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Publications directory

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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 1822

Cover image of 'Spoiler alert: the hero dies. A memoir of love, loss and other four-letter words'

Spoiler alert: the hero dies. A memoir of love, loss and other four-letter words (2018)

Atria Books (Simon and Schuster)

In this evocative and gorgeously wrought memoir reminiscent of Rob Sheffield’s Love Is a Mixtape and George Hodgman’s Bettyville, Michael Ausiello—a respected TV columnist and founder and editor-in-chief of TVLine.com—remembers his late husband, and the lessons, love, and laughter that they shared throughout their fourteen years together. For the past decade, TV fans of all stripes have counted upon Michael Ausiello’s insider knowledge to get the scoop on their favorite shows and stars. From his time at Soaps in Depth to his influential stints at TV Guide and Entertainment Weekly to his current role as founder and editor-in-chief of the wildly popular website TVLine.com, Michael has established himself as the go-to expert when it comes to our most popular form of entertainment. What many of his fans don’t know, however, is that while his professional life was in full swing, Michael had to endure the greatest of personal tragedies: his husband, Kit Cowan, was diagnosed with a rare and very aggressive form of neuroendocrine cancer. Over the course of eleven months, Kit and Michael did their best to combat the deadly disease, but Kit succumbed to his illness in February 2015. In this heartbreaking and darkly hilarious memoir, Michael tells the story of his harrowing and challenging last year with Kit while revisiting the thirteen years that preceded it, and how the undeniably powerful bond between him and Kit carried them through all manner of difficulty—always with laughter front and center in their relationship. Instead of a tale of sadness and loss, Spoiler Alert: The Hero Dies is an unforgettable, inspiring, and beautiful testament to the resilience and strength of true love. (Publisher)

Cover image of 'Milkshakes and morphine. A memoir of love and loss'

Milkshakes and morphine. A memoir of love and loss (2018)

Square Peg (Vintage)

This is a singular memoir: an excavation of mother love, a candid account of the agonies, and absurdities, of the cancer experience, and a doggedly optimistic paean to life. When Genevieve Fox finds a lump in her throat, she turns up for the hospital diagnosis in a party frock and fancy hair. I can’t have cancer, she thinks. I’ve done my hair. But there is another reason she can’t countenance cancer. Genevieve was orphaned to it at the age of nine. Genevieve’s story weaves together past and present as she recalls her rackety, unconventional childhood, while also facing the spectre of being lost to her young boys. Yet, she confronts her treatment with the same sassy survival instinct that characterised her childhood misadventures. Through an extraordinary alchemy, Genevieve takes life’s precariousness and turns it on its head. (Publisher)

Cover image of 'Follow the child. Planning and having the best end-of-life care for your child'

Follow the child. Planning and having the best end-of-life care for your child (2018)

Jessica Kingsley Publishers

Drawing on her family's own experiences and those of other parents facing the death of a child from illness or a life-limiting condition, Sacha Langton-Gilks explains the challenges, planning, and conversations that can be expected during this traumatic period. Practical advice such as how to work with the healthcare professionals, drawing up an Advance Care Plan, and how to move care into the home sit alongside tender observations of how such things worked in her own family's story. The book also includes a template person-centred planning document, developed by experts in the field. Empowering and reassuring, this book will help families plan and ensure the best possible end-of-life care for a child or young person. (Publisher)

Cover image of 'Going to the doctor'

Going to the doctor (2018)

Books Beyond Words

Going to the doctor can be worrying. For people with a learning disability, there may be the added worry of not being able to explain what’s wrong, as well as not understanding what’s happening. This book shows Jim, Anne and Laura who visit their General Practice for different reasons. The stories look at the ways the doctor and nurse listen to each of them, asking questions, explaining what will happen next and checking their understanding so that they can give informed consent. Many of the scenarios shown in the book form part of the annual health check. They also show how to involve the supporter appropriately. This book can be used to help someone get ready to visit the doctor, as a reasonable adjustment during the consultation, and for wider health promotion work. (Publisher)

Cover image of 'Clinical trials. Your questions answered'

Clinical trials. Your questions answered (June 2018)

The Royal Marsden NHS Trust

This booklet uses a question and answer format to help people with cancer decide whether to participate in a clinical trial of cancer treatment. It includes sources of further information and support.

