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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 1661

Cover image of 'Living with an illness that you will probably die from. Your family and friends [Easy read]'

Living with an illness that you will probably die from. Your family and friends [Easy read] (June 2017)

Marie Curie

This Easy Read booklet is for people living with an illness that they will probably die from. It tells them about talking to family and friends.

Cover image of 'CA125 blood test'

CA125 blood test (June 2017)

Target Ovarian Cancer

This factsheet describes the CA125 blood test: what it is; why it is being carried out; what the results mean.

Cover image of 'Caring for someone with an illness they will probably die from. Looking after yourself [Easy read]'

Caring for someone with an illness they will probably die from. Looking after yourself [Easy read] (June 2017)

Marie Curie

Marie Curie has written this Easy Read booklet to help you think about looking after yourself if you are caring for someone with a an illness they will probably die from.

Cover image of 'Interferon alpha [Arabic]'

Interferon alpha [Arabic] (March 2017)

Macmillan Cancer Support

Interferon alpha is a biological therapy that may be used to treat kidney cancer, melanoma, carcinoid tumours, and some types of lymphoma and leukaemia. This factsheet describes how it works, how it is given, and some of the possible side-effects. Includes the English-language version.

Cover image of 'Pemetrexed and carboplatin [Polish]'

Pemetrexed and carboplatin [Polish] (2017)

Macmillan Cancer Support

Pemetrexed and carboplatin are used in combination chemotherapy treatment to treat mesothelioma and non-small cell lung cancer. This factsheet describes what pemetrexed and carboplatin are, how they are given and the possible side effects.

Cover image of 'Mitoxantrone [Bengali]'

Mitoxantrone [Bengali] (2017)

Macmillan Cancer Support

Mitoxantrone is most commonly used to treat acute myeloid leukaemia, non-Hodgkin lymphoma, breast cancer that has spread and primary liver cancer that has spread. This factsheet describes how it is given and the possible side-effects.

Cover image of 'Sorafenib (Nexavar®) [Arabic]'

Sorafenib (Nexavar®) [Arabic] (March 2017)

Macmillan Cancer Support

Sorafenib is a multi-targeted kinase inhibitor that is used to treat people with kidney, liver, or differentiated thyroid cancer. This factsheet describes how it works, how it is given, and the possible side-effects. Includes the English-language version.

Cover image of 'End of life [Romanian]'

End of life [Romanian] (January 2017)

Macmillan Cancer Support

This factsheet is about what happens at the end of life and how to prepare for it. Includes English language version.

Cover image of 'Understanding chronic myeloid leukaemia'

Understanding chronic myeloid leukaemia (July 2017)

Macmillan Cancer Support

This booklet has detailed information about chronic myeloid leukaemia, its symptoms, diagnosis, and treatments. It also covers issues such as fertility and feelings, and includes details of useful organisations, and websites.

Cover image of 'Sorting out your financial affairs'

Sorting out your financial affairs (June 2017)

Macmillan Cancer Support

This booklet will help people affected by cancer to plan for a time when they may not be able to manage their own financial affairs. 

Cover image of 'Pensions'

Pensions (April 2017)

Macmillan Cancer Support

This booklet will help people affected by cancer to review their pension arrangements (state, occupational, personal). It covers protecting pension rights, taking pension income, and protecting survivors.

Cover image of 'Understanding Hodgkin lymphoma'

Understanding Hodgkin lymphoma (December 2017)

Macmillan Cancer Support

This booklet explains what Hodgkin lymphoma is, and provides information on symptoms, diagnosis, the stages, and treatment options. It also covers issues such as fertility, feelings, and practical and financial support. 

Cover image of 'Know your prostate. A quick guide'

Know your prostate. A quick guide (February 2017)

Prostate Cancer UK

Z-card with information from the booklet 'Know your prostate. A guide to common prostate problems'. It describes the prostate gland, the changes to look out for, benign prostatic hyperplasia, prostatitis and prostate cancer (what it is, the symptoms and the risk factors).

