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Publications directory

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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 468

Cover image of 'Practical tasks after your child dies. What you might need to sort out and how to do it'

Practical tasks after your child dies. What you might need to sort out and how to do it (July 2018)

CLIC Sargent

This booklet has been written with the help of bereaved parents. It’s designed to help parents think about what’s important to sort out, when, and how to make a start.

Cover image of 'Follow the child. Planning and having the best end-of-life care for your child'

Follow the child. Planning and having the best end-of-life care for your child (2018)

Jessica Kingsley Publishers

Drawing on her family's own experiences and those of other parents facing the death of a child from illness or a life-limiting condition, Sacha Langton-Gilks explains the challenges, planning, and conversations that can be expected during this traumatic period. Practical advice such as how to work with the healthcare professionals, drawing up an Advance Care Plan, and how to move care into the home sit alongside tender observations of how such things worked in her own family's story. The book also includes a template person-centred planning document, developed by experts in the field. Empowering and reassuring, this book will help families plan and ensure the best possible end-of-life care for a child or young person. (Publisher)

Cover image of 'Harry has an operation. A guide for children with bone sarcoma'

Harry has an operation. A guide for children with bone sarcoma (October 2017)

Bone Cancer Research Trust

Harry has an Operation is written for parents, carers and healthcare professionals to read with children in order to help them understand their sarcoma and its treatment. It has been produced especially for young patients who require limb-sparing surgery or amputation. 

Cover image of 'Ben's stem cell transplant. A children’s guide to donor (allogeneic) stem cell transplant'

Ben's stem cell transplant. A children’s guide to donor (allogeneic) stem cell transplant (June 2017)

Children's Cancer and Leukaemia Group

This illustrated booklet is for children who need a stem cell transplant. Using the story of Ben it explains what stem cells are, what the treatment involves, what happens in hospital and going home.

Cover image of 'Handling animals and pets. Information for parents and carers of children and young people undergoing treatment for cancer'

Handling animals and pets. Information for parents and carers of children and young people undergoing treatment for cancer (September 2017)

Children's Cancer and Leukaemia Group

Guidance on keeping pets when a child has cancer. Covers issues such as general hygiene, pets to avoid, feeding, bedding and litter trays, pet vaccines and veterinary care, and first aid if a child is bitten by a pet.

Cover image of 'Langerhan's cell histiocytosis (LCH)'

Langerhan's cell histiocytosis (LCH) (August 2017)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what Langerhan's cell histiocytosis is, and briefly describes the signs, symptoms, tests and treatment.

Cover image of 'Your guide to osteosarcoma'

Your guide to osteosarcoma (December 2017)

Bone Cancer Research Trust

This booklet for children and young people explains what cancer is, and describes the different types of bone cancer and how osteosarcoma is treated. It also covers topics such as body image and what happens after treatment. Includes a glossary of medical terms.

Cover image of 'Liver tumours'

Liver tumours (July 2017)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what liver tumours are, and describes the signs, symptoms, tests and treatment options.

Cover image of 'Will and Sophie have radiotherapy. A children's guide to radiotherapy'

Will and Sophie have radiotherapy. A children's guide to radiotherapy (March 2017)

Children's Cancer and Leukaemia Group

Illustrated, colour booklet for children following the story of Will, who has radiotherapy to his brain, and Sophie, who has radiotherapy to her stomach.

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