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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 465

Cover image of 'Fertility. Support for young people affected by cancer'

Fertility. Support for young people affected by cancer (September 2019)

Macmillan Cancer Support

This booklet is about how cancer and its treatment can affect your fertility. It is for teenagers and young people who need information about this before, during or after cancer treatment, whether you are in a relationship or not and whatever your sexual orientation. It explains how cancer and cancer treatment may affect your fertility and has information about preserving your fertility, having fertility tests, fertility treatments and other options for having a child. It also tells you how to get more support. 

Cover image of 'Symptoms diary'

Symptoms diary (2019)

Headsmart

Brain tumours are relatively rare, but early diagnosis can save lives, which is why keeping track of any potential symptoms can help to make the most out of a doctor’s appointment and may lead to a quicker referral or better reassurance. You can use the diary at your appointment to describe the symptoms and explain your concerns.

Cover image of 'Sex and relationships. Support for young people affected by cancer'

Sex and relationships. Support for young people affected by cancer (May 2019)

Macmillan Cancer Support

This booklet is about cancer, sex and relationships. It is for teenagers and young people who are having or have had cancer treatment. It may also help carers, family members and friends. The booklet explains how cancer and cancer treatment may affect your relationships and sex life. It also gives information about coping with any changes and how to get more support.

Cover image of 'Beyond'

Beyond (2019)

Burning Chair

What happens when we die? Is this really all there is? What exists beyond this life? Alex Duncan is just an ordinary 14 year old boy. His main worries are homework, girls, the school bully......and his sister, Jenna who has ovarian cancer, stage B. As his parents retreat into themselves, Alex is desperate to find a way to help, a way to make things better for his sister. After all, it’s the not knowing that’s the worst thing. Whilst he tries to untangle the ultimate question, life still goes on: his best friend seems oblivious to his feelings about her, the school bully has taken a special interest in him, and everything he does just makes him feel more and more awkward and out of place. Georgia Springate’s debut novel, Beyond, is a funny and touchingly compelling coming-of-age story about love, loss and discovery. Read it and take an emotional journey through one boy’s quest to understand that most tricky of questions: what lies beyond? (Publishers)

Cover image of 'Childhood acute lymphoblastic leukaemia (ALL). A guide for parents'

Childhood acute lymphoblastic leukaemia (ALL). A guide for parents (March 2019)

Leukaemia CARE

Being told that your child has acute lymphoblastic leukaemia (ALL) can be a shock and very upsetting, particularly when you may never have heard of the disease. This booklet describes childhood ALL, what causes it, who it affects, how it affects your child’s body, what symptoms to expect and likely treatments. It also covers everyday life and childhood ALL and talking about childhood ALL. Includes a glossary of terms and details of useful contacts and further support.

Cover image of 'A story about cancer (with a happy ending)'

A story about cancer (with a happy ending) (2019)

Frances Lincoln Children’s Books

A teenage girl heads towards the hospital waiting room where the doctors are going to tell her how much time she's got to live. As she walks, she thinks about her journey up to this point… the terrible decor in the hospital, wearing a headscarf, the horrible treatments, but also being with her friends, family, and her new boyfriend Victor. This is a story about cancer with a happy ending. It's about life, love, and especially, hope. (Publisher) 

Cover image of 'Abbie has osteosarcoma. A guide for children'

Abbie has osteosarcoma. A guide for children (December 2018)

Bone Cancer Research Trust

Abbie Has Osteosarcoma is written for parents, carers and healthcare professionals to read with children to help them understand about their osteosarcoma and its treatment. 

Cover image of 'Jess's bone marrow donation. A children's guide to bone marrow donation'

Jess's bone marrow donation. A children's guide to bone marrow donation (January 2018)

Children's Cancer and Leukaemia Group

A colourful booklet for young children who are preparing to donate bone marrow. It explains what bone marrow is and describes what happens to Jess in hospital before, during and after the operation and when she goes home.