Cover image of 'Planning for the final stages of a long-term lung condition'

Planning for the final stages of a long-term lung condition (March 2018)

British Lung Foundation

This information is for people with a long-term lung condition who are coming to the end of their life. It is also for those who are close to them, including their carers, family and friends.

Cover image of 'Primary bone cancer. An overview of the disease, diagnosis and treatment'

Primary bone cancer. An overview of the disease, diagnosis and treatment (February 2017)

Bone Cancer Research Trust

This factsheet describes primary bone caner, the types, who it affects, symptoms, causes and risk factors, diagnosis, treatment, follow-up care, and rehabitation and support.

Cover image of 'Cervical cancer. The facts'

Cervical cancer. The facts (March 2017)

Jo's Cervical Cancer Trust

Credit-card leaflet with facts about cervical cancer, including incidence, the symptoms to look out for, how to reduce the risk, and cervical screening.

Cover image of 'Telling your child you have cancer'

Telling your child you have cancer (January 2017)

University College London Hospital Cancer Collaborative|FruitFly Collective

A short film produced with the Fruit Fly Collective to support parents when they decide to tell their children about their cancer diagnosis. It provides guidance about how and when to tell them, and looks at different age groups and how they may feel and behave when they have been told. 

Cover image of 'Cervical cancer'

Cervical cancer (March 2017)

Jo's Cervical Cancer Trust

This booklet describes what cervical cancer is, the symptoms, causes, the different types and (briefly) the treatment options.

Cover image of 'Treatments for advanced prostate cancer: hormone therapy for advanced prostate cancer explained'

Treatments for advanced prostate cancer: hormone therapy for advanced prostate cancer explained (October 2017)

Prostate Scotland

This booklet is to help you, your partner and your family understand more about treating your prostate cancer with hormone therapy. It explains what it is, the different types of hormone therapy, how it might be prescribed and some of the potential side-effects.

Cover image of 'Oesophagogastric cancer. The patient’s pathway [Based on the St Thomas’ Hospital Pathway]'

Oesophagogastric cancer. The patient’s pathway [Based on the St Thomas’ Hospital Pathway] (2017)

The Oesophageal Patients Association

A guide to the patient pathway following diagnosis of oesophageal or stomach cancer. It is based on the pathway at St Thomas’ Hospital in London but treatment is standardised across the UK. 

Cover image of 'Your guide to cervical cancer'

Your guide to cervical cancer (March 2017)

Jo's Cervical Cancer Trust

A guide for women who have recently been diagnosed with cervical cancer, and those who care about them.  

Cover image of 'Understanding rectal cancer [Audio CD]'

Understanding rectal cancer [Audio CD] (2017)

Macmillan Cancer Support

This audiobook explains rectal cancer, covering causes and symptoms, diagnosis, staging and grading, treatments and clinical trials. It also looks at emotional, practical and financial issues. 

Cover image of '12 ways to reduce your cancer risk. An easy guide to the European Code Against Cancer'

12 ways to reduce your cancer risk. An easy guide to the European Code Against Cancer (January 2017)

Cancer Focus Northern Ireland

Information to help you to lower your risk of cancer and improve your health.

Cover image of 'Treatments for advanced prostate cancer: chemotherapy for advanced prostate cancer explained'

Treatments for advanced prostate cancer: chemotherapy for advanced prostate cancer explained (October 2017)

Prostate Scotland

This booklet is to help you, your partner and your family understand more about treating your prostate cancer with chemotherapy. It explains what it is, the different types of chemotherapy, how it might be prescribed and some of the potential side-effects.

Cover image of 'Prostate cancer. Don't get caught out!'

Prostate cancer. Don't get caught out! (February 2017)

PCaSO Prostate Cancer Support Network

Leaflet about prostate cancer, including symptoms and brief information about treatment options..

