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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 345

Cover image of 'Supporting your grandchild and family. An information guide for grandparents of a child or young person diagnosed with cancer'

Supporting your grandchild and family. An information guide for grandparents of a child or young person diagnosed with cancer (April 2019)

Children's Cancer and Leukaemia Group

Being told your grandchild has cancer comes as a terrible shock. Most grandparents worry not only about their grandchild, but also about how their own son/daughter will cope. Many are also concerned about the effects a cancer diagnosis will have on other children within the family, how they can support their family and how, as grandparents, they themselves will cope. Sometimes, it is not as easy for grandparents to access information first hand and this can lead to feelings of isolation. This guide answers some of the many questions grandparents might have during diagnosis and treatment.

Cover image of 'Donating your stem cells to your brother or sister. A guide to stem cell (bone marrow) donation for teenagers and young adults'

Donating your stem cells to your brother or sister. A guide to stem cell (bone marrow) donation for teenagers and young adults (May 2019)

Children's Cancer and Leukaemia Group

Illustrated, colour booklet for children who may be donating bone marrow or stem cells to a sibling. It describes stem cells and stem cell transplants, why a transplant is needed, the types of transplants, the selection process, tissue typing, harvesting the bone marrow (including the risks and side-effects), and what happens if the transplant is unsuccessful. It also covers issues such as consent, what to take into hospital, and changes to sibling relationships. Includes details of useful organisations and a glossary of terms.

Cover image of 'Staging of lymphoma'

Staging of lymphoma (April 2019)

Lymphoma Action

This factsheet is about staging of Hodgkin lymphoma and non-Hodgkin lymphoma. Staging is used to work out which parts of your body are affected by lymphoma. It covers: What is staging?; Staging of lymphoma in adults; Staging of lymphoma in children; ‘Early’ stage and ‘advanced’ stage lymphoma.

Cover image of 'Help with the cost of cancer in England, Scotland, Wales and Northern Ireland'

Help with the cost of cancer in England, Scotland, Wales and Northern Ireland (April 2019)

Macmillan Cancer Support

This easy to use booklet contains up-to-date information about benefits and other sources of financial help for people affected by cancer.

Cover image of 'Understanding ductal carcinoma in situ (DCIS)'

Understanding ductal carcinoma in situ (DCIS) (January 2019)

Macmillan Cancer Support

This booklet has information for women who have ductal carcinoma in situ (DCIS). It describes DCIS, the risk factors and causes, symptoms, diagnosis and tests, staging and grading, and the treatment options (surgery, radiotherapy, hormonal therapies). It also covers issues such as life after treatment and feelings.

Cover image of 'Understanding breast cancer in women'

Understanding breast cancer in women (January 2019)

Macmillan Cancer Support

This booklet is about breast cancer in women. It is for women who are having tests for breast cancer and women who have been diagnosed with breast cancer. It covers breast cancer that has not spread to other parts of the body and describes the causes, symptoms, diagnosis, stages, and treatment (including surgery, radiotherapy, chemotherapy and hormonal therapy). It also discusses issues such as fertility, hormone replacement therapy, and feelings. Includes details of useful organisations and other resources.

Cover image of 'Understanding breast cancer in men'

Understanding breast cancer in men (January 2019)

Macmillan Cancer Support

This booklet is about breast cancer in men. It is for men who are having tests for breast cancer and men who have been diagnosed with breast cancer. It explains the signs and symptoms of breast cancer in men. It explains how it is diagnosed and how it may be treated. It also has information about emotional, practical and financial issues.

Cover image of 'Cancer and relationships. Support for partners, families and friends'

Cancer and relationships. Support for partners, families and friends (January 2019)

Macmillan Cancer Support

This booklet is about coping with your feelings when someone close to you has cancer. It is for anyone who is close to someone with cancer, including partners, family members and friends. This booklet replaces two booklets: Be there for someone facing cancer; and Coping when someone close to you has cancer. 

Cover image of 'How are you feeling? The emotional effects of cancer'

How are you feeling? The emotional effects of cancer (February 2019)

Macmillan Cancer Support

Having cancer affects all areas of your life, including the way you feel. This booklet is about the main emotions that many people with cancer have. This may be after diagnosis, during treatment or after treatment has ended.

Cover image of 'Understanding secondary cancer in the bone'

Understanding secondary cancer in the bone (April 2019)

Macmillan Cancer Support

This booklet has information on secondary cancer in the bone, what it is, what causes it, the symptoms, how it is diagnosed, and the treatment options. It also covers issues such as emotions, talking to children, and how family and friends can help. 