Cover image of 'Searching for information and support online. Help and advice for parents and families of children, teenagers and young adults with cancer'

Searching for information and support online. Help and advice for parents and families of children, teenagers and young adults with cancer (December 2018)

Children's Cancer and Leukaemia Group

The huge amount of information online can be overwhelming, and sometimes conflicting, causing even more worry and stress. It is important that parents make sure that health information is filtered and gathered from reliable, easy to understand sources. As a parent or carer of a newly-diagnosed child, you may not feel confident when searching through cancer information. This leaflet offers advice and tips on where to start and what to look for.

Cover image of 'Anna loses her hair. A children’s guide to hair loss as a result of cancer treatment'

Anna loses her hair. A children’s guide to hair loss as a result of cancer treatment (October 2018)

Children's Cancer and Leukaemia Group

Hair loss is a common side effect of having chemotherapy and of radiotherapy to the head. This book tells the story of Anna, Jack and Laura who all lose their hair while having treatment for cancer and helps young children to understand what might happen.

Cover image of 'Tom has lymphoma'

Tom has lymphoma (November 2018)

CLIC Sargent|Lymphoma Action

Tom is ten years old when he is diagnosed with lymphoma. This illustrated, colour storybook for parents to read with their children describes what happens when he has to go to the hospital for tests and treatment. The story follows Tom from when he first feels ill, through diagnosis and treatment, to recovery and return to normal life.

Cover image of 'Lymphoma in children'

Lymphoma in children (November 2018)

Lymphoma Action

This factsheet about lymphoma in children (0 to 14 years old) is primarily intended for parents and carers and covers: What is lymphoma?; Types of lymphoma in children; Symptoms; Tests; Outlook; Treatment; Side effects and late effects of treatment; Relapsed and refractory lymphoma; After treatment; Further information and support.

Cover image of 'Peripheral blood stem cell (PBSC) harvesting. Information for young people with cancer, and parents of a child or young person with cancer, having a stem cell transplant, and for stem cell donors'

Peripheral blood stem cell (PBSC) harvesting. Information for young people with cancer, and parents of a child or young person with cancer, having a stem cell transplant, and for stem cell donors (November 2018)

Children's Cancer and Leukaemia Group

This factsheet is written to help explain what is involved when you undergo a peripheral blood stem cell (PBSC) harvest. It explains what haematopoietic stem cells are, why they are collected, and what happens before, during and after the harvest.

Cover image of 'Practical advice for parents and carers of children (under 18) with lymphoma'

Practical advice for parents and carers of children (under 18) with lymphoma (November 2018)

Lymphoma Action

This factsheet covers common practical concerns of parents and carers looking after children and young people with lymphoma: When your child is diagnosed; Telling your child; Where your child will be treated; Changes to expect at home; If your child becomes unwell at home; Your child’s diet during treatment; Going back to school; Looking after yourself; Further information and support.

Cover image of 'Helping your child to eat well during cancer treatment. A practical information guide for parents and families of a child or young person with cancer'

Helping your child to eat well during cancer treatment. A practical information guide for parents and families of a child or young person with cancer (October 2018)

Children's Cancer and Leukaemia Group

Children with cancer may experience problems with eating and drinking at some stage. This can be due to the cancer or its treatment. This booklet has ideas on helping children with a poor appetite and other eating problems.

Cover image of 'Lymphoma in young people'

Lymphoma in young people (November 2018)

Lymphoma Action

A factsheet for young people up to the age of 24. It covers the different types of lymphoma in young people, their symptoms, the tests needed, treatment options and their possible side effects, and what happens when treatment is finished.

Cover image of 'Practical advice for young people with lymphoma'

Practical advice for young people with lymphoma (November 2018)

Lymphoma Action

Practical advice on issues that often concern teenagers and young adults (up to 24 years old) with lymphoma. It covers: After diagnosis; Where you will be treated; Your medical team; Looking after yourself; School, university and work; Relationships; After treatment.

Cover image of 'Honest answers, sound advice: a young person's guide to cancer'

Honest answers, sound advice: a young person's guide to cancer (2018)

Teenage Cancer Trust

Comprehensive information for young people with cancer.