Cover image of '10 top tips. Worried about pancreatic cancer? Helping you to talk to your GP'

10 top tips. Worried about pancreatic cancer? Helping you to talk to your GP (2017)

Pancreatic Cancer UK

Tips to help people talk to their GP. 

Cover image of 'Bowel cancer [Urdu]'

Bowel cancer [Urdu] (September 2017)

Macmillan Cancer Support

This factsheet is about bowel cancer and its treatment. It includes the English-language version. 

Cover image of 'Bowel cancer [Punjabi]'

Bowel cancer [Punjabi] (September 2017)

Macmillan Cancer Support

This factsheet is about bowel cancer and its treatment. It includes the English-language version. 

Cover image of 'Bowel cancer'

Bowel cancer (September 2017)

Macmillan Cancer Support

This factsheet is about bowel cancer and its treatment. 

Cover image of 'Bowel cancer [Welsh]'

Bowel cancer [Welsh] (September 2017)

Macmillan Cancer Support

This factsheet is about bowel cancer and its treatment. It includes the English-language version. 

Cover image of 'Bowel cancer [Arabic]'

Bowel cancer [Arabic] (September 2017)

Macmillan Cancer Support

This factsheet is about bowel cancer and its treatment. It includes the English-language version.

Cover image of 'Bowel cancer [Polish]'

Bowel cancer [Polish] (September 2017)

Macmillan Cancer Support

This factsheet is about bowel cancer and its treatment. It includes the English-language version. 

Cover image of 'Bowel cancer [Romanian]'

Bowel cancer [Romanian] (September 2017)

Macmillan Cancer Support

This factsheet is about bowel cancer and its treatment. It includes the English-language version. 

Cover image of 'Bowel cancer [Bengali]'

Bowel cancer [Bengali] (September 2017)

Macmillan Cancer Support

This factsheet is about bowel cancer and its treatment. It includes the English-language version. 

Cover image of 'Bowel cancer [Russian]'

Bowel cancer [Russian] (September 2017)

Macmillan Cancer Support

This factsheet is about bowel cancer and its treatment. It includes the English-language version. 

Cover image of 'Sex and prostate cancer'

Sex and prostate cancer (June 2017)

Prostate Cancer UK

This factsheet describes how prostate cancer and its treatment can affect sexuality and fertility. It covers the available treatments for erectile dysfunction and sources of help and support.

Cover image of 'Bowel cancer [Gujarati]'

Bowel cancer [Gujarati] (September 2017)

Macmillan Cancer Support

This factsheet is about bowel cancer and its treatment. It includes the English-language version. 

Cover image of 'Urinary problems after prostate cancer treatment'

Urinary problems after prostate cancer treatment (January 2017)

Prostate Cancer UK

Prostate cancer and its treatment can be a cause of urinary problems. This factsheet describes how different treatments cause these problems and ways to manage them. It includes information on pelvic floor exercises and continence products as well as surgical treatments.

Cover image of 'Bowel cancer [Portuguese]'

Bowel cancer [Portuguese] (September 2017)

Macmillan Cancer Support

This factsheet is about bowel cancer and its treatment. It includes the English-language version. 

Cover image of 'Ovarian and cervical cancer'

Ovarian and cervical cancer (May 2017)

Action Cancer

Z-card with facts about cervical and ovarian cancer, including symptoms and risk factors, diagnosis, the smear test, HPV vaccine and ways to lower your risk of getting cervical cancer. 

Cover image of 'Male cancer. Awareness, diagnosis and treatment'

Male cancer. Awareness, diagnosis and treatment (April 2017)

Orchid – Fighting Male Cancer

This leaflet has information on prostate, testicular and penile cancer - from signs and symptoms, risk factors and causes through to tests to determine a diagnosis and treatment options.

Cover image of 'Side effects of cancer treatment'

Side effects of cancer treatment (January 2017)

Macmillan Cancer Support

This factsheet is about some of the side effects of cancer treatment.

Cover image of 'Lung and bowel cancer'

Lung and bowel cancer (May 2017)

Action Cancer

Z-card with facts about bowel cancer (what it is, risk factors, symptoms, reducing the risk and screening) and lung cancer (what it is, risk factors, what to look out for, how to reduce the risk and stopping smoking).

