My Macmillan

Publications directory

Need to talk? Call us free*
0800 808 00 00 Monday to Friday, 9am-8pm

The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 428

Cover image of 'Liver tumours'

Liver tumours (May 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what liver tumours are, and describes the signs, symptoms, tests and treatment options.

Cover image of 'Ewing's sarcoma'

Ewing's sarcoma (August 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what Ewing's sarcoma is, and describes the signs, symptoms, tests and treatment options.

Cover image of 'Hodgkin lymphoma'

Hodgkin lymphoma (April 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what Hodgkin lymphoma is, and briefly describes the signs, symptoms, tests and treatment options.

Cover image of 'My child's Wilms' tumour has come back'

My child's Wilms' tumour has come back (August 2016)

Children's Cancer and Leukaemia Group

This factsheet is for parents of a child whose Wilms' tumour has come back (relapsed). It discusses the different treatment options that may be available. 

Cover image of 'My child has a kidney tumour. Information and support for parents'

My child has a kidney tumour. Information and support for parents (August 2016)

Children's Cancer and Leukaemia Group

This booklet provides general information about kidney cancer (renal tumours) that occur in children.

Cover image of 'Taking part in research. A guide for teenagers and young people (aged 13-25) with cancer who are considering taking part in a research study or clinical trial'

Taking part in research. A guide for teenagers and young people (aged 13-25) with cancer who are considering taking part in a research study or clinical trial (April 2016)

Children's Cancer and Leukaemia Group

Information for teenagers and young adults about research and clinical trials.

Cover image of 'Managing symptoms at home. Palliative care information for families'

Managing symptoms at home. Palliative care information for families (February 2016)

Children's Cancer and Leukaemia Group

This booklet provides information about common symptoms, their causes and available treatments and includes suggestions for things parents and carers can do at home to help their child.

Cover image of 'Lymphoma and HIV'

Lymphoma and HIV (April 2016)

Lymphoma Association

Lymphoma is a common type of cancer diagnosed in people with human immunodeficiency virus (HIV). This information sheet gives an overview of what to expect and where to find more information and support if you are affected by HIV and lymphoma.

Cover image of 'Managing family life and cancer. A practical guide for parents of a child with cancer'

Managing family life and cancer. A practical guide for parents of a child with cancer (December 2016)

Children's Cancer and Leukaemia Group

This booklet, witten by parents for parents, aims to help parents manage and enjoy family life when a child has cancer.

Cover image of 'Answering your questions about your friend's illness. Factsheet for children and young people'

Answering your questions about your friend's illness. Factsheet for children and young people (March 2016)

CLIC Sargent

This factsheet for children and young people aged 13 and over who have a friend with cancer addresses common concerns about cancer and its treatment.

Cover image of 'How can I help? Tips from parents of children with cancer'

How can I help? Tips from parents of children with cancer (July 2016)

CLIC Sargent

Suggestions for how to help the parents of a child with cancer.

Cover image of 'Understanding melanoma that has come back in the same area'

Understanding melanoma that has come back in the same area (September 2016)

Macmillan Cancer Support

Information for people whose melanoma has come back in the same area (a local recurrence or recurrent melanoma).

Cover image of 'Jamie’s journey. Cancer from the voice of a sibling'

Jamie’s journey. Cancer from the voice of a sibling (2016)

Little Five Star

When a child is diagnosed with cancer, his or her siblings may struggle with complex emotions such as confusion, guilt, and fear. Part story, part journal, Jamie's Journey: Cancer from the Voice of a Sibling helps siblings of pediatric cancer patients cope with those intense feelings. The first half of the book is about 13-year-old Jamie who describes the roller coaster of emotions she experiences when her 10-year-old sister, Jordan, is diagnosed with cancer. Jamie laments the loss of her 'normal' teenage life and describes feeling forgotten as her family focuses on Jordan's medical needs. Jamie finds solace through journaling about her experience, and encourages the reader to write about his or her own journey on the pages provided in the book. Jamie's Journey is unique in that it's designed especially for the siblings of pediatric cancer patients. Author Sharon Wozny draws from her experience volunteering with Children's Cancer Network for the past three years. During the time she's spent with young cancer patients and their families, Wozny has discovered that the patients' siblings face unique challenges. "They endure so much," she said. "They feel so much pain on so many levels and need to know that they are heroes also." Wozny has made the second half of the book an interactive journal, offering siblings of pediatric cancer patients a safe place to share their own journey. (Publisher)

Cover image of 'Non-Hodgkin lymphoma in children: for parents'

Non-Hodgkin lymphoma in children: for parents (November 2015)

Lymphoma Association

This information is about non-Hodgkin lymphoma (NHL) in children and is primarily intended for parents of children with lymphoma. 