Cover image of 'Neurosurgery for children with brain tumours'

Neurosurgery for children with brain tumours (February 2018)

The Brain Tumour Charity

This factsheet gives an overview of surgery for brain tumours in children and helps to answer some questions you may have about brain surgery. 

Cover image of 'Steroids for children with brain tumours'

Steroids for children with brain tumours (February 2018)

The Brain Tumour Charity

This factsheet describes when and why children might be given steroids, how they are taken and the possible side-effects, and answers some commonly asked questions that you may have about steroids in children.

Cover image of 'Scans for children with brain tumours'

Scans for children with brain tumours (February 2018)

The Brain Tumour Charity

Information about CT and MRI scans for the parents/carers of a child with a brain tumour, including scan procedure, and how to prepare your child for a scan. It also has answers to some common questions you may have about CT or MRI scans.

Cover image of 'Your child's health team (children with a brain tumour)'

Your child's health team (children with a brain tumour) (February 2018)

The Brain Tumour Charity

This factsheet outlines the roles of some of the health care professionals who may be part of a child’s multidisciplinary team.

Cover image of 'Learning difficulties in children with brain tumours'

Learning difficulties in children with brain tumours (February 2018)

The Brain Tumour Charity

This fact sheet gives an overview of some of the learning difficulties your child may experience as the result of a brain tumour and also of the support and possible plans of action (strategies) available to help them in their learning. 

Cover image of 'Chemotherapy for children with brain tumours'

Chemotherapy for children with brain tumours (February 2018)

The Brain Tumour Charity

This factsheet has information about chemotherapy to treat brain tumours in children. It covers how chemotherapy works, why and how it is given, and preventing infection of your child’s central line and has answers to some common questions.

Cover image of 'Managing your lung cancer diagnosis'

Managing your lung cancer diagnosis (August 2018)

Roy Castle Lung Cancer Foundation

If you or someone you care for has just been diagnosed with lung cancer, then it’s almost certain that you’ll have a lot of questions. We have produced this booklet in partnership with lung cancer experts and people affected by lung cancer to help you make positive informed choices about your care and treatment. 

Cover image of 'Cancer and genetics. How cancer sometimes runs in families'

Cancer and genetics. How cancer sometimes runs in families (September 2018)

Macmillan Cancer Support

This booklet is for people who are worried that cancer might run in the family. It explains how genes work, the role of genes in the development of some cancers, how risk is inherited, and the role of genetic counselling and testing. It also includes information on preventing cancer and the role of genes in specific cancers (bowel, breast, ovarian). Includes details of useful organisations and other resources.

Cover image of 'Tom has lymphoma [Welsh]'

Tom has lymphoma [Welsh] (November 2018)

CLIC Sargent|Lymphoma Action

Tom is ten years old when he is diagnosed with lymphoma. This illustrated, colour storybook for parents to read with their children describes what happens when he has to go to the hospital for tests and treatment. The story follows Tom from when he first feels ill, through diagnosis and treatment, to recovery and return to normal life.

Cover image of 'Head Smart. Early diagnosis of brain tumours'

Head Smart. Early diagnosis of brain tumours (2018)

The Brain Tumour Charity

Leaflet with information about the common symptoms of brain tumours in children and young people and what to do if a child is experiencing any of the symptoms. It also has information about the Headsmart campaign and details of further support.

Cover image of 'In our own words. Parents talk about life after their child has died of cancer'

In our own words. Parents talk about life after their child has died of cancer (January 2018)

CLIC Sargent

This booklet has been written for families whose children have cancer. It includes sections on the circles of grief, changes in grief over time, how relationships are affected, the dual process model of coping with grief, remembering your child, spirituality, and dealing with other people's responses. The text is interspersed with quotes from people whose child has died.

