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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 1796

Cover image of 'The cancer roller coaster. How to manage the emotional and mental impact'

The cancer roller coaster. How to manage the emotional and mental impact (2019)

Librotas

Two days after celebrating her 50th birthday, Juliette Chan had an unexpected birthday present: bowel cancer. Luckily, they caught it early, but once the treatment was over, the psychological side-effects surfaced. For many months, Juliette was adrift and felt lost. It seemed that everything in her life was up for review and she struggled to gain clarity about what to do next. There were many questions, such as: When will I feel normal again; Why am I not as motivated as before; Will the cancer come back; Why am I mentally exhausted. It took her a while to realise that the cancer had caused a whole load of losses: loss of trust in her body, self-image as a fit and healthy person, energy, confidence, motivation, income and much more. And that’s when the penny dropped; she was grieving. Cancer not only involves coping with the physical disease and treatment – it also means experiencing and dealing with hidden losses that will affect how you view and live your life. Every time you experience a loss, there is an emotional response: grief. Most people only associate grief with bereavement but it is in fact a natural reaction to any and all losses, including the hidden and intangible losses you face with cancer. Anyone who has or has had cancer, as well as their family and friends, will experience grief – because life has changed. This can show up as anger, frustration, anxiety, ‘depression’, fear, sadness, for example. If left unchecked or suppressed, grief will affect your mental health and emotional wellbeing. It doesn’t have to be like this; it is possible to take care of the emotional and mental impact of cancer and to live well. In her easy, relaxed style of writing, Juliette explains the emotional and mental impact of cancer and highlights the limitations of Mindfulness and positive thinking. She has also included a workbook with simple practical exercises that help to release the psychological side-effects and provide clarity. You can also read the candid stories of eight others who faced cancer: Robert describes his initial feelings of shock on diagnosis and how others helped him to cope, whereas Meena recounts going it alone; Petra shares how she continued to run throughout her treatment, and Susan talks movingly about the seemingly endless decision-making from diagnosis onwards; Mary, Tony and June recount their unique experiences of the same cancer

Cover image of 'CAR-T therapy. A guide for patients'

CAR-T therapy. A guide for patients (October 2019)

Leukaemia CARE

Chimeric antigen receptor T-cell (CAR-T) therapy is a new type of cancer treatment that may be used to treat B-cell acute lymphoblastic leukaemia and diffuse large B-cell lymphoma (DLBCL). This booklet explains how CAR-T therapy works and who may currently receive it, and describes the possible side-effects. It also discusses the likely future for CAR-T therapy and the clinical trials currently taking place in the UK. It includes a glossary of terms and details of further information and support.

Cover image of 'Photodynamic therapy'

Photodynamic therapy (May 2019)

British Association of Dermatologists

This factsheet aims to help you understand more about photodynamic therapy, which may be used to treat basal cell carcinoma and areas of pre-cancerous skin damage. It explains what it is and what is involved, and describes the potential side effects.

Cover image of 'The next stage. Recovery and adjustment'

The next stage. Recovery and adjustment (June 2019)

Leukaemia CARE

This booklet is for people adjusting to life after diagnosis and treatment of a blood cancer.

Cover image of 'Stage 4 melanoma'

Stage 4 melanoma (February 2019)

British Association of Dermatologists

This factsheet describes stage 4 melanoma, including what it is, investigations and treatments, and where to find out more information. It has been prepared in response to some of the questions people with melanoma often ask. 

Cover image of 'Stage 3 melanoma'

Stage 3 melanoma (February 2019)

British Association of Dermatologists

This factsheet describes stage 3 melanoma, including what it is, investigations and treatments, and where to find out more information. It has been prepared in response to some of the questions people with melanoma often ask. 

Cover image of 'Stage 2 melanoma'

Stage 2 melanoma (February 2019)

British Association of Dermatologists

This factsheet describes stage 2 melanoma, including what it is, investigations and treatments, and where to find out more information. It has been prepared in response to some of the questions people with melanoma often ask. 

Cover image of 'Stage 1B melanoma'

Stage 1B melanoma (February 2019)

British Association of Dermatologists

This factsheet describes stage 1B melanoma, including what it is, investigations and treatments, and where to find out more information. It has been prepared in response to some of the questions people with melanoma often ask. 

Cover image of 'Stage 1A melanoma'

Stage 1A melanoma (February 2019)

British Association of Dermatologists

This factsheet describes stage 1A melanoma, including what it is, investigations and treatments, and where to find out more information. It has been prepared in response to some of the questions people with melanoma often ask. 

Cover image of 'Caring for carers. A guide for carers'

Caring for carers. A guide for carers (June 2019)

Leukaemia CARE

This booklet for carers discusses the emotions that they may experience when caring for someone with a blood cancer: anxiety; stress; guilt; fear; loneliness; anger. It also looks at dealing with the practicalities of being a carer, including financial support, self employment and legal rights at work.

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