Cover image of 'Practical advice for parents and carers of children (under 18) with lymphoma'

Practical advice for parents and carers of children (under 18) with lymphoma (November 2015)

Lymphoma Association

This factsheet addresses common practical concerns of parents and carers looking after children and young people (up to 18 years old) with lymphoma.  

Cover image of 'Acute myeloid leukaemia (AML) in children and young adults up to 16 years'

Acute myeloid leukaemia (AML) in children and young adults up to 16 years (September 2015)

Bloodwise

This booklet describes acute myeloid leukaemia: the causes, signs and symptoms, diagnosis, and treatment and follow-up.

Cover image of 'Acute lymphoblastic leukaemia (ALL) in children and young adults up to 16 years'

Acute lymphoblastic leukaemia (ALL) in children and young adults up to 16 years (September 2015)

Bloodwise

This booklet is for parents/carers of children with acute lymphoblastic leukaemia (ALL). It describes ALL: the causes, signs and symptoms, diagnosis, and treatment and follow-up. 

Cover image of 'Hodgkin lymphoma in children: for parents'

Hodgkin lymphoma in children: for parents (November 2015)

Lymphoma Association

This information is about Hodgkin lymphoma in children and is primarily intended for parents of children with Hodgkin lymphoma. 

Cover image of 'Welcome back! A guide for teachers helping children and young people returning to school after a diagnosis of cancer'

Welcome back! A guide for teachers helping children and young people returning to school after a diagnosis of cancer (April 2015)

Children's Cancer and Leukaemia Group

Illustrated booklet for teachers with a child or young person in their class who has been diagnosed with cancer. It provides background information about cancer, the common cancers that affect children and young people, and the type of treatments used. It also contains information on useful organisations and reading materials.

Cover image of 'Side effects and late effects of treatment for lymphoma in children'

Side effects and late effects of treatment for lymphoma in children (November 2015)

Lymphoma Association

This factsheet describes the side effects and late effects of treatment for lymphoma in children (up to 18). This information is primarily for parents of a child with lymphoma. Some of the late effects described apply only to children who have been treated with radiotherapy.

Cover image of 'Chemotherapy, cakes and cancer. An A-Z survival guide for living with childhood cancer'

Chemotherapy, cakes and cancer. An A-Z survival guide for living with childhood cancer (February 2015)

CLIC Sargent

The author was diagnosed with osteosarcoma when she was 12. She wrote this booklet two years later when she had finished treatment because there was nothing for people her age about what it was like to be in hospital and how to handle it. There are tips for surviving long stays in hospital and keeping positive, and explanations of medical terms.

Cover image of 'Aftercure. A guide for teenage and young adult survivors of cancer'

Aftercure. A guide for teenage and young adult survivors of cancer (March 2015)

Children's Cancer and Leukaemia Group

This illustrated booklet has been written for young adults (16+) who have survived cancer.

Cover image of 'Facing the death of your child. Suggestions and help for families, before and afterwards'

Facing the death of your child. Suggestions and help for families, before and afterwards (April 2015)

Children's Cancer and Leukaemia Group

This booklet is for parents of children who can no longer be cured. It provides suggestions and help for families on all aspects of bereavement.

Cover image of 'Radiotherapy. A guide for teenagers and young people who are undergoing radiotherapy treatment for cancer'

Radiotherapy. A guide for teenagers and young people who are undergoing radiotherapy treatment for cancer (September 2015)

Children's Cancer and Leukaemia Group

This leaflet explains what radiotherapy is, why it is being used, how it works, the possible side effects, and what happens during the planning appointment and during treatment. Includes a glossary of medical terms.

