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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 35

Cover image of 'Talking to children about lymphoma'

Talking to children about lymphoma (July 2019)

Lymphoma Action

Guidance for people with lymphoma on what to tell their children and where to find other resources: Should I tell my child?; How can I talk to my child about lymphoma?; What should I say?; Keep communication open; Older children and teenagers; If someone close to you has lymphoma: animations for children; Resources.

Cover image of 'Communicating with the people around you'

Communicating with the people around you (July 2019)

Lymphoma Action

Lymphoma can put pressure on your relationships. This factsheet is for anyone affected by lymphoma, including family and friends of someone with a diagnosis. It offers tips to help you communicate well with the people around you.  

Cover image of 'Relationships, family, friends'

Relationships, family, friends (July 2019)

Lymphoma Action

This factsheet describes some of the ways lymphoma might affect your relationships. It covers: The impact of lymphoma on relationships; You and your partner; Friends, colleagues and acquaintances; Connecting with others who are affected by lymphoma.

Cover image of 'Talking about cancer'

Talking about cancer (May 2019)

Macmillan Cancer Support

This booklet is about talking about cancer. It is for anyone who has a cancer diagnosis. It explains: the benefits of talking about cancer; how to overcome the things that make talking difficult; how to deal with other people’s reactions. It also has practical tips for talking and asking for support.

Cover image of 'Cancer and relationships. Support for partners, families and friends'

Cancer and relationships. Support for partners, families and friends (January 2019)

Macmillan Cancer Support

This booklet is about coping with your feelings when someone close to you has cancer. It is for anyone who is close to someone with cancer, including partners, family members and friends. This booklet replaces two booklets: Be there for someone facing cancer; and Coping when someone close to you has cancer. 

Cover image of 'Be there for someone facing cancer'

Be there for someone facing cancer (January 2019)

Macmillan Cancer Support

This information is for you if you are supporting a friend, family member or partner who has cancer. You probably want to help, but you might not know what you can do. This leaflet talks about the different stages of having cancer to help you understand what your friend, family member or partner is going through. We explain diagnosis, treatment and what happens after treatment. Each section has practical tips on how you can support the other person and suggestions for how to talk to them about what they are going through. 

Cover image of 'Talking to your family and friends'

Talking to your family and friends (August 2019)

Ovacome

This briefing looks at the issues raised among family members, children and friends when someone is diagnosed with ovarian cancer. It also gives sources of help and support.

Cover image of 'Talking to children and teenagers when an adult has cancer'

Talking to children and teenagers when an adult has cancer (May 2019)

Macmillan Cancer Support

This booklet is designed to help people talk to children and teenagers about cancer. It has suggestions about how to tell a child or teenager that you have cancer, understand their reactions, help them cope, explain cancer treatments, and deal with changes to family life.

Cover image of 'Talking with someone who has cancer'

Talking with someone who has cancer (May 2019)

Macmillan Cancer Support

This booklet is about talking with someone who has cancer. It is for anyone who wants to support someone with cancer, including carers, family members and friends. The booklet explains how to talk to and support someone who has cancer.  

Cover image of '7 steps to equal healthcare. Your guide to getting good health care if you have a learning disability [Easy read]'

7 steps to equal healthcare. Your guide to getting good health care if you have a learning disability [Easy read] (June 2018)

ENABLE Scotland|Macmillan Cancer Support|CHANGE

This booklet is about getting good health care if you have cancer and a learning disability.

Cover image of 'Questions to ask'

Questions to ask (April 2018)

Lymphoma Action

Questions for people to ask their medical team: Questions about your lymphoma; Questions about tests and scans; Questions about staging; Questions about active monitoring (‘watch and wait’); Questions about treatment; Questions about side effects of treatment; Questions about effects of treatment on other areas of your life; Questions about clinical trials; Questions about ending treatment; Questions about follow-up; Questions about relapse. 

