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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 34

Cover image of 'Telling your child you have cancer'

Telling your child you have cancer (January 2017)

University College London Hospital Cancer Collaborative|Fruit Fly Collective

A short film produced with the Fruit Fly Collective to support parents when they decide to tell their children about their cancer diagnosis. It provides guidance about how and when to tell them, and looks at different age groups and how they may feel and behave when they have been told. 

Cover image of '10 top tips. Worried about pancreatic cancer? Helping you to talk to your GP'

10 top tips. Worried about pancreatic cancer? Helping you to talk to your GP (2017)

Pancreatic Cancer UK

Tips to help people talk to their GP. 

Cover image of 'Living with lymphoma'

Living with lymphoma (August 2017)

Lymphoma Action

Detailed information about living with lymphoma.

Cover image of 'Talking about cancer'

Talking about cancer (July 2017)

Macmillan Cancer Support

This booklet is about talking about cancer. It is for anyone who has a cancer diagnosis. It explains: the benefits of talking about cancer; how to overcome the things that make talking difficult; how to deal with other people’s reactions. It also has practical tips for talking and asking for support.

Cover image of 'There is no good card for this: what to say and do when life is scary, awful, and unfair to people you love'

There is no good card for this: what to say and do when life is scary, awful, and unfair to people you love (2017)

HarperOne

The creator of the viral hit "Empathy Cards" teams up with a compassion expert to produce a visually stunning and groundbreaking illustrated guide to help you increase your emotional intelligence and learn how to offer comfort and support when someone you know is in pain. When someone you know is hurting, you want to let her know that you care. But many people don’t know what words to use—or are afraid of saying or doing the wrong thing. This thoughtful, instructive guide, from empathy expert Dr. Kelsey Crowe and greeting card maverick Emily McDowell, blends well-researched, actionable advice with the no-nonsense humor and the signature illustration style of McDowell's immensely popular Empathy Cards, to help you feel confident in connecting with anyone experiencing grief, loss, illness, or any other difficult situation. Written in a how-to, relatable, we’ve-all-been-that-deer-in-the-headlights kind of way, There Is No Good Card for This isn’t a spiritual treatise on how to make you a better person or a scientific argument about why compassion matters. It is a helpful illustrated guide to effective compassion that takes you, step by step by step, past the paralysis of thinking about someone in a difficult time to actually doing something (or nothing) with good judgment instead of fear. There Is No Good Card for This features workbook exercises, sample dialogs, and real-life examples from Dr. Crowe’s research, including her popular "Empathy Bootcamps" that give people tools for building relationships when it really counts. Whether it’s a coworker whose mother has died, a neighbor whose husband has been in a car accident, or a friend who is seriously ill, There Is No Good Card for This teaches you how to be the best friend you can be to someone in need. (Publisher)

Cover image of 'Relationships, family, friends'

Relationships, family, friends (July 2016)

Lymphoma Association

This information sheet describes some of the ways lymphoma can affect relationships. It also offers some guidance on how to communicate with the people around you after a diagnosis of lymphoma.

Cover image of 'Communication difficulties and brain tumours'

Communication difficulties and brain tumours (February 2016)

The Brain Tumour Charity

This factsheet explains how brain tumours can affect communication. It describes the communication difficulties that someone with a brain tumour may experience, how to help someone to communicate, other difficulties patients may face, the interventions available, and other sources of support.

Cover image of 'Talking with someone who has cancer'

Talking with someone who has cancer (March 2016)

Macmillan Cancer Support

This booklet aims to help you talk with and support a relative or friend who has cancer.

Cover image of 'Cognition and brain tumours'

Cognition and brain tumours (January 2016)

The Brain Tumour Charity

This factsheet explains what is meant by cognitive impairment and chemobrain and how brain tumours and their treatments can impact on communication, perception, decision making, and social cognition.

Cover image of 'How to hold a difficult conversation'

How to hold a difficult conversation (October 2014)

Brainstrust

Many people are unsure about how to talk to someone who might be distressed or in difficulty. Questions about the illness, its symptoms, its meaning or its impact can be hard to ask. This guide will help people talk to those close to them,.

