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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 1717

Cover image of 'Financial support - benefits [Romanian]'

Financial support - benefits [Romanian] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits. Includes the English-language version.. 

Cover image of 'Financial support - benefits [Gujarati]'

Financial support - benefits [Gujarati] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits. Includes the English-language version.. 

Cover image of 'Financial support - benefits [Portuguese]'

Financial support - benefits [Portuguese] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits. Includes the English-language version.. 

Cover image of 'Financial support - benefits'

Financial support - benefits (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits.

Cover image of 'Talking about cancer'

Talking about cancer (May 2019)

Macmillan Cancer Support

This booklet is about talking about cancer. It is for anyone who has a cancer diagnosis. It explains: the benefits of talking about cancer; how to overcome the things that make talking difficult; how to deal with other people’s reactions. It also has practical tips for talking and asking for support.

Cover image of 'How are you feeling? The emotional effects of cancer'

How are you feeling? The emotional effects of cancer (February 2019)

Macmillan Cancer Support

Having cancer affects all areas of your life, including the way you feel. This booklet is about the main emotions that many people with cancer have. This may be after diagnosis, during treatment or after treatment has ended.

Cover image of 'Understanding primary bone cancer'

Understanding primary bone cancer (March 2019)

Macmillan Cancer Support

This booklet provides information about primary bone cancer, including the different types, its causes, symptoms, diagnosis and treatment. It also explores emotions, and issues such as living with an amputation. Includes details of useful organisations and other resources such as websites.

Cover image of 'A story about cancer (with a happy ending)'

A story about cancer (with a happy ending) (2019)

Frances Lincoln Children’s Books

A teenage girl heads towards the hospital waiting room where the doctors are going to tell her how much time she's got to live. As she walks, she thinks about her journey up to this point… the terrible decor in the hospital, wearing a headscarf, the horrible treatments, but also being with her friends, family, and her new boyfriend Victor. This is a story about cancer with a happy ending. It's about life, love, and especially, hope. (Publisher) 

Cover image of 'Financial support - help with costs [Urdu]'

Financial support - help with costs [Urdu] (March 2019)

Macmillan Cancer Support

This information is about help with costs if you have cancer. Includes the English-language version.

Cover image of 'Financial support - help with costs [Welsh]'

Financial support - help with costs [Welsh] (March 2019)

Macmillan Cancer Support

This information is about help with costs if you have cancer. Includes English-language version.

Cover image of 'Financial support - help with costs [Polish]'

Financial support - help with costs [Polish] (March 2019)

Macmillan Cancer Support

This information is about help with costs if you have cancer. Includes the English-language version.

Cover image of 'Financial support - help with costs [Arabic]'

Financial support - help with costs [Arabic] (March 2019)

Macmillan Cancer Support

This information is about help with costs if you have cancer. Includes English-language version.

Cover image of 'Financial support - help with costs [Punjabi]'

Financial support - help with costs [Punjabi] (March 2019)

Macmillan Cancer Support

This information is about help with costs if you have cancer. Includes the English-language version.

Cover image of 'Financial support - help with costs [Bengali]'

Financial support - help with costs [Bengali] (March 2019)

Macmillan Cancer Support

This information is about help with costs if you have cancer. Includes English-language version.

Cover image of 'Working while caring for someone with cancer'

Working while caring for someone with cancer (April 2019)

Macmillan Cancer Support

This booklet aims to help working carers cope with work issues they may face because of the impact of their caring role on working life. It describes who a carer is, the different ways of caring, and the impact of cancer treatment on the working carer. It has advice about what to say at work, talking to employers, the legal rights of carers in paid work, social care, financial support, and bereavement. Includes details of useful organisations and websites.

Cover image of 'Financial support - help with costs [Romanian]'

Financial support - help with costs [Romanian] (March 2019)

Macmillan Cancer Support

This information is about help with costs if you have cancer. Includes English-language version.

Cover image of 'Financial support - benefits [Chinese, Traditional]'

Financial support - benefits [Chinese, Traditional] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits. Includes the English-language version.. 

Cover image of 'Financial support - help with costs [Portuguese]'

Financial support - help with costs [Portuguese] (March 2019)

Macmillan Cancer Support

This information is about help with costs if you have cancer. Includes English-language version.

Cover image of 'Financial support - help with costs'

Financial support - help with costs (March 2019)

Macmillan Cancer Support

This information is about help with costs if you have cancer. 