Cover image of 'Pampering therapy'

Pampering therapy (March 2017)

Look Good...Feel Better

Cover image of 'A guide for people with dementia'

A guide for people with dementia (September 2017)

Macmillan Cancer Support, Dementia UK

Some people who have cancer also have dementia. Having both conditions can be difficult for you and the people close to you. The number of people living with both cancer and dementia is growing. We have written this booklet to give people information about living with both conditions and tell people where they may be able to get help.

Cover image of 'Living with an illness that you will probably die from. How to keep comfortable, healthy and happy [Easy read]'

Living with an illness that you will probably die from. How to keep comfortable, healthy and happy [Easy read] (June 2017)

Marie Curie

This Easy Read booklet is for people living with an illness that they will probably die from. It tells them about how to keep comfortable, healthy and happy.

Cover image of 'Living with an illness that you will probably die from. Work, money and getting the best out of life [Easy read]'

Living with an illness that you will probably die from. Work, money and getting the best out of life [Easy read] (June 2017)

Marie Curie

This Easy Read booklet is for people living with an illness that they will probably die from. It tells them about work, money and benefits.

Cover image of 'Surviving me. Living with a life-changing diagnosis'

Surviving me. Living with a life-changing diagnosis (April 2017)

Ranson H, Michell J

Receiving a life-changing diagnosis can be overwhelming. This resource aims to you find your way through. It has exercises to help you focus one day at a time, audio recordings to help you relax and a daily planner to get you through difficult times.

Cover image of 'How to handle later life'

How to handle later life (2017)

Shoard M

As the baby-boomers get their bus passes, old age is rising up the public agenda. Yet the media concentrate either on the spectacular achievements of nonagenarians or the horrors of elder abuse in rogue care homes. Most people would rather know what ageing will mean for them. While bookshops carry plenty of guides on childcare, no book explains comprehensively what ageing means and how to cope with its challenges. To fill this gap Marion Shoard has written a 1,160-page guide. The book is based partly on experience with her own parents and help she has given other older people, but primarily on extensive research into all aspects of the subject all over the UK. (Publishers)

Cover image of 'Thinking out loud. Love, grief and being mum and dad'

Thinking out loud. Love, grief and being mum and dad (2017)

Ferdinand R

In 2015, former England football star Rio Ferdinand suddenly and tragically lost his wife and soulmate Rebecca, aged 34, to cancer. It was a profound shock and Rio found himself struggling to cope not just with the pain of his grief, but also with his new role as both mum and dad to their three young children. Rio's BBC1 documentary, Being Mum and Dad, touched everyone who watched it and won huge praise for the honesty and bravery he showed in talking about his emotions and experiences. His book now shares the story of meeting, marrying and losing Rebecca, his own and the family's grief - as well as the advice and support that get him through each day as they strive to piece themselves back together. Thinking Out Loud is written in the hope that he can inspire others struggling with loss and grief to find the help they need through this most difficult of times. (Publisher)

Cover image of 'Mummy’s got a poorly [currently being reviewed by our volunteers]'

Mummy’s got a poorly [currently being reviewed by our volunteers] (2017)

West S, Gaunt L (illustrator), Didone D (illustrator)

Mummy’s Got a Poorly is an engaging, thought-provoking story, told through the eyes of a five-year-old girl whose mummy is unwell. It is aimed at the young children of parents with a serious illness to support them through a difficult time. Whilst not mentioning the ‘C’ word it does cover the effects that medicine such as chemotherapy can have and also provides lots of opportunities for children to ask questions and discuss their feelings about their own parent’s illness. (Publisher) 

Cover image of 'The bright hour. A memoir of living and dying [currently being reviewed by our volunteers]'

The bright hour. A memoir of living and dying [currently being reviewed by our volunteers] (2017)

Riggs N

In January 2015 Nina was diagnosed with breast cancer, and it metastasised later that year. She was thirty-eight years old; her mother had died only a few months earlier from multiple myeloma. Nina Riggs grew up in a contemplative family: her great-great-great-grandfather was Ralph Waldo Emerson, and she was raised to turn to his essays for 'guidance, inspiration, and something to push against'. THE BRIGHT HOUR is Nina's intimate, unflinching account of 'living with death in the room'. She tells her story in a series of absurd, poignant and often hilarious vignettes drawn from a life that has 'no real future or arc left to it, yet still goes on as if it does'. This unforgettable memoir leads the reader into the innermost chambers of the writer's life: into the mind and heart, the work and home and family, of a young woman alternately seeking to make peace with and raging against the reality of her approaching death. (Publisher)

