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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 1717

Cover image of 'Understanding head and neck cancers'

Understanding head and neck cancers (July 2018)

Macmillan Cancer Support

This booklet is about head and neck cancers. Head and neck cancers include cancers of the mouth and throat, as well as rarer cancers of the nasal cavity (inside the nose), sinuses, salivary glands and middle ear. This booklet is for anyone who has a head and neck cancer. The booklet explains: what head and neck cancer is; the signs and symptoms; the different treatment options; coping with head and neck cancer treatment.

Cover image of '10 top tips'

10 top tips (March 2018)

Target Ovarian Cancer|Macmillan Cancer Support

This set of ten tips was developed by a workshop group comprising people affected by ovarian cancer and GPs. It aims to help women get the best out of a visit to their GP if they are concerned about symptoms.

Cover image of 'Your guide to breast reconstruction'

Your guide to breast reconstruction (2018)

British Association of Plastic Reconstructive and Aesthetic Surgeons|Association of Breast Surgery

Information to help women make the right choice for them when considering breast reconstruction. The booklet describes what breast reconstruction is, what a mastectomy is, when to have breast reconstruction and the different operations that may be used to rebuild the breast. It also has advice about recovery. Includes sources of information and support.

Cover image of 'Managing the late effects of pelvic radiotherapy in men'

Managing the late effects of pelvic radiotherapy in men (April 2018)

Macmillan Cancer Support

A booklet for men who have had radiotherapy to the pelvic area and who are experiencing late effects. It explains what pelvic radiotherapy is before describing the following late effects and how to manage them: bladder changes; bowel changes; lymphoedema; bone changes; sex life; and fertility. It also discusses feelings, relationships, and work, and has details of further support.

Cover image of 'Understanding cervical screening results and CIN'

Understanding cervical screening results and CIN (March 2018)

Macmillan Cancer Support

This booklet is about cervical screening. It is for anyone who wants information about how screening is used to find and treat abnormal cells to prevent cervical cancer. It explains what cervical screening involves and what your test results mean. It has information about the most common abnormal result, called cervical intra-epithelial neoplasia (CIN).

Cover image of 'Managing the late effects of pelvic radiotherapy in women'

Managing the late effects of pelvic radiotherapy in women (April 2018)

Macmillan Cancer Support

A booklet for women who have had radiotherapy to the pelvic area and who are experiencing late effects. It explains what pelvic radiotherapy is before describing the following late effects and how to manage them: bladder changes; bowel changes; lymphoedema; bone changes; early menopause; sex life; and fertility. It also discusses feelings, relationships, and work, and has details of further support.

Cover image of 'Insurance'

Insurance (July 2018)

Macmillan Cancer Support

This booklet describes the various types of insurance (health, life, travel, car) and explains how having cancer can affect buying and claiming insurance. It also has details of further information and support.

Cover image of 'Understanding risk-reducing breast surgery'

Understanding risk-reducing breast surgery (October 2018)

Macmillan Cancer Support

This booklet is for anyone who is thinking about having risk-reducing breast surgery. You may consider this if you have a high risk of developing breast cancer. This is usually because you have a strong family history of breast cancer. The booklet explains what risk-reducing breast surgery is and what it involves. It talks about the different options for risk-reducing breast surgery. There is information about the benefits, limitations and risks of each type of surgery. We also talk about some physical and emotional issues you may experience, and ways to cope with these. We have included photographs of women who have had breast reconstruction after risk-reducing surgery. This is to help show how a reconstruction may look.

Cover image of 'Getting help at home'

Getting help at home (May 2018)

Age UK

Information on the services available to older people and their carers to enable them to stay in their own home, including local authority social services, voluntary organisations, private care agencies, and the NHS. 

Cover image of 'Making treatment decisions'

Making treatment decisions (June 2018)

Macmillan Cancer Support

This booklet outlines some of the ways that people with cancer can find out about treatment options and discusses some of the things that may help them make decisions.

