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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 1673

Cover image of 'Talking about cancer'

Talking about cancer (July 2017)

Macmillan Cancer Support

This booklet is about talking about cancer. It is for anyone who has a cancer diagnosis. It explains: the benefits of talking about cancer; how to overcome the things that make talking difficult; how to deal with other people’s reactions. It also has practical tips for talking and asking for support.

Cover image of 'Lymphoma'

Lymphoma (May 2017)

Lymphoma Association

This booklet covers what lymphoma is, the tests people might have, the treatments available, and questions to ask doctors.

Cover image of 'Veno-occlusive disease (VOD)'

Veno-occlusive disease (VOD) (August 2017)

Children's Cancer and Leukaemia Group

Veno-occlusive disease (VOD) is one of the less common but still serious complications which can occur during stem cell transplant (SCT). Veno-occlusive disease is not another illness, but a complication that affects the liver. This factsheet has been produced to help you understand more about VOD. The information given in this factsheet explains what VOD is and why it happens, how it is diagnosed, what the impact of it is, and how it is treated.

Cover image of 'Total body irradiation (TBI)'

Total body irradiation (TBI) (August 2017)

Children's Cancer and Leukaemia Group

This factsheet is written for young people with cancer, or parents of a child with cancer, who are receiving total body irradiation (TBI), as part of their conditioning therapy for a stem cell transplant (SCT). It explains TBI, including where you will have your radiotherapy, how the radiotherapy will be given and the side effects that may happen. 

Cover image of 'Permanent seed brachytherapy'

Permanent seed brachytherapy (January 2017)

Prostate Cancer UK

This factsheet describes how permanent seed brachytherapy may be used to treat prostate cancer, who can have it, the advantages and disadvantages, what happens after treatment, and the possible side effects. It does not describe external beam radiotherapy or high dose rate brachytherapy.

Cover image of 'My prostate. What changes should I look out for? [Easy read]'

My prostate. What changes should I look out for? [Easy read] (September 2017)

Prostate Cancer UK

This booklet uses easy words and pictures to explain what the prostate is, how to spot a prostate problem, and what to do next.

Cover image of 'What you can do to help yourself [Russian]'

What you can do to help yourself [Russian] (September 2017)

Macmillan Cancer Support

This factsheet has information about things you can do to help yourself when you have cancer. Includes the English-language version.  

Cover image of 'What you can do to help yourself [Punjabi]'

What you can do to help yourself [Punjabi] (September 2017)

Macmillan Cancer Support

This factsheet has information about things you can do to help yourself when you have cancer. Includes the English-language version.  

Cover image of 'Graft versus host disease (GvHD)'

Graft versus host disease (GvHD) (August 2017)

Children's Cancer and Leukaemia Group

Graft versus host disease (GvHD) is a complication of donor (allogeneic) stem cell transplantation (SCT), in which the cells from the stem cell donor (graft) react to the cells in the patient (host). This factsheet has been written to help you to understand how GvHD may affect you/your child and what possible treatments there are. The factsheet will complement the information given by the nurses and doctors who make up your stem cell transplant (SCT) team. They will be able to give you information specific to you, and will always be very happy to answer any questions you might have.

Cover image of 'What you can do to help yourself [Romanian]'

What you can do to help yourself [Romanian] (September 2017)

Macmillan Cancer Support

This factsheet has information about things you can do to help yourself when you have cancer. Includes the English-language version.  

Cover image of 'What you can do to help yourself [Gujarati]'

What you can do to help yourself [Gujarati] (September 2017)

Macmillan Cancer Support

This factsheet has information about things you can do to help yourself when you have cancer. Includes the English-language version.  

Cover image of 'Travel and cancer'

Travel and cancer (April 2017)

Macmillan Cancer Support

This booklet is for people with cancer who would like to travel. It covers issues such as insurance, vaccinations and immunisations, avoiding health problems, taking care in the sun, taking medicines abroad, and stoma care. Includes details of useful organisations.