Cover image of 'Making peace with the end of life. A clear and comforting guide to help you live well to the last [currently being reviewed by our volunteers]'

Making peace with the end of life. A clear and comforting guide to help you live well to the last [currently being reviewed by our volunteers] (2017)

Fitzgerald P, Rayner S

From GP and hospice doctor Patrick Fitzgerald and bestselling author Sarah Rayner (Making Friends with Anxiety, One Moment, One Morning) comes a warm and wise companion to help support you and those caring for you in the last months, weeks and days of life. From the shock of diagnosis, through treatment options and symptom control to the process of dying itself, Making Peace with the End of Life tackles these sensitive issues with compassion and honesty. Full of practical advice and important contact information, it will also help to demystify how the NHS and Social Services work, so you can access the best support more easily. And, drawing on Patrick’s extensive clinical experience, it also looks at how communicating your wishes to those involved in your care can give a feeling of safety and control over whatever happens in the future. There are tips on self-nurturing using diet, light exercise and alternative therapies, plus guidance on how to care for your own mental health – including advice for carers. And for those who are anxious about what lies ahead, patient stories and quotes from those who’ve been there help to explain what to expect, thereby easing worry and panic so you feel less alone. Offset by Sarah’s joyful illustrations, the result is a clear and compassionate guide that aims to make these complex and distressing issues less confusing and overwhelming, so each individual can live the life they have left with a greater sense of comfort and peace. (Publisher)

Cover image of 'With the end in mind. Dying, death and wisdom in an age of denial'

With the end in mind. Dying, death and wisdom in an age of denial (2017)

Mannix K

In this unprecedented book, palliative medicine pioneer Dr Kathryn Mannix explores the biggest taboo in our society and the only certainty we all share: death. Told through a series of beautifully crafted stories taken from nearly four decades of clinical practice, her book answers the most intimate questions about the process of dying with touching honesty and humanity. She makes a compelling case for the therapeutic power of approaching death not with trepidation but with openness, clarity and understanding. With the End in Mind is a book for us all: the grieving and bereaved, ill and healthy. Open these pages and you will find stories about people who are like you, and like people you know and love. You will meet Holly, who danced her last day away; Eric, the retired head teacher who, even with Motor Neurone Disease, gets things done; loving, tender-hearted Nelly and Joe, each living a lonely lie to save their beloved from distress; and Sylvie, 19, dying of leukaemia, sewing a cushion for her mum to hug by the fire after she has died. These are just four of the book’s thirty-odd stories of normal humans, dying normal human deaths. They show how the dying embrace living not because they are unusual or brave, but because that’s what humans do. By turns touching, tragic, at times funny and always wise, they offer us illumination, models for action, and hope. Read this book and you’ll be better prepared for life as well as death. (Publisher)

Cover image of 'Inside the wave [currently being reviewed by our volunteers]'

Inside the wave [currently being reviewed by our volunteers] (2017)

Dunmore H

To be alive is to be inside the wave, always travelling until it breaks and is gone. These poems are concerned with the borderline between the living and the dead - the underworld and the human living world - and the exquisitely intense being of both. They possess a spare, eloquent lyricism as they explore the bliss and anguish of the voyage. Inside the Wave, Helen Dunmore's tenth and final book of poetry. Her final poem, 'Hold out your arms', written shortly before her death and not included in the first printing of Inside the Wave, has now been added to the reprint. (Publisher)

Cover image of 'Well. A doctor's journey through fear to freedom'

Well. A doctor's journey through fear to freedom (2017)

Gunn M

When Dr Mary Gunn was diagnosed with cancer, her first reaction was fear, and to fight the disease aggressively for the sake of not only herself but her young children and husband. But when it came back – and turned out to be incurable – she knew that she couldn’t live the rest of her life in fear. Mary embraced a new approach to life: to accept all the joy and sorrow, safety and danger, certainty and unpredictability… in essence, to live freely. In our uncertain times, when it’s difficult not to feel the fear, Dr Mary Gunn’s remarkable memoir offers mindfulness tools for resilience, and shows how we can all use acceptance, compassion and love to live courageously, magnificently. Backed up by many years of experience as both a doctor and a patient, her story will inspire you to let go of fear, love life and live well. (Publisher)