Cover image of 'A story about cancer (with a happy ending)'

A story about cancer (with a happy ending) (2019)

Frances Lincoln Children’s Books

A teenage girl heads towards the hospital waiting room where the doctors are going to tell her how much time she's got to live. As she walks, she thinks about her journey up to this point… the terrible decor in the hospital, wearing a headscarf, the horrible treatments, but also being with her friends, family, and her new boyfriend Victor. This is a story about cancer with a happy ending. It's about life, love, and especially, hope. (Publisher) 

Cover image of 'Beyond'

Beyond (2019)

Burning Chair

What happens when we die? Is this really all there is? What exists beyond this life?Alex Duncan is just an ordinary 14 year old boy. His main worries are homework, girls, the school bully......and his sister, Jenna who has ovarian cancer, stage B. As his parents retreat into themselves, Alex is desperate to find a way to help, a way to make things better for his sister. After all, it’s the not knowing that’s the worst thing.Whilst he tries to untangle the ultimate question, life still goes on: his best friend seems oblivious to his feelings about her, the school bully has taken a special interest in him, and everything he does just makes him feel more and more awkward and out of place.Georgia Springate’s debut novel, Beyond, is a funny and touchingly compelling coming-of-age story about love, loss and discovery. Read it and take an emotional journey through one boy’s quest to understand that most tricky of questions: what lies beyond? (Publishers)

Cover image of 'Jess's bone marrow donation. A children's guide to bone marrow donation'

Jess's bone marrow donation. A children's guide to bone marrow donation (January 2018)

Children's Cancer and Leukaemia Group

A colourful booklet for young children who are preparing to donate bone marrow. It explains what bone marrow is and describes what happens to Jess in hospital before, during and after the operation and when she goes home.

Cover image of 'Anna loses her hair. A children’s guide to hair loss as a result of cancer treatment'

Anna loses her hair. A children’s guide to hair loss as a result of cancer treatment (October 2018)

Children's Cancer and Leukaemia Group

Hair loss is a common side effect of having chemotherapy and of radiotherapy to the head. This book tells the story of Anna, Jack and Laura who all lose their hair while having treatment for cancer and helps young children to understand what might happen.

Cover image of 'Tom has lymphoma'

Tom has lymphoma (November 2018)

CLIC Sargent|Lymphoma Action

Tom is ten years old when he is diagnosed with lymphoma. This illustrated, colour storybook for parents to read with their children describes what happens when he has to go to the hospital for tests and treatment. The story follows Tom from when he first feels ill, through diagnosis and treatment, to recovery and return to normal life.

Cover image of 'Helping your child to eat well during cancer treatment. A practical information guide for parents and families of a child or young person with cancer'

Helping your child to eat well during cancer treatment. A practical information guide for parents and families of a child or young person with cancer (October 2018)

Children's Cancer and Leukaemia Group

Children with cancer may experience problems with eating and drinking at some stage. This can be due to the cancer or its treatment. This booklet has ideas on helping children with a poor appetite and other eating problems.

Cover image of 'Peripheral blood stem cell (PBSC) harvesting. Information for young people with cancer, and parents of a child or young person with cancer, having a stem cell transplant, and for stem cell donors'

Peripheral blood stem cell (PBSC) harvesting. Information for young people with cancer, and parents of a child or young person with cancer, having a stem cell transplant, and for stem cell donors (November 2018)

Children's Cancer and Leukaemia Group

This factsheet is written to help explain what is involved when you undergo a peripheral blood stem cell (PBSC) harvest. It explains what haematopoietic stem cells are; why we need to collect them; and what happens before, during and after the harvest.

Cover image of 'What does it mean?'

What does it mean? (2018)

BUPA

This booklet explains what cancer is and explores some common worries and feelings that children may have - reassuring them that however they react, it’s ok.

Cover image of 'Activity book'

Activity book (2018)

BUPA

An activity booklet to help occupy children at home or in hospital when someone they know has cancer.

Cover image of 'Life at home'

Life at home (2018)

BUPA

This booklet looks at some of the side-effects of different types of cancer treatments. It also offers ideas for small ways children may like to help out at home.  

Cover image of 'Visiting hospital'

Visiting hospital (2018)

BUPA

This booklet explains types of treatment and some of the health professionals who are helping people with cancer to get better. 

