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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 427

Cover image of 'My child has a brain or spinal tumour. A guide for parents and carers'

My child has a brain or spinal tumour. A guide for parents and carers (January 2017)

Children's Cancer and Leukaemia Group

This booklet has detailed information for parents whose child has a brain or spinal tumour. It covers the typical signs and symptoms, diagnosis, the treatment options, clinical trials, supportive care during treatment, and ongoing needs after therapy. Appendices include the structure and function of the brain, a glossary of terms, support groups and useful sources of information.

Cover image of 'Graft versus host disease (GvHD)'

Graft versus host disease (GvHD) (August 2017)

Children's Cancer and Leukaemia Group

Graft versus host disease (GvHD) is a complication of donor (allogeneic) stem cell transplantation (SCT), in which the cells from the stem cell donor (graft) react to the cells in the patient (host). This factsheet has been written to help you to understand how GvHD may affect you/your child and what possible treatments there are. The factsheet will complement the information given by the nurses and doctors who make up your stem cell transplant (SCT) team. They will be able to give you information specific to you, and will always be very happy to answer any questions you might have.

Cover image of 'Total body irradiation (TBI)'

Total body irradiation (TBI) (August 2017)

Children's Cancer and Leukaemia Group

This factsheet is written for young people with cancer, or parents of a child with cancer, who are receiving total body irradiation (TBI), as part of their conditioning therapy for a stem cell transplant (SCT). It explains TBI, including where you will have your radiotherapy, how the radiotherapy will be given and the side effects that may happen. 

Cover image of 'Young person's guide to lymphoma'

Young person's guide to lymphoma (January 2017)

Lymphoma Association

Comprehensive booklet for young people with lymphoma. 

Cover image of 'Keeping active during and after treatment. A parent’s guide to physical activity, sport and exercise for children and young people with cancer'

Keeping active during and after treatment. A parent’s guide to physical activity, sport and exercise for children and young people with cancer (October 2017)

Children's Cancer and Leukaemia Group

This booklet is for parents of children and young people with cancer. It gives practical advice that may help when thinking about activity levels both during and after treatment.

Cover image of 'Veno-occlusive disease (VOD)'

Veno-occlusive disease (VOD) (August 2017)

Children's Cancer and Leukaemia Group

Veno-occlusive disease (VOD) is one of the less common but still serious complications which can occur during stem cell transplant (SCT). Veno-occlusive disease is not another illness, but a complication that affects the liver. This factsheet has been produced to help you understand more about VOD. The information given in this factsheet explains what VOD is and why it happens, how it is diagnosed, what the impact of it is, and how it is treated.

Cover image of 'My child has finished treatment. What happens next? A guide to follow-up and adjusting to normal life for parents and carers whose child or teenager has finished treatment for cancer'

My child has finished treatment. What happens next? A guide to follow-up and adjusting to normal life for parents and carers whose child or teenager has finished treatment for cancer (July 2017)

Children's Cancer and Leukaemia Group

This booklet for the parents and carers of children with cancer aims to help answer some of the many questions that arise when treatment finishes. It discusses feelings and emotions, practical issues, school, and moving on.

Cover image of 'Joe has leukaemia'

Joe has leukaemia (March 2017)

CLIC Sargent

Joe is diagnosed with leukaemia in his first year at school. This illustrated, colour storybook describes what happens when Joe has to go into hospital for tests. The story follows Joe from first feeling ill, through diagnosis and treatment, to recovery and returning to normal life.

Cover image of 'Disability Living Allowance (DLA)'

Disability Living Allowance (DLA) (July 2017)

CLIC Sargent

Guidance on claiming Disability Living Allowance for children under 16 who have cancer.

Cover image of 'Family history, genes and breast cancer'

Family history, genes and breast cancer (March 2017)

Breast Cancer Care

This booklet explains what a family history of breast cancer is, and what this may mean for you or your family.

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