Cover image of 'A guide for young people looking after someone with cancer'

A guide for young people looking after someone with cancer (October 2017)

Macmillan Cancer Support

Booklet for young people aged under 18 who are looking after someone who has cancer. It has been written by young people who have been through the experience and covers some of the practical issues young carers may face.

Cover image of 'What you can do to help yourself [Portuguese]'

What you can do to help yourself [Portuguese] (September 2017)

Macmillan Cancer Support

This factsheet has information about things you can do to help yourself when you have cancer. Includes the English-language version.  

Cover image of 'Fatigue'

Fatigue (October 2017)

Pancreatic Cancer UK

This fact sheet is for people with pancreatic who have fatigue. It explains what fatigue is, what causes it, how it can be managed, and the support available.

Cover image of 'Fluorouracil (5-FU)'

Fluorouracil (5-FU) (May 2017)

Pancreatic Cancer UK

A factsheet for anyone who would like to find out more about Fluorouracil (5-FU) chemotherapy to treat pancreatic cancer. It has information about how 5FU is given and the side effects.<!-- ?xml:namespace prefix = o ns = "urn:schemas-microsoft-com:office:office" ? -->

Cover image of 'End of life [Urdu]'

End of life [Urdu] (January 2017)

Macmillan Cancer Support

This factsheet is about what happens at the end of life and how to prepare for it. Includes English language version.  

Cover image of 'End of life [Welsh]'

End of life [Welsh] (January 2017)

Macmillan Cancer Support

This factsheet is about what happens at the end of life and how to prepare for it. Includes English language version.  

Cover image of 'End of life [Hindi]'

End of life [Hindi] (January 2017)

Macmillan Cancer Support

This factsheet is about what happens at the end of life and how to prepare for it. Includes English language version. 

Cover image of 'Living with cancer. A step-by-step guide for coping medically and emotionally with a serious diagnosis'

Living with cancer. A step-by-step guide for coping medically and emotionally with a serious diagnosis (2017)

The Johns Hopkins University Press

The prospect of entering treatment is overwhelming for anyone facing a diagnosis of cancer. While patients have access to a vast amount of medical information online, this advice is often unreliable or confusing. In Living with Cancer, Drs. Vicki A. Jackson and David P. Ryan have crafted the first step-by-step guide aimed at helping people with this life-defining disease grasp what’s happening to them while coping physically and emotionally with cancer treatment. An empathetic resource full of relatable patient stories, this book teaches patients and caregivers how to ask the right questions to get the best possible care―beginning at the moment of diagnosis. Drs. Jackson and Ryan explain how to work with a team of doctors and nurse practitioners to minimize symptoms and side effects while living as fully as possible in the face of cancer. They relay important information about understanding prognosis, and they translate what doctors mean when they describe tests, treatments, and medical procedures. Finally, they discuss hospice care and answer questions about continuing treatment and managing the final phase of life. Based on new research and a groundbreaking program in which patients are treated with palliative care―along with the best cancer care―during the course of their illness, this honest and caring book provides the right advice to use at the right time throughout a journey with cancer. It allows a person with cancer to concentrate on living the best life possible, despite an uncertain future. Patients at every stage will find Living with Cancer a comprehensive, thoughtful, and accessible guide for navigating the illness and its treatment. (Publisher)

Cover image of 'End of life [Arabic]'

End of life [Arabic] (January 2017)

Macmillan Cancer Support

This factsheet is about what happens at the end of life and how to prepare for it. Includes English language version.

Cover image of 'End of life [Polish]'

End of life [Polish] (January 2017)

Macmillan Cancer Support

This factsheet is about what happens at the end of life and how to prepare for it. Includes English language version.  

Cover image of 'What you can do to help yourself [Bengali]'

What you can do to help yourself [Bengali] (September 2017)

Macmillan Cancer Support

This factsheet has information about things you can do to help yourself when you have cancer. Includes the English-language version.  