Cover image of 'Talking with your children about breast cancer'

Talking with your children about breast cancer (June 2018)

Breast Cancer Care

This booklet explains what children of different ages can understand about a serious illness such as cancer and how they may respond to the news that someone in the family has breast cancer. Individual parents describe their experiences and the booklet has advice on what, when and how to tell children about the diagnosis.

Cover image of 'The cancer guide for young people. What to expect when you're affected by cancer'

The cancer guide for young people. What to expect when you're affected by cancer (February 2018)

Macmillan Cancer Support

A booklet for young people aged 12-25 years. It aims to help answer some of their questions and to provide tips and guidance. It explains what cancer is and how it can be treated. It also gives practical tips about coping with treatment, relationships and sorting out practical things like school, university, work, and money.

Cover image of 'Understanding acute lymphoblastic leukaemia (ALL)'

Understanding acute lymphoblastic leukaemia (ALL) (August 2018)

Macmillan Cancer Support

This booklet describes acute lymphoblastic leukaemia, its causes, symptoms, diagnosis, and treatment options. It also discusses issues such as feelings, talking to children, self-help, and practical and financial support. Includes details of useful organisations and other resources.

Cover image of 'Cancer WTF? Want the facts?'

Cancer WTF? Want the facts? (February 2018)

CLIC Sargent

Hearing you have cancer throws you into a world of “unknowns”. It’s like finding yourself in the middle of a maze with no clue how you’re supposed to find your way back out again. It’s confusing and scary when you don’t know which way to turn. But that’s where we all step in – your loved ones, care and medical professionals and the many organisations dedicated to supporting you. We’ll make sure that you will never be alone through this, and can set you on the right path until everything starts making sense again. This booklet should help you on your way.

Cover image of 'Understanding cancer of the pancreas'

Understanding cancer of the pancreas (June 2018)

Macmillan Cancer Support

This booklet has information about the most common type of cancer of the pancreas - adenocarcinoma. It describes the risk factors, causes, symptoms, diagnosis, staging, treatment options and follow-up. It also discusses feelings and self-help and includes details of further support and websites.

Cover image of 'Understanding womb (endometrial) cancer'

Understanding womb (endometrial) cancer (July 2018)

Macmillan Cancer Support

This booklet is about a type of womb cancer called endometrial cancer. It is for anyone who has been diagnosed with this type of cancer. There is also information for carers, family members and friends. The booklet explains how these cancers are diagnosed and treated. It gives information about coping during and after treatment.

Cover image of 'Understanding myeloma'

Understanding myeloma (July 2018)

Macmillan Cancer Support

This booklet describes the symptoms, diagnosis and treatment (including side-effects) of myeloma. It also covers issues such as feelings, and practical and financial help. Includes details of useful support organisations and other resources.

Cover image of 'Understanding non-Hodgkin lymphoma'

Understanding non-Hodgkin lymphoma (January 2018)

Macmillan Cancer Support

This booklet aims to provide a better understanding of non-Hodgkin lymphomas, their diagnosis and treatment. It also has sections on feelings and sources of practical and financial support. Includes details of useful organisations.

Cover image of 'Understanding secondary cancer in the liver'

Understanding secondary cancer in the liver (August 2018)

Macmillan Cancer Support

This booklet helps provide a better understanding of secondary cancer in the liver, describing the causes, how it is diagnosed, and treatment options. It also includes information on follow-up and clinical trials. Issues such as feelings and talking to children are discussed and sources of emotional and financial support are described. Includes details of useful organisations.

Cover image of 'Understanding testicular cancer'

Understanding testicular cancer (August 2018)

Macmillan Cancer Support

This booklet explains what testicular cancer is, the symptoms, diagnosis, treatment, and surgery. It also has sections on sexuality and fertility (including sperm storage), emotions, self-help and support. Includes details of useful organisations.

Cover image of 'Understanding chronic lymphocytic leukaemia (CLL)'

Understanding chronic lymphocytic leukaemia (CLL) (May 2018)

Macmillan Cancer Support

This booklet answers questions about the causes, symptoms, diagnosis, staging, and treatment of chronic lymphocytic leukaemia. It also covers feelings, self-help, and practical and financial support. Includes details of useful organisations and resources.

