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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 442

Cover image of 'Answering your questions about your friend's illness. Factsheet for children and young people'

Answering your questions about your friend's illness. Factsheet for children and young people (November 2017)

CLIC Sargent

This factsheet for children and young people aged 13 and over who have a friend with cancer addresses common concerns about cancer and its treatment. Now included in the "Cancer and school life" pack and can be downloaded as part of the pack.

Cover image of 'Joe has leukaemia [Welsh]'

Joe has leukaemia [Welsh] (March 2017)

CLIC Sargent

Joe is diagnosed with leukaemia in his first year at school. This illustrated, colour storybook describes what happens when Joe has to go into hospital for tests. The story follows Joe from first feeling ill, through diagnosis and treatment, to recovery and returning to normal life.

Cover image of 'Lucy has a tumour [Welsh]'

Lucy has a tumour [Welsh] (March 2017)

CLIC Sargent

Lucy is five years old when she is diagnosed with cancer. This illustrated, colour storybook describes what happens when she has to go to the hospital for tests and treatment. The story follows Lucy from first feeling ill, through diagnosis and treatment, to recovery and returning to normal life.

Cover image of 'Mary has a brain tumour [Welsh]'

Mary has a brain tumour [Welsh] (March 2017)

CLIC Sargent

Mary is five years old when she is diagnosed with a brain tumour. This illustrated, colour storybook describes what happens when she has to go to the hospital for tests and treatment. The story follows Mary from first feeling ill, through diagnosis and treatment, to recovery and return to normal life.

Cover image of 'The little c'

The little c (2017)

Self-published using CreateSpace Independent Publishing Platform

On a chilly, damp, foggy, September morning, Charlie slowly walks into the downstairs brightly lit florescent kitchen. His eyes react to the light reflecting off the large white cabinets. He touches the tender swollen lump under the left side of his neck and winces in pain. Charlie knows that something is wrong with him. He’s afraid to tell his mom and dad for fear that learning what may be causing the lump in his neck may be related to the sickness he almost died from when he was born. He doesn’t want to put his family through the stress and uncertainty that they went through twelve years ago. But he knows if he doesn’t say something, his parents may never forgive him. (Publisher)

Cover image of 'Naomi's story. Living with leukaemia'

Naomi's story. Living with leukaemia (2017)

Franklin Watts

This picture book uses the first-person testimony of Naomi, a 10-year-old girl with acute lymphoblastic leukaemia. Naomi explains what it was like to find out she had cancer, when she lost all her hair and what it was like spending so much time in hospital. The intimate and direct impact of using Naomi’s real first-person testimony encourages children to empathise with her situation, and to understand how some children’s lives are very different from their own. Naomi talks about school, family, friends and explains the confusion and chaos caused by cancer. This BAFTA award-winning story was originally produced as an animation for the BBC. Aimed at children aged 9 and up. (Publisher)

Cover image of 'We own the sky'

We own the sky (2017)

Trapeze (Orion)

Rob Coates can't believe his luck. There is Anna, his incredible wife, and most precious of all, Jack, their son, who makes every day an extraordinary adventure. Rob feels like he's won the lottery of life. Or rather - he did. Until the day it all changes when Anna becomes convinced there is something wrong with Jack. Now Rob sleepwalks through his days, unable to bridge the gulf that separates him from his wife, his son and the business of living. But he's determined to come to terms with what’s happened-and find a way back to life, and forgiveness. We Own the Sky will resonate with anyone who has ever suffered loss or experienced great love. Luke Allnutt shows that the journey from hope to despair and back is never as simple as we think, and that even the most thoroughly broken heart can learn to beat again. (Publisher)

Cover image of 'Benny's hat'

Benny's hat (2017)

Pomelo Pip

Benny’s Hat follows Friz’s story from when she first learns of her brother’s illness, right through to his death and beyond. With its realistic but hopeful and gentle tone, readers will see that it is normal to feel a whole range of emotions –sad, worried, confused, angry and happy, even during the darkest of times. (Publisher) 

Cover image of 'My brother or sister has cancer. A children's guide to coping with cancer'

My brother or sister has cancer. A children's guide to coping with cancer (August 2016)

Children's Cancer and Leukaemia Group

This illustrated booklet tells the story of siblings Tom and Jess, whose little brother Ben has cancer. It describes how they cope with the illness and the changes it brings. It is aimed at children under nine.

