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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 1704

Cover image of 'Zoledronic acid for primary breast cancer'

Zoledronic acid for primary breast cancer (April 2019)

Breast Cancer Care

Zoledronic acid is a drug that’s given to reduce the risk of breast cancer spreading to the bones and other parts of the body. This booklet explains what it is, who might be offered it and the side effects it can cause.

Cover image of 'Sodium clodronate for primary breast cancer'

Sodium clodronate for primary breast cancer (April 2019)

Breast Cancer Care

This booklet is about the bisphosphonate sodium clodronate given to reduce the risk of breast cancer spreading to the bones and other parts of the body. IIt explains what it is, who might be offered it and the side effects it can cause. 

Cover image of 'Pain and pancreatic cancer'

Pain and pancreatic cancer (February 2019)

Pancreatic Cancer UK

This booklet describes the different types of pain that pancreatic cancer can cause. It has information on how to describe pain to your medical team, and ways of keeping it under control, including painkillers.  

Cover image of 'Radiotherapy for primary breast cancer'

Radiotherapy for primary breast cancer (May 2019)

Breast Cancer Care

This booklet describes radiotherapy for primary (early) breast cancer. It explains what radiotherapy is, why it might be needed, how it is given, what to expect, treatment planning, and the possible side-effects. 

Cover image of 'What is bowel cancer? What it is, who’s at risk and what to look out for'

What is bowel cancer? What it is, who’s at risk and what to look out for (June 2019)

Bowel Cancer UK

A5 leaflet outlining what bowel cancer is, who's at risk and what symptoms to look out for. 

Cover image of 'Stents and bypass surgery for pancreatic cancer'

Stents and bypass surgery for pancreatic cancer (February 2019)

Pancreatic Cancer UK

This fact sheet is for people with pancreatic cancer who are having a stent or bypass surgery. These treatments help symptoms caused by the cancer blocking the bile duct or duodenum. Family members may also find it helpful. It describes what the treatments involve, possible side effects, how they can affect your diet, and recovering afterwards.

Cover image of 'Exercises after breast cancer surgery'

Exercises after breast cancer surgery (April 2019)

Breast Cancer Care

This leaflet explains why exercise is necessary after breast surgery, when to start exercising, and how long to carry on. It opens out into a poster that demonstrates exercises for the days and weeks after surgery.

Cover image of 'Guide to cancer resources in other languages'

Guide to cancer resources in other languages (May 2019)

Macmillan Cancer Support

A list of cancer resources that have been translated into other languages.

Cover image of 'Your pathway. A guide to bowel cancer treatment'

Your pathway. A guide to bowel cancer treatment (May 2019)

Bowel Cancer UK

This booklet is for anyone diagnosed with bowel cancer and their family and friends. It gives an overview of what bowel cancer is, how it is treated, the common treatment side effects and what happens when treatment finishes. 

Cover image of 'Supporting your grandchild and family. An information guide for grandparents of a child or young person diagnosed with cancer'

Supporting your grandchild and family. An information guide for grandparents of a child or young person diagnosed with cancer (April 2019)

Children's Cancer and Leukaemia Group

Being told your grandchild has cancer comes as a terrible shock. Most grandparents worry not only about their grandchild, but also about how their own son/daughter will cope. Many are also concerned about the effects a cancer diagnosis will have on other children within the family, how they can support their family and how, as grandparents, they themselves will cope. Sometimes, it is not as easy for grandparents to access information first hand and this can lead to feelings of isolation. This guide answers some of the many questions grandparents might have during diagnosis and treatment.

Cover image of 'Living with lymphoedema after breast cancer'

Living with lymphoedema after breast cancer (April 2019)

Breast Cancer Care

This booklet explains what lymphoedema is, and describes the physical symptoms and the treatment options.

Cover image of 'Eating well. A guide to diet and bowel cancer'

Eating well. A guide to diet and bowel cancer (May 2019)

Bowel Cancer UK

This booklet has information about how food can affect your symptoms during and after bowel cancer treatment. After treatment, you may find you can’t eat the same foods as you did before. These changes may be temporary or they may be longer-lasting. 

Cover image of 'Surgery for operable pancreatic cancer'

Surgery for operable pancreatic cancer (March 2019)

Pancreatic Cancer UK

This factsheet is for people diagnosed with pancreatic cancer who are having surgery to remove the cancer. Family members may also find it helpful. We describe the different types of surgery to remove pancreatic cancer, how to prepare for your operation, what to expect, and recovery afterwards. This factsheet does not cover surgery for pancreatic neuroendocrine tumours (PNETs).  

