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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 416

Cover image of 'Understanding cancer of the pancreas'

Understanding cancer of the pancreas (June 2018)

Macmillan Cancer Support

This booklet has information about the most common type of cancer of the pancreas - adenocarcinoma. It describes the risk factors, causes, symptoms, diagnosis, staging, treatment options and follow-up. It also discusses feelings and self-help and includes details of further support and websites.

Cover image of 'Understanding womb (endometrial) cancer'

Understanding womb (endometrial) cancer (July 2018)

Macmillan Cancer Support

This booklet is about a type of womb cancer called endometrial cancer. It is for anyone who has been diagnosed with this type of cancer. There is also information for carers, family members and friends. The booklet explains how these cancers are diagnosed and treated. It gives information about coping during and after treatment.

Cover image of 'Echo's sister [currently being reviewed by our volunteers]'

Echo's sister [currently being reviewed by our volunteers] (2018)

Harper Collins

Twelve-year-old El has planned on making her first week at a new school fantastic. She won’t go by her given name, Laughter. She’ll sit in the back of the classroom where she can make new friends. She won’t even have time to think about all the fun her old friends are having without her. Everything will be great. But when her dad picks her up after school and tells her that her younger sister, Echo, has a life-threatening illness, her world is suddenly turned upside down. And with her parents now pressed for time and money, El feels lost and powerless. Then she befriends Octavius, the only other kid in school who gets what she’s going through. As El begins to adjust to her new life, she soon finds that maybe a little hope and a lot of love can overcome any obstacle. (Publishers)

Cover image of 'Before I go. The essential guide to creating a good end of life plan [currently being reviewed by our volunteers]'

Before I go. The essential guide to creating a good end of life plan [currently being reviewed by our volunteers] (2018)

Findhorn Press

A compassionate, practical guide to end-of-life matters, empowering us to clarify and share our wishes and continue to live life to the fullest. Many people say “I wish I had known what they wanted” when their loved one has died. Too often, a person’s wishes for end-of-life care, and for after they have gone, have not been recorded. With this valuable guide, you can now begin to do this for yourself, so your relatives will be able to honor your wishes more easily, saving them unnecessary stress and upset at a potentially intense time. Before I Go addresses the emotional, spiritual, and practical aspects of end-of-life planning to help you make well-informed decisions about your end-of-life care and prepare well for your death. Jane Duncan Rogers guides you with equanimity, care, and humor through subjects such as how to have a conversation about dying, the impact of grief on relatives responsible for estate matters, DIY funerals and what that entails. She states clearly what you need to have in place to ensure the best end of life possible, helps you identify your values and beliefs in this area, and demonstrates which actions you then need to take, and when. With a full resource pack of essential information available to you, including guiding questions, exercises, and recording tools, as well as downloadable worksheets and supportive online courses, decision-making will be much easier and you will find relief and peace of mind knowing you have taken care of outstanding matters. You will also be giving a great gift to your loved ones. When they have this information in advance, you spare them many difficult decisions and administrative hassle at a time when they will be grieving and not in a fit state to cope. It can bring great comfort to those left behind to know they are indeed carrying out your wishes. It also provides an opportunity for you to record your achievements and history, giving them a legacy they would otherwise not have. (Publisher)

Cover image of 'A moment of grace. A story of love and loss [currently being reviewed by our volunteers]'

A moment of grace. A story of love and loss [currently being reviewed by our volunteers] (2018)

Ebury Press (Penguin Random House)

Patrick Dillon and Nicola Thorold were together for twenty-eight years. Patrick was an award-winning architect and writer and Nicola a leading figure in theatre, awarded an OBE for her contribution to the arts at London’s Roundhouse. Their two children were almost grown-up. Life was good. And then, in May 2015, Nicola was diagnosed with leukaemia. After several rounds of treatment, a bone marrow transplant and many waves of recovery and decline, she died thirteen months after her diagnosis. Six months later, at Christmas, Patrick started to write. A Moment of Grace is the searing, tender account of Patrick’s life with Nicola and her illness, and his life after her loss. But it is more than a story of illness and unbearable grief: it is a book of memory, of home, of family. It is a tale of the transfiguring power of love. Heartbreaking, life-affirming and truly unforgettable, A Moment of Grace is one man’s journey to find life after his wife’s death. (Publisher)

Cover image of 'My daddy is my superhero [currently being reviewed by our volunteers]'

My daddy is my superhero [currently being reviewed by our volunteers] (2018)

North Staffordshire Press

My Daddy Is My Superhero was inspired by Michaelagh's own experience of explaining her husband's brain tumour illness to her eldest son, and is intended to help begin conversations surrounding serious illness and death with young children. At its core, My Daddy Is My Superhero is about the loving relationship between a little boy and his dad. It is a story about love, fun, beauty, loss, sadness, memories and celebration. (Publisher)

Cover image of 'Understanding secondary cancer in the liver'

Understanding secondary cancer in the liver (August 2018)

Macmillan Cancer Support

This booklet helps provide a better understanding of secondary cancer in the liver, describing the causes, how it is diagnosed, and treatment options. It also includes information on follow-up and clinical trials. Issues such as feelings and talking to children are discussed and sources of emotional and financial support are described. Includes details of useful organisations.

Cover image of 'Understanding non-Hodgkin lymphoma'

Understanding non-Hodgkin lymphoma (January 2018)

Macmillan Cancer Support

This booklet aims to provide a better understanding of non-Hodgkin lymphomas, their diagnosis and treatment. It also has sections on feelings and sources of practical and financial support. Includes details of useful organisations.

Cover image of 'Understanding acute myeloid leukaemia'

Understanding acute myeloid leukaemia (August 2018)

Macmillan Cancer Support

This booklet is about a type of leukaemia called acute myeloid leukaemia (AML). It is for anyone who has been diagnosed with AML, or who wants to know more about it. It also has information for carers, family members and friends. The booklet covers: what AML is; symptoms and how AML is diagnosed; how AML is treated; coping with AML.

Cover image of 'Follow the child. Planning and having the best end-of-life care for your child [currently being reviewed by our volunteers]'

Follow the child. Planning and having the best end-of-life care for your child [currently being reviewed by our volunteers] (2018)

Jessica Kingsley Publishers

Drawing on her family's own experiences and those of other parents facing the death of a child from illness or a life-limiting condition, Sacha Langton-Gilks explains the challenges, planning, and conversations that can be expected during this traumatic period. Practical advice such as how to work with the healthcare professionals, drawing up an Advance Care Plan, and how to move care into the home sit alongside tender observations of how such things worked in her own family's story. The book also includes a template person-centred planning document, developed by experts in the field. Empowering and reassuring, this book will help families plan and ensure the best possible end-of-life care for a child or young person. (Publisher)

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