Cover image of 'Understanding radiotherapy'

Understanding radiotherapy (October 2018)

Macmillan Cancer Support

This booklet is about radiotherapy. It is for anyone who is having radiotherapy or has been offered it as part of their cancer treatment. You may find this booklet helpful if you are a carer, family member or friend. The booklet explains: the different types of radiotherapy; what to expect before, during and after radiotherapy; how radiotherapy is planned and given; some of the general side effects of radiotherapy and ways to cope with these effects.

Cover image of 'Understanding breast reconstruction'

Understanding breast reconstruction (October 2018)

Macmillan Cancer Support

This booklet is aimed at women who have undergone, or who are about to undergo, a mastectomy, and who might be considering breast reconstruction. It explains what breast reconstruction is and the possible benefits and problems that might be expected from this type of surgery. Includes photographs, and details of useful organisations.

Cover image of 'Coping with fatigue (tiredness)'

Coping with fatigue (tiredness) (September 2018)

Macmillan Cancer Support

Fatigue is very common during cancer and its treatment. This booklet discusses the causes and effects and suggests how to manage fatigue. It also has advice on planning your life around fatigue, talking to your doctor or nurse, caring for someone who has fatigue, and other sources of help.

Cover image of 'Pelvic radiotherapy in women. Managing side effects during treatment'

Pelvic radiotherapy in women. Managing side effects during treatment (September 2018)

Macmillan Cancer Support

This booklet is for women who are having, or are going to have, radiotherapy to the pelvic area. The pelvic area is the lower part of the tummy (abdomen), between the hips. The booklet explains: side effects that may happen during, or shortly after, pelvic radiotherapy; how side effects can be controlled or reduced; what you can do to help yourself.

Cover image of 'Pelvic radiotherapy in men - managing side effects during treatment'

Pelvic radiotherapy in men - managing side effects during treatment (September 2018)

Macmillan Cancer Support

This booklet has information about the side effects of pelvic radiotherapy during treatment. There is a separate booklet for men experiencing late effects (Managing the late effects of pelvic radiotherapy in men).

Cover image of 'Understanding chemotherapy'

Understanding chemotherapy (September 2018)

Macmillan Cancer Support

This booklet is about chemotherapy. It is for anyone who is having chemotherapy treatment for cancer. There is also information for carers, family members and friends. It explains how chemotherapy works and how it is given. There is also information about common side effects, how they can be treated and what you can do to manage them.

Cover image of 'Understanding the PSA test'

Understanding the PSA test (May 2018)

Macmillan Cancer Support

This booklet has been written to help men decide whether to have the PSA blood test. It describes the prostate gland, the causes and symptoms of prostate cancer, and explains the PSA test in detail, including the advantages and disadvantages. Treatment options for prostate cancer are briefly explained. Includes details of useful organisations and other resources, such as websites.

Cover image of 'After someone dies - coping with bereavement'

After someone dies - coping with bereavement (March 2018)

Macmillan Cancer Support

Coping with the death of someone close to you involves dealing with difficult feelings and emotions, as well as practical tasks that have to be done. This booklet is for the relatives and friends of anyone who has died from cancer. It gives you some practical information about what to do and what to expect when someone dies. It also looks at some of the emotions you may have, and the support that can help. 

Cover image of 'Your urgent referral explained'

Your urgent referral explained (October 2018)

Cancer Research UK

This leaflet helps patients who have been urgently referred with suspected cancer to prepare for their appointments and tests. 

Cover image of 'Have you seen blood in your pee, even once? Then it is time to tell your doctor [Easy read]'

Have you seen blood in your pee, even once? Then it is time to tell your doctor [Easy read] (2018)

Public Health England

Leaflet aimed at alerting general public to symptoms of bladder and kidney cancer and encouraging people to go to the doctor if they have blood in their urine.

