The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Please enter a word or phrase into the search box to find relevant materials. If you want to search for a phrase, please use quotes, eg “Macmillan Cancer Support”, “Breast cancer”. If you have any questions about the web directory please contact Sue Hawkins email@example.com
Suggestions for how to help the parents of a child with cancer.
Little Five Star
When a child is diagnosed with cancer, his or her siblings may struggle with complex emotions such as confusion, guilt, and fear. Part story, part journal, Jamie's Journey: Cancer from the Voice of a Sibling helps siblings of pediatric cancer patients cope with those intense feelings. The first half of the book is about 13-year-old Jamie who describes the roller coaster of emotions she experiences when her 10-year-old sister, Jordan, is diagnosed with cancer. Jamie laments the loss of her 'normal' teenage life and describes feeling forgotten as her family focuses on Jordan's medical needs. Jamie finds solace through journaling about her experience, and encourages the reader to write about his or her own journey on the pages provided in the book. Jamie's Journey is unique in that it's designed especially for the siblings of pediatric cancer patients. Author Sharon Wozny draws from her experience volunteering with Children's Cancer Network for the past three years. During the time she's spent with young cancer patients and their families, Wozny has discovered that the patients' siblings face unique challenges. "They endure so much," she said. "They feel so much pain on so many levels and need to know that they are heroes also." Wozny has made the second half of the book an interactive journal, offering siblings of pediatric cancer patients a safe place to share their own journey. (Publisher)
This information is about non-Hodgkin lymphoma (NHL) in children and is primarily intended for parents of children with lymphoma.
This factsheet addresses common practical concerns of parents and carers looking after children and young people (up to 18 years old) with lymphoma.
This booklet describes acute myeloid leukaemia: the causes, signs and symptoms, diagnosis, and treatment and follow-up.
This factsheet describes the side effects and late effects of treatment for lymphoma in children (up to 18). This information is primarily for parents of a child with lymphoma. Some of the late effects described apply only to children who have been treated with radiotherapy.
This information is about Hodgkin lymphoma in children and is primarily intended for parents of children with Hodgkin lymphoma.
Children's Cancer and Leukaemia Group
Illustrated booklet for teachers with a child or young person in their class who has been diagnosed with cancer. It provides background information about cancer, the common cancers that affect children and young people, and the type of treatments used. It also contains information on useful organisations and reading materials.
Children's Cancer and Leukaemia Group
This illustrated booklet has been written for young adults (16+) who have survived cancer.
The author was diagnosed with osteosarcoma when she was 12. She wrote this booklet two years later when she had finished treatment because there was nothing for people her age about what it was like to be in hospital and how to handle it. There are tips for surviving long stays in hospital and keeping positive, and explanations of medical terms.