Cover image of 'Working with your medical team'

Working with your medical team (2018)

AMEND (Association for Multiple Endocrine Neoplasia Disorders)

This booklet explores what the ideal medical team for MEN may look like, how you can tell if you are being cared for by an expert medical centre, and how to become an effective part of the team who are helping to keep you in the best health possible. 

Cover image of 'Talking with your children about breast cancer'

Talking with your children about breast cancer (June 2018)

Breast Cancer Care

This booklet explains what children of different ages can understand about a serious illness such as cancer and how they may respond to the news that someone in the family has breast cancer. Individual parents describe their experiences and the booklet has advice on what, when and how to tell children about the diagnosis.

Cover image of 'When your partner has breast cancer'

When your partner has breast cancer (June 2018)

Breast Cancer Care

A booklet for anyone in a relationship with someone who has been diagnosed with breast cancer.

Cover image of 'Things that are important to me. Sharing what is important to my healthcare team [Easy read]'

Things that are important to me. Sharing what is important to my healthcare team [Easy read] (June 2018)

Macmillan Cancer Support|ENABLE Scotland|CHANGE

It is helpful to tell your doctors and nurses what is important to you. This will help them give you the best care. You can use this book to write about what is important to you.

Cover image of 'Talking about cancer and your feelings [Easy read]'

Talking about cancer and your feelings [Easy read] (May 2018)

Macmillan Cancer Support

This booklet is about how you can talk about cancer and share your feelings about cancer. You can find out how talking about cancer can help you.

Cover image of 'Managing the late effects of head and neck cancer treatment'

Managing the late effects of head and neck cancer treatment (July 2018)

Macmillan Cancer Support

Information for people who have had treatment for head and neck cancer and who are experiencing side-effects after treatment has ended.

Cover image of 'Telling your child you have cancer'

Telling your child you have cancer (January 2017)

University College London Hospital Cancer Collaborative|FruitFly Collective

A short film produced with the Fruit Fly Collective to support parents when they decide to tell their children about their cancer diagnosis. It provides guidance about how and when to tell them, and looks at different age groups and how they may feel and behave when they have been told. 

Cover image of '10 top tips. Worried about pancreatic cancer? Helping you to talk to your GP'

10 top tips. Worried about pancreatic cancer? Helping you to talk to your GP (2017)

Pancreatic Cancer UK

Tips to help people talk to their GP. 

Cover image of 'Living with lymphoma'

Living with lymphoma (August 2017)

Lymphoma Action

Detailed information about living with lymphoma.

Cover image of 'There is no good card for this: what to say and do when life is scary, awful, and unfair to people you love'

There is no good card for this: what to say and do when life is scary, awful, and unfair to people you love (2017)

HarperOne

The creator of the viral hit "Empathy Cards" teams up with a compassion expert to produce a visually stunning and groundbreaking illustrated guide to help you increase your emotional intelligence and learn how to offer comfort and support when someone you know is in pain. When someone you know is hurting, you want to let her know that you care. But many people don’t know what words to use—or are afraid of saying or doing the wrong thing. This thoughtful, instructive guide, from empathy expert Dr. Kelsey Crowe and greeting card maverick Emily McDowell, blends well-researched, actionable advice with the no-nonsense humor and the signature illustration style of McDowell's immensely popular Empathy Cards, to help you feel confident in connecting with anyone experiencing grief, loss, illness, or any other difficult situation. Written in a how-to, relatable, we’ve-all-been-that-deer-in-the-headlights kind of way, There Is No Good Card for This isn’t a spiritual treatise on how to make you a better person or a scientific argument about why compassion matters. It is a helpful illustrated guide to effective compassion that takes you, step by step by step, past the paralysis of thinking about someone in a difficult time to actually doing something (or nothing) with good judgment instead of fear. There Is No Good Card for This features workbook exercises, sample dialogs, and real-life examples from Dr. Crowe’s research, including her popular "Empathy Bootcamps" that give people tools for building relationships when it really counts. Whether it’s a coworker whose mother has died, a neighbor whose husband has been in a car accident, or a friend who is seriously ill, There Is No Good Card for This teaches you how to be the best friend you can be to someone in need. (Publisher)

Cover image of 'Talking to children and young people about multiple endocrine neoplasia (MEN)'

Talking to children and young people about multiple endocrine neoplasia (MEN) (March 2016)

AMEND (Association for Multiple Endocrine Neoplasia Disorders)

Advice for parents about how to talk to children and young people about the presence of a multiple endocrine neoplasia (MEN) gene in the family. It covers issues such as: What helps young people and children?; When is a good time to tell your children?; What information do you tell children?; Communication tips; What are children likely to know about genes and inheritance?; What helped parents talk to their children; Preparing to talk to your children; Benefits; Drawbacks.