Cover image of 'Helping brothers and sisters. A guide for adults supporting siblings of children with cancer'

Helping brothers and sisters. A guide for adults supporting siblings of children with cancer (February 2016)

Children's Cancer and Leukaemia Group

This illustrated leaflet is designed to help adults who come into contact with the siblings of children with cancer. It explains the problems that siblings may have and how adults can best help them cope.

Cover image of 'Rare tumours'

Rare tumours (May 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet has brief information about rare tumours of childhood, including details of useful organisations.

Cover image of 'Neuroblastoma'

Neuroblastoma (May 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what a neuroblastoma is, and describes the signs, symptoms, tests and treatment options.

Cover image of 'Ewing sarcoma'

Ewing sarcoma (August 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what Ewing's sarcoma is, and describes the signs, symptoms, tests and treatment options.

Cover image of 'My child has a kidney tumour. Information and support for parents'

My child has a kidney tumour. Information and support for parents (August 2016)

Children's Cancer and Leukaemia Group

This booklet provides general information about kidney cancer (renal tumours) that occur in children.

Cover image of 'My child's Wilms' tumour has come back'

My child's Wilms' tumour has come back (August 2016)

Children's Cancer and Leukaemia Group

This factsheet is for parents of a child whose Wilms' tumour has come back (relapsed). It discusses the different treatment options that may be available.

Cover image of 'Managing symptoms at home. Palliative care information for families'

Managing symptoms at home. Palliative care information for families (February 2016)

Children's Cancer and Leukaemia Group

This booklet provides information about common symptoms, their causes and available treatments and includes suggestions for things parents and carers can do at home to help their child.

Cover image of 'Managing family life and cancer. A practical guide for parents of a child with cancer'

Managing family life and cancer. A practical guide for parents of a child with cancer (December 2016)

Children's Cancer and Leukaemia Group

This booklet, witten by parents for parents, aims to help parents manage and enjoy family life when a child has cancer.

Cover image of 'Taking part in research. A guide for teenagers and young people (aged 13-25) with cancer who are considering taking part in a research study or clinical trial'

Taking part in research. A guide for teenagers and young people (aged 13-25) with cancer who are considering taking part in a research study or clinical trial (April 2016)

Children's Cancer and Leukaemia Group

Information for teenagers and young adults about research and clinical trials.

Cover image of 'Retinoblastoma'

Retinoblastoma (October 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what retinoblastoma is, and describes the signs and symptoms, tests and treatment options.

Cover image of 'Wilms' tumour'

Wilms' tumour (September 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what Wilm's tumour is, and describes the signs and symptoms, tests and treatment options.

Cover image of 'Non-Hodgkin lymphoma (NHL)'

Non-Hodgkin lymphoma (NHL) (December 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what non-Hodgkin lymphoma is, and describes the signs, symptoms, tests and treatment options.

Cover image of 'Acute myeloid leukaemia (AML)'

Acute myeloid leukaemia (AML) (September 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what acute myeloid leukaemia is, and describes the signs, symptoms, tests and treatment options.

Cover image of 'Hodgkin lymphoma'

Hodgkin lymphoma (August 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what Hodgkin lymphoma is, and briefly describes the signs, symptoms, tests and treatment options.

Cover image of 'Germ cell tumours'

Germ cell tumours (August 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what a germ cell tumour is and describes the signs, symptoms, tests and treatment options.

Cover image of 'Osteosarcoma'

Osteosarcoma (May 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what osteosarcoma is, and describes the signs, symptoms, tests and treatment options.

Cover image of 'Acute lymphoblastic leukaemia (ALL)'

Acute lymphoblastic leukaemia (ALL) (December 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what acute lymphoblastic leukaemia is, and describes the signs, symptoms, tests and treatment options.

Cover image of 'Heart. The health of your heart after childhood cancer treatment'

Heart. The health of your heart after childhood cancer treatment (January 2016)

Children's Cancer and Leukaemia Group

This factsheet is about the health of your heart after treatment for childhood cancer. Written to accompany the CCLG booklet "Aftercure: A guide for teenage and young adult survivors of childhood cancer".

Cover image of 'Rhabdomyosarcoma'

Rhabdomyosarcoma (September 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what rhabdomyosarcoma is, and describes the signs and symptoms, tests and treatment options.

Cover image of 'Osteoporosis. The health of your bones after childhood cancer treatment'

Osteoporosis. The health of your bones after childhood cancer treatment (January 2016)

Children's Cancer and Leukaemia Group

Information about osteoporosis and the health of your bones after treatment for childhood cancer. Written to accompany the CCLG booklet "Aftercure: A guide for teenage and young adult survivors of childhood cancer".