Cover image of 'This beautiful life [currently being reviewed by our volunteers]'

This beautiful life [currently being reviewed by our volunteers] (2017)

Marsh K

Abi has been given the second chance she never expected, and now she's trying to get her life - and her family - back on track after facing the worst [colon cancer]. But it's hard to trust in happiness again, and reconnecting with her husband John proves more challenging than she thought. Can you really go back to 'normal' after thinking you're going to lose one another? With Abi's son Seb struggling with a secret of his own, the three of them are in danger of falling apart just when they need each other most. But how do you pick up the pieces of a family still suffering emotional shockwaves? And can Abi bring the people she loves most in the world back together again... before it's too late? (Publisher)

Cover image of 'Dolly daydreamer'

Dolly daydreamer (2017)

Prescott JA

Rachel and Simon have been married for a long time. They are both parents and grandparents. They love Portugal, but life isn’t as perfect as it appears on the surface. Rachel had breast cancer and as time goes on, family circumstances threaten the very fabric of the family. Is their family unit strong enough to survive what the future has in store for Rachel, Simon and the rest of their family? (Publisher)

Cover image of 'Going on the turn. A memoir'

Going on the turn. A memoir (2017)

Baker D

Danny Baker's third volume of memoirs barrels along at the same cracking pace as its predecessors, the bestselling Going to Sea in a Sieve (the inspiration for the major TV series Cradle to Grave and subsequent nationwide tour) and Going off Alarming. With his trademark exuberance, he recalls the years which included six years' involvement in the massive TV hit TFI Friday ('piling it up with hellzapoppin' ideas') - during which time he stalked John Cleese in New York, entertained David Bowie and Paul McCartney, bizarrely reunites with Sir Michael Caine, gets befriended by Peter O'Toole and becomes a member of Led Zeppelin for 35 minutes. However, the tales are not reliant on celebrity alone, and the book comes packed with the usual quota of Baker family jewels, including Spud's attitude to doctors, Danny's trip to Amsterdam to get stoned for the first time (he fails), getting caught up in football rioting, and the now infamous 'kaboom' of an outburst following his despatch from BBC London. And then there's the cancer. Spoiler alert: this is the one in which he almost dies. Further spoiler alert: he doesn't. (Publisher)

Cover image of 'The breast reconstruction guidebook'

The breast reconstruction guidebook (2017)

Steligo K

For a decade The Breast Reconstruction Guidebook has been the best resource on this topic for women who have had a mastectomy. Equal parts science and support, it is filled with stories that illustrate the emotional and physical components of breast reconstruction. Readers will find advice about choosing a doctor and a procedure, insurance and payment issues, how to prepare for surgery, and what to expect during recovery. Expert commentary by physicians and insights from patients inform this book, as does the exhaustive research by the author, a two-time breast cancer survivor who has twice had reconstructive surgery. New in this edition are discussions of: the pros and cons of saline and silicone implants; solutions for post-lumpectomy cosmetic problems; new immediate-delayed reconstruction when post-mastectomy radiation may be required; the benefits and limitations of nipple-sparing mastectomy; considerations for direct-to-implant reconstruction; newly developed tissue flap procedures; who can best apply nipple and areola tattoos and why tattoos may not last; enriching fat with stem cells so it stays in the breast; patient-controlled tissue expansion; how insurance and health care reform affect reconstruction. (Publisher)

Cover image of 'The grandad grand prix'

The grandad grand prix (2017)

Crowther L

Flo has two of the most fun and competitive grandads in the world who can never resist the chance to get one over on the other. That is until Flo is faced with some devastating news when one of her grandads is diagnosed with a serious illness. Although her world is turned upside down, Flo continues to be inspired by her grandad whose sheer will, determination and positive attitude will not be diminished no matter what. So join Flo as she embarks on an emotional roller coaster as she laughs, cries, makes new friends and discovers what it truly means to never, ever give up. The Grandad Grand Prix is a fictional story inspired by true events and a must read for all age groups. (Publisher)