Cover image of 'Macmillan Cancer Support core books list'

Macmillan Cancer Support core books list (May 2019)

Macmillan Cancer Support

We have produced the Core Books List to help public libraries and cancer information and support centres improve the quality and reliability of the cancer books they stock. The list includes books about cancer itself and people’s experience of living with cancer. All the books on the list have been reviewed favourably by our volunteer book reviewers. This list is not prescriptive but intended to help libraries to make informed choices between the very wide range of books available, which can be of variable quality and accuracy. Please note: Inclusion of a book in this list does not imply endorsement by Macmillan Cancer Support.

Cover image of 'After breast cancer treatment: what now?'

After breast cancer treatment: what now? (June 2019)

Breast Cancer Care

This booklet explains what happens after your hospital-based treatments finish. It includes information on follow-up care, being breast and body aware, the ways breast cancer may come back, and how you might feel after treatment ends.

Cover image of 'Questions to ask about work and cancer'

Questions to ask about work and cancer (April 2019)

Macmillan Cancer Support

This leaflet has questions you may need to ask about work issues if you are affected by cancer. It can help you find the information you need at every stage.

Cover image of 'Questions for carers to ask about work and cancer'

Questions for carers to ask about work and cancer (April 2019)

Macmillan Cancer Support

This leaflet has questions you may need to ask about work issues if you are a working carer. A working carer is anyone who works while providing unpaid support to a partner, family member or friend with cancer, who could not manage without this support.

Cover image of 'Eating – help yourself. A guide for patients and their carers'

Eating – help yourself. A guide for patients and their carers (February 2019)

Christie Hospital NHS Trust

Eating may be a problem for people with cancer or other illnesses, particularly when undergoing treatment such as radiotherapy or chemotherapy. This booklet has advice on how to eat well when trying to cope with loss of appetite, changes in taste, dry mouth, difficulties swallowing, feeling full, nausea, diarrhoea, and constipation. It has tips on how to make food as nourishing as possible and ideas for snacks and drinks.

Cover image of 'Worrying about cancer coming back'

Worrying about cancer coming back (January 2019)

Macmillan Cancer Support

This booklet is for anyone who has had treatment to cure cancer and is worried about it coming back. It has suggestions to help you manage your worries, uncertainties and fears, including how to get more support.

Cover image of 'Managing weight gain after cancer treatment'

Managing weight gain after cancer treatment (February 2019)

Macmillan Cancer Support

This booklet is for people living with or after cancer who want to maintain a healthy weight. It explains how making changes to diet and levels of physical activity can help people lose weight and feel better. It does not include information about eating problems caused by cancer and its treatments, or advice if you have lost weight.

Cover image of 'Understanding breast cancer in men'

Understanding breast cancer in men (January 2019)

Macmillan Cancer Support

This booklet is about breast cancer in men. It is for men who are having tests for breast cancer and men who have been diagnosed with breast cancer. It explains the signs and symptoms of breast cancer in men. It explains how it is diagnosed and how it may be treated. It also has information about emotional, practical and financial issues.

Cover image of 'Your feelings after cancer treatment'

Your feelings after cancer treatment (January 2019)

Macmillan Cancer Support

This booklet is for people who have had cancer treatment. You may also find it helpful if you are having ongoing treatment to control cancer or prevent it returning. It describes some of the feelings you may have and suggests ways to cope with them. 

Cover image of 'Understanding secondary cancer in the bone'

Understanding secondary cancer in the bone (April 2019)

Macmillan Cancer Support

This booklet has information on secondary cancer in the bone, what it is, what causes it, the symptoms, how it is diagnosed, and the treatment options. It also covers issues such as emotions, talking to children, and how family and friends can help. 

Cover image of 'Understanding breast cancer in women'

Understanding breast cancer in women (January 2019)

Macmillan Cancer Support

This booklet is about breast cancer in women. It is for women who are having tests for breast cancer and women who have been diagnosed with breast cancer. It covers breast cancer that has not spread to other parts of the body and describes the causes, symptoms, diagnosis, stages, and treatment (including surgery, radiotherapy, chemotherapy and hormonal therapy). It also discusses issues such as fertility, hormone replacement therapy, and feelings. Includes details of useful organisations and other resources.

Cover image of 'Self-employment and cancer'

Self-employment and cancer (April 2019)

Macmillan Cancer Support

This booklet is about coping with cancer while you are self-employed or running a small business. It is for sole traders, freelancers, contractors or those running a micro business (one that employs fewer than 10 people). It includes information and guidance about: how treatment might affect your work; things to consider when making decisions about your business; talking to clients or customers about your situation; getting support with your business or personal finances.