Cover image of 'Healthy living. Healthy lifestyle advice for childhood cancer survivors'

Healthy living. Healthy lifestyle advice for childhood cancer survivors (June 2016)

Children's Cancer and Leukaemia Group

Healthy lifestyle advice for childhood cancer survivors. Written to accompany the CCLG booklet "Aftercure: A guide for teenage and young adult survivors of childhood cancer".

Cover image of 'Lucy and the good soldiers'

Lucy and the good soldiers (August 2016)

Anthony Nolan

Lucy's dad is diagnosed with leukaemia and has a stem cell transplant.

Cover image of 'Osteonecrosis or avascular necrosis. The health of your bones after childhood cancer treatment'

Osteonecrosis or avascular necrosis. The health of your bones after childhood cancer treatment (January 2016)

Children's Cancer and Leukaemia Group

Information about osteonecrosis (or avascular necrosis) and the health of your bones after treatment for childhood cancer. Written to accompany the CCLG booklet "Aftercure: A guide for teenage and young adult survivors of childhood cancer".

Cover image of 'Breast. Breast cancer risk after childhood cancer treatment'

Breast. Breast cancer risk after childhood cancer treatment (January 2016)

Children's Cancer and Leukaemia Group

This factsheet gives an overview of breast cancer risk after treatment for childhood cancer. Written to accompany the CCLG booklet "Aftercure: A guide for teenage and young adult survivors of childhood cancer".

Cover image of 'Lungs. The health of your lungs after childhood cancer treatment'

Lungs. The health of your lungs after childhood cancer treatment (January 2016)

Children's Cancer and Leukaemia Group

Information about the health of your lungs after treatment for childhood cancer. Written to accompany the CCLG booklet "Aftercure: A guide for teenage and young adult survivors of childhood cancer".

Cover image of 'Posterior fossa syndrome'

Posterior fossa syndrome (May 2016)

Children's Cancer and Leukaemia Group

This factsheet has been written to help parents understand posterior fossa syndrome (PFS), the name given to a collection of symptoms that may occur together following surgery to the back of the brain. PFS is also sometimes known as cerebellar mutism syndrome. 

Cover image of 'Osteoradionecrosis. The health of your bones after radiotherapy'

Osteoradionecrosis. The health of your bones after radiotherapy (January 2016)

Children's Cancer and Leukaemia Group

Information about osteoradionecrosis and the health of your bones after radiotherapy treatment for childhood cancer. Written to accompany the CCLG booklet "Aftercure: A guide for teenage and young adult survivors of childhood cancer".

Cover image of 'Dexamethasone. Information for patients, parents and carers'

Dexamethasone. Information for patients, parents and carers (December 2016)

Children's Cancer and Leukaemia Group

This factsheet has information on the use of dexamethasone in children and young people with cancer. It also offers help to parents in managing the behaviour of children with cancer that requires regular steroids. 

Cover image of 'Bleomycin. Bleomycin treatment for childhood cancer'

Bleomycin. Bleomycin treatment for childhood cancer (January 2016)

Children's Cancer and Leukaemia Group

This factsheet gives an overview of the potential late effects of bleomycin treatment for childhood cancer. Written to accompany the CCLG booklet "Aftercure: A guide for teenage and young adult survivors of childhood cancer".

Cover image of 'Safe handling of chemotherapy medicines. Information for patients, parents and carers'

Safe handling of chemotherapy medicines. Information for patients, parents and carers (December 2016)

Children's Cancer and Leukaemia Group

This factsheet provides information on the safe handling and storage of chemotherapy medicines at home and the precautions needed for safe disposal of bodily waste.  

Cover image of 'Kidney. The health of a single kidney after childhood cancer treatment'

Kidney. The health of a single kidney after childhood cancer treatment (January 2016)

Children's Cancer and Leukaemia Group

Information about the health of a single kidney after treatment for childhood cancer. Written to accompany the CCLG booklet "Aftercure: A guide for teenage and young adult survivors of childhood cancer".

