The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Little Five Star
When a child is diagnosed with cancer, his or her siblings may struggle with complex emotions such as confusion, guilt, and fear. Part story, part journal, Jamie's Journey: Cancer from the Voice of a Sibling helps siblings of pediatric cancer patients cope with those intense feelings. The first half of the book is about 13-year-old Jamie who describes the roller coaster of emotions she experiences when her 10-year-old sister, Jordan, is diagnosed with cancer. Jamie laments the loss of her 'normal' teenage life and describes feeling forgotten as her family focuses on Jordan's medical needs. Jamie finds solace through journaling about her experience, and encourages the reader to write about his or her own journey on the pages provided in the book. Jamie's Journey is unique in that it's designed especially for the siblings of pediatric cancer patients. Author Sharon Wozny draws from her experience volunteering with Children's Cancer Network for the past three years. During the time she's spent with young cancer patients and their families, Wozny has discovered that the patients' siblings face unique challenges. "They endure so much," she said. "They feel so much pain on so many levels and need to know that they are heroes also." Wozny has made the second half of the book an interactive journal, offering siblings of pediatric cancer patients a safe place to share their own journey. (Publisher)
Bloodwise
This booklet describes acute myeloid leukaemia: the causes, signs and symptoms, diagnosis, and treatment and follow-up.
Children's Cancer and Leukaemia Group
Illustrated booklet for teachers with a child or young person in their class who has been diagnosed with cancer. It provides background information about cancer, the common cancers that affect children and young people, and the type of treatments used. It also contains information on useful organisations and reading materials.
Bloodwise
This booklet is for parents/carers of children with acute lymphoblastic leukaemia (ALL). It describes ALL: the causes, signs and symptoms, diagnosis, and treatment and follow-up.
Children's Cancer and Leukaemia Group
This illustrated booklet has been written for young adults (16+) who have survived cancer. Please note: this booklet was reviewed in March 2017 but no changes were made so versions dated 2015 are still current.
Children's Cancer and Leukaemia Group
Sources of support for families who have lost a child from cancer. Includes details of organisations, bereavement centres, books for parents, and books for children.
Children's Cancer and Leukaemia Group
This leaflet explains what radiotherapy is, why it is being used, how it works, the possible side effects, and what happens during the planning appointment and during treatment. Includes a glossary of medical terms.
Children's Cancer and Leukaemia Group
This booklet is for parents of children who can no longer be cured. It provides suggestions and help for families on all aspects of bereavement.
Children's Cancer and Leukaemia Group|Neuroblastoma UK
This booklet is for parents and carers of a child who has been diagnosed with neuroblastoma. There is information about neuroblastoma, the treatments that are used and their possible side effects. It also discusses how a cancer diagnosis can affect you, your child and the rest of the family.
Children's Cancer and Leukaemia Group|Neuroblastoma UK
This information leaflet describes the treatment opportunities available in the UK for treating children with relapsed or refractory (disease that isn’t responding to treatment) neuroblastoma.
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