The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Please enter a word or phrase into the search box to find relevant materials. If you want to search for a phrase, please use quotes, eg “Macmillan Cancer Support”, “Breast cancer”. If you have any questions about the web directory please contact Sue Hawkins email@example.com
"Cancer is not a laughing matter, as I was told by a cross German lady from Dortmund when I showed her this journal. She had herself had breast cancer and is right of course; there are lots of things that are not fun about cancer, most of them unavoidable. I was therefore as surprised as the next person to realise that a huge amount of funny things happen on the way to chemo, or indeed on the way to most places, and that once you get your eye in, you completely forget to be scared..." This is not just an educational book about cancer, although it is certainly safe to give to cancer patients as a cheerful present. More importantly, it sheds new light on why Kim Kardashian is worth Keeping Up With, what playlists to make for MRI scans, the truth behind the legend of Medea, bikini etiquette on a deserted beach, what to do with a glut of rainbow chard, what an Oscar-winner should say in an acceptance speech, how to deal with cold-callers selling life insurance, and what to wear on a March Against Menopause (layers, obviously)... (Publisher)
A moving, thought-provoking and surprisingly humorous book which is both a description of a journey to death and a celebration of the act of living. Based on Clare Wise's blog, which she started when she was first diagnosed with cancer in 2013, Not That Kind of Love charts the highs and lows of the last three years of Clare's life. The end result is not a book that fills you with despair and anguish. On the contrary, Not That Kind of Love should be read by everybody for its candour, and for its warmth and spirit. Clare is an astonishingly dynamic, witty and fun personality, and her positivity and energy exude from every page. As she becomes too weak to type, her brother - the actor Greg Wise - takes over, and the book morphs into a beautiful meditation on life, and the necessity of talking about death. With echoes of Atul Gawande's Being Mortal and Cathy Rentzenbrink's The Last Act of Love, it is a very special read that rejoices in the extraordinary and often underestimated sibling bond, and the importance of making the most of the ordinary pleasures life has to offer. As Greg Wise writes in the book: 'Celebrate the small things, the small moments. If you find yourself with matching socks as you leave the house in the morning, that is a cause for celebration. If the rest of the day is spent finding the cure for cancer, or brokering world peace, then that's a bonus.' (Publisher)
Macmillan Cancer Support
The new Macmillan Organiser includes a copy of The cancer guide and My records for recording key contacts, appointments, medication and symptoms. There is also space for keeping appointment letters or other information resources. Additional copies of the My Records booklet can be ordered separately.
Macmillan Cancer Support
This booklet will help people affected by cancer to review their pension arrangements (state, occupational, personal). It covers protecting pension rights, taking pension income, and protecting survivors.
Public Health England
Leaflet aimed at alerting general public to symptoms of bladder and kidney cancer and encouraging people to go to the doctor if they have blood in their urine.
Polygon (Birlinn Imprint)
How do you start a new life when the person you love is about to die? At the age of thirty-six, Gordon Darroch's wife was diagnosed with breast cancer. It was a devastating blow just as he, and their two children with autism, were preparing to move to her native Holland. Eighteen months later, as their plans seemed to be back on course, came the second blow: Magteld was terminally ill and possibly had only a few months to live. As her health rapidly deteriorated, they became caught up in a race against time to get a dying mother home and give their children a future in a country they hardly knew. How could they build a new life in the midst of grief and loss? How would their two sons adjust to such enormous changes? And what would remain of Magteld once she was gone? All the Time We Thought We Had is a story of love and loss and a meditation on grief and memory. It's about how events shape our lives and how we cope with them. And it raises important questions about what we value in life and the legacies we leave behind. (Publisher)