Cover image of 'If you notice blood in your pee, even if it's 'just the once', tell your doctor [Large print]'

If you notice blood in your pee, even if it's 'just the once', tell your doctor [Large print] (2018)

Public Health England

Leaflet aimed at alerting general public to symptoms of bladder and kidney cancer and encouraging people to go to the doctor if they have blood in their urine.

Cover image of 'Preparing a child for loss'

Preparing a child for loss (April 2018)

Macmillan Cancer Support|Winston's Wish

This booklet is written with the childhood bereavement charity, Winston’s Wish. It’s for parents or guardians who are near the end of life and aims to help you prepare and talk to a child or children about your death. Partners, grandparents and close family members may find it useful, too. It may also help you talk to children who are already dealing with the death of a family member. 

Cover image of 'NHS bowel scope screening: using the enema [Urdu]'

NHS bowel scope screening: using the enema [Urdu] (February 2018)

Public Health England

Instructions on how to use the enema before attending for bowel scope screening.

Cover image of 'NHS bowel scope screening: using the enema [Hindi]'

NHS bowel scope screening: using the enema [Hindi] (February 2018)

Public Health England

Instructions on how to use the enema before attending for bowel scope screening.

Cover image of 'NHS bowel scope screening: using the enema [Farsi]'

NHS bowel scope screening: using the enema [Farsi] (February 2018)

Public Health England

Instructions on how to use the enema before attending for bowel scope screening.

Cover image of 'Bowel scope screening'

Bowel scope screening (May 2018)

Public Health England

Information to help people decide if they want to take up an invitation for bowel scope screening.

Cover image of 'NHS bowel scope screening: using the enema [Punjabi]'

NHS bowel scope screening: using the enema [Punjabi] (February 2018)

Public Health England

Instructions on how to use the enema before attending for bowel scope screening.

Cover image of 'NHS bowel scope screening: using the enema [Polish]'

NHS bowel scope screening: using the enema [Polish] (February 2018)

Public Health England

Instructions on how to use the enema before attending for bowel scope screening.

Cover image of 'NHS bowel scope screening: using the enema [Nepali]'

NHS bowel scope screening: using the enema [Nepali] (February 2018)

Public Health England

Instructions on how to use the enema before attending for bowel scope screening.

Cover image of 'NHS bowel scope screening: using the enema [Gujarati]'

NHS bowel scope screening: using the enema [Gujarati] (February 2018)

Public Health England

Instructions on how to use the enema before attending for bowel scope screening.

Cover image of 'NHS bowel scope screening: using the enema [French]'

NHS bowel scope screening: using the enema [French] (February 2018)

Public Health England

Instructions on how to use the enema before attending for bowel scope screening.

Cover image of 'NHS bowel scope screening: using the enema [Bengali]'

NHS bowel scope screening: using the enema [Bengali] (February 2018)

Public Health England

Instructions on how to use the enema before attending for bowel scope screening.

Cover image of 'NHS bowel scope screening: using the enema [Arabic]'

NHS bowel scope screening: using the enema [Arabic] (February 2018)

Public Health England

Instructions on how to use the enema before attending for bowel scope screening.

Cover image of 'NHS bowel scope screening: using the enema [Chinese, Traditional]'

NHS bowel scope screening: using the enema [Chinese, Traditional] (February 2018)

Public Health England

Instructions on how to use the enema before attending for bowel scope screening.

Cover image of 'NHS bowel scope screening: using the enema [Chinese, Simplified]'

NHS bowel scope screening: using the enema [Chinese, Simplified] (February 2018)

Public Health England

Instructions on how to use the enema before attending for bowel scope screening.

Cover image of 'NHS bowel scope screening: using the enema'

NHS bowel scope screening: using the enema (May 2018)

Public Health England

Instructions on how to use the enema before attending for bowel scope screening.

Cover image of 'Clinical trials. Your questions answered'

Clinical trials. Your questions answered (June 2018)

The Royal Marsden NHS Trust

This booklet uses a question and answer format to help people with cancer decide whether to participate in a clinical trial of cancer treatment. It includes sources of further information and support.