Cover image of 'Donating your stem cells to your brother or sister. A guide to stem cell (bone marrow) donation for teenagers and young adults'

Donating your stem cells to your brother or sister. A guide to stem cell (bone marrow) donation for teenagers and young adults (May 2019)

Children's Cancer and Leukaemia Group

Illustrated, colour booklet for children who may be donating bone marrow or stem cells to a sibling. It describes stem cells and stem cell transplants, why a transplant is needed, the types of transplants, the selection process, tissue typing, harvesting the bone marrow (including the risks and side-effects), and what happens if the transplant is unsuccessful. It also covers issues such as consent, what to take into hospital, and changes to sibling relationships. Includes details of useful organisations and a glossary of terms.

Cover image of 'Burkitt lymphoma'

Burkitt lymphoma (April 2019)

Bloodwise

Burkitt lymphoma is a fast-growing form of blood cancer that can affect adults and children. This fact sheet explains what Burkitt lymphoma is, how it’s diagnosed and treated in adults, and where to go for more support. 

Cover image of 'Donating stem cells'

Donating stem cells (July 2019)

Bloodwise

This fact sheet is for people who may be chosen to donate stem cells to someone else. It explains how stem cell transplants can help people with blood cancer, and what happens when you donate stem cells. 

Cover image of 'The two faces of cancer'

The two faces of cancer (2019)

Troubador Publishing

Half of the UK population will receive a diagnosis of cancer at some point in their lives and most people will know someone who has been affected by this complex disease. Drawing from her three personal experiences with cancer alongside her professional experience as a counsellor and personal coach, Rebecca Brazier chronicles her journey through diagnosis, treatment and recovery. When talking about cancer we tend to think about the physical side effects of treatment. Although medical advances are saving and extending lives, less consideration is given to the emotional and psychological trauma which cancer creates. The Two Faces of Cancer describes and addresses this trauma and explores why cancer is difficult to recover from both personally and within society. It describes the devastation and powerful feelings cancer created for Rebecca and how she channelled these to create a meaningful life. It also draws from Rebecca's professional knowledge to analyse the emotional and psychological impact of cancer and to suggest routes to recovery. (Publisher)

Cover image of 'Looking after yourself. A guide for partners and family members'

Looking after yourself. A guide for partners and family members (2019)

AMEND (Association for Multiple Endocrine Neoplasia Disorders)

Guidance for those caring for, or close to, someone living with an endocrine tumour.

Cover image of 'Letrozole'

Letrozole (February 2019)

Breast Cancer Care

This leaflet describes what letrozole (Femara®) is, how it works, when it may be prescribed, how it is taken, and the possible side-effects.

Cover image of 'Fatigue'

Fatigue (May 2019)

Lymphoma Action

Many people with cancer have fatigue and this extreme tiredness is often called ‘cancer-related fatigue’. This factsheet answers the most common questions people ask about fatigue, including: what it is; why cancer causes fatigue; who gets it; how it feels; how long it lasts; how it is assessed; how it is treated; and how to cope.

Cover image of 'Exemestane'

Exemestane (February 2019)

Breast Cancer Care

This booklet explains what exemestane is, how it works, when it may be prescribed and possible side effects. 

Cover image of 'What is lymphoma?'

What is lymphoma? (June 2019)

Lymphoma Action

An overview of how cancer develops and what lymphoma is. 

Cover image of 'Anastrazole'

Anastrazole (February 2019)

Breast Cancer Care

This leaflet explains briefly what Arimidex® is, how it works, when it may be prescribed, how it is taken and the possible side-effects.

Cover image of 'Ibrutinib'

Ibrutinib (May 2019)

Lymphoma Action

This factsheet describes the use of ibrutinib for the treatment of certain types of lymphoma (relapsed or refractory mantle cell lymphoma; relapsed or refractory CLL; CLL and a 17p deletion). It covers what ibrutinib is, who can have it and who cannnot, its benefits, how it is given, side effects and precautions while being treated.

Cover image of 'Planning for your funeral'

Planning for your funeral (February 2019)

Age UK

This factsheet highlights things to consider if you want to plan ahead and make financial and other arrangements for your funeral. It looks at options when deciding what type of funeral you want, ways to pay for a funeral, and information about organ donation. It may be helpful for people arranging a funeral. 

Cover image of 'FEC chemotherapy'

FEC chemotherapy (February 2019)

Breast Cancer Care

This leaflet describes the FEC chemotherapy combination (5 fluorouracil, epirubicin and cyclophosphamide), when it may be used, how it works, how it is given and the possible side-effects.