Cover image of 'Lymphoma in young people'

Lymphoma in young people (November 2015)

Lymphoma Action

This information is about lymphoma in people up to the age of 24.

Cover image of 'Bereavement. Sources of help and support'

Bereavement. Sources of help and support (April 2015)

Children's Cancer and Leukaemia Group

Sources of support for families who have lost a child from cancer. Includes details of organisations, bereavement centres, books for parents, and books for children.

Cover image of 'Being involved in choices about your treatment'

Being involved in choices about your treatment (August 2015)

CLIC Sargent

Guidance for young people with cancer (13+) on becoming involved in the decisions about their treatment.

Cover image of 'Your parents'

Your parents (August 2015)

CLIC Sargent

Advice for children with cancer aged 13 and over about their relationship with their parents.

Cover image of 'Setting goals'

Setting goals (August 2015)

CLIC Sargent

Setting goals can help children and young people with cancer feel in control. This factsheet for children aged 13 and over has tips for setting goals and making them achievable.

Cover image of 'How you look and feel'

How you look and feel (August 2015)

CLIC Sargent

Advice for children aged 13 and over about some of the symptoms and side-effects of cancer and its treatment that may affect how they feel about themselves (e.g. hair loss and eating problems) and their relationships.

Cover image of 'Eating right for your health'

Eating right for your health (August 2015)

CLIC Sargent

This factsheet for children and young people with cancer aged 13 and over has advice about healthy eating during treatment and how to cope with common problems, such as: loss of appetite; weight loss; sore mouth and throat; dry mouth; changes in taste; diarrhoea; and constipation.

Cover image of 'We beat leukaemia. My family's journey with childhood cancer'

We beat leukaemia. My family's journey with childhood cancer (2015)

I_AM Self-Publishing

My son Andrew was only three years old when he was diagnosed with Leukaemia. Now he’s a healthy, happy six-year-old. We Beat Leukemia is my honest account of chemo, childhood and being a mummy to cancer – written over 1235 days from diagnosis to remission. I started writing daily posts to record the highs and lows, frustrations and elations of his childhood cancer treatment. My posts and photos form this book. I’m sharing my family’s experience to raise awareness of childhood cancer (and the UK charities who can offer so much), but also to offer support to families facing the challenges that any child cancer diagnosis brings. I hope to make a difference in the cancer community. (Publisher)

Cover image of 'Given time to say goodbye'

Given time to say goodbye (2015)

Three Boys Publishing

‘Given time to say goodbye’ is a profoundly honest and true story of a daughter who loses both parents to cancer. The author, Dianne Leutner, a Dutch national, living in England takes the reader on a journey from the simple happiness of undisturbed family life with a young family through the roller coaster of emotion that comes with a diagnosis of terminal cancer to, eventually, death – or in her case multiple deaths – in the family. She tells her story with exemplary clarity and honesty as she faces the illness and death of both parents, not shying away from a candid appraisal of family dynamics and personal emotions. Living in the UK whilst her parents were dying in the Netherlands was also a major obstacle. The family kept a blog during both illnesses some of which also features in the book. The other voices bring a reality and genuineness to the text. The blog includes the voice that is often lost, of the person experiencing terminal cancer. There will be much that will chime with readers who have been involved in the daily care of people at the end of their lives and who have known bereavement. It is not always easy to be interested in someone else’s family and yet we are drawn into the lives of these ordinary people who are remarkable in their own way. They show us that there is great possibility for growth, love and true wonder in all emotions. Dianne illustrates beautifully that we will all experience grief differently and that our experiences will be a reflection of the unique relationship we have with ourselves and our dearly departed. ‘Given time to say goodbye’ is not a memoir filled with answers but the unravelling of grief into hope, revealing light that leads you forward. (Author)

Cover image of 'Acute myeloid leukaemia (AML) in children'

Acute myeloid leukaemia (AML) in children (April 2014)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what acute myeloid leukaemia is, and describes the signs, symptoms, tests and treatment options.

Cover image of 'Brain tumours'

Brain tumours (April 2014)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what a brain tumour is, and describes the signs and symptoms, tests and treatment options.

