The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Please enter a word or phrase into the search box to find relevant materials. If you want to search for a phrase, please use quotes, eg “Macmillan Cancer Support”, “Breast cancer”. If you have any questions about the web directory please contact Sue Hawkins firstname.lastname@example.org
In 2004 my mother asked us to donate to the Macmillan team in lieu of a present. It is ironic that she then developed and survived endometrial cancer in 2006 and was diagnosed with and died from ovarian cancer in 2012, especially as the Macmillan team supported us to keep her in the home she loved right to the end. The story tells of the effects of both cancers on Mum and the rest of the family. Naturally there were sad times and some excruciatingly painful and stressful times but there were also some funny and touching moments. Audrey, Mum's sister was coincidentally diagnosed with oesophageal cancer and at one point they were in different wards at opposite ends of the same hospital. The day we were told of Mum’s diagnosis, we wheeled her down to sit with Audrey and they held hands and hugged, one in a wheelchair and the other hooked up to all kinds of machinery. Audrey died thirteen days after mum. There is no doubt that my mother loved her family - she had nearly ninety children, grandchildren, great grandchildren and great, great grandchildren, both biological and adopted; whilst the story is written from my perspective, I wasn't the only one to suffer and it could easily have been written by thirty or forty other people. When I found out mum had a terminal illness I made up my mind to take her back to her home, which is the only place she wanted to be; some people thought I was mad but we had a dedicated team of family and were lucky to be further supported by her GP, the DN’s and Macmillan team. I organised weekly rotas to ensure 24 hour care: The book tells how we coped with this and of my panic the day I found out the Macmillan support team didn’t have any sitters for the following week. It also portrays the “normal” things we did along as we rode our six year emotional roller coaster, such as going on holidays and dealing with other family crises. The last twelve months before her death were intolerable. The last six months a nightmare, and the ten weeks between diagnosis and her passing were hell on earth but we had some laughs, we cried and we sang songs. A few weeks before she died, as my daughter entered the room Mum was playing a game with my younger grandchildren, throwing the tiny purple chick to each of them in turn and giggling along with them, its tail flashing as though it too was enjoying the fun. I initially wrote the book to help me deal with my own grief, stress and feelings of guilt that I was glad she had finally let g
Guidance for primary school teachers on how to talk to children about cancer when one of their classmates has cancer.
Guidance for primary school teachers on how they can help when a child has cancer, for example what to do when the child is off school, how to talk to classmates about what is happening and what to do when the child returns to school.
Together for Short Lives
This factsheet explains how spirituality, religion and cultural background can shape a family's wishes. It and aims to help families to ask professionals to care for their child according to their values or beliefs.
Together for Short Lives
This factsheet is for parents or carers of a child with a life-threatening or life-limiting disease. It has guidance about talking to the child's siblings about the diagnosis and what might happen.
Together for Short Lives
This leaflet is for parents, carers or legal guardians of a child with a life-limiting or life-threatening condition who are thinking about critical care options. It explains what critical care choices are, describes an end of life care plan and discusses concerns such as: making an informed choice; making the most of time left; feeling under pressure to make a quick decision; talking to the child; and disagreeing with the health care professionals. Includes details of sources of support.
Jack is a little boy who is having radiotherapy. With the help of Lucy, the radiographer, Jack pretends his treatment is a space mission.
Despite the tumor-shrinking medical miracle that has bought her a few years, Hazel has never been anything but terminal, her final chapter inscribed upon diagnosis. But when a gorgeous plot twist named Augustus Waters suddenly appears at Cancer Kid Support Group, Hazel's story is about to be completely rewritten. Insightful, bold, irreverent, and raw, The Fault in Our Stars is award-winning author John Green's most ambitious and heartbreaking work yet, brilliantly exploring the funny, thrilling, and tragic business of being alive and in love. (Publisher)
Self-published using AuthorHouse
Kiss From A Rose is a novel about my battle with cancer. It depicts my journey from being diagnosed at 16, and reflects on four subsequent relapses. Using the stunning rose as a metaphor for life, it is aimed at teenagers who have just been diagnosed with Cancer, and are about to begin their battle. I hope it is both comforting and informative, but also very honest as it describes my darkest moments, and deepest fears. It illustrates that although the Thorns on my Rose prick and sting with each hurdle I approach in my battle to fight this disease, they don't make the flower any less exquisite. (Publisher)