Cover image of 'Lobular neoplasia'

Lobular neoplasia (February 2019)

Breast Cancer Care

This leaflet discusses lobular neoplasia, which includes atypical lobular hyperplasia (ALH) and lobular carcinoma in situ (LCIS). It describes the features, diagnosis, and treatment options, and concludes with guidance on how to cope with a diagnosis of lobular neoplasia and sources of support.

Cover image of 'Pertuzumab with Perjeta'

Pertuzumab with Perjeta (April 2019)

Breast Cancer Care

This booklet explains what pertuzumab is, when it’s given and its possible side effects. Pertuzumab is the generic (non-branded) name of the drug. Its current brand name is Perjeta®.

Cover image of 'FEC-T chemotherapy'

FEC-T chemotherapy (February 2019)

Breast Cancer Care

This booklet explains what the chemotherapy combination FEC-T is, when it may be prescribed, how it is given and what side effects may occur. FEC-T is a combination of four chemotherapy drugs: 5 fluorouracil (also known as 5FU); epirubicin; cyclophosphamide; docetaxol (also known as Taxotere).

Cover image of 'Know your breasts. A guide to breast awareness and screening'

Know your breasts. A guide to breast awareness and screening (July 2019)

Breast Cancer Care

This booklet aims to help women understand more about their breasts, how they develop and age, and the normal changes that can occur before a period, during pregnancy, when breastfeeding, and before, during and after the menopause. It uses illustrations to show women how to check their breasts and advises what to do if a change is noticed. It also describes routine breast screening, what happens at the clinic, and the limitations of screening.

Cover image of 'Advice for carers. A practical guide'

Advice for carers. A practical guide (May 2019)

Age UK

This guide looks at the practical and emotional sides of caring. It has information about areas such as benefits and flexible working hours, as well as how a caring role could affect wellbeing and social life. 

Cover image of 'Reducing the risk of lymphoedema'

Reducing the risk of lymphoedema (April 2019)

Breast Cancer Care

This leaflet explains what lymphoedema is and who is at risk. It describes how to reduce the risk of developing lymphoedema, and what to do if problems occur (swelling and skin damage).

Cover image of 'Trastuzumab (Herceptin)'

Trastuzumab (Herceptin) (February 2019)

Breast Cancer Care

This booklet explains what trastuzumab is, how it works, when it may be prescribed and the side effects you may experience. 

Cover image of 'Your hospital stay. What to expect when going into hospital, while you’re there and when you’re discharged'

Your hospital stay. What to expect when going into hospital, while you’re there and when you’re discharged (June 2019)

Age UK

This guide aims to put older people at ease if they are going to be admitted to hospital. It will help them: prepare for going into hospital; understand their rights in hospital; understand the discharge process; and be more informed about care afterwards. It may also be useful for relatives and friends, as it can be a difficult time for them too. 

Cover image of 'How long have I got? The story of a ‘terminal’ cancer patient'

How long have I got? The story of a ‘terminal’ cancer patient (2019)

Independently published

Suitcases filled with medication. Life and death situations. Multiple organ removal. Risking everything to stay alive just one more day. And people still moan to you when they have a cold. Welcome to the life of a ‘terminal’ cancer patient. In January 2016 thirty-year-old Fi Munro was diagnosed with stage four ovarian cancer. Told from day one that her cancer was incurable and ‘terminal’, Fi faced unimaginable pain, heartache and suffering as the life she’d dreamed of was suddenly pulled away from her. Yet in the wake of this news she did not wallow. Instead she discovered a remarkable inner strength, resilience and, above all, a very dark sense of humour. Years later and she is still here, having outlived, in her opinion, two ‘very unreasonable’ prognoses. How Long Have I Got? is her inspiring story. Honest, open and often tear-jerking this is everything you wanted to know - and some stuff you’ll want to forget - about living with cancer and an important reminder that we are all terminal. Reading this will change your life forever. Fi Munro is a multi-award-winning researcher, author, blogger, speaker and mentor recognised internationally for her presentations and articles on her journey and the importance of holistic health. She has been featured in two BBC documentaries, in TV and radio shows, and in newspaper and magazine articles across the globe. Today she is healthier and happier than ever before and believes cancer saved her life. She is currently training to be a shaman and is excited for what the future holds. (Publisher)

Cover image of 'Understanding cancer of unknown primary [in press]'

Understanding cancer of unknown primary [in press] (June 2019)

Macmillan Cancer Support

Information about cancer of unknown primary (CUP). This booklet explains what CUP is and why the primary cancer cannot be found, and describes how it is diagnosed, the tests that might be carried out, and the treatment options. It also covers coping with CUP, feelings, and financial help.