Cover image of 'The cancer guide for young people. What to expect when you're affected by cancer'

The cancer guide for young people. What to expect when you're affected by cancer (February 2018)

Macmillan Cancer Support

A booklet for young people aged 12-25 years. It aims to help answer some of their questions and to provide tips and guidance. It explains what cancer is and how it can be treated. It also gives practical tips about coping with treatment, relationships and sorting out practical things like school, university, work, and money.

Cover image of 'Understanding womb (endometrial) cancer'

Understanding womb (endometrial) cancer (July 2018)

Macmillan Cancer Support

This booklet is about a type of womb cancer called endometrial cancer. It is for anyone who has been diagnosed with this type of cancer. There is also information for carers, family members and friends. The booklet explains how these cancers are diagnosed and treated. It gives information about coping during and after treatment.

Cover image of 'Radiotherapy for children with brain tumours'

Radiotherapy for children with brain tumours (February 2018)

The Brain Tumour Charity

This factsheet has information on radiotherapy in children, the treatment procedure and some of its possible side-effects. 

Cover image of 'Helping your child to eat (children with brain tumours)'

Helping your child to eat (children with brain tumours) (February 2018)

The Brain Tumour Charity

Practical suggestions for parents/carers to helping their child to eat if they have had treatment for a brain tumour.

Cover image of 'Childhood brain tumours'

Childhood brain tumours (February 2018)

The Brain Tumour Charity

This factsheet briefly describes brain tumours in children, the risk factors, diagnosis, treatment options and long-term side effects. It also describes the different types of brain tumours in children.

Cover image of 'Understanding cancer of the ovary, fallopian tube and peritoneum'

Understanding cancer of the ovary, fallopian tube and peritoneum (July 2018)

Macmillan Cancer Support

This booklet is about cancer of the ovary, fallopian tube and peritoneum. It is for anyone who has been diagnosed with one of these types of cancer. There is also information for carers, family members and friends. The booklet explains the signs and symptoms of these cancers, and  how they are diagnosed and treated. It also has information about emotional, practical and financial issues. <!-- ?xml:namespace prefix = o ns = "urn:schemas-microsoft-com:office:office" ? -->

Cover image of 'Cancer WTF? Want the facts?'

Cancer WTF? Want the facts? (February 2018)

CLIC Sargent

This booklet, written with the help of young people living with cancer, aims to answers questions that young people with cancer may have. It covers topics such as making sense of it all, hospital life, family and friends, education, work and finances, and sources of support.

Cover image of 'What now? A practical guide for parents and carers'

What now? A practical guide for parents and carers (February 2018)

CLIC Sargent

A booklet for parents of children diagnosed with cancer.

Cover image of 'Childhood acute myeloid leukaemia (AML). A guide for parents'

Childhood acute myeloid leukaemia (AML). A guide for parents (April 2018)

Leukaemia CARE

Being told that your child has acute myeloid leukaemia (AML) can be a shock and very upsetting, particularly when you may never have heard of the disease. This booklet describes childhood AML, what causes it, who it affects, how it affects your child’s body, what symptoms to expect and likely treatments. It also covers everyday life and childhood AML and talking about childhood AML. Includes a glossary of terms and details of useful contacts and further support. 

Cover image of 'Echo's sister'

Echo's sister (2018)

HarperCollins

Twelve-year-old El has planned on making her first week at a new school fantastic. She won’t go by her given name, Laughter. She’ll sit in the back of the classroom where she can make new friends. She won’t even have time to think about all the fun her old friends are having without her. Everything will be great. But when her dad picks her up after school and tells her that her younger sister, Echo, has a life-threatening illness, her world is suddenly turned upside down. And with her parents now pressed for time and money, El feels lost and powerless. Then she befriends Octavius, the only other kid in school who gets what she’s going through. As El begins to adjust to her new life, she soon finds that maybe a little hope and a lot of love can overcome any obstacle. (Publishers)

Cover image of 'Understanding neutropaenia. A colouring book'

Understanding neutropaenia. A colouring book (November 2018)

This illustrated booklet is designed to help children and their parents understand the management of chemotherapy induced neutropaenia. Available only as an interactive book on iTunes and Amazon Kindle, or as a PDF download. Every purchase includes free access to a black-and-white version for children to colour in.  