Cover image of 'Communication difficulties and brain tumours'

Communication difficulties and brain tumours (February 2016)

The Brain Tumour Charity

This factsheet explains how brain tumours can affect communication. It describes the communication difficulties that someone with a brain tumour may experience, how to help someone to communicate, other difficulties patients may face, the interventions available, and other sources of support.

Cover image of 'Cognition and brain tumours'

Cognition and brain tumours (January 2016)

The Brain Tumour Charity

This factsheet explains what is meant by cognitive impairment and chemobrain and how brain tumours and their treatments can impact on communication, perception, decision making, and social cognition.

Cover image of 'Welcome back! A guide for teachers helping children and young people returning to school after a diagnosis of cancer'

Welcome back! A guide for teachers helping children and young people returning to school after a diagnosis of cancer (April 2015)

Children's Cancer and Leukaemia Group

Illustrated booklet for teachers with a child or young person in their class who has been diagnosed with cancer. It provides background information about cancer, the common cancers that affect children and young people, and the type of treatments used. It also contains information on useful organisations and reading materials.

Cover image of 'How to hold a difficult conversation'

How to hold a difficult conversation (October 2014)

Brainstrust

Many people are unsure about how to talk to someone who might be distressed or in difficulty. Questions about the illness, its symptoms, its meaning or its impact can be hard to ask. This guide will help people talk to those close to them,.

Cover image of 'Handbook for laryngectomy patients'

Handbook for laryngectomy patients (September 2014)

National Association of Laryngectomee Clubs

This booklet has been designed for use by pre- and post-operative laryngectomees and their families. It covers the initial diagnosis, the operation and afterwards, speech and language therapy, stoma care and returning to normal life.

Cover image of 'Johns Hopkins patients' guide to colon and rectal cancer'

Johns Hopkins patients' guide to colon and rectal cancer (2014)

Jones and Bartlett Publishers

Johns Hopkins Patient Guide to Colon and Rectal Cancer is a concise patient guide on treating and coping with colorectal cancer. Learning that you or someone you love has cancer is devastating, and feeling lost and powerless is a common immediate response. The Johns Hopkins Patients’ Guides are designed to alleviate your anxiety, empower you with information, and enable you to fully understand your treatment options. Each book in this series is dedicated to a specific type of cancer. The information is there to help lighten your burden and to assist you in becoming an active participant in your care. Cancer rarely allows us to take a diversion from life, and offering guidance on how to continue to live life while working hard on getting well is part of the outcome we hope to help you achieve. (Publisher)

Cover image of 'You just don't understand. Supporting bereaved teenagers'

You just don't understand. Supporting bereaved teenagers (April 2013)

Winston's Wish

The transition from childhood to adulthood can be a challenging process at the best of times. This booklet aims to help you understand what is normal adolescent development, and to recognise the additional problems teenagers may face if someone important dies during these years. This booklet is based on many years' experience of working with bereaved teenagers, families and professionals who support them and the information here will help you to consider how to respond to the individual needs of a bereaved teenager.