Cover image of 'End of life [Russian]'

End of life [Russian] (January 2017)

Macmillan Cancer Support

This factsheet is about what happens at the end of life and how to prepare for it. Includes English language version.  

Cover image of 'End of life [Punjabi]'

End of life [Punjabi] (January 2017)

Macmillan Cancer Support

This factsheet is about what happens at the end of life and how to prepare for it. Includes English language version.  

Cover image of 'End of life [Bengali]'

End of life [Bengali] (January 2017)

Macmillan Cancer Support

This factsheet is about what happens at the end of life and how to prepare for it. Includes English language version.

Cover image of 'End of life [Gujarati]'

End of life [Gujarati] (January 2017)

Macmillan Cancer Support

This factsheet is about what happens at the end of life and how to prepare for it. Includes English language version.

Cover image of 'Tommy v cancer.  One man's battle against the big C'

Tommy v cancer. One man's battle against the big C (2017)

Independently published

On Thursday, 10th of March 2016, I returned home from a hospital appointment and broke the news to my wife and children. I had throat cancer. Stage four. Inoperable. Desperately needing some way to make sense of my situation, I set up a blog to chart my battle against the disease. I hoped it would allow me to understand more about this thing inside me, and what I would have to go through in terms of treatment to try to eradicate it. I also thought it might help other people who found themselves in similar circumstances. I made a promise to my readers to be open and honest all the way. I wouldn't hold anything back, no matter how unpleasant. Now, over a year later, I have adapted that blog into this book. It details my journey from when I first realised that something was wrong, through the intense courses of chemotherapy and radiotherapy, to where I am today. To say that journey was difficult is a vast understatement. The side effects of my treatment utterly kicked my arse, causing me to lose over half my bodyweight and fall seriously ill with double pneumonia and sepsis. Totally unresponsive, I was rushed into intensive care where the doctors told my family that, if they couldn't stabilise me, I had approximately two hours left to live. One option was to put me into a medically induced coma, although the chances were high that I would never emerge from it. Imagine someone telling you that about your loved one as they lie there, unconscious and struggling to breathe. Cancer is an invader that affects more than just the patient. Everyone suffers - spouses, siblings, children, extended family, friends. Even, as I was to discover, strangers from all over the world. I was overwhelmed with the love and kindness of almost everyone who contacted me, but I also suffered terrible abuse at the hands of online trolls. I should warn you that parts of this book do not make for easy reading. I kept my promise to be honest, and wrote many of the blog entries when I was depressed and scared, certain I wouldn't live to see another dawn. I convinced myself that I would quickly perish, leaving my wife and two sons - then aged 9 and 17 - alone, and with no-one to protect them or provide for them. I wouldn't get to see them grow up, develop into young men, and eventually have children of their own. The prospect terrified me. For those of you who followed my blog and read the posts as I uploaded them, you haven't seen everything. This book c

Cover image of 'Nab-paclitaxel (Abraxane®)'

Nab-paclitaxel (Abraxane®) (August 2017)

Pancreatic Cancer UK

This factsheet is for anyone diagnosed with pancreatic cancer who would like to find out more about nab-paclitaxel chemotherapy to treat pancreatic cancer. It provides information about how nab-paclitaxel is given and the side effects.

Cover image of 'End of life [Portuguese]'

End of life [Portuguese] (January 2017)

Macmillan Cancer Support

This factsheet is about what happens at the end of life and how to prepare for it. Includes English language version.  

Cover image of 'Fat necrosis'

Fat necrosis (December 2017)

Breast Cancer Care

This leaflet explains what fat necrosis is, how it is found, treatment and follow up.

Cover image of 'Metastatic spinal cord compression (MSCC)'

Metastatic spinal cord compression (MSCC) (August 2017)

Prostate Cancer UK

This factsheet is for men with advanced prostate cancer that has spread to the bones. It explains what metastatic spinal cord compression is and describes the risk of developing it, the symptoms and the treatment options.