Cover image of 'Work and cancer'

Work and cancer (April 2019)

Macmillan Cancer Support

This booklet aims to help people with cancer cope with issues that they may face at work both during treatment and afterwards.

Cover image of 'Managing cancer in the workplace'

Managing cancer in the workplace (April 2019)

Macmillan Cancer Support

This guide has information and practical for employers about how to support employees affected by cancer. It includes examples of best practice and also covers employers' responsibilities and employees' rights.

Cover image of 'Proton beam therapy myths. Myths that need busting'

Proton beam therapy myths. Myths that need busting (January 2019)

Brainstrust

This leaflet looks at some of the myths around proton beam therapy: protons can treat any cancer; proton beam therapy is more effective than conventional radiotherapy; protons can cure cancer that other treatments can’t; having proton beam therapy through a private provider is better than through the NHS; decisions to be treated with proton beam therapy are based on money; other countries use proton beam therapy in most cases; most people should be treated with proton beam therapy.

Cover image of 'Heart health and cancer treatment'

Heart health and cancer treatment (February 2019)

Macmillan Cancer Support and British Heart Foundation

Some people affected by cancer have problems with their heart health. This is because some cancer treatments can affect the heart. Problems can also arise if you already have a heart condition when you’re diagnosed with cancer. This booklet is for you if: you’ve been told that your cancer treatment may affect your heart; you have a heart condition and need cancer treatment; you’d like to find out how you can improve the health of your heart before, during and after cancer treatment.

Cover image of 'Cancer and relationships. Support for partners, families and friends'

Cancer and relationships. Support for partners, families and friends (January 2019)

Macmillan Cancer Support

This booklet is about coping with your feelings when someone close to you has cancer. It is for anyone who is close to someone with cancer, including partners, family members and friends. This booklet replaces two booklets: Be there for someone facing cancer; and Coping when someone close to you has cancer. 

Cover image of 'Be there for someone facing cancer'

Be there for someone facing cancer (January 2019)

Macmillan Cancer Support

This information is for you if you are supporting a friend, family member or partner who has cancer. You probably want to help, but you might not know what you can do. This leaflet talks about the different stages of having cancer to help you understand what your friend, family member or partner is going through. We explain diagnosis, treatment and what happens after treatment. Each section has practical tips on how you can support the other person and suggestions for how to talk to them about what they are going through. 

Cover image of 'Physical activity and cancer treatment'

Physical activity and cancer treatment (January 2019)

Macmillan Cancer Support

This booklet is for anyone who has cancer or has had treatment for cancer and is thinking about becoming more physically active. It explains what physical activity is, its benefits and how to be safe when exercising. It also includes information about the types of activity you can do and how to get started.

Cover image of 'Help with the cost of cancer in England, Scotland, Wales and Northern Ireland'

Help with the cost of cancer in England, Scotland, Wales and Northern Ireland (April 2019)

Macmillan Cancer Support

This easy to use booklet contains up-to-date information about benefits and other sources of financial help for people affected by cancer.

Cover image of 'Coping with advanced cancer'

Coping with advanced cancer (January 2019)

Macmillan Cancer Support

This booklet is for people who have cancer that has come back or spread. This is sometimes called advanced cancer. It looks at some of the concerns you may be dealing with and has advice about ways of coping. It also talks about treatments and your feelings and has practical information about getting help and support.

Cover image of 'How are you feeling? The emotional effects of cancer'

How are you feeling? The emotional effects of cancer (February 2019)

Macmillan Cancer Support

Having cancer affects all areas of your life, including the way you feel. This booklet is about the main emotions that many people with cancer have. This may be after diagnosis, during treatment or after treatment has ended.

Cover image of 'Letrozole'

Letrozole (February 2019)

Breast Cancer Care

This leaflet describes what letrozole (Femara®) is, how it works, when it may be prescribed, how it is taken, and the possible side-effects.

Cover image of 'Exemestane'

Exemestane (February 2019)

Breast Cancer Care

This booklet explains what exemestane is, how it works, when it may be prescribed and possible side effects. 

Cover image of 'A story about cancer (with a happy ending)'

A story about cancer (with a happy ending) (2019)

Frances Lincoln Children’s Books

A teenage girl heads towards the hospital waiting room where the doctors are going to tell her how much time she's got to live. As she walks, she thinks about her journey up to this point… the terrible decor in the hospital, wearing a headscarf, the horrible treatments, but also being with her friends, family, and her new boyfriend Victor. This is a story about cancer with a happy ending. It's about life, love, and especially, hope. (Publisher) 

Cover image of 'Anastrazole'

Anastrazole (February 2019)

Breast Cancer Care

This leaflet explains briefly what Arimidex® is, how it works, when it may be prescribed, how it is taken and the possible side-effects.

