The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Please enter a word or phrase into the search box to find relevant materials. If you want to search for a phrase, please use quotes, eg “Macmillan Cancer Support”, “Breast cancer”. If you have any questions about the web directory please contact Sue Hawkins firstname.lastname@example.org
The Brain Tumour Charity
This factsheet has information about the use of chemotherapy to treat brain tumours in children.
One of a series of three booklets written using the experiences of parents whose child has died of cancer. This booklet describes what will happen when a child dies in hospital, at home or in a hospice. It has guidance and advice on registering the death, and planning and coping with the funeral.
This booklet has been written to help teenagers and young people (13+) understand more about cancer, its treatment, how it may affect them, and how to look after themselves while having treatment. It briefly describes cancer, diagnosis and tests, treatment options (surgery, chemotherapy, radiotherapy, steroids, stem cell treatment), the care team, and bone marrow, and neutropaenia and infection. It also has advice on handling side effects and what happens after treatment ends.
One of a series of three booklets written using the experiences of parents whose child has died of cancer. This booklet has advice and guidance on dealing with grief, dealing with other people, supporting other children, wider family and friends, as well as practical issues such as what to do with the child's personal belongings and their room.
The Brain Tumour Charity
This factsheet briefly describes brain tumours in children, the risk factors, diagnosis, treatment options and long-term side effects. It also describes the different types of brain tumours in children.
This booklet has been written using the real experiences of bereaved parents to support parents and carers when they are told that their child will die of cancer. It has advice and guidance on emotions, making informed choices, getting support, what to tell other children, close family and friends, how to deal with offers of help, informing the school, work, and coping with the death of the child.
Caroline Burch experienced every parent's worst nightmare when her son Elliot was diagnosed with cancer when he was just six months old. To document her experiences she kept a diary detailing the ups and downs of her son's treatment and the emotional anguish of their situation from diagnosis to remission. Ten years later, and with Elliot happily recovered from the condition that threatened his life, Caroline looks back at the traumatic months when there appeared to be no end in sight to the misery. Caroline's story is proof that there is life after cancer and this book is a tribute to the tireless work of the individuals who help parents and their children emerge from their nightmare. (Publisher)
DVD for school staff, to help them support young people following their return to school after a cancer diagnosis. It shows the experiences of young people and covers the emotional impact of returning to education after diagnosis and treatment and how staff can help pupils reintegrate into school life.
Lymphoedema Support Network
Leaflet addressing the concerns of young people diagnosed with lymphoedema: for example, what it is, and the treatment options. Includes quotes from young people with lymphoedema
Children's Cancer and Leukaemia Group
Advice and guidance on managing the behaviour of children taking dexamethasone as part of treatment for acute lymphoblastic leukaemia.