Cover image of 'Talking to children and teenagers when an adult has cancer [in press]'

Talking to children and teenagers when an adult has cancer [in press] (May 2019)

Macmillan Cancer Support

This booklet is designed to help people talk to children and teenagers about cancer. It has suggestions about how to tell a child or teenager that you have cancer, understand their reactions, help them cope, explain cancer treatments, and deal with changes to family life.

Cover image of 'Eating well when you have cancer'

Eating well when you have cancer (February 2019)

The Royal Marsden NHS Foundation Trust

Cancer and its treatment can affect appetite and enjoyment of food. This booklet has been written to help people eat well when they have a poor appetite or are losing weight. It suggests foods to eat to maintain a healthy diet, foods to avoid, nourishing and supplementary drinks, and high-energy foods. It also has advice for times when eating is difficult, as a result, for example, of fatigue, nausea, sore mouth, diarrhoea, or constipation. Includes recipes and sources of further information and support.

Cover image of 'Your breast clinic appointment'

Your breast clinic appointment (April 2019)

Breast Cancer Care

This booklet has been written for anyone referred to a breast clinic. It describes what to expect and the tests that may be carried out, such as a mammogram, an ultrasound scan, fine needle aspiration cytology, core biopsy, punch biopsy and vacuum-assisted biopsy.

Cover image of 'Advance decisions, advance statements and living wills'

Advance decisions, advance statements and living wills (April 2019)

Age UK

This factsheet explains what an advance decision to refuse treatment (often called an advance decision or a ‘living will’) and an advance statement are, why people might want to prepare one or both of them, requirements for drawing them up and ways to ensure other people know they exist. 

Cover image of 'The cancer roller coaster. How to manage the emotional and mental impact'

The cancer roller coaster. How to manage the emotional and mental impact (2019)

Librotas

Two days after celebrating her 50th birthday, Juliette Chan had an unexpected birthday present: bowel cancer. Luckily, they caught it early, but once the treatment was over, the psychological side-effects surfaced. For many months, Juliette was adrift and felt lost. It seemed that everything in her life was up for review and she struggled to gain clarity about what to do next. There were many questions, such as: When will I feel normal again; Why am I not as motivated as before; Will the cancer come back; Why am I mentally exhausted. It took her a while to realise that the cancer had caused a whole load of losses: loss of trust in her body, self-image as a fit and healthy person, energy, confidence, motivation, income and much more. And that’s when the penny dropped; she was grieving. Cancer not only involves coping with the physical disease and treatment – it also means experiencing and dealing with hidden losses that will affect how you view and live your life. Every time you experience a loss, there is an emotional response: grief. Most people only associate grief with bereavement but it is in fact a natural reaction to any and all losses, including the hidden and intangible losses you face with cancer. Anyone who has or has had cancer, as well as their family and friends, will experience grief – because life has changed. This can show up as anger, frustration, anxiety, ‘depression’, fear, sadness, for example. If left unchecked or suppressed, grief will affect your mental health and emotional wellbeing. It doesn’t have to be like this; it is possible to take care of the emotional and mental impact of cancer and to live well. In her easy, relaxed style of writing, Juliette explains the emotional and mental impact of cancer and highlights the limitations of Mindfulness and positive thinking. She has also included a workbook with simple practical exercises that help to release the psychological side-effects and provide clarity. You can also read the candid stories of eight others who faced cancer: Robert describes his initial feelings of shock on diagnosis and how others helped him to cope, whereas Meena recounts going it alone; Petra shares how she continued to run throughout her treatment, and Susan talks movingly about the seemingly endless decision-making from diagnosis onwards; Mary, Tony and June recount their unique experiences of the same cancer

Cover image of 'Financial support - help with costs [Turkish]'

Financial support - help with costs [Turkish] (March 2019)

Macmillan Cancer Support

This information is about help with costs if you have cancer. 

Cover image of 'Financial support - benefits [Turkish]'

Financial support - benefits [Turkish] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits.

Cover image of 'Oxaliplatin (Thai)'

Oxaliplatin (Thai) (March 2019)

Macmillan Cancer Support

Oxaliplatin is a chemotherapy drug used to treat bowel, pancreatic, and stomach cancer, cancer and cancer of the oesophagus. It may be used to treat other cancers.

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