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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 1673

Cover image of 'Understanding cancer research trials (clinical trials)'

Understanding cancer research trials (clinical trials) (April 2018)

Macmillan Cancer Support

This booklet explains what clinical trials are, and why and how they are carried out. It describes the different types of trials and suggests questions that people might ask before deciding whether to take part in a clinical trial. Includes details of useful organisations and other resources.

Cover image of 'Things that are important to me. Sharing what is important to my healthcare team [Easy read]'

Things that are important to me. Sharing what is important to my healthcare team [Easy read] (June 2018)

Macmillan Cancer Support|ENABLE Scotland|CHANGE

It is helpful to tell your doctors and nurses what is important to you. This will help them give you the best care. You can use this book to write about what is important to you.

Cover image of 'Breast reconstruction'

Breast reconstruction (January 2018)

Breast Cancer Care

This booklet is for women considering breast reconstruction after breast surgery to treat breast cancer.

Cover image of 'Ductal carcinoma in situ (DCIS)'

Ductal carcinoma in situ (DCIS) (March 2018)

Breast Cancer Care

This booklet describes ductal carcinoma in situ (DCIS), the symptoms, how a diagnosis is made, the different types of DCIS, and the treatment options. It also has a short section on coping with breast cancer.

Cover image of 'Having a smear test. What is it about? [Easy read]'

Having a smear test. What is it about? [Easy read] (June 2018)

Jo's Cervical Cancer Trust

An easy read guide for women thinking about having a smear test.

Cover image of 'Jess's bone marrow donation. A children's guide to bone marrow donation'

Jess's bone marrow donation. A children's guide to bone marrow donation (January 2018)

Children's Cancer and Leukaemia Group

A colourful booklet for young children who are preparing to donate bone marrow. It explains what bone marrow is and describes what happens to Jess in hospital before, during and after the operation and when she goes home.

Cover image of 'Tamoxifen'

Tamoxifen (February 2018)

Breast Cancer Care

This leaflet explains what tamoxifen is, when it may be prescribed, how it works, the benefits, and possible side-effects.

Cover image of 'Capecitabine (Xeloda)'

Capecitabine (Xeloda) (March 2018)

Breast Cancer Care

This booklet explains briefly what capecitabine (Xeloda®) is, when it may be prescribed, how it works, and possible side-effects.

Cover image of 'Your operation and recovery'

Your operation and recovery (January 2018)

Breast Cancer Care

This booklet provides information for anyone going into hospital for breast cancer surgery. It describes what may happen before admission, what to take into hospital, what happens before and after surgery, what to expect after surgery (normal changes, possible problems) and leaving hospital and recovering from surgery. Includes details of further support and useful organisations.

Cover image of 'Complementary therapies, relaxation and wellbeing'

Complementary therapies, relaxation and wellbeing (February 2018)

Breast Cancer Care

This booklet is about relaxation and wellbeing during and after breast cancer treatment. It looks at complementary therapies such as acupuncture, Reiki and massage. It also describes some popular relaxation techniques, including meditation and mindfulness, and has information on yoga, Thai Chi and Chi Gung. It discusses why people might use these complementary therapies and relaxation techniques after a diagnosis of breast cancer, and what they may need to think about before trying them. It also explains what herbal medicines and homeopathy are. 

Cover image of 'Patient guide. End of life care'

Patient guide. End of life care (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'Goserelin (Zoladex)'

Goserelin (Zoladex) (February 2018)

Breast Cancer Care

This leaflet explains briefly what goserelin (Zoladex®) is, when it may be prescribed, how it works, and the possible side-effects.

Cover image of 'Having a smear test [Easy read]'

Having a smear test [Easy read] (2018)

NHS Health Scotland

This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active. 

Cover image of 'Breast screening. An easy guide for women aged 50 and over'

Breast screening. An easy guide for women aged 50 and over (February 2018)

Public Health England

This illustrated leaflet is aimed at women with a learning difficulty. It explains the importance of breast screening and what will happen before, during, and after the screen.

Cover image of 'Insurance [new edition in press]'

Insurance [new edition in press] (July 2018)

Macmillan Cancer Support

This booklet describes the various types of insurance (health, life, travel, car) and explains how having cancer can affect buying and claiming insurance. It also has details of further information and support.