They say there’s a book in all of us, but I doubt I would ever have written one had it not have been for my diagnosis of breast cancer in 2011. ‘A New Kind of Normal' is the story of my life up to and moving on from that moment. Growing up in the 60's, working through the 70's and 80's, juggling a career in TV and radio while bringing up three children and surviving two divorces. From the moment I knew what a bra was, I’d wanted breasts: I even crafted a pair of blue plasticine boobs for myself, as nature made me wait until I was 15 for breasts of my own! Through cancer I lost them both, and with the chemotherapy; all my hair, my fingernails, and more worryingly, a sense of whom I was. My hair grew back, as did my fingernails, but I still struggled with my identity. What I’ve written isn't a diary, nor a self-help guide, and it's not just about cancer. I’ve taken a really good look at the little girl I was and the woman I grew into, and why I went to such lengths to try and claw back some of what cancer had taken from me - it's not everyone's way I appreciate, and it’s been an interesting exercise trying to ascertain why it was mine! I’ve been honest, open, and meticulous when it comes to detail, as I firmly believe that if you take away the mystery, you can take away some of the fear. But there’s a lot to laugh about here too, as luckily I’ve always been able to see the funny side of a situation, preferring that to the occasional overwhelming despair I felt. In this book I've tried to move the disease away from the medical professionals and the hospitals, and to bring it into the day to day, because that's where it sits. Over the last seven years I’ve come to realise that the ripple effect of cancer is far reaching, affecting not just those of us living with it but everyone around us. 'A New Kind of Normal' gives an insight into my relationship with my then partner, now husband; my children and their reaction to my illness, my family and friends, my work colleagues, people who wrote to me, and the professionals who cared for me; everybody reacts differently. Breast cancer assaults your femininity - the treatment is tough and the surgery brutal. It isn't easy, but it is possible, and I'd like to feel this book may be a source of comfort to anyone who's life is touched by breast cancer; maybe even help them to find their 'New Kind of Normal'. There are many things in life we may have to give up on, but hope is not one of them. (P
'There's only one mum quite like me. I wish that there were two. I'd have more time to spend And I would spend it all with you.' Most of us can't imagine having the time we spend with our children or loved ones cut short, but this is the reality being faced by mother of two Lisa Wells, who was diagnosed with terminal bowel and liver cancer in December 2017 at the age of 31. The Only One of Me project grew from Lisa's determination to leave a lasting legacy for her daughters and her desire to help other families rally against the difficulties of loss. Only One of Me is the product of Lisa's lifelong love of writing and a newfound friendship with award-winning children's author Michelle Robinson. The two collaborated on this tender and moving rhyming poem, with charming illustrations by Catalina Echeverri, which is both a love letter to Lisa's own daughters and a testament to the unwavering strength of parental love, a timeless message for families facing the challenges of bereavement. (Publisher)
A compassionate, practical guide to end-of-life matters, empowering us to clarify and share our wishes and continue to live life to the fullest. Many people say “I wish I had known what they wanted” when their loved one has died. Too often, a person’s wishes for end-of-life care, and for after they have gone, have not been recorded. With this valuable guide, you can now begin to do this for yourself, so your relatives will be able to honor your wishes more easily, saving them unnecessary stress and upset at a potentially intense time. Before I Go addresses the emotional, spiritual, and practical aspects of end-of-life planning to help you make well-informed decisions about your end-of-life care and prepare well for your death. Jane Duncan Rogers guides you with equanimity, care, and humor through subjects such as how to have a conversation about dying, the impact of grief on relatives responsible for estate matters, DIY funerals and what that entails. She states clearly what you need to have in place to ensure the best end of life possible, helps you identify your values and beliefs in this area, and demonstrates which actions you then need to take, and when. With a full resource pack of essential information available to you, including guiding questions, exercises, and recording tools, as well as downloadable worksheets and supportive online courses, decision-making will be much easier and you will find relief and peace of mind knowing you have taken care of outstanding matters. You will also be giving a great gift to your loved ones. When they have this information in advance, you spare them many difficult decisions and administrative hassle at a time when they will be grieving and not in a fit state to cope. It can bring great comfort to those left behind to know they are indeed carrying out your wishes. It also provides an opportunity for you to record your achievements and history, giving them a legacy they would otherwise not have. (Publisher)
Olop and Flossie Publishing
What does the mother say to her six-year-old when she asks the question that no mother ever wants to be asked? How does the fourteen-year-old cope with the illness while struggling with the typical angst of a teenager? This book is about an ordinary family who is faced with extra-ordinary changes and challenges when the mother is diagnosed with a potentially life-limiting illness. IT (the illness) becomes the uninvited guest in the family and as the story develops the frustrations, anxieties and impact all become very real. (Publisher)