The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Colostomy Association
This leaflet describes what may cause pain and discomfort following Hartmann's procedure or loop stoma or abdomino-perineal excision of the rectum (APER), coping strategies and treatments available. Patients share their experiences.
Macmillan Cancer Support
This booklet is about looking after someone who has cancer. It explains: what it means to be a carer; who can help support you and the person you care for; the practical, emotional and financial issues you may face, and how to cope with them; ways you can help the person you care for manage symptoms or side effects; how to look after yourself.
Children's Cancer and Leukaemia Group
Illustrated, colour booklet for children who may be donating bone marrow or stem cells to a sibling. It describes stem cells and stem cell transplants, why a transplant is needed, the types of transplants, the selection process, tissue typing, harvesting the bone marrow (including the risks and side-effects), and what happens if the transplant is unsuccessful. It also covers issues such as consent, what to take into hospital, and changes to sibling relationships. Includes details of useful organisations and a glossary of terms.
NHS Health Scotland
Information for women about their cervical screening test results, including: the letters that may be received; what happens at the colposcopy clinic; treatment; what causes changes in the cervix.
Bloodwise
Burkitt lymphoma is a fast-growing form of blood cancer that can affect adults and children. This fact sheet explains what Burkitt lymphoma is, how it’s diagnosed and treated in adults, and where to go for more support.
NHS Health Scotland
Information for women about their cervical screening test results, including: the letters that may be received; what happens at the colposcopy clinic; treatment; what causes changes in the cervix.
Bloodwise
This fact sheet is for people who may be chosen to donate stem cells to someone else. It explains how stem cell transplants can help people with blood cancer, and what happens when you donate stem cells.
Macmillan Cancer Support
This booklet is designed to help people talk to children and teenagers about cancer. It has suggestions about how to tell a child or teenager that you have cancer, understand their reactions, help them cope, explain cancer treatments, and deal with changes to family life.
Troubador Publishing
Half of the UK population will receive a diagnosis of cancer at some point in their lives and most people will know someone who has been affected by this complex disease. Drawing from her three personal experiences with cancer alongside her professional experience as a counsellor and personal coach, Rebecca Brazier chronicles her journey through diagnosis, treatment and recovery. When talking about cancer we tend to think about the physical side effects of treatment. Although medical advances are saving and extending lives, less consideration is given to the emotional and psychological trauma which cancer creates. The Two Faces of Cancer describes and addresses this trauma and explores why cancer is difficult to recover from both personally and within society. It describes the devastation and powerful feelings cancer created for Rebecca and how she channelled these to create a meaningful life. It also draws from Rebecca's professional knowledge to analyse the emotional and psychological impact of cancer and to suggest routes to recovery. (Publisher)
AMEND (Association for Multiple Endocrine Neoplasia Disorders)
Guidance for those caring for, or close to, someone living with an endocrine tumour.
Breast Cancer Care
This leaflet describes what letrozole (Femara®) is, how it works, when it may be prescribed, how it is taken, and the possible side-effects.
Breast Cancer Care
This booklet explains what exemestane is, how it works, when it may be prescribed and possible side effects.
Lymphoma Action
Many people with cancer have fatigue and this extreme tiredness is often called ‘cancer-related fatigue’. This factsheet answers the most common questions people ask about fatigue, including: what it is; why cancer causes fatigue; who gets it; how it feels; how long it lasts; how it is assessed; how it is treated; and how to cope.
Lymphoma Action
An overview of how cancer develops and what lymphoma is.
Breast Cancer Care
This leaflet explains briefly what Arimidex® is, how it works, when it may be prescribed, how it is taken and the possible side-effects.
Lymphoma Action
This factsheet describes the use of ibrutinib for the treatment of certain types of lymphoma (relapsed or refractory mantle cell lymphoma; relapsed or refractory CLL; CLL and a 17p deletion). It covers what ibrutinib is, who can have it and who cannnot, its benefits, how it is given, side effects and precautions while being treated.
NHS Health Scotland
This leaflet explains what breast screening is, who is offered screening, the benefits and disadvantages of screening, what happens before, during, and after screening, and what it means to be called back. Includes breast awareness advice. Concludes with answers to questions that women may ask.
NHS Health Scotland
This leaflet explains what breast screening is, who is offered screening, the benefits and disadvantages of screening, what happens before, during, and after screening, and what it means to be called back. Includes breast awareness advice. Concludes with answers to questions that women may ask.
NHS Health Scotland
Information for women about their cervical screening test results, including: the letters that may be received; what happens at the colposcopy clinic; treatment; what causes changes in the cervix.
NHS Health Scotland
This leaflet explains what breast screening is, who is offered screening, the benefits and disadvantages of screening, what happens before, during, and after screening, and what it means to be called back. Includes breast awareness advice. Concludes with answers to questions that women may ask.
NHS Health Scotland
This leaflet explains what breast screening is, who is offered screening, the benefits and disadvantages of screening, what happens before, during, and after screening, and what it means to be called back. Includes breast awareness advice. Concludes with answers to questions that women may ask.
NHS Health Scotland
This leaflet explains what breast screening is, who is offered screening, the benefits and disadvantages of screening, what happens before, during, and after screening, and what it means to be called back. Includes breast awareness advice. Concludes with answers to questions that women may ask.
NHS Health Scotland
This leaflet explains what breast screening is, who is offered screening, the benefits and disadvantages of screening, what happens before, during, and after screening, and what it means to be called back. Includes breast awareness advice. Concludes with answers to questions that women may ask.
Colostomy Association
This leaflet explains the advantages and disadvantages of colostomy irrigation as an alternative to a stoma pouch. It describes who can and cannot irrigate, when irrigation can start, how it is taught, the equipment and supplies required, and how to irrigate.
