NHS Health Scotland

This leaflet explains the benefits of the bowel screening test, how the test is done, and the signs and symptoms of bowel cancer, and has tips on how to reduce the risk of bowel cancer.

Cover image of 'Being referred for tests and scans'

Being referred for tests and scans (April 2018)

Lymphoma Action

This factsheet briefly covers the tests the GP can do, how long will does it take to get a hospital appointment, and being referred to a local hospital.

Cover image of 'Breast cancer during and after pregnancy'

Breast cancer during and after pregnancy (May 2018)

Breast Cancer Care

A booklet for women whose breast cancer has been diagnosed during pregnancy or within a year of giving birth. It describes how breast cancer is diagnosed in pregnancy and the treatment options. It also covers coping with the diagnosis and continuing with the pregnancy.

Cover image of 'Complementary therapies, relaxation and wellbeing'

Complementary therapies, relaxation and wellbeing (February 2018)

Breast Cancer Care

This booklet is about relaxation and wellbeing during and after breast cancer treatment. It looks at complementary therapies such as acupuncture, Reiki and massage. It also describes some popular relaxation techniques, including meditation and mindfulness, and has information on yoga, Thai Chi and Chi Gung. It discusses why people might use these complementary therapies and relaxation techniques after a diagnosis of breast cancer, and what they may need to think about before trying them. It also explains what herbal medicines and homeopathy are. 

Cover image of 'Tom has lymphoma'

Tom has lymphoma (November 2018)

CLIC Sargent|Lymphoma Action

Tom is ten years old when he is diagnosed with lymphoma. This illustrated, colour storybook for parents to read with their children describes what happens when he has to go to the hospital for tests and treatment. The story follows Tom from when he first feels ill, through diagnosis and treatment, to recovery and return to normal life.

Cover image of 'A smear test could save your life. Don't ignore your invitation [Farsi]'

A smear test could save your life. Don't ignore your invitation [Farsi] (2018)

NHS Health Scotland

This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active, are lesbian/bisexual, menopausal, or pregnant. 

Cover image of 'A smear test could save your life. Don't ignore your invitation [Slovak]'

A smear test could save your life. Don't ignore your invitation [Slovak] (2018)

NHS Health Scotland

This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active, are lesbian/bisexual, menopausal, or pregnant. 

Cover image of 'The bowel screening test. What you need to know [Chinese, Traditional]'

The bowel screening test. What you need to know [Chinese, Traditional] (2018)

NHS Health Scotland

This leaflet explains the benefits of the bowel screening test, how the test is done, and the signs and symptoms of bowel cancer, and has tips on how to reduce the risk of bowel cancer.

Cover image of 'If you are diagnosed with cancer – a quick guide [Romanian]'

If you are diagnosed with cancer – a quick guide [Romanian] (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support. Includes the English-language version.

Cover image of 'A smear test could save your life. Don't ignore your invitation [Tigrinya]'

A smear test could save your life. Don't ignore your invitation [Tigrinya] (2018)

NHS Health Scotland

This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active, are lesbian/bisexual, menopausal, or pregnant. 

Cover image of 'If you are diagnosed with cancer – a quick guide [Portuguese]'

If you are diagnosed with cancer – a quick guide [Portuguese] (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support. Includes the English-language version.

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