Cover image of 'Pensions'

Pensions (July 2018)

Macmillan Cancer Support

This booklet will help people affected by cancer to review their pension arrangements (state, occupational, personal). It covers protecting pension rights, taking pension income, and protecting survivors.

Cover image of 'Understanding acute lymphoblastic leukaemia [in press]'

Understanding acute lymphoblastic leukaemia [in press] (August 2018)

Macmillan Cancer Support

This booklet describes acute lymphoblastic leukaemia, its causes, symptoms, diagnosis, and treatment options. It also discusses issues such as feelings, talking to children, self-help, and practical and financial support. Includes details of useful organisations and other resources.

Cover image of 'Understanding myeloma'

Understanding myeloma (July 2018)

Macmillan Cancer Support

This booklet describes the symptoms, diagnosis and treatment (including side-effects) of myeloma. It also covers issues such as feelings, and practical and financial help. Includes details of useful support organisations and other resources.

Cover image of 'Understanding chronic lymphocytic leukaemia (CLL)'

Understanding chronic lymphocytic leukaemia (CLL) (May 2018)

Macmillan Cancer Support

This booklet answers questions about the causes, symptoms, diagnosis, staging, and treatment of chronic lymphocytic leukaemia. It also covers feelings, self-help, and practical and financial support. Includes details of useful organisations and resources.

Cover image of 'Understanding acute myeloid leukaemia [in press]'

Understanding acute myeloid leukaemia [in press] (August 2018)

Macmillan Cancer Support

This booklet is about a type of leukaemia called acute myeloid leukaemia (AML). It is for anyone who has been diagnosed with AML, or who wants to know more about it. It also has information for carers, family members and friends. The booklet covers: what AML is; symptoms and how AML is diagnosed; how AML is treated; coping with AML.

Cover image of 'Understanding non-Hodgkin lymphoma'

Understanding non-Hodgkin lymphoma (January 2018)

Macmillan Cancer Support

This booklet aims to provide a better understanding of non-Hodgkin lymphomas, their diagnosis and treatment. It also has sections on feelings and sources of practical and financial support. Includes details of useful organisations.

Cover image of 'Understanding mesothelioma'

Understanding mesothelioma (March 2018)

Macmillan Cancer Support

This booklet for anyone who is having tests for mesothelioma or has been diagnosed with it. There is also information for carers, family members and friends. The booklet explains the signs and symptoms of pleural and peritoneal mesothelioma. It explains how they are diagnosed and how they may be treated. It also has information about the feelings you might experience, and how your relationships, work and finances might be affected.

Cover image of '10 top tips'

10 top tips (March 2018)

Target Ovarian Cancer|Macmillan Cancer Support

This set of ten tips was developed by a workshop group comprising people affected by ovarian cancer and GPs. It aims to help women get the best out of a visit to their GP if they are concerned about symptoms.

Cover image of 'A funny thing happened on the way to chemo. A rather unusual memoir [currently being reviewed by our volunteers]'

A funny thing happened on the way to chemo. A rather unusual memoir [currently being reviewed by our volunteers] (2018)

Short Books

"Cancer is not a laughing matter, as I was told by a cross German lady from Dortmund when I showed her this journal. She had herself had breast cancer and is right of course; there are lots of things that are not fun about cancer, most of them unavoidable. I was therefore as surprised as the next person to realise that a huge amount of funny things happen on the way to chemo, or indeed on the way to most places, and that once you get your eye in, you completely forget to be scared..." This is not just an educational book about cancer, although it is certainly safe to give to cancer patients as a cheerful present. More importantly, it sheds new light on why Kim Kardashian is worth Keeping Up With, what playlists to make for MRI scans, the truth behind the legend of Medea, bikini etiquette on a deserted beach, what to do with a glut of rainbow chard, what an Oscar-winner should say in an acceptance speech, how to deal with cold-callers selling life insurance, and what to wear on a March Against Menopause (layers, obviously)... (Publisher)

Cover image of 'Understanding cervical screening results and CIN'

Understanding cervical screening results and CIN (March 2018)

Macmillan Cancer Support

This booklet is about cervical screening. It is for anyone who wants information about how screening is used to find and treat abnormal cells to prevent cervical cancer. It explains what cervical screening involves and what your test results mean. It has information about the most common abnormal result, called cervical intra-epithelial neoplasia (CIN).

