The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
NHS Health Scotland
A guide to the human papillomavirus (HPV) vaccine. It describes what cervical cancer is, HPV and how it is spread, and how and when the vaccine is given. It also covers consent, and possible side effects.
Breast Cancer Care
This booklet describes chemotherapy and explains how and when it might be used to treat breast cancer, and the possible side-effects. It also discusses issues such as fertility and contraception, and coping with chemotherapy.
Pancreatic Cancer UK
This booklet describes pancreatic cancer, what it is, how it is diagnosed, staging, and treatment options. Includes a glossary.
Cancer Research UK
This leaflet contains information about how cervical screening can detect early changes in the cervix before they develop into cancer. It also provides information about factors affecting the risk of cervical cancer.
Pancreatic Cancer UK
This booklet is for people with pancreatic cancer, their family, friends and carers who want to know more about what may happen in the last few months of life. It includes information about the symptoms that people with pancreatic cancer may get towards the end of their life and how to manage them. There is also information about how to get the care and support you might need, dealing with the emotional impact of dying from pancreatic cancer, and specific information for family members.
Pancreatic Cancer UK
The National Institute for Health and Care Excellence (NICE) has produced guidelines for health professionals diagnosing and caring for people with pancreatic cancer. These guidelines are for the most common type of pancreatic cancer, pancreatic ductal adenocarcinoma. Health professionals don’t have to follow these guidelines, but they must take them into account when making decisions about care. They should also take your needs and wishes into account.
Breast Cancer Care
This booklet describes tubular breast cancer, diagnosis, treatment options and coping with the condition.
Breast Cancer Care
A booklet for people who have been treated for breast cancer and who may be concerned about their risk of osteoporosis. It describes osteoporosis, who is at risk, breast cancer treatment and bone density, how to look after your bones, and what to do if you think you have osteoporosis.
Breast Cancer Care
A booklet for women whose breast cancer has been diagnosed during pregnancy or within a year of giving birth. It describes how breast cancer is diagnosed in pregnancy and the treatment options. It also covers coping with the diagnosis and continuing with the pregnancy.
Breast Cancer Care
A booklet for people who have been diagnosed with secondary cancer in the bones that has spread from the breast. It describes what secondary breast cancer in the bone is, the symptoms, and the investigations. It also describes the treatment options, but not in great detail. Lists useful organisations.
Macmillan Cancer Support
This information is about fatigue, which can be caused by cancer or cancer treatments.
Macmillan Cancer Support
This information is about fatigue, which can be caused by cancer or cancer treatments.
Breast Cancer Care
A booklet for anyone in a relationship with someone who has been diagnosed with breast cancer.
Breast Cancer Care
This booklet describes the range of treatments that may be offered to women with newly diagnosed breast cancer.
Breast Cancer Care
A booklet for women who are experiencing menopausal symptoms after breast cancer treatment. It has advice on treatments (prescription drugs and complementary therapies) and practical measures for coping with hot flushes, vaginal dryness, loss of libido, mood swings, joint pain and risk of osteoporosis. Includes details of further support.
Macmillan Cancer Support
We have produced the Core Books List to help public libraries and cancer information and support centres improve the quality and reliability of the cancer books they stock. The list includes books about cancer itself and people’s experience of living with cancer. All the books on the list have been reviewed favourably by our volunteer book reviewers. This list is not prescriptive but intended to help libraries to make informed choices between the very wide range of books available, which can be of variable quality and accuracy. Please note: Inclusion of a book in this list does not imply endorsement by Macmillan Cancer Support.
Breast Cancer Care
Many people will lose either some or all of their hair as a result of treatment for breast cancer. For some, this is the most distressing side effect of treatment. Some people find that being prepared for hair loss before it occurs helps them cope better when it happens. This booklet explains how you may lose your hair and the effect it can have. It looks at how to care for your hair and scalp during and after treatment and the different headwear you may want to try, including wigs and headscarves. It includes step-by-step guides to tying headscarves and tips on recreating the illusion of eyebrows and eyelashes. The final part of the booklet discusses what usually happens when your hair grows back and how to look after it.
Macmillan Cancer Support
An easy read booklet on the signs, symptoms, treatments and tests for lung cancer.
Breast Cancer Care
This booklet explains what children of different ages can understand about a serious illness such as cancer and how they may respond to the news that someone in the family has breast cancer. Individual parents describe their experiences and the booklet has advice on what, when and how to tell children about the diagnosis.
Macmillan Cancer Support|The UK Sepsis Trust
Having cancer and some cancer treatments can increase your risk of developing an infection and sepsis. This leaflet explains what sepsis is, when you need to contact your hospital team and what you can do to protect yourself.
Breast Cancer Care
This booklet is for anyone who is dealing with a diagnosis of primary breast cancer and its treatment. It discusses the emotions that may arise, how to tell other people, how to find out more, making decisions about treatment, and the effects of treatment, and looks ahead to the time when treatment is finished.
Breast Cancer Care
This pack is for women who have been told they have primary (early) breast cancer. It includes information about breast cancer, its diagnosis and treatments.
Sheldon Press
Advances in treatment mean that increasing numbers of people now survive cancer in the long term. This book examines the sophisticated medical choices available that help to boost life expectancy and how to maximize your chances of recovery. In this positive and comprehensive book, Mark Greener says, 'Your cancer journey is deeply personal, often difficult and at times frightening, but today's cutting-edge treatments can help you to live as full a life as possible, for as long as possible.' (Publisher)
Macmillan Cancer Support
This booklet explains that it is not common for cancer to run in families, what is known about the main causes of prostate cancer and how to reduce the risk.