Cover image of 'Breast awareness and screening'

Breast awareness and screening (May 2017)

Action Cancer

This leaflet describes when and how to check the breasts for changes and what to look for. It briefly explains what a mammogram is. Contains information on local services and describes the work of Action Cancer in Northern Ireland.

Cover image of 'Docetaxel (Taxotere)'

Docetaxel (Taxotere) (November 2017)

Breast Cancer Care

This factsheet explains briefly what Taxotere® is, when it may be prescribed, how it works, the benefits, and possible side-effects.

Cover image of 'Financial support - benefits [Urdu]'

Financial support - benefits [Urdu] (May 2017)

Macmillan Cancer Support

This factsheet is about claiming benefits if you are ill, disabled or have a low income. 

Cover image of 'Paclitaxel (Taxol)'

Paclitaxel (Taxol) (November 2017)

Breast Cancer Care

This factsheet explains briefly what Taxol® is, when it may be prescribed, how it works, and the possible side-effects.

Cover image of 'Financial support - benefits [Welsh]'

Financial support - benefits [Welsh] (May 2017)

Macmillan Cancer Support

This factsheet is about claiming benefits if you are ill, disabled or have a low income.

Cover image of 'Financial support - benefits [Polish]'

Financial support - benefits [Polish] (May 2017)

Macmillan Cancer Support

This factsheet is about claiming benefits if you are ill, disabled or have a low income.

Cover image of 'Financial support - benefits [Arabic]'

Financial support - benefits [Arabic] (May 2017)

Macmillan Cancer Support

This factsheet is about claiming benefits if you are ill, disabled or have a low income.

Cover image of 'Financial support - benefits [Romanian]'

Financial support - benefits [Romanian] (May 2017)

Macmillan Cancer Support

This factsheet is about claiming benefits if you are ill, disabled or have a low income.

Cover image of 'Financial support - benefits [Russian]'

Financial support - benefits [Russian] (May 2017)

Macmillan Cancer Support

This factsheet is about claiming benefits if you are ill, disabled or have a low income. 

Cover image of 'Financial support - benefits [Punjabi]'

Financial support - benefits [Punjabi] (May 2017)

Macmillan Cancer Support

This factsheet is about claiming benefits if you are ill, disabled or have a low income. 

Cover image of 'Financial support - benefits'

Financial support - benefits (May 2017)

Macmillan Cancer Support

This factsheet is about claiming benefits if you are ill, disabled or have a low income.

Cover image of 'What you can do to help yourself [Chinese, Traditional]'

What you can do to help yourself [Chinese, Traditional] (September 2017)

Macmillan Cancer Support

This factsheet has information about things you can do to help yourself when you have cancer. Includes the English-language version.  

Cover image of 'Financial support - benefits [Gujarati]'

Financial support - benefits [Gujarati] (May 2017)

Macmillan Cancer Support

This factsheet is about claiming benefits if you are ill, disabled or have a low income.

Cover image of 'Financial support - benefits [Bengali]'

Financial support - benefits [Bengali] (May 2017)

Macmillan Cancer Support

This factsheet is about claiming benefits if you are ill, disabled or have a low income. 

Cover image of 'Your smear test results [Urdu]'

Your smear test results [Urdu] (2017)

NHS Health Scotland

Information for women about their cervical screening test results, including: the letters that may be received; what happens at the colposcopy clinic; treatment; what causes changes in the cervix.

Cover image of 'Financial support - benefits [Portuguese]'

Financial support - benefits [Portuguese] (May 2017)

Macmillan Cancer Support

This factsheet is about claiming benefits if you are ill, disabled or have a low income.

Cover image of 'Your smear test results'

Your smear test results (2017)

NHS Health Scotland

Information for women about their cervical screening test results, including: the letters that may be received; what happens at the colposcopy clinic; treatment; what causes changes in the cervix.

Cover image of 'Your smear test results [Polish]'

Your smear test results [Polish] (2017)

NHS Health Scotland

Information for women about their cervical screening test results, including: the letters that may be received; what happens at the colposcopy clinic; treatment; what causes changes in the cervix.

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