Cover image of 'The finch in my brain'

The finch in my brain (2017)

Sclavi M

When film producer Martino Sclavi began experiencing intense headaches, he attributed them to his frenetic lifestyle. As it turned out, he had grade 4 brain cancer and was given 18 months to live. After undergoing brain surgery - while awake - Martino found he had lost the ability to recognise words. His response was to close his eyes and begin to move his fingers across the keyboard to write this, an account of life before diagnosis and since. Defying all predictions Martino is still very much alive, words read out to him by the monotone of a computerised voice he calls Alex. But he must now live in a new way. This book - that he has written but cannot read - charts the effects of his experience: on his relationship with his young son, his marriage, his work and with himself. In the wake of his illness, everything must be reconfigured and Martino is made to question the habits, dreams and beliefs of his old life and confront the present. What he finds is strange and beautiful. Searching for the words between life and death, Sclavi shows that with determination and a subtle, persistent sense of humour, it is possible to change the story of our lives. (Publisher)

Cover image of 'The facts about HPV'

The facts about HPV (2017)

Jo's Cervical Cancer Trust

A short film about HPV to dispel some of the myths surrounding the virus. It is hoped that it will help more people understand what the virus is, who can get it, how it can affect them, and what they can do to best protect themselves from cervical cancer. 

Cover image of 'Hair everywhere'

Hair everywhere (2017)

Tulic T, Petkovich C, translator

Hair Everywhere is the story of one family and how they manage to cope when the mother is diagnosed with cancer. It is a delicate tale that balances itself between the generations, revealing their strengths and weaknesses in times of trouble. It is also a story about how roles within a family can change when things become challenging, due to sickness or death, allowing some to grow and others to fade. Ultimately, this is a book about life; full of humour and absurdity as well as sadness, and set against an everyday background where the ordinary takes on new significance and colour. Tea Tulic’s debut novel is a brave glance at the human condition. (Publisher)

Cover image of 'Having a bad hair day'

Having a bad hair day (2017)

Davison CC

“Tomorrow, you will feel a little bit better.” From a loving childhood, belonging to a large family with no history of breast cancer, Clare was alarmed at age 42 to accidentally discover she had the disease. As a self-employed single mum, Clare documents her memoirs of personal experience and knowledge of the cruel decisions made for the aggressive treatments and hair loss ahead. With an inner strength of humour, Clare’s first book includes her lunch arrangements with Peter Andre, a cake nationally released in her honour, an experience of public speaking, media attention and continued fundraising with a moving excerpt from her son. (Publisher)

Cover image of 'Big tree is sick'

Big tree is sick (2017)

Slosse N, Del Moral R (illustrator), Smid E (translator)

Snibbles and Big Tree are best friends! They have always hung out together, and Snibbles loves Big Tree very much. When Big Tree unexpectedly falls ill with woodworm, Snibbles is very upset and angry. The illness is a very bad one and Big Tree does not feel well and doesn't want to play for a long time. Poor Snibbles! He wants Big Tree to get better, but he feels as if there is nothing he can do. What can Snibbles and his friends do to help Big Tree through his treatment and recovery? This beautifully illustrated storybook describes the anger and emotion that many children encounter when a close relative or friend is diagnosed with a long-term illness, such as cancer. The story of Big Tree depicts how things are often out of your control and sets out effective strategies for dealing with these emotions. This story features loveable characters and vivid illustrations, as well as activities for children aged 5+ to complete with their parents or professionals in times of illness and loss. (Publisher)

Cover image of 'Financial support - benefits [Bengali]'

Financial support - benefits [Bengali] (May 2017)

Macmillan Cancer Support

This factsheet is about claiming benefits if you are ill, disabled or have a low income. 

Cover image of 'Understanding advanced melanoma'

Understanding advanced melanoma (February 2017)

Macmillan Cancer Support

Information for people with advanced (metastatic or secondary) melanoma. The booklet describes advanced melanoma, the signs and symptoms, diagnosis and staging, and the treatment options. It also discusses coping with the symptoms of advanced melanoma and the side effects of treatment, feelings and emotions and lists further sources of support.