Cover image of 'Fatigue and pancreatic cancer'

Fatigue and pancreatic cancer (October 2017)

Pancreatic Cancer UK

This fact sheet is for people with pancreatic who have fatigue. It explains what fatigue is, what causes it, how it can be managed, and the support available.

Cover image of 'What women need to know about... womb cancer'

What women need to know about... womb cancer (March 2017)

The Eve Appeal

Key information about womb cancer including signs and symptoms, risk factors and how to reduce your risk of developing cancer. 

Cover image of 'Testicular and prostate cancer'

Testicular and prostate cancer (May 2017)

Action Cancer

Z-card with facts about prostate cancer (what is the prostate, the symptoms of prostate cancer) and testicular cancer (what it is, the causes, how to examine the testicles, what to do of a change is noticed).

Cover image of 'What women need to know about... vaginal cancer'

What women need to know about... vaginal cancer (March 2017)

The Eve Appeal

Key information about vaginal cancer including signs and symptoms, risk factors and how to reduce your risk of developing cancer. 

Cover image of 'What women need to know about... ovarian cancer'

What women need to know about... ovarian cancer (March 2017)

The Eve Appeal

Key information about ovarian cancer including signs and symptoms, risk factors and how to reduce your risk of developing cancer. 

Cover image of 'What women need to know about... cervical cancer'

What women need to know about... cervical cancer (March 2017)

The Eve Appeal

Key information about cervical cancer including signs and symptoms, risk factors and how to reduce your risk of developing cancer. 

Cover image of 'Side effects of cancer treatment [Urdu]'

Side effects of cancer treatment [Urdu] (January 2017)

Macmillan Cancer Support

This factsheet is about some of the side effects of cancer treatment. Includes the English-language version.

Cover image of 'Side effects of cancer treatment [Welsh]'

Side effects of cancer treatment [Welsh] (January 2017)

Macmillan Cancer Support

This factsheet is about some of the side effects of cancer treatment. Includes English-language version.

Cover image of 'Prostate cancer and other prostate problems. Information for black men'

Prostate cancer and other prostate problems. Information for black men (June 2017)

Prostate Cancer UK

African Caribbean men are three times more likely to be diagnosed with prostate cancer than white men are. This illustrated leaflet describes the prostate, the symptoms of prostate cancer and how to reduce the risk.

Cover image of 'Side effects of cancer treatment [Arabic]'

Side effects of cancer treatment [Arabic] (January 2017)

Macmillan Cancer Support

This factsheet is about some of the side effects of cancer treatment. Includes English-language version.

Cover image of 'When your child’s cancer comes back or does not respond to initial treatment. Information for parents and families of a child or young person with relapsed or refractory cancer'

When your child’s cancer comes back or does not respond to initial treatment. Information for parents and families of a child or young person with relapsed or refractory cancer (October 2017)

Children's Cancer and Leukaemia Group

Being told your child’s cancer has come back or hasn’t gone away can come as a huge shock, bringing back many emotions from your child’s first diagnosis. This booklet acknowledges these feelings and gives information to help you cope with the experience once again. 

Cover image of 'Side effects of cancer treatment [Polish]'

Side effects of cancer treatment [Polish] (January 2017)

Macmillan Cancer Support

This factsheet is about some of the side effects of cancer treatment. Includes the English-language version.

Cover image of 'Side effects of cancer treatment [Bengali]'

Side effects of cancer treatment [Bengali] (January 2017)

Macmillan Cancer Support

This factsheet is about some of the side effects of cancer treatment. Includes English-language version.

Cover image of 'Side effects of cancer treatment [Russian]'

Side effects of cancer treatment [Russian] (January 2017)

Macmillan Cancer Support

This factsheet is about some of the side effects of cancer treatment. Includes the English-language version.

Cover image of 'Side effects of cancer treatment [Punjabi]'

Side effects of cancer treatment [Punjabi] (January 2017)

Macmillan Cancer Support

This factsheet is about some of the side effects of cancer treatment. Includes English-language version.

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