The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Please enter a word or phrase into the search box to find relevant materials. If you want to search for a phrase, please use quotes, eg “Macmillan Cancer Support”, “Breast cancer”. If you have any questions about the web directory please contact Sue Hawkins firstname.lastname@example.org
The creator of the viral hit "Empathy Cards" teams up with a compassion expert to produce a visually stunning and groundbreaking illustrated guide to help you increase your emotional intelligence and learn how to offer comfort and support when someone you know is in pain. When someone you know is hurting, you want to let her know that you care. But many people don’t know what words to use—or are afraid of saying or doing the wrong thing. This thoughtful, instructive guide, from empathy expert Dr. Kelsey Crowe and greeting card maverick Emily McDowell, blends well-researched, actionable advice with the no-nonsense humor and the signature illustration style of McDowell's immensely popular Empathy Cards, to help you feel confident in connecting with anyone experiencing grief, loss, illness, or any other difficult situation. Written in a how-to, relatable, we’ve-all-been-that-deer-in-the-headlights kind of way, There Is No Good Card for This isn’t a spiritual treatise on how to make you a better person or a scientific argument about why compassion matters. It is a helpful illustrated guide to effective compassion that takes you, step by step by step, past the paralysis of thinking about someone in a difficult time to actually doing something (or nothing) with good judgment instead of fear. There Is No Good Card for This features workbook exercises, sample dialogs, and real-life examples from Dr. Crowe’s research, including her popular "Empathy Bootcamps" that give people tools for building relationships when it really counts. Whether it’s a coworker whose mother has died, a neighbor whose husband has been in a car accident, or a friend who is seriously ill, There Is No Good Card for This teaches you how to be the best friend you can be to someone in need. (Publisher)
The Brain Tumour Charity
This factsheet explains how brain tumours can affect communication. It describes the communication difficulties that someone with a brain tumour may experience, how to help someone to communicate, other difficulties patients may face, the interventions available, and other sources of support.
AMEND (Association for Multiple Endocrine Neoplasia Disorders)
Advice for parents about how to talk to children and young people about the presence of a multiple endocrine neoplasia (MEN) gene in the family. It covers issues such as: What helps young people and children?; When is a good time to tell your children?; What information do you tell children?; Communication tips; What are children likely to know about genes and inheritance?; What helped parents talk to their children; Preparing to talk to your children; Benefits; Drawbacks.
The Brain Tumour Charity
This factsheet explains what is meant by cognitive impairment and chemobrain and how brain tumours and their treatments can impact on communication, perception, decision making, and social cognition.
Children's Cancer and Leukaemia Group
Illustrated booklet for teachers with a child or young person in their class who has been diagnosed with cancer. It provides background information about cancer, the common cancers that affect children and young people, and the type of treatments used. It also contains information on useful organisations and reading materials.
Many people are unsure about how to talk to someone who might be distressed or in difficulty. Questions about the illness, its symptoms, its meaning or its impact can be hard to ask. This guide will help people talk to those close to them,.
Jones and Bartlett Publishers
Johns Hopkins Patient Guide to Colon and Rectal Cancer is a concise patient guide on treating and coping with colorectal cancer. Learning that you or someone you love has cancer is devastating, and feeling lost and powerless is a common immediate response. The Johns Hopkins Patients’ Guides are designed to alleviate your anxiety, empower you with information, and enable you to fully understand your treatment options. Each book in this series is dedicated to a specific type of cancer. The information is there to help lighten your burden and to assist you in becoming an active participant in your care. Cancer rarely allows us to take a diversion from life, and offering guidance on how to continue to live life while working hard on getting well is part of the outcome we hope to help you achieve. (Publisher)
The transition from childhood to adulthood can be a challenging process at the best of times. This booklet aims to help you understand what is normal adolescent development, and to recognise the additional problems teenagers may face if someone important dies during these years. This booklet is based on many years' experience of working with bereaved teenagers, families and professionals who support them and the information here will help you to consider how to respond to the individual needs of a bereaved teenager.
Southgate Publishers Ltd
Offers in-depth advice and guidance for adults about how to help children and young people deal with an expected death in the family. The book includes detailed sections on telling the children, questions children may ask, ways to encourage communication between adults and children, creating lasting memories together and dealing with death. The book will be of great help to adults going through this most difficult and painful time, It will also be a useful resource for professionals working with pre- and post-bereaved families. (Publisher)
This booklet covers a variety of issues that may affect a child when a person close to them dies, both immediately and in the longer term. It has practical suggestions and ideas for activities to do together with a child and includes a section on suggested further reading and where to find additional support.
Cancer Lifeline Publications
This book candidly discusses the challenges of living with the personality and behavior changes brain cancer brings, and offers practical tools to make the journey easier. Joni Aldrich and Neysa Peterson have each cared for a spouse with a brain illness. They have combined their insights in this practical, straight-talking guide. Readers will learn: symptoms a brain cancer patient may experience; how to create and maintain a warm, comfortable and safe environment; methods to use if communication becomes an issue; how to deal with changes in personality, behavior, and emotions, including loss of social inhibition skills; how to handle issues related to changes in memory and the resulting confusion; how to work through indifference, sadness, and depression towards some peace; how to cope with self-destructive behavior-safety is your number one concern; how to have end-of-life discussions and fulfil final wishes. When a family member or friend is diagnosed with cancer, life as you know it has ended. Not only must you face the chaos of doctors' visits, exhausting treatments, and sleepless nights, you must try to savor every precious moment with your loved one. When the diagnosis is brain cancer, you must endure all this plus one more challenge: the person you love may look the same, and sound the same-but he or she is not the same. His or her personality may change in extreme ways. A kind and loving person may become angry and say hurtful things. A warm, upbeat person may withdraw or behave in self-destructive ways. The essence of your loved one can disappear, even as he or she continues to live. With the tools in this book, you can continue to love and be loved during this difficult crisis. 'The last weeks of Gordon's life were spent with someone that I barely knew and didn't know how to approach. It took me two years of counseling to get through the scars. It didn't have to be that way for me. And it certainly doesn't have to be that way for you.' Joni Aldrich (Publisher)
When a family member has cancer it is hard for everyone to understand. It can be particularly difficult when a parent or carer faces the challenge of trying to explain to their child what cancer means and how it may affect their family. This booklet is aimed at supporting parents or carers with this task, and encourages open communication and questions about cancer within the family. Through pictures, captions and straightforward language, it explains how tumours are formed, what the various treatments are and how these may affect the person with cancer. It stresses the need to keep to family routines and, importantly, to still try and have fun. It is aimed at children aged 7-10 and will work best when an adult is present to expand on the simple messages in the text. (Publisher)
Milly's Bug Nut is the story of a family finding their way through bereavement and of Milly who finds an unexpected answer to her heart's desire. Jill Janney, the author of Milly's Bug Nut, wrote this story for her own children after the death of their father.