Cover image of 'Understanding breast screening'

Understanding breast screening (March 2017)

Macmillan Cancer Support

This booklet aims to help women understand why breast screening is carried out, the methods used, and what happens if an abnormality is detected. The advantages of screening as well as the difficulties are described. Includes details of useful organisations and other resources such as books and websites.

Cover image of 'Giving up smoking'

Giving up smoking (June 2017)

Macmillan Cancer Support

A booklet for people who are living with, or after, cancer and who would like to give up smoking. It has information about the benefits of quitting, and practical advice about how to stop smoking and stay stopped.

Cover image of 'Holistic needs assessment. Planning your care and support'

Holistic needs assessment. Planning your care and support (May 2017)

Macmillan Cancer Support

This booklet explains what assessment and care planning is and describes what to expect from the appointment, where and when the appointment may take place, and how to prepare for the appointment.

Cover image of 'Your urgent referral explained'

Your urgent referral explained (March 2017)

Cancer Research UK

This leaflet helps patients who have been urgently referred with suspected cancer to prepare for their appointments and tests. 

Cover image of 'Understanding donor stem cell (allogeneic) transplants'

Understanding donor stem cell (allogeneic) transplants (February 2017)

Macmillan Cancer Support

This booklet has information about allogeneic (donor) stem cell transplants, which may be used to treat lymphoma, leukaemia, or myeloma. It describes what they are, why they are used, the treatment steps, preparing for treatment, collecting stem cells, the side-effects, and life after treatment. Includes details of other useful organisations and resources.

Cover image of 'Coping with hair loss'

Coping with hair loss (August 2017)

Macmillan Cancer Support

This booklet is about hair loss. It is for anyone coping with changes to their hair during and after cancer treatment. It explains how cancer treatment may affect your hair, how to prepare for and cope with hair loss, and what to expect after treatment finishes.

Cover image of 'What now? A practical guide for parents and carers'

What now? A practical guide for parents and carers (February 2017)

CLIC Sargent

A booklet for parents of children diagnosed with cancer.

Cover image of '#dearcancer: Things to help you through [Kindle]'

#dearcancer: Things to help you through [Kindle] (2017)

Derbyshire V

When journalist and broadcaster Victoria Derbyshire was diagnosed with breast cancer in 2015, she made the decision to share her experiences in a series of video diaries to help demystify cancer treatment. Overwhelmed by the response, Victoria set up a Facebook page inviting people to share their tories, talk openly about cancer and support one another. The result is this collection of writing from cancer patients and their loved ones. Whether you have recently been diagnosed with cancer, or a friend or relative has, everyone who has contributed to this ebook has been through the same journey, and hopes you will take strength from these 'things to help you through'. From practical tips on managing your treatment and your everyday life with cancer, to advice on understanding and dealing with the emotional rollercoaster that begins with diagnosis, this free resource is packed with hard-won wisdom and insight, at once useful and poignant. This exclusive collection is published ahead of Victoria Derbyshire's book, Dear Cancer, Love Victoria: A Mum's Diary of Hope. (Publisher)

Cover image of 'Understanding high-dose treatment with stem cell support'

Understanding high-dose treatment with stem cell support (April 2017)

Macmillan Cancer Support

This booklet has information about high-dose treatment with stem cell support, which may be used to treat different cancers, including myeloma, lymphoma, and some types of leukaemia. It can also be used as a treatment for other cancers, such as teratoma. It describes what it is, why it is used, the treatment steps, preparing for treatment, collecting stem cells, the side-effects, and life after treatment. Includes details of other useful organisations and resources. 

Cover image of 'Bone health'

Bone health (May 2017)

Macmillan Cancer Support

This booklet describes why bone health is important, the factors that affect the bones (including cancer treatments) and has guidance on how to maintain bone health (diet, physical activity). It also covers treatments, such as bisphosphonates. It does not cover problems related to primary or secondary bone cancer.

Cover image of 'Ten top tips for a healthy weight'

Ten top tips for a healthy weight (July 2017)

Cancer Research UK

Tips, based on scientific evidence, to help people control their weight by taking in fewer calories and using more energy. 

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