Cover image of 'Understanding acute myeloid leukaemia (AML)'

Understanding acute myeloid leukaemia (AML) (August 2018)

Macmillan Cancer Support

This booklet is about a type of leukaemia called acute myeloid leukaemia (AML). It is for anyone who has been diagnosed with AML, or who wants to know more about it. It also has information for carers, family members and friends. The booklet covers: what AML is; symptoms and how AML is diagnosed; how AML is treated; coping with AML.

Cover image of 'Understanding kidney cancer'

Understanding kidney cancer (August 2018)

Macmillan Cancer Support

This booklet is about a type of kidney cancer called renal cell cancer. It is for anyone who has been diagnosed with kidney cancer, or is having tests for it. There is also information for carers, family members and friends. The booklet explains how renal cell cancer is diagnosed and treated. The booklet also talks about your feelings when you are diagnosed with cancer. You can find practical advice on dealing with work and finances towards the end of the booklet.

Cover image of 'Understanding cervical cancer'

Understanding cervical cancer (April 2018)

Macmillan Cancer Support

This booklet describes cancer of the cervix, how it develops, the symptoms, how it is diagnosed, further tests following diagnosis, and the treatment options. It also explores the emotional aspects. Includes details of the financial help and benefits available, and useful organisations

Cover image of 'Understanding cancer of the voicebox (larynx)'

Understanding cancer of the voicebox (larynx) (December 2018)

Macmillan Cancer Support

This booklet is about cancer of the larynx (voicebox), which is also called laryngeal cancer. It is for anyone who is having tests for cancer of the larynx, or anyone who has been diagnosed with it. There is also information for carers, family members and friends. It explains the signs and symptoms of cancer of the larynx. It also explains how it is diagnosed and treated, and ways to cope. This includes your feelings,  relationships, work and finances.

Cover image of 'Understanding mesothelioma'

Understanding mesothelioma (March 2018)

Macmillan Cancer Support

This booklet for anyone who is having tests for mesothelioma or has been diagnosed with it. There is also information for carers, family members and friends. The booklet explains the signs and symptoms of pleural and peritoneal mesothelioma. It explains how they are diagnosed and how they may be treated. It also has information about the feelings you might experience, and how your relationships, work and finances might be affected.

Cover image of 'Understanding soft tissue sarcomas'

Understanding soft tissue sarcomas (October 2018)

Macmillan Cancer Support

This booklet has information about soft tissue sarcomas, including the different types, the symptoms, diagnosis, staging and grading, and treatment options. It also discusses feelings and how your relationships, work and finances might be affected.

Cover image of 'Understanding early (localised) prostate cancer'

Understanding early (localised) prostate cancer (May 2018)

Macmillan Cancer Support

This booklet gives information about early cancer of the prostate gland, i.e. cancer that has not spread into the surrounding tissues or to other parts of the body. It describes the prostate gland and prostate cancer, the cause of prostate cancer, the symptoms, PSA testing and other diagnostic tests, the grading and staging of prostate cancer, and the treatment options. It also has information about the feelings you might experience, and how your relationships, work and finances might be affected.

Cover image of 'Understanding advanced (metastatic) prostate cancer'

Understanding advanced (metastatic) prostate cancer (May 2018)

Macmillan Cancer Support

This booklet gives information about advanced or metastatic cancer of the prostate gland, i.e. cancer that has spread beyond the prostate gland to other parts of the body. It describes the prostate gland and advanced prostate cancer, the symptoms, how it is diagnosed, tests, the grading and staging of prostate cancer, and the treatment options. It concludes with guidance on coping with advanced prostate cancer, financial help and benefits, and sources of further information and support.

Cover image of 'Understanding cancer of the ovary, fallopian tube and peritoneum'

Understanding cancer of the ovary, fallopian tube and peritoneum (July 2018)

Macmillan Cancer Support

This booklet is about cancer of the ovary, fallopian tube and peritoneum. It is for anyone who has been diagnosed with one of these types of cancer. There is also information for carers, family members and friends. The booklet explains the signs and symptoms of these cancers, and  how they are diagnosed and treated. It also has information about emotional, practical and financial issues. <!-- ?xml:namespace prefix = o ns = "urn:schemas-microsoft-com:office:office" ? -->

Cover image of 'Understanding secondary breast cancer'

Understanding secondary breast cancer (October 2018)

Macmillan Cancer Support

This booklet is about secondary breast cancer. This is breast cancer that has spread to another part of the body. It is for anyone who has been diagnosed with secondary breast cancer and explains the signs and symptoms, the different treatments, how to manage symptoms and ways to cope with some of the feelings you may have.

