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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 267

Cover image of 'Understanding advanced (metastatic) prostate cancer'

Understanding advanced (metastatic) prostate cancer (May 2018)

Macmillan Cancer Support

This booklet gives information about advanced or metastatic cancer of the prostate gland, i.e. cancer that has spread beyond the prostate gland to other parts of the body. It describes the prostate gland and advanced prostate cancer, the symptoms, how it is diagnosed, tests, the grading and staging of prostate cancer, and the treatment options. It concludes with guidance on coping with advanced prostate cancer, financial help and benefits, and sources of further information and support.

Cover image of 'The cancer guide for young people. What to expect when you're affected by cancer'

The cancer guide for young people. What to expect when you're affected by cancer (February 2018)

Macmillan Cancer Support

A booklet for young people aged 12-25 years. It aims to help answer some of their questions and to provide tips and guidance. It explains what cancer is and how it can be treated. It also gives practical tips about coping with treatment, relationships and sorting out practical things like school, university, work, and money.

Cover image of 'The neuroscientist who lost her mind. A memoir of madness and recovery'

The neuroscientist who lost her mind. A memoir of madness and recovery (2018)

Bantam Press (imprint of Transworld Publications)

All we think, feel and dream, how we move, if we move, everything that makes us who we are, comes from the brain. We are the brain. So what happens when the brain fails? What happens when we lose our mind? In January 2015, renowned neuroscientist Barbara Lipska's melanoma spread to her brain. It was, in effect, a death sentence. She had surgery, radiation treatments and entered an immunotherapy clinical trial. And then her brain started to play tricks on her. The expert on mental illness - who had spent a career trying to work out how the brain operates and what happens when it fails - experienced what it is like to go mad. She began to exhibit paranoia and schizophrenia-like symptoms. She became disinhibited, completely unaware of her inappropriate behaviour. She got lost driving home from work, a journey she did every day. She couldn't remember things that had just happened to her. Small details like what she was having for breakfast became an obsession, but she ignored the fact that she was about to die. And she remembers every moment with absolute clarity. Weaving the science of the mind and the biology of the brain into her deeply personal story, this is the dramatic account of Dr Lipska's own brilliant brain gone awry. (Publisher)

Cover image of 'Understanding muscle-invasive and advanced bladder cancer'

Understanding muscle-invasive and advanced bladder cancer (November 2018)

Macmillan Cancer Support

This booklet is about muscle-invasive and advanced bladder cancer. It is for anyone who is having tests for this type of cancer or has been diagnosed with it. It may also be helpful for family members, friends or carers. The booklet explains the symptoms of muscle-invasive and advanced bladder cancer. It also explains how it is diagnosed and treated, and ways to cope. This includes your feelings, relationships, work and finances. 

Cover image of 'Understanding cancer of the voicebox (larynx)'

Understanding cancer of the voicebox (larynx) (December 2018)

Macmillan Cancer Support

This booklet is about cancer of the larynx (voicebox), which is also called laryngeal cancer. It is for anyone who is having tests for cancer of the larynx, or anyone who has been diagnosed with it. There is also information for carers, family members and friends. It explains the signs and symptoms of cancer of the larynx. It also explains how it is diagnosed and treated, and ways to cope. This includes your feelings,  relationships, work and finances.

Cover image of 'Never too young to grieve. Supporting children under 5 after the death of a parent'

Never too young to grieve. Supporting children under 5 after the death of a parent (2018)

Winston's Wish

A child’s early years are a time of development and change which helps shape the rest of their life. From newborn babies needing constant attention and care to curious children seeking new experiences, an immense amount of learning and change happen during this short period of time. A key focus of early childhood is the relationships that children form with the important people in their lives — usually parents, carers and siblings. Most children will form a strong, secure bond with these people, which enables them to feel safe, and encourages the curiosity that helps them to explore their world. Bereavement during a child’s early years interrupts the attachment that they have with that person. In the absence of strong memories of their own, it can be hard for a young child to remember the person who has died and to feel connected to them. This booklet is designed for parents, carers, childcare professionals and other adults supporting children up to the age of 5 who have experienced the death of a parent or carer. It offers information and ideas as well as some activities which we hope will benefit children and their families. (Publisher)

Cover image of 'Understanding cancer of the vulva'

Understanding cancer of the vulva (February 2018)

Macmillan Cancer Support

This booklet provides information on the causes and symptoms of vulval cancer, diagnosis and staging, and treatment options and their side-effects. It also discusses feelings and has advice on self-help and support (including financial benefits). 

Cover image of 'Understanding soft tissue sarcomas'

Understanding soft tissue sarcomas (October 2018)

Macmillan Cancer Support

This booklet has information about soft tissue sarcomas, including the different types, the symptoms, diagnosis, staging and grading, and treatment options. It also discusses feelings and how your relationships, work and finances might be affected.

Cover image of 'Before I go. The essential guide to creating a good end of life plan [currently being reviewed by our volunteers]'

Before I go. The essential guide to creating a good end of life plan [currently being reviewed by our volunteers] (2018)

Findhorn Press

A compassionate, practical guide to end-of-life matters, empowering us to clarify and share our wishes and continue to live life to the fullest. Many people say “I wish I had known what they wanted” when their loved one has died. Too often, a person’s wishes for end-of-life care, and for after they have gone, have not been recorded. With this valuable guide, you can now begin to do this for yourself, so your relatives will be able to honor your wishes more easily, saving them unnecessary stress and upset at a potentially intense time. Before I Go addresses the emotional, spiritual, and practical aspects of end-of-life planning to help you make well-informed decisions about your end-of-life care and prepare well for your death. Jane Duncan Rogers guides you with equanimity, care, and humor through subjects such as how to have a conversation about dying, the impact of grief on relatives responsible for estate matters, DIY funerals and what that entails. She states clearly what you need to have in place to ensure the best end of life possible, helps you identify your values and beliefs in this area, and demonstrates which actions you then need to take, and when. With a full resource pack of essential information available to you, including guiding questions, exercises, and recording tools, as well as downloadable worksheets and supportive online courses, decision-making will be much easier and you will find relief and peace of mind knowing you have taken care of outstanding matters. You will also be giving a great gift to your loved ones. When they have this information in advance, you spare them many difficult decisions and administrative hassle at a time when they will be grieving and not in a fit state to cope. It can bring great comfort to those left behind to know they are indeed carrying out your wishes. It also provides an opportunity for you to record your achievements and history, giving them a legacy they would otherwise not have. (Publisher)

Cover image of 'Regaining bowel control after bowel cancer treatment'

Regaining bowel control after bowel cancer treatment (August 2018)

Bowel Cancer UK

Regaining bowel control can be one of the biggest challenges that you face after surgery for bowel cancer. In this booklet we explain approaches you can take and the support available to you. 

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