Cover image of 'Macmillan organiser [in press]'

Macmillan organiser [in press] (August 2018)

Macmillan Cancer Support

This booklet works alongside the information in "The cancer guide". It includes tools for you to use to: keep notes to show your healthcare team; write down appointment times; write down contact details; keep track of how you are feeling.

Cover image of 'Making treatment decisions'

Making treatment decisions (June 2018)

Macmillan Cancer Support

This booklet outlines some of the ways that people with cancer can find out about treatment options and discusses some of the things that may help them make decisions.

Cover image of 'Everything happens for a reason and other lies I've loved [currently being reviewed by our volunteers]'

Everything happens for a reason and other lies I've loved [currently being reviewed by our volunteers] (2018)

SPCK Publishing

London-born Kate Bowler, a thirty-five year-old professor at the school of divinity at Duke, had finally had a baby with her childhood sweetheart when she began to feel jabbing pains in her stomach. She lost thirty pounds, guzzled antacid, and visited doctors for three months before she was finally diagnosed with Stage IV colon cancer. As Kate navigates the aftermath of her diagnosis, she pulls the reader into her life and her history - affectionately filled with a colourful retinue of friends, mega-church preachers, parents, and doctors - and shares her irreverent, laser-sharp reflections on faith, friendship, love, and death. She wonders why suffering makes her feel like a loser and explores the burden of positivity. Trying to relish the time she still has with her son and husband, she realizes she must cure her habit of 'skipping to the end' and planning the next move. An historian of the American Prosperity Gospel (the creed of the megachurches that promises believers a cure for tragedy, if they just want it badly enough) Kate finds that she craves these same 'outrageous certainties'. Why is it so hard to surrender when she knows there are no spiritual guarantees? (Publisher)

Cover image of 'The carer's bible'

The carer's bible (2018)

Souvenir Press

This accessible and detailed guide includes practical tips, checklists for best practice, descriptions of their experience from a wide range of carers that addresses solutions to common problems, and expert advice on how to deliver compassionate and dignified care to older people. Uniquely, Amanda Waring also provides support and guidance for the carer, how to maintain energy and commitment, how to recognize signs of compassion fatigue and where carers can get help if they need it. The Carer's Bible is an invaluable, inspiring guide to how to give your loved one the best possible care while addressing the anxieties that all carers suffer. (Publisher)

Cover image of 'Spoiler alert: the hero dies. A memoir of love, loss and other four-letter words [currently being reviewed by our volunteers]'

Spoiler alert: the hero dies. A memoir of love, loss and other four-letter words [currently being reviewed by our volunteers] (2018)

Atria Books (Simon and Schuster)

In this evocative and gorgeously wrought memoir reminiscent of Rob Sheffield’s Love Is a Mixtape and George Hodgman’s Bettyville, Michael Ausiello—a respected TV columnist and founder and editor-in-chief of TVLine.com—remembers his late husband, and the lessons, love, and laughter that they shared throughout their fourteen years together. For the past decade, TV fans of all stripes have counted upon Michael Ausiello’s insider knowledge to get the scoop on their favorite shows and stars. From his time at Soaps in Depth to his influential stints at TV Guide and Entertainment Weekly to his current role as founder and editor-in-chief of the wildly popular website TVLine.com, Michael has established himself as the go-to expert when it comes to our most popular form of entertainment. What many of his fans don’t know, however, is that while his professional life was in full swing, Michael had to endure the greatest of personal tragedies: his husband, Kit Cowan, was diagnosed with a rare and very aggressive form of neuroendocrine cancer. Over the course of eleven months, Kit and Michael did their best to combat the deadly disease, but Kit succumbed to his illness in February 2015. In this heartbreaking and darkly hilarious memoir, Michael tells the story of his harrowing and challenging last year with Kit while revisiting the thirteen years that preceded it, and how the undeniably powerful bond between him and Kit carried them through all manner of difficulty—always with laughter front and center in their relationship. Instead of a tale of sadness and loss, Spoiler Alert: The Hero Dies is an unforgettable, inspiring, and beautiful testament to the resilience and strength of true love. (Publisher)

Cover image of 'On smaller dogs and larger life questions'

On smaller dogs and larger life questions (2018)

Virago Press (imprint of Little, Brown Book Group)