Cover image of 'Only one of me. A love letter from dad'

Only one of me. A love letter from dad (2018)

Graffeg Limited

There's only one dad quite like me. I wish that there were two. I'd have more time to spend And I would spend it all with you. Most of us can't imagine having the time we spend with our children or loved ones cut short, but this is the reality being faced by mother of two Lisa Wells, who was diagnosed with terminal bowel and liver cancer in December 2017, at the age of 31. The Only One of Me project grew from Lisa's determination to leave a lasting legacy for her daughters and her desire to help other families rally against the difficulties of loss. Only One of Me is the product of Lisa's lifelong love of writing and a newfound friendship with award-winning children's author Michelle Robinson. The two collaborated on this tender and moving rhyming poem, with charming illustrations by Tim Budgen, which is both a love letter to Lisa's own daughters and a testament to the unwavering strength of parental love, a timeless message for families facing the challenges of bereavement. (Publisher)

Cover image of 'A smear test could save your life. Don't ignore your invitation [Somali]'

A smear test could save your life. Don't ignore your invitation [Somali] (2018)

NHS Health Scotland

This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active, are lesbian/bisexual, menopausal, or pregnant. 

Cover image of 'If you notice blood in your pee, even if it's 'just the once', tell your doctor'

If you notice blood in your pee, even if it's 'just the once', tell your doctor (2018)

Public Health England

Leaflet aimed at alerting general public to symptoms of bladder and kidney cancer and encouraging people to go to the doctor if they have blood in their urine.

Cover image of 'Only one of me. A love letter from mum'

Only one of me. A love letter from mum (2018)

Graffeg Limited

'There's only one mum quite like me. I wish that there were two. I'd have more time to spend And I would spend it all with you.' Most of us can't imagine having the time we spend with our children or loved ones cut short, but this is the reality being faced by mother of two Lisa Wells, who was diagnosed with terminal bowel and liver cancer in December 2017 at the age of 31. The Only One of Me project grew from Lisa's determination to leave a lasting legacy for her daughters and her desire to help other families rally against the difficulties of loss. Only One of Me is the product of Lisa's lifelong love of writing and a newfound friendship with award-winning children's author Michelle Robinson. The two collaborated on this tender and moving rhyming poem, with charming illustrations by Catalina Echeverri, which is both a love letter to Lisa's own daughters and a testament to the unwavering strength of parental love, a timeless message for families facing the challenges of bereavement. (Publisher)

Cover image of 'Before I go. The essential guide to creating a good end of life plan'

Before I go. The essential guide to creating a good end of life plan (2018)

Findhorn Press

A compassionate, practical guide to end-of-life matters, empowering us to clarify and share our wishes and continue to live life to the fullest. Many people say “I wish I had known what they wanted” when their loved one has died. Too often, a person’s wishes for end-of-life care, and for after they have gone, have not been recorded. With this valuable guide, you can now begin to do this for yourself, so your relatives will be able to honor your wishes more easily, saving them unnecessary stress and upset at a potentially intense time. Before I Go addresses the emotional, spiritual, and practical aspects of end-of-life planning to help you make well-informed decisions about your end-of-life care and prepare well for your death. Jane Duncan Rogers guides you with equanimity, care, and humor through subjects such as how to have a conversation about dying, the impact of grief on relatives responsible for estate matters, DIY funerals and what that entails. She states clearly what you need to have in place to ensure the best end of life possible, helps you identify your values and beliefs in this area, and demonstrates which actions you then need to take, and when. With a full resource pack of essential information available to you, including guiding questions, exercises, and recording tools, as well as downloadable worksheets and supportive online courses, decision-making will be much easier and you will find relief and peace of mind knowing you have taken care of outstanding matters. You will also be giving a great gift to your loved ones. When they have this information in advance, you spare them many difficult decisions and administrative hassle at a time when they will be grieving and not in a fit state to cope. It can bring great comfort to those left behind to know they are indeed carrying out your wishes. It also provides an opportunity for you to record your achievements and history, giving them a legacy they would otherwise not have. (Publisher)