Cover image of 'Jamie’s journey. Cancer from the voice of a sibling'

Jamie’s journey. Cancer from the voice of a sibling (2016)

Little Five Star

When a child is diagnosed with cancer, his or her siblings may struggle with complex emotions such as confusion, guilt, and fear. Part story, part journal, Jamie's Journey: Cancer from the Voice of a Sibling helps siblings of pediatric cancer patients cope with those intense feelings. The first half of the book is about 13-year-old Jamie who describes the roller coaster of emotions she experiences when her 10-year-old sister, Jordan, is diagnosed with cancer. Jamie laments the loss of her 'normal' teenage life and describes feeling forgotten as her family focuses on Jordan's medical needs. Jamie finds solace through journaling about her experience, and encourages the reader to write about his or her own journey on the pages provided in the book. Jamie's Journey is unique in that it's designed especially for the siblings of pediatric cancer patients. Author Sharon Wozny draws from her experience volunteering with Children's Cancer Network for the past three years. During the time she's spent with young cancer patients and their families, Wozny has discovered that the patients' siblings face unique challenges. "They endure so much," she said. "They feel so much pain on so many levels and need to know that they are heroes also." Wozny has made the second half of the book an interactive journal, offering siblings of pediatric cancer patients a safe place to share their own journey. (Publisher)

Cover image of 'Welcome back! A guide for teachers helping children and young people returning to school after a diagnosis of cancer'

Welcome back! A guide for teachers helping children and young people returning to school after a diagnosis of cancer (April 2015)

Children's Cancer and Leukaemia Group

Illustrated booklet for teachers with a child or young person in their class who has been diagnosed with cancer. It provides background information about cancer, the common cancers that affect children and young people, and the type of treatments used. It also contains information on useful organisations and reading materials.

Cover image of 'Acute lymphoblastic leukaemia (ALL) in children and young adults up to 16 years'

Acute lymphoblastic leukaemia (ALL) in children and young adults up to 16 years (September 2015)

Bloodwise

This booklet is for parents/carers of children with acute lymphoblastic leukaemia (ALL). It describes ALL: the causes, signs and symptoms, diagnosis, and treatment and follow-up. 

Cover image of 'Acute myeloid leukaemia (AML) in children and young adults up to 16 years'

Acute myeloid leukaemia (AML) in children and young adults up to 16 years (September 2015)

Bloodwise

This booklet describes acute myeloid leukaemia: the causes, signs and symptoms, diagnosis, and treatment and follow-up.

Cover image of 'Aftercure. A guide for teenage and young adult survivors of cancer'

Aftercure. A guide for teenage and young adult survivors of cancer (March 2015)

Children's Cancer and Leukaemia Group

This illustrated booklet has been written for young adults (16+) who have survived cancer. Please note: this booklet was reviewed in March 2017 but no changes were made so versions dated 2015 are still current.

Cover image of 'Bereavement. Sources of help and support'

Bereavement. Sources of help and support (April 2015)

Children's Cancer and Leukaemia Group

Sources of support for families who have lost a child from cancer. Includes details of organisations, bereavement centres, books for parents, and books for children.

Cover image of 'Radiotherapy. A guide for teenagers and young people who are undergoing radiotherapy treatment for cancer'

Radiotherapy. A guide for teenagers and young people who are undergoing radiotherapy treatment for cancer (September 2015)

Children's Cancer and Leukaemia Group

This leaflet explains what radiotherapy is, why it is being used, how it works, the possible side effects, and what happens during the planning appointment and during treatment. Includes a glossary of medical terms.

Cover image of 'Facing the death of your child. Suggestions and help for families, before and afterwards'

Facing the death of your child. Suggestions and help for families, before and afterwards (April 2015)

Children's Cancer and Leukaemia Group

This booklet is for parents of children who can no longer be cured. It provides suggestions and help for families on all aspects of bereavement.

Cover image of 'Neuroblastoma. Information and support for parents'

Neuroblastoma. Information and support for parents (November 2015)

Children's Cancer and Leukaemia Group|Neuroblastoma UK

This booklet is for parents and carers of a child who has been diagnosed with neuroblastoma. There is information about neuroblastoma, the treatments that are used and their possible side effects. It also discusses how a cancer diagnosis can affect you, your child and the rest of the family.

Cover image of 'Treatment options for relapsed or refractory high risk neuroblastoma. A guide for parents'

Treatment options for relapsed or refractory high risk neuroblastoma. A guide for parents (November 2015)

Children's Cancer and Leukaemia Group|Neuroblastoma UK

This information leaflet describes the treatment opportunities available in the UK for treating children with relapsed or refractory (disease that isn’t responding to treatment) neuroblastoma. 

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