Cover image of 'Coping successfully with chronic illness. Your healing plan'

Coping successfully with chronic illness. Your healing plan (2013)

Sheldon Press

Chronic illness involves huge stress and uncertainty, especially when you come to the end of what the doctor can offer. Many conditions need on-going management, such as migraine, epilepsy, diabetes, persisting fatigue, arthritis, cancer, and pain. This book, by a popular Sheldon author, aims to empower those with chronic illness where medical help may be limited. It explores the possibilities of healing, along with the importance of taking responsibility for self-management. It also looks at practicalities such as planning and pacing in everyday tasks; avoiding isolation and developing effective communication with others; nutrition and natural remedies; balancing exercise, relaxation, and stress; avoiding depression and regaining self-esteem; and building in time for enjoyment. (Publisher)

Cover image of 'Saying goodbye. Helping families deal with pre- and post-bereavement'

Saying goodbye. Helping families deal with pre- and post-bereavement (2011)

Southgate Publishers Ltd

Offers in-depth advice and guidance for adults about how to help children and young people deal with an expected death in the family. The book includes detailed sections on telling the children, questions children may ask, ways to encourage communication between adults and children, creating lasting memories together and dealing with death. The book will be of great help to adults going through this most difficult and painful time, It will also be a useful resource for professionals working with pre- and post-bereaved families. (Publisher)

Cover image of 'A child's grief. Supporting a child when someone in the family has died'

A child's grief. Supporting a child when someone in the family has died (November 2010)

Winston's Wish

This booklet covers a variety of issues that may affect a child when a person close to them dies, both immediately and in the longer term. It has practical suggestions and ideas for activities to do together with a child and includes a section on suggested further reading and where to find additional support.

Cover image of 'Connecting through compassion. Guidance for family and friends of a brain cancer patient'

Connecting through compassion. Guidance for family and friends of a brain cancer patient (2010)

Cancer Lifeline Publications

This book candidly discusses the challenges of living with the personality and behavior changes brain cancer brings, and offers practical tools to make the journey easier. Joni Aldrich and Neysa Peterson have each cared for a spouse with a brain illness. They have combined their insights in this practical, straight-talking guide. Readers will learn: symptoms a brain cancer patient may experience; how to create and maintain a warm, comfortable and safe environment; methods to use if communication becomes an issue; how to deal with changes in personality, behavior, and emotions, including loss of social inhibition skills; how to handle issues related to changes in memory and the resulting confusion; how to work through indifference, sadness, and depression towards some peace; how to cope with self-destructive behavior-safety is your number one concern; how to have end-of-life discussions and fulfil final wishes. When a family member or friend is diagnosed with cancer, life as you know it has ended. Not only must you face the chaos of doctors' visits, exhausting treatments, and sleepless nights, you must try to savor every precious moment with your loved one. When the diagnosis is brain cancer, you must endure all this plus one more challenge: the person you love may look the same, and sound the same-but he or she is not the same. His or her personality may change in extreme ways. A kind and loving person may become angry and say hurtful things. A warm, upbeat person may withdraw or behave in self-destructive ways. The essence of your loved one can disappear, even as he or she continues to live. With the tools in this book, you can continue to love and be loved during this difficult crisis. 'The last weeks of Gordon's life were spent with someone that I barely knew and didn't know how to approach. It took me two years of counseling to get through the scars. It didn't have to be that way for me. And it certainly doesn't have to be that way for you.' Joni Aldrich (Publisher)

Cover image of 'The secret C: straight talking about cancer'

The secret C: straight talking about cancer (2009)

Winston's Wish

When a family member has cancer it is hard for everyone to understand. It can be particularly difficult when a parent or carer faces the challenge of trying to explain to their child what cancer means and how it may affect their family. This booklet is aimed at supporting parents or carers with this task, and encourages open communication and questions about cancer within the family. Through pictures, captions and straightforward language, it explains how tumours are formed, what the various treatments are and how these may affect the person with cancer. It stresses the need to keep to family routines and, importantly, to still try and have fun. It is aimed at children aged 7-10 and will work best when an adult is present to expand on the simple messages in the text. (Publisher)

Cover image of 'Milly's bug-nut'

Milly's bug-nut (2002)

Winston's Wish

Milly's Bug Nut is the story of a family finding their way through bereavement and of Milly who finds an unexpected answer to her heart's desire. Jill Janney, the author of Milly's Bug Nut, wrote this story for her own children after the death of their father.

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