Coming up to her sixtieth birthday, Kate Figes found herself turning to the larger questions of family, love and life's meaning. It is like this author to examine different stages in writing, and her books - from new motherhood and adolescence to coupledom and infidelity - testify to this way of understanding herself and others: so naturally she turned to writing to explore the challenges of becoming sixty. And then - a horrible, and sudden diagnosis of breast cancer which had metastasised. Instead of a gentle journey into middle age, Kate Figes began to write for her life. Now, clawing back confidence and control was not just the ordinary business of these years: it was the only way to try and survive great pain and emotional turmoil. As her writing became an honest reflection on ageing, failing, regrets and the importance of childhood memory, friends, family and love she found a new determination to live to the full and about finding ways to face up to a shortened life expectancy with dignity. Original, passionate, funny and moving, On Smaller Dogs and Larger Life Questions will resonate with anyone dealing with the many griefs and freedoms of midlife. It is about living with a life-threatening disease but it is even more: an intelligent and passionate look at the way we can approach disappointment and trouble, friendship and love - every day. (Publisher)

Cover image of 'Not that kind of love. A sister, a brother, some tumours and a cat'

Not that kind of love. A sister, a brother, some tumours and a cat (2018)

Quercus

A moving, thought-provoking and surprisingly humorous book which is both a description of a journey to death and a celebration of the act of living. Based on Clare Wise's blog, which she started when she was first diagnosed with cancer in 2013, Not That Kind of Love charts the highs and lows of the last three years of Clare's life. The end result is not a book that fills you with despair and anguish. On the contrary, Not That Kind of Love should be read by everybody for its candour, and for its warmth and spirit. Clare is an astonishingly dynamic, witty and fun personality, and her positivity and energy exude from every page. As she becomes too weak to type, her brother - the actor Greg Wise - takes over, and the book morphs into a beautiful meditation on life, and the necessity of talking about death. With echoes of Atul Gawande's Being Mortal and Cathy Rentzenbrink's The Last Act of Love, it is a very special read that rejoices in the extraordinary and often underestimated sibling bond, and the importance of making the most of the ordinary pleasures life has to offer. As Greg Wise writes in the book: 'Celebrate the small things, the small moments. If you find yourself with matching socks as you leave the house in the morning, that is a cause for celebration. If the rest of the day is spent finding the cure for cancer, or brokering world peace, then that's a bonus.' (Publisher) 

Cover image of 'Follow the child. Planning and having the best end-of-life care for your child [currently being reviewed by our volunteers]'

Follow the child. Planning and having the best end-of-life care for your child [currently being reviewed by our volunteers] (2018)

Jessica Kingsley Publishers

Drawing on her family's own experiences and those of other parents facing the death of a child from illness or a life-limiting condition, Sacha Langton-Gilks explains the challenges, planning, and conversations that can be expected during this traumatic period. Practical advice such as how to work with the healthcare professionals, drawing up an Advance Care Plan, and how to move care into the home sit alongside tender observations of how such things worked in her own family's story. The book also includes a template person-centred planning document, developed by experts in the field. Empowering and reassuring, this book will help families plan and ensure the best possible end-of-life care for a child or young person. (Publisher)

Cover image of 'What to expect when someone important to you is dying. A guide for carers, families and friends of dying people'

What to expect when someone important to you is dying. A guide for carers, families and friends of dying people (March 2018)

Hospice UK

This booklet is for people caring for someone who is, or who may soon be, in the last stages of life. It is designed to help them prepare for what to expect in the very last days and hours of a person's life. It explains the physical changes that someone may go through when they are dying and what can be done to make them more comfortable, the kind of care a dying person can expect to receive, and where to turn to for help if there are concerns about the end-of-life care received.

Cover image of 'Going to the doctor'

Going to the doctor (2018)

Books Beyond Words

Going to the doctor can be worrying. For people with a learning disability, there may be the added worry of not being able to explain what’s wrong, as well as not understanding what’s happening. This book shows Jim, Anne and Laura who visit their General Practice for different reasons. The stories look at the ways the doctor and nurse listen to each of them, asking questions, explaining what will happen next and checking their understanding so that they can give informed consent. Many of the scenarios shown in the book form part of the annual health check. They also show how to involve the supporter appropriately. This book can be used to help someone get ready to visit the doctor, as a reasonable adjustment during the consultation, and for wider health promotion work. (Publisher)

Cover image of 'Managing the late effects of pelvic radiotherapy in men'

Managing the late effects of pelvic radiotherapy in men (April 2018)

Macmillan Cancer Support

A booklet for men who have had radiotherapy to the pelvic area and who are experiencing late effects. It explains what pelvic radiotherapy is before describing the following late effects and how to manage them: bladder changes; bowel changes; lymphoedema; bone changes; sex life; and fertility. It also discusses feelings, relationships, and work, and has details of further support.