Cover image of 'Johns Hopkins patients' guide to colon and rectal cancer'

Johns Hopkins patients' guide to colon and rectal cancer (2014)

Jones and Bartlett Publishers

Johns Hopkins Patient Guide to Colon and Rectal Cancer is a concise patient guide on treating and coping with colorectal cancer. Learning that you or someone you love has cancer is devastating, and feeling lost and powerless is a common immediate response. The Johns Hopkins Patients’ Guides are designed to alleviate your anxiety, empower you with information, and enable you to fully understand your treatment options. Each book in this series is dedicated to a specific type of cancer. The information is there to help lighten your burden and to assist you in becoming an active participant in your care. Cancer rarely allows us to take a diversion from life, and offering guidance on how to continue to live life while working hard on getting well is part of the outcome we hope to help you achieve. (Publisher)

Cover image of 'The best treatment. Your guide to breast cancer treatment in England and Wales'

The best treatment. Your guide to breast cancer treatment in England and Wales (November 2013)

Breast Cancer Now

This set of guidelines for women and men with primary breast cancer brings together expert advice from professional guidelines. The guidelines cover diagnosis, communication and care, treatment for primary breast cancer (surgery, radiotherapy, chemotherapy, hormonal therapy) and follow-up.

Cover image of 'Talking to children and teenagers when an adult has cancer [Audio CD]'

Talking to children and teenagers when an adult has cancer [Audio CD] (August 2013)

Macmillan Cancer Support

Audio CD of the booklet, which is designed to help people decide how much to tell children about a diagnosis of cancer, when to tell them, and what to say if they ask about dying. It covers the following areas: telling children about cancer; explaining about cancer and treatment; how children react; talking about dying; telling other people; and childcare. It concludes with a list of key points to remember, details of support available, and explanations of common medical terms.

Cover image of 'Lost for words - how to talk to someone with cancer [Audio CD]'

Lost for words - how to talk to someone with cancer [Audio CD] (August 2013)

Macmillan Cancer Support

Audio CD of the booklet. Covers issues such as the importance of talking and listening, how to be a good listener and how to help a person with cancer. Includes details of useful organisations and other resources such as books and websites.

Cover image of 'You just don't understand. Supporting bereaved teenagers'

You just don't understand. Supporting bereaved teenagers (April 2013)

Winston's Wish

The transition from childhood to adulthood can be a challenging process at the best of times. This booklet aims to help you understand what is normal adolescent development, and to recognise the additional problems teenagers may face if someone important dies during these years. This booklet is based on many years' experience of working with bereaved teenagers, families and professionals who support them and the information here will help you to consider how to respond to the individual needs of a bereaved teenager.

Cover image of 'Coping successfully with chronic illness. Your healing plan'

Coping successfully with chronic illness. Your healing plan (2013)

Sheldon Press

Chronic illness involves huge stress and uncertainty, especially when you come to the end of what the doctor can offer. Many conditions need on-going management, such as migraine, epilepsy, diabetes, persisting fatigue, arthritis, cancer, and pain. This book, by a popular Sheldon author, aims to empower those with chronic illness where medical help may be limited. It explores the possibilities of healing, along with the importance of taking responsibility for self-management. It also looks at practicalities such as planning and pacing in everyday tasks; avoiding isolation and developing effective communication with others; nutrition and natural remedies; balancing exercise, relaxation, and stress; avoiding depression and regaining self-esteem; and building in time for enjoyment. (Publisher)

Cover image of 'The best treatment. Your guide to breast cancer treatment in Scotland'

The best treatment. Your guide to breast cancer treatment in Scotland (October 2012)

Breast Cancer Now

This set of guidelines for women and men with primary breast cancer brings together expert advice from professional guidelines. The guidelines cover diagnosis, communication and care, treatment for primary breast cancer (surgery, radiotherapy, chemotherapy, hormonal therapy) and follow-up.