Age UK
This factsheet highlights things to consider if you want to plan ahead and make financial and other arrangements for your funeral. It looks at options when deciding what type of funeral you want, ways to pay for a funeral, and information about organ donation. It may be helpful for people arranging a funeral.
Breast Cancer Care
This leaflet describes the FEC chemotherapy combination (5 fluorouracil, epirubicin and cyclophosphamide), when it may be used, how it works, how it is given and the possible side-effects.
NHS Health Scotland
Information for women about their cervical screening test results, including: the letters that may be received; what happens at the colposcopy clinic; treatment; what causes changes in the cervix.
Breast Cancer Care
This leaflet discusses lobular neoplasia, which includes atypical lobular hyperplasia (ALH) and lobular carcinoma in situ (LCIS). It describes the features, diagnosis, and treatment options, and concludes with guidance on how to cope with a diagnosis of lobular neoplasia and sources of support.
Macmillan Cancer Support
This booklet is about talking with someone who has cancer. It is for anyone who wants to support someone with cancer, including carers, family members and friends. The booklet explains how to talk to and support someone who has cancer.
NHS Health Scotland
This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active, are lesbian/bisexual, menopausal, or pregnant.
Breast Cancer Care
This booklet explains what pertuzumab is, when it’s given and its possible side effects. Pertuzumab is the generic (non-branded) name of the drug. Its current brand name is Perjeta®.
Breast Cancer Care
This booklet explains what the chemotherapy combination FEC-T is, when it may be prescribed, how it is given and what side effects may occur. FEC-T is a combination of four chemotherapy drugs: 5 fluorouracil (also known as 5FU); epirubicin; cyclophosphamide; docetaxol (also known as Taxotere).
Breast Cancer Care
This booklet aims to help women understand more about their breasts, how they develop and age, and the normal changes that can occur before a period, during pregnancy, when breastfeeding, and before, during and after the menopause. It uses illustrations to show women how to check their breasts and advises what to do if a change is noticed. It also describes routine breast screening, what happens at the clinic, and the limitations of screening.
NHS Health Scotland
This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active, are lesbian/bisexual, menopausal, or pregnant.
Age UK
This guide looks at the practical and emotional sides of caring. It has information about areas such as benefits and flexible working hours, as well as how a caring role could affect wellbeing and social life.
Breast Cancer Care
This leaflet explains what lymphoedema is and who is at risk. It describes how to reduce the risk of developing lymphoedema, and what to do if problems occur (swelling and skin damage).
NHS Health Scotland
This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active, are lesbian/bisexual, menopausal, or pregnant.
NHS Health Scotland
This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active, are lesbian/bisexual, menopausal, or pregnant.
NHS Health Scotland
This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active, are lesbian/bisexual, menopausal, or pregnant.
NHS Health Scotland
This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active, are lesbian/bisexual, menopausal, or pregnant.
Breast Cancer Care
This booklet explains what trastuzumab is, how it works, when it may be prescribed and the side effects you may experience.
Age UK
This guide aims to put older people at ease if they are going to be admitted to hospital. It will help them: prepare for going into hospital; understand their rights in hospital; understand the discharge process; and be more informed about care afterwards. It may also be useful for relatives and friends, as it can be a difficult time for them too.
NHS Health Scotland
This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active, are lesbian/bisexual, menopausal, or pregnant.
NHS Health Scotland
This leaflet explains what breast screening is, who is offered screening, the benefits and disadvantages of screening, what happens before, during, and after screening, and what it means to be called back. Includes breast awareness advice. Concludes with answers to questions that women may ask.
Independently published
Suitcases filled with medication. Life and death situations. Multiple organ removal. Risking everything to stay alive just one more day. And people still moan to you when they have a cold. Welcome to the life of a ‘terminal’ cancer patient. In January 2016 thirty-year-old Fi Munro was diagnosed with stage four ovarian cancer. Told from day one that her cancer was incurable and ‘terminal’, Fi faced unimaginable pain, heartache and suffering as the life she’d dreamed of was suddenly pulled away from her. Yet in the wake of this news she did not wallow. Instead she discovered a remarkable inner strength, resilience and, above all, a very dark sense of humour. Years later and she is still here, having outlived, in her opinion, two ‘very unreasonable’ prognoses. How Long Have I Got? is her inspiring story. Honest, open and often tear-jerking this is everything you wanted to know - and some stuff you’ll want to forget - about living with cancer and an important reminder that we are all terminal. Reading this will change your life forever. Fi Munro is a multi-award-winning researcher, author, blogger, speaker and mentor recognised internationally for her presentations and articles on her journey and the importance of holistic health. She has been featured in two BBC documentaries, in TV and radio shows, and in newspaper and magazine articles across the globe. Today she is healthier and happier than ever before and believes cancer saved her life. She is currently training to be a shaman and is excited for what the future holds. (Publisher)
NHS Health Scotland
This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active, are lesbian/bisexual, menopausal, or pregnant.
NHS Health Scotland
This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active, are lesbian/bisexual, menopausal, or pregnant.
NHS Health Scotland
This booklet is for smokers who are seriously thinking of giving up smoking. The contents include: Thinking about stopping; Preparing to stop; Stopping; Staying stopped; Further help; Medications.
NHS Health Scotland
This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active, are lesbian/bisexual, menopausal, or pregnant.
NHS Health Scotland
This booklet is for smokers who are seriously thinking of giving up smoking. The contents include: Thinking about stopping; Preparing to stop; Stopping; Staying stopped; Further help; Medications.
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