Cover image of 'Preparing a child for loss'

Preparing a child for loss (April 2018)

Macmillan Cancer Support|Winston's Wish

This booklet is written with the childhood bereavement charity, Winston’s Wish. It’s for parents or guardians who are near the end of life and aims to help you prepare and talk to a child or children about your death. Partners, grandparents and close family members may find it useful, too. It may also help you talk to children who are already dealing with the death of a family member. 

Cover image of 'Understanding locally advanced prostate cancer'

Understanding locally advanced prostate cancer (May 2018)

Macmillan Cancer Support

This booklet is for anyone who has been diagnosed with locally advanced prostate cancer. This is when prostate cancer has grown outside the prostate and may have started to spread into tissue or organs close by. There is also information for family members and friends. The booklet explains the different treatments for locally advanced prostate cancer and their side effects. It also has information about the feelings you might experience, and how your relationships, work and finances might be affected.

Cover image of 'Cancer genetics. How cancer sometimes runs in families'

Cancer genetics. How cancer sometimes runs in families (September 2018)

Macmillan Cancer Support

This booklet is for people who are worried that cancer might run in the family. It explains how genes work, the role of genes in the development of some cancers, how risk is inherited, and the role of genetic counselling and testing. It also includes information on preventing cancer and the role of genes in specific cancers (bowel, breast, ovarian). Includes details of useful organisations and other resources.

Cover image of 'Younger people with bowel cancer: a guide for the under 50s'

Younger people with bowel cancer: a guide for the under 50s (August 2018)

Bowel Cancer UK

This booklet is for people who have been diagnosed with bowel cancer under the age of 50. It gives an introduction to how bowel cancer can affect your body, your emotions, your relationships and your everyday life. It includes the personal experiences of people who have been diagnosed with bowel cancer at a younger age. There are links to more detailed information, contact details for organisations, and a glossary of the medical words used.

Cover image of 'Understanding cancer of the vulva'

Understanding cancer of the vulva (February 2018)

Macmillan Cancer Support

This booklet provides information on the causes and symptoms of vulval cancer, diagnosis and staging, and treatment options and their side-effects. It also discusses feelings and has advice on self-help and support (including financial benefits). 

Cover image of 'Thinking about end of life. Finding support and getting your affairs in order'

Thinking about end of life. Finding support and getting your affairs in order (May 2018)

Age UK

Thinking about the end of life can be difficult, but being well informed can help people consider all their options at a time that’s right for them. This guide will make suggestions about the options and services available to help people make the best choices. It will explain how to make wishes and treatment preferences known, and help peole consider where they would like to be looked after towards the end of life.

Cover image of 'Goodbye Daisy'

Goodbye Daisy (2018)

Hashtag Press

Elsie and Daisy are best friends. They go to a special school, a school where the children have helpers and some of the children use wheels to get around. Elsie waits at the classroom door for her best friend to arrive every day. One day Daisy doesn’t arrive in school. All the grown-ups are crying; they are sad because Daisy has died. Elsie will never see her friend again. Elsie isn’t sad though, she is cross with her friend for not saying goodbye. Goodbye Daisy is based on Stephanie Nimmo’s own experiences of explaining to her daughter Daisy’s friends that Daisy had died. Aimed mainly at children with profound learning disabilities it is also a heart-warming social story and support guide about the death of a school friend that will support help parents, carers and professionals support a child through their loss and grief. (Publisher)

Cover image of 'Never too young to grieve. Supporting children under 5 after the death of a parent'

Never too young to grieve. Supporting children under 5 after the death of a parent (2018)

Winston's Wish

A child’s early years are a time of development and change which helps shape the rest of their life. From newborn babies needing constant attention and care to curious children seeking new experiences, an immense amount of learning and change happen during this short period of time. A key focus of early childhood is the relationships that children form with the important people in their lives — usually parents, carers and siblings. Most children will form a strong, secure bond with these people, which enables them to feel safe, and encourages the curiosity that helps them to explore their world. Bereavement during a child’s early years interrupts the attachment that they have with that person. In the absence of strong memories of their own, it can be hard for a young child to remember the person who has died and to feel connected to them. This booklet is designed for parents, carers, childcare professionals and other adults supporting children up to the age of 5 who have experienced the death of a parent or carer. It offers information and ideas as well as some activities which we hope will benefit children and their families. (Publisher)

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