Cover image of 'Saying goodbye. Helping families deal with pre- and post-bereavement'

Saying goodbye. Helping families deal with pre- and post-bereavement (2011)

Southgate Publishers Ltd

Offers in-depth advice and guidance for adults about how to help children and young people deal with an expected death in the family. The book includes detailed sections on telling the children, questions children may ask, ways to encourage communication between adults and children, creating lasting memories together and dealing with death. The book will be of great help to adults going through this most difficult and painful time, It will also be a useful resource for professionals working with pre- and post-bereaved families. (Publisher)

Cover image of 'Talking to children and young people about multiple endocrine neoplasia (MEN)'

Talking to children and young people about multiple endocrine neoplasia (MEN) (August 2010)

AMEND (Association for Multiple Endocrine Neoplasia Disorders)

Advice for parents about how to talk to children and young people about the presence of a multiple endocrine neoplasia (MEN) gene in the family. It covers issues such as: What helps young people and children?; When is a good time to tell your children?; What information do you tell children?; Communication tips; What are children likely to know about genes and inheritance?; What helped parents talk to their children; Preparing to talk to your children; Benefits; Drawbacks.

Cover image of 'A child's grief. Supporting a child when someone in the family has died'

A child's grief. Supporting a child when someone in the family has died (November 2010)

Winston's Wish

This booklet covers a variety of issues that may affect a child when a person close to them dies, both immediately and in the longer term. It has practical suggestions and ideas for activities to do together with a child and includes a section on suggested further reading and where to find additional support.

Cover image of 'Connecting through compassion. Guidance for family and friends of a brain cancer patient'

Connecting through compassion. Guidance for family and friends of a brain cancer patient (2010)

Cancer Lifeline Publications

This book candidly discusses the challenges of living with the personality and behavior changes brain cancer brings, and offers practical tools to make the journey easier. Joni Aldrich and Neysa Peterson have each cared for a spouse with a brain illness. They have combined their insights in this practical, straight-talking guide. Readers will learn: symptoms a brain cancer patient may experience; how to create and maintain a warm, comfortable and safe environment; methods to use if communication becomes an issue; how to deal with changes in personality, behavior, and emotions, including loss of social inhibition skills; how to handle issues related to changes in memory and the resulting confusion; how to work through indifference, sadness, and depression towards some peace; how to cope with self-destructive behavior-safety is your number one concern; how to have end-of-life discussions and fulfil final wishes. When a family member or friend is diagnosed with cancer, life as you know it has ended. Not only must you face the chaos of doctors' visits, exhausting treatments, and sleepless nights, you must try to savor every precious moment with your loved one. When the diagnosis is brain cancer, you must endure all this plus one more challenge: the person you love may look the same, and sound the same-but he or she is not the same. His or her personality may change in extreme ways. A kind and loving person may become angry and say hurtful things. A warm, upbeat person may withdraw or behave in self-destructive ways. The essence of your loved one can disappear, even as he or she continues to live. With the tools in this book, you can continue to love and be loved during this difficult crisis. 'The last weeks of Gordon's life were spent with someone that I barely knew and didn't know how to approach. It took me two years of counseling to get through the scars. It didn't have to be that way for me. And it certainly doesn't have to be that way for you.' Joni Aldrich (Publisher)

Cover image of 'The secret C: straight talking about cancer'

The secret C: straight talking about cancer (2009)

Winston's Wish

When a family member has cancer it is hard for everyone to understand. It can be particularly difficult when a parent or carer faces the challenge of trying to explain to their child what cancer means and how it may affect their family. This booklet is aimed at supporting parents or carers with this task, and encourages open communication and questions about cancer within the family. Through pictures, captions and straightforward language, it explains how tumours are formed, what the various treatments are and how these may affect the person with cancer. It stresses the need to keep to family routines and, importantly, to still try and have fun. It is aimed at children aged 7-10 and will work best when an adult is present to expand on the simple messages in the text. (Publisher)

Cover image of 'Milly's bug-nut'

Milly's bug-nut (2002)

Winston's Wish

Milly's Bug Nut is the story of a family finding their way through bereavement and of Milly who finds an unexpected answer to her heart's desire. Jill Janney, the author of Milly's Bug Nut, wrote this story for her own children after the death of their father.

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