Cover image of 'Managing the late effects of pelvic radiotherapy in women'

Managing the late effects of pelvic radiotherapy in women (April 2018)

Macmillan Cancer Support

A booklet for women who have had radiotherapy to the pelvic area and who are experiencing late effects. It explains what pelvic radiotherapy is before describing the following late effects and how to manage them: bladder changes; bowel changes; lymphoedema; bone changes; early menopause; sex life; and fertility. It also discusses feelings, relationships, and work, and has details of further support.

Cover image of 'MRI scan'

MRI scan (July 2018)

The Royal Marsden NHS Foundation Trust

This leaflet explains what an MRI scan is, who can have one, and what happens before, during and after the scan.

Cover image of 'Understanding the PSA test'

Understanding the PSA test (May 2018)

Macmillan Cancer Support

This booklet has been written to help men decide whether to have the PSA blood test. It describes the prostate gland, the causes and symptoms of prostate cancer, and explains the PSA test in detail, including the advantages and disadvantages. Treatment options for prostate cancer are briefly explained. Includes details of useful organisations and other resources, such as websites.

Cover image of 'After someone dies - coping with bereavement'

After someone dies - coping with bereavement (March 2018)

Macmillan Cancer Support

Coping with the death of someone close to you involves dealing with difficult feelings and emotions, as well as practical tasks that have to be done. This booklet is for the relatives and friends of anyone who has died from cancer. It gives you some practical information about what to do and what to expect when someone dies. It also looks at some of the emotions you may have, and the support that can help. 

Cover image of 'Preparing a child for loss'

Preparing a child for loss (April 2018)

Macmillan Cancer Support|Winston's Wish

This booklet is written with the childhood bereavement charity, Winston’s Wish. It’s for parents or guardians who are near the end of life and aims to help you prepare and talk to a child or children about your death. Partners, grandparents and close family members may find it useful, too. It may also help you talk to children who are already dealing with the death of a family member. 

Cover image of 'Bowel scope screening'

Bowel scope screening (May 2018)

Public Health England

Information to help people decide if they want to take up an invitation for bowel scope screening.

Cover image of 'Your health information, your confidentiality'

Your health information, your confidentiality (July 2018)

The Royal Marsden NHS Foundation Trust

Cover image of 'Cervical cancer. The facts'

Cervical cancer. The facts (March 2017)

Jo's Cervical Cancer Trust

Credit-card leaflet with facts about cervical cancer, including incidence, the symptoms to look out for, how to reduce the risk, and cervical screening.

Cover image of 'Telling your child you have cancer'

Telling your child you have cancer (January 2017)

University College London Hospital Cancer Collaborative|Fruit Fly Collective

A short film produced with the Fruit Fly Collective to support parents when they decide to tell their children about their cancer diagnosis. It provides guidance about how and when to tell them, and looks at different age groups and how they may feel and behave when they have been told. 

Cover image of 'Cervical cancer'

Cervical cancer (March 2017)

Jo's Cervical Cancer Trust

This booklet describes what cervical cancer is, the symptoms, causes, the different types and (briefly) the treatment options.

Cover image of 'Your guide to cervical cancer'

Your guide to cervical cancer (March 2017)

Jo's Cervical Cancer Trust

A guide for women who have recently been diagnosed with cervical cancer, and those who care about them.  

Cover image of 'Radiotherapy for pancreatic cancer'

Radiotherapy for pancreatic cancer (July 2017)

Pancreatic Cancer UK

A factsheet for anyone who would like to find out more about how radiotherapy can be used to treat pancreatic cancer. It has information on how radiotherapy is given, the side effects of treatment and looking after yourself during radiotherapy.

Cover image of 'Bowel cancer [Urdu]'

Bowel cancer [Urdu] (September 2017)

Macmillan Cancer Support

This factsheet is about bowel cancer and its treatment. It includes the English-language version. 

Cover image of 'Bowel cancer [Punjabi]'

Bowel cancer [Punjabi] (September 2017)

Macmillan Cancer Support

This factsheet is about bowel cancer and its treatment. It includes the English-language version. 

Sorry, no publications found.
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