Cover image of 'Trastuzumab (Herceptin)'

Trastuzumab (Herceptin) (February 2019)

Breast Cancer Care

This booklet explains what trastuzumab is, how it works, when it may be prescribed and the side effects you may experience. 

Cover image of 'Working while caring for someone with cancer'

Working while caring for someone with cancer (April 2019)

Macmillan Cancer Support

This booklet aims to help working carers cope with work issues they may face because of the impact of their caring role on working life. It describes who a carer is, the different ways of caring, and the impact of cancer treatment on the working carer. It has advice about what to say at work, talking to employers, the legal rights of carers in paid work, social care, financial support, and bereavement. Includes details of useful organisations and websites.

Cover image of 'FEC chemotherapy'

FEC chemotherapy (February 2019)

Breast Cancer Care

This leaflet describes the FEC chemotherapy combination (5 fluorouracil, epirubicin and cyclophosphamide), when it may be used, how it works, how it is given and the possible side-effects.

Cover image of 'Lobular neoplasia'

Lobular neoplasia (February 2019)

Breast Cancer Care

This leaflet discusses lobular neoplasia, which includes atypical lobular hyperplasia (ALH) and lobular carcinoma in situ (LCIS). It describes the features, diagnosis, and treatment options, and concludes with guidance on how to cope with a diagnosis of lobular neoplasia and sources of support.

Cover image of 'Pertuzumab with Perjeta'

Pertuzumab with Perjeta (April 2019)

Breast Cancer Care

This booklet explains what pertuzumab is, when it’s given and its possible side effects. Pertuzumab is the generic (non-branded) name of the drug. Its current brand name is Perjeta®.

Cover image of 'Donating your stem cells to your brother or sister. A guide to stem cell (bone marrow) donation for teenagers and young adults'

Donating your stem cells to your brother or sister. A guide to stem cell (bone marrow) donation for teenagers and young adults (May 2019)

Children's Cancer and Leukaemia Group

Illustrated, colour booklet for children who may be donating bone marrow or stem cells to a sibling. It describes stem cells and stem cell transplants, why a transplant is needed, the types of transplants, the selection process, tissue typing, harvesting the bone marrow (including the risks and side-effects), and what happens if the transplant is unsuccessful. It also covers issues such as consent, what to take into hospital, and changes to sibling relationships. Includes details of useful organisations and a glossary of terms.

Cover image of 'FEC-T chemotherapy'

FEC-T chemotherapy (February 2019)

Breast Cancer Care

This booklet explains what the chemotherapy combination FEC-T is, when it may be prescribed, how it is given and what side effects may occur. FEC-T is a combination of four chemotherapy drugs: 5 fluorouracil (also known as 5FU); epirubicin; cyclophosphamide; docetaxol (also known as Taxotere).

Cover image of 'The two faces of cancer'

The two faces of cancer (2019)

Troubador Publishing

Half of the UK population will receive a diagnosis of cancer at some point in their lives and most people will know someone who has been affected by this complex disease. Drawing from her three personal experiences with cancer alongside her professional experience as a counsellor and personal coach, Rebecca Brazier chronicles her journey through diagnosis, treatment and recovery. When talking about cancer we tend to think about the physical side effects of treatment. Although medical advances are saving and extending lives, less consideration is given to the emotional and psychological trauma which cancer creates. The Two Faces of Cancer describes and addresses this trauma and explores why cancer is difficult to recover from both personally and within society. It describes the devastation and powerful feelings cancer created for Rebecca and how she channelled these to create a meaningful life. It also draws from Rebecca's professional knowledge to analyse the emotional and psychological impact of cancer and to suggest routes to recovery. (Publisher)

Cover image of 'What is lymphoma?'

What is lymphoma? (June 2019)

Lymphoma Action

An overview of how cancer develops and what lymphoma is. 

Cover image of 'Your breast clinic appointment'

Your breast clinic appointment (April 2019)

Breast Cancer Care

This booklet has been written for anyone referred to a breast clinic. It describes what to expect and the tests that may be carried out, such as a mammogram, an ultrasound scan, fine needle aspiration cytology, core biopsy, punch biopsy and vacuum-assisted biopsy.

Cover image of 'Planning for your funeral'

Planning for your funeral (February 2019)

Age UK

This factsheet highlights things to consider if you want to plan ahead and make financial and other arrangements for your funeral. It looks at options when deciding what type of funeral you want, ways to pay for a funeral, and information about organ donation. It may be helpful for people arranging a funeral. 

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