Cover image of 'Our family and IT'

Our family and IT (2018)

Olop and Flossie Publishing

What does the mother say to her six-year-old when she asks the question that no mother ever wants to be asked? How does the fourteen-year-old cope with the illness while struggling with the typical angst of a teenager? This book is about an ordinary family who is faced with extra-ordinary changes and challenges when the mother is diagnosed with a potentially life-limiting illness. IT (the illness) becomes the uninvited guest in the family and as the story develops the frustrations, anxieties and impact all become very real. (Publisher)

Cover image of 'Everything happens for a reason and other lies I've loved'

Everything happens for a reason and other lies I've loved (2018)

SPCK Publishing

London-born Kate Bowler, a thirty-five year-old professor at the school of divinity at Duke, had finally had a baby with her childhood sweetheart when she began to feel jabbing pains in her stomach. She lost thirty pounds, guzzled antacid, and visited doctors for three months before she was finally diagnosed with Stage IV colon cancer. As Kate navigates the aftermath of her diagnosis, she pulls the reader into her life and her history - affectionately filled with a colourful retinue of friends, mega-church preachers, parents, and doctors - and shares her irreverent, laser-sharp reflections on faith, friendship, love, and death. She wonders why suffering makes her feel like a loser and explores the burden of positivity. Trying to relish the time she still has with her son and husband, she realizes she must cure her habit of 'skipping to the end' and planning the next move. An historian of the American Prosperity Gospel (the creed of the megachurches that promises believers a cure for tragedy, if they just want it badly enough) Kate finds that she craves these same 'outrageous certainties'. Why is it so hard to surrender when she knows there are no spiritual guarantees? (Publisher)

Cover image of 'A funny thing happened on the way to chemo. A rather unusual memoir'

A funny thing happened on the way to chemo. A rather unusual memoir (2018)

Short Books

"Cancer is not a laughing matter, as I was told by a cross German lady from Dortmund when I showed her this journal. She had herself had breast cancer and is right of course; there are lots of things that are not fun about cancer, most of them unavoidable. I was therefore as surprised as the next person to realise that a huge amount of funny things happen on the way to chemo, or indeed on the way to most places, and that once you get your eye in, you completely forget to be scared..." This is not just an educational book about cancer, although it is certainly safe to give to cancer patients as a cheerful present. More importantly, it sheds new light on why Kim Kardashian is worth Keeping Up With, what playlists to make for MRI scans, the truth behind the legend of Medea, bikini etiquette on a deserted beach, what to do with a glut of rainbow chard, what an Oscar-winner should say in an acceptance speech, how to deal with cold-callers selling life insurance, and what to wear on a March Against Menopause (layers, obviously)... (Publisher)

Cover image of 'Not that kind of love. A sister, a brother, some tumours and a cat'

Not that kind of love. A sister, a brother, some tumours and a cat (2018)

Quercus

A moving, thought-provoking and surprisingly humorous book which is both a description of a journey to death and a celebration of the act of living. Based on Clare Wise's blog, which she started when she was first diagnosed with cancer in 2013, Not That Kind of Love charts the highs and lows of the last three years of Clare's life. The end result is not a book that fills you with despair and anguish. On the contrary, Not That Kind of Love should be read by everybody for its candour, and for its warmth and spirit. Clare is an astonishingly dynamic, witty and fun personality, and her positivity and energy exude from every page. As she becomes too weak to type, her brother - the actor Greg Wise - takes over, and the book morphs into a beautiful meditation on life, and the necessity of talking about death. With echoes of Atul Gawande's Being Mortal and Cathy Rentzenbrink's The Last Act of Love, it is a very special read that rejoices in the extraordinary and often underestimated sibling bond, and the importance of making the most of the ordinary pleasures life has to offer. As Greg Wise writes in the book: 'Celebrate the small things, the small moments. If you find yourself with matching socks as you leave the house in the morning, that is a cause for celebration. If the rest of the day is spent finding the cure for cancer, or brokering world peace, then that's a bonus.' (Publisher) 