Bowel Cancer UK
This illustrated booklet provides clear information on the different forms of surgery available to people with bowel cancer, plus useful tips on preparing for hospital and returning home.
Macmillan Cancer Support
Over 50 questions about cancer treatment for people to ask their doctor, nurse or pharmacist. There is space to write a list of questions and make notes.
Macmillan Cancer Support
A booklet for young people aged 12-25 years. It aims to help answer some of their questions and to provide tips and guidance. It explains what cancer is and how it can be treated. It also gives practical tips about coping with treatment, relationships and sorting out practical things like school, university, work, and money.
Macmillan Cancer Support
This leaflet explains what is known about the main causes of cancer and describes how to make the lifestyle changes that may reduce the risk of cancer.
Macmillan Cancer Support
This leaflet is for older people living with cancer. It is aimed at people aged 70 and over, but people under the age of 70 might also find it useful. It explains the different types of treatment and support available. it also has information about living with cancer and other conditions.
Public Health England
Leaflet aimed at encouraging women over 70 to check their breasts regularly and to go to the doctor as soon as they notice any change.
Macmillan Cancer Support
An easy read booklet on claiming benefits when you have cancer.
Macmillan Cancer Support
This leaflet explains: what we know about the main causes of bowel cancer; what you can do to reduce your risk of developing cancer.
Pancreatic Cancer Action
This booklet has information about eating after insertion of a duodenal stent. It describes what to expect and the best foods to eat and avoid.
Macmillan Cancer Support
An easy read booklet on help with costs when you have cancer.
Macmillan Cancer Support
This leaflet explains that it is not common for cancer to run in families, what is known about the main causes of breast cancer and how to reduce the risk.
Macmillan Cancer Support
Information and support for people who have had, or who are about to have, a bowel screening test. The booklet describes the bowel, bowel cancer, the faecal occult blood (FOB) test, further diagnostic tests (colonoscopy, virtual colonoscopy), and the benefits and disadvantages of bowel cancer screening.
Bowel Cancer UK
Regaining bowel control can be one of the biggest challenges that you face after surgery for bowel cancer. In this booklet we explain approaches you can take and the support available to you.
Macmillan Cancer Support
This booklet explains what testicular cancer is, the symptoms, diagnosis, treatment, and surgery. It also has sections on sexuality and fertility (including sperm storage), emotions, self-help and support. Includes details of useful organisations.
Macmillan Cancer Support
Information for people who have had treatment for head and neck cancer and who are experiencing side-effects after treatment has ended.
Macmillan Cancer Support
This booklet is for people who are worried that cancer might run in the family. It explains how genes work, the role of genes in the development of some cancers, how risk is inherited, and the role of genetic counselling and testing. It also includes information on preventing cancer and the role of genes in specific cancers (bowel, breast, ovarian). Includes details of useful organisations and other resources.
Macmillan Cancer Support
This booklet has information about the most common type of cancer of the pancreas - adenocarcinoma. It describes the risk factors, causes, symptoms, diagnosis, staging, treatment options and follow-up. It also discusses feelings and self-help and includes details of further support and websites.
Macmillan Cancer Support
This booklet is about a type of womb cancer called endometrial cancer. It is for anyone who has been diagnosed with this type of cancer. There is also information for carers, family members and friends. The booklet explains how these cancers are diagnosed and treated. It gives information about coping during and after treatment.
Macmillan Cancer Support
This booklet is about cancer of the ovary, fallopian tube and peritoneum. It is for anyone who has been diagnosed with one of these types of cancer. There is also information for carers, family members and friends. The booklet explains the signs and symptoms of these cancers, and how they are diagnosed and treated. It also has information about emotional, practical and financial issues. <!-- ?xml:namespace prefix = o ns = "urn:schemas-microsoft-com:office:office" ? -->
Macmillan Cancer Support
This booklet is about a type of kidney cancer called renal cell cancer. It is for anyone who has been diagnosed with kidney cancer, or is having tests for it. There is also information for carers, family members and friends. The booklet explains how renal cell cancer is diagnosed and treated. The booklet also talks about your feelings when you are diagnosed with cancer. You can find practical advice on dealing with work and finances towards the end of the booklet.
Macmillan Cancer Support
This booklet describes cancer of the cervix, how it develops, the symptoms, how it is diagnosed, further tests following diagnosis, and the treatment options. It also explores the emotional aspects. Includes details of the financial help and benefits available, and useful organisations
Macmillan Cancer Support
This booklet is about cancer of the larynx (voicebox), which is also called laryngeal cancer. It is for anyone who is having tests for cancer of the larynx, or anyone who has been diagnosed with it. There is also information for carers, family members and friends. It explains the signs and symptoms of cancer of the larynx. It also explains how it is diagnosed and treated, and ways to cope. This includes your feelings, relationships, work and finances.
Macmillan Cancer Support
This booklet is for men who may be having tests for prostate cancer; these may be diagnostic (DRE, PSA, PCA3, TRUS, biopsy, MRI) or tests that may be carried out to determine the stage and grade of prostate cancer (Isotope bone scan, X-rays, MRI and CT scans). It also covers issues such as waiting for test results and talking to healthcare staff. Includes a list of questions to ask and details of further support.
Macmillan Cancer Support
This booklet gives information about advanced or metastatic cancer of the prostate gland, i.e. cancer that has spread beyond the prostate gland to other parts of the body. It describes the prostate gland and advanced prostate cancer, the symptoms, how it is diagnosed, tests, the grading and staging of prostate cancer, and the treatment options. It concludes with guidance on coping with advanced prostate cancer, financial help and benefits, and sources of further information and support.
Macmillan Cancer Support
Information for women who experience side-effects that continue for six months or longer after treatment, or delayed late effects that begin months or years after treatment.
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