Cover image of 'Acute lymphoblastic leukaemia (ALL) in children'

Acute lymphoblastic leukaemia (ALL) in children (April 2014)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what acute lymphoblastic leukaemia is, and describes the signs, symptoms, tests and treatment options.

Cover image of 'Rhabdomyosarcoma'

Rhabdomyosarcoma (April 2014)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what rhabdomyosarcoma is, and describes the signs and symptoms, tests and treatment options.

Cover image of 'Wilms' tumour'

Wilms' tumour (April 2014)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what Wilm's tumour is, and describes the signs and symptoms, tests and treatment options.

Cover image of 'I have finished my treatment... what happens next'

I have finished my treatment... what happens next (August 2014)

Children's Cancer and Leukaemia Group

This booklet for children and teenagers aged 10-16 aims to help answer questions and concerns that arise when treatment for cancer finishes. It covers feelings and emotions, coping with worry, coping with family and friends, school and college, healthy living, and practical issues such as what happens at follow-up, medicines, and what to look out for.

Cover image of 'Non-Hodgkin lymphoma (NHL)'

Non-Hodgkin lymphoma (NHL) (April 2014)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what non-Hodgkin lymphoma is, and describes the signs, symptoms, tests and treatment options.

Cover image of 'Retinoblastoma'

Retinoblastoma (April 2014)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what retinoblastoma is, and describes the signs and symptoms, tests and treatment options.

Cover image of 'How can the internet help us? A guide for parents and families using online childhood cancer information'

How can the internet help us? A guide for parents and families using online childhood cancer information (May 2014)

Children's Cancer and Leukaemia Group

Leaflet with guidance on using the internet to find information on cancer care and treatment for young people and children. Includes details of 16 useful websites.

Cover image of 'Germ cell tumours'

Germ cell tumours (April 2014)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what a germ cell tumour is and describes the signs, symptoms, tests and treatment options.

Cover image of 'When your brother or sister has cancer. Information for older children'

When your brother or sister has cancer. Information for older children (February 2014)

Children's Cancer and Leukaemia Group

This illustrated booklet is aimed at children aged 9-16 whose sibling has cancer. It describes what cancer is and how it is treated. Children describe their experiences, how they felt and how they coped.

Cover image of 'Children and young people with cancer. A parent's guide'

Children and young people with cancer. A parent's guide (February 2014)

Children's Cancer and Leukaemia Group

Booklet for parents and carers of a child who has been diagnosed with cancer. It provides information about children's cancers, the treatments that can be used and their possible side effects. It also discusses how a cancer diagnosis can affect the family.

Cover image of 'A family companion to the Together for Short Lives core care pathway for children with life-limiting and life-threatening conditions'

A family companion to the Together for Short Lives core care pathway for children with life-limiting and life-threatening conditions (August 2014)

Together for Short Lives

This booklet is for parents, family members and carers of children and young people who have been diagnosed with a life-limiting and life-threatening condition. It acts as a step-by-step guide through what happens after diagnosis, explaining what should happen, and the support that should be available.

Cover image of 'I have a friend who has cancer'

I have a friend who has cancer (March 2014)

Children's Cancer and Leukaemia Group

This illustrated leaflet for children has a list of things that the child with cancer may want their friends to know.

Cover image of 'Langerhan's cell histiocytosis (LCH)'

Langerhan's cell histiocytosis (LCH) (April 2014)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what Langerhan's cell histiocytosis is, and briefly describes the signs, symptoms, tests and treatment.

Cover image of 'Radiotherapy'

Radiotherapy (April 2014)

Children's Cancer and Leukaemia Group

This factsheet has been written to accompany 'Children and young people with cancer: a parent's guide'. It describes what radiotherapy is, how treatment is planned, what happens during treatment, follow up, and how parents might feel.

Cover image of 'Radiotherapy for children'

Radiotherapy for children (February 2014)

The Brain Tumour Charity

This factsheet has information on radiotherapy in children and some of its possible side effects.

Sorry, no publications found.
Need to talk? Call us free*
0800 808 00 00 Monday to Friday, 9am-8pm