Cover image of 'What to expect when someone important to you is dying. A guide for carers, families and friends of dying people'

What to expect when someone important to you is dying. A guide for carers, families and friends of dying people (March 2018)

Hospice UK

This booklet is for people caring for someone who is, or who may soon be, in the last stages of life. It is designed to help them prepare for what to expect in the very last days and hours of a person's life. It explains the physical changes that someone may go through when they are dying and what can be done to make them more comfortable, the kind of care a dying person can expect to receive, and where to turn to for help if there are concerns about the end-of-life care received.

Cover image of 'Pensions'

Pensions (July 2018)

Macmillan Cancer Support

This booklet will help people affected by cancer to review their pension arrangements (state, occupational, personal). It covers protecting pension rights, taking pension income, and protecting survivors.

Cover image of 'All the time we thought we had'

All the time we thought we had (2018)

Polygon

How do you start a new life when the person you love is about to die? At the age of thirty-six, Gordon Darroch's wife was diagnosed with breast cancer. It was a devastating blow just as he, and their two children with autism, were preparing to move to her native Holland. Eighteen months later, as their plans seemed to be back on course, came the second blow: Magteld was terminally ill and possibly had only a few months to live. As her health rapidly deteriorated, they became caught up in a race against time to get a dying mother home and give their children a future in a country they hardly knew. How could they build a new life in the midst of grief and loss? How would their two sons adjust to such enormous changes? And what would remain of Magteld once she was gone? All the Time We Thought We Had is a story of love and loss and a meditation on grief and memory. It's about how events shape our lives and how we cope with them. And it raises important questions about what we value in life and the legacies we leave behind. (Publisher)

Cover image of 'A new kind of normal'

A new kind of normal (2018)

Self-published

They say there’s a book in all of us, but I doubt I would ever have written one had it not have been for my diagnosis of breast cancer in 2011. ‘A New Kind of Normal' is the story of my life up to and moving on from that moment. Growing up in the 60's, working through the 70's and 80's, juggling a career in TV and radio while bringing up three children and surviving two divorces. From the moment I knew what a bra was, I’d wanted breasts: I even crafted a pair of blue plasticine boobs for myself, as nature made me wait until I was 15 for breasts of my own! Through cancer I lost them both, and with the chemotherapy; all my hair, my fingernails, and more worryingly, a sense of whom I was. My hair grew back, as did my fingernails, but I still struggled with my identity. What I’ve written isn't a diary, nor a self-help guide, and it's not just about cancer. I’ve taken a really good look at the little girl I was and the woman I grew into, and why I went to such lengths to try and claw back some of what cancer had taken from me - it's not everyone's way I appreciate, and it’s been an interesting exercise trying to ascertain why it was mine! I’ve been honest, open, and meticulous when it comes to detail, as I firmly believe that if you take away the mystery, you can take away some of the fear. But there’s a lot to laugh about here too, as luckily I’ve always been able to see the funny side of a situation, preferring that to the occasional overwhelming despair I felt. In this book I've tried to move the disease away from the medical professionals and the hospitals, and to bring it into the day to day, because that's where it sits. Over the last seven years I’ve come to realise that the ripple effect of cancer is far reaching, affecting not just those of us living with it but everyone around us. 'A New Kind of Normal' gives an insight into my relationship with my then partner, now husband; my children and their reaction to my illness, my family and friends, my work colleagues, people who wrote to me, and the professionals who cared for me; everybody reacts differently. Breast cancer assaults your femininity - the treatment is tough and the surgery brutal.  It isn't easy, but it is possible, and I'd like to feel this book may be a source of comfort to anyone who's life is touched by breast cancer; maybe even help them to find their 'New Kind of Normal'. There are many things in life we may have to give up on, but hope is not one of them. (P

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