Cover image of 'Follow the child. Planning and having the best end-of-life care for your child'

Follow the child. Planning and having the best end-of-life care for your child (2018)

Jessica Kingsley Publishers

Drawing on her family's own experiences and those of other parents facing the death of a child from illness or a life-limiting condition, Sacha Langton-Gilks explains the challenges, planning, and conversations that can be expected during this traumatic period. Practical advice such as how to work with the healthcare professionals, drawing up an Advance Care Plan, and how to move care into the home sit alongside tender observations of how such things worked in her own family's story. The book also includes a template person-centred planning document, developed by experts in the field. Empowering and reassuring, this book will help families plan and ensure the best possible end-of-life care for a child or young person. (Publisher)

Cover image of 'Langerhan's cell histiocytosis (LCH)'

Langerhan's cell histiocytosis (LCH) (August 2017)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what Langerhan's cell histiocytosis is, and briefly describes the signs, symptoms, tests and treatment.

Cover image of 'Ben's stem cell transplant. A children’s guide to donor (allogeneic) stem cell transplant'

Ben's stem cell transplant. A children’s guide to donor (allogeneic) stem cell transplant (June 2017)

Children's Cancer and Leukaemia Group

This illustrated booklet is for children who need a stem cell transplant. Using the story of Ben it explains what stem cells are, what the treatment involves, what happens in hospital and going home.

Cover image of 'Your guide to Ewing sarcoma'

Your guide to Ewing sarcoma (December 2017)

Bone Cancer Research Trust

This booklet for children and young people explains what cancer is, and describes the different types of bone cancer and how Ewing sarcoma is treated. It also covers topics such as body image and what happens after treatment. Includes a glossary of medical terms.

Cover image of 'Will and Sophie have radiotherapy. A children's guide to radiotherapy'

Will and Sophie have radiotherapy. A children's guide to radiotherapy (March 2017)

Children's Cancer and Leukaemia Group

Illustrated, colour booklet for children following the story of Will, who has radiotherapy to his brain, and Sophie, who has radiotherapy to her stomach.

Cover image of 'Handling animals and pets. Information for parents and carers of children and young people undergoing treatment for cancer'

Handling animals and pets. Information for parents and carers of children and young people undergoing treatment for cancer (September 2017)

Children's Cancer and Leukaemia Group

Guidance on keeping pets when a child has cancer. Covers issues such as general hygiene, pets to avoid, feeding, bedding and litter trays, pet vaccines and veterinary care, and first aid if a child is bitten by a pet.

Cover image of 'Ruby's stem cell harvest and transplant. A children's guide to stem cell harvesting and transplant using their own stem cells (autologous transplant)'

Ruby's stem cell harvest and transplant. A children's guide to stem cell harvesting and transplant using their own stem cells (autologous transplant) (October 2017)

Children's Cancer and Leukaemia Group

An illustrated, colour booklet for children who are having a stem cell transplant. It describes the bone marrow, the stem cell nurses, the harvest machine, and what happens on the day that the cells are harvested and on the day that they are returned.

Cover image of 'Your guide to osteosarcoma'

Your guide to osteosarcoma (December 2017)

Bone Cancer Research Trust

This booklet for children and young people explains what cancer is, and describes the different types of bone cancer and how osteosarcoma is treated. It also covers topics such as body image and what happens after treatment. Includes a glossary of medical terms.

Cover image of 'Liver tumours'

Liver tumours (July 2017)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what liver tumours are, and describes the signs, symptoms, tests and treatment options.

Cover image of 'Keeping active during and after treatment. A parent’s guide to physical activity, sport and exercise for children and young people with cancer'

Keeping active during and after treatment. A parent’s guide to physical activity, sport and exercise for children and young people with cancer (October 2017)

Children's Cancer and Leukaemia Group

This booklet is for parents of children and young people with cancer. It gives practical advice that